Autism The Face Of Recovery

[aeesonline]

Hello and thank you SO MUCH for your reply.

Your videos give us HOPE. When watching Jake role his eyes to one side, tears just came out of our eyes. Our does EXACTLY the same thing.

My 5 year old (Thomas) has 10 hours of Therapy per week (Speech & cognitive behavioral therapy). Did jake have any therapy?

The injections (by way of an IV) contain phospholipids, glutathione, folate and vitamin B12. Is this the same treatment Jake had?

THANKS!!!

[PhilCommander2]

@aeesonline

The only therapy Jake ever had was me doing about 20 hours of RDI with him. I didn't have a therapist or anything and just followed the RDI books. Jake didn't have those IVs.

Glad to help!!!

[aeesonline]

God Bless you my friend! Jake is beautiful. We admire your dedication.

My Son (5 years old) has PDD (ns) He basicaly has no speech and does not integrate with other children. We had him on the GFCF diet for aprox. 5 months but did not help at all.  We are going to fly him up the US to get him Intravenous Phospholipid glutathione, folic acid and vitamin B12. My question is: Given thath the GFCF did not work, does it mean that the shots won't work either? Is Jake still on the GFCF diet? thx!

[PhilCommander2]

@aeesonline

Jake is no longer on the diet and I don't think that just because someone doesn't respond to a dietary intervention that they can't benefit from supplements like MB12 or Glutathione.

[dingledorf1]

A miracle 6 month prior to that and then a *FLASH* what does it say?

[Rmccic]

Thank you so much. My brother has autism so this will help

[dorotheaeli1]

WOW!!!

[blrenx]

Wow He is lucky to have you ! and your blessed to have him.

[KimberlyMahurin]

Phil this is so darling! My son , now 10 has finally started back and forth conversation. He is asking lots of questions! Some kids take longer to verbally communicate well in conversation. Others verbalize perfectly but have huge behaviors.

[diatplay]

Hi Phil...we got a grant for HBOT and have just begun it for two of our kids - Matt now 3 1/2 and Emma now 20 mo. Wmm has never had a formed stool since DTAP, Matt we lost after the MMR...thoughts on HBOT?

[PhilCommander2]

we tried hbot but personally didnt see anything. but thats just me and my sons story, many people claim they did see results. i appreciate your comment but if i could offer (hopefully you will view it as contructive) criticism. You havent really lost your son. maybe the vaccinations had a very bad effect on him and even a devestating effect on his abilities...but he still is the same son you had prior to the mmr shots. to say you lost him implies that what you now have really isnt your son.

[WrldsBestDad]

Very inspirational. Thank you for sharing. Your vids are a big help.

[snorodent]

I caught the issues with my son very early because I was educated early. intervention at 17 months for speech and GFCFSF/ stopped vaccines by two. I seriously believe I saved him from progressive damage. Its all forward from here. In a few months he will be going into a class for kids like him, because I am lucky enough to live in a small town with a big focus on Early Intervention. Jake is Awesome! His recovery is unbelievable.

[springrobin]

debateable etc etc stuff as in most I.E.P.'s Am I the only one who'd like to see a make over of the I.E.P. and I.E.P. meeting???

[PhilCommander2]

sadly, i think that most parents who go to IEP meetings just want to hand their kids to the school and say "Here, you do the work".

I think the teachers have no interest in educating parents when the parents have no interest in being educated.

[springrobin]

sadly often the reality. I've been teaching over 20years (btw am auti myself, parent of and sibling of)& sadly I have lost faith in the public ed. system seems hopelessly broken & impossible to invigorate with the best of combined therapies we know work. I feel I have to leave & create my own program but hate in one sense to do so cos the best of therapies should be available to all.

[springrobin]

this is the first vid of yours I've seen will watch the rest. As a teacher of aut. i wish I could take all those I.E.P.'s and rewrite some sense into them. "Jake DOES NOT communicate"!!! yes He did always, does and will do better as us all. Yeah I get the pt. there are "deficits but who are we educating with that pt.? the parents? the teacher? Who's the I.E.P. really for? Anybody out there for a cure for badly written I.E.P.s'? never heard so much ptless, hurtful, negetive, freqly inaccurate,

[BAMOMMY2]

This one was my Favorite yet OH MY GOD hes Beautiful Love him .You Know He has made it phil, you have the best son a father can ask for.I was crying my heart hrut but in a good way because i WILL be ther soon.Love you guys tell the girls the FEDEROWs from Miami say hi.

[KoDKingVegeta]

This video is an inspiration. He's come so far. My son hasn't been diagnosed officially with autism, but it felt like I was looking at him when you showed videos of him when he was little. My son is two now and acts almost the same way your son did. I just started watching you videos today and watched about almost all of them and you've already helped me with some things I was going through in my head. Thank you.

[sunclov]

A lot of Autistic people take offense at the concept of a "Cure". They take it personal, but A WHOLE GENERATION of autistic people is not normal or exceptable. We should try and believe and fight to help these folks improve their quality of life.

It's just too bad these supplements are so expensive.

[coopers3scc]

Thanks AGAIN!!! Your Youtube videos are one suggestions I give parents with a child newly diagnosed with autism! You're information is great! Jake reminds me so much of my little man.  He's 7 in a general ed first grade class doing great!!! At 3 he was "non-testable" according to the professionals. I'm soooooo very proud of him!!!!! Thank you for sharing Jake and your story with us! Way to go Jake!!!!!

[absurdjen]

Phil, you must be SO PROUD of your son! Great job on being the best dad you can be--you are a serious inspiration to us all.

[limeslimey]

Good to see your son doing great. Missed your videos by the way. Hmmm. The way my parents got me more communicative was to get me involved in silly word games that did not bother me that much because I and my whole family have a really weird sense of humor.

I also think phonics helped.

[Happyautism]

Hey there Phil, great to see you again.

Since attending special school my lads have come on so much. Doing things we never thought possible. Now we KNOW ANYTHING is possible :D

There IS hope out there & this needs to be seen, how parents come to this view doesnt matter, its the fact that hope holds out & things CAN get better.

Great to see Jake at the end segment, conversing & may I say he has a better vocabulary than me! Proud of you Jake & I dont know you!

sorry if this post x2

[godzghoti]

I'm glad you're going to be putting up a new series. But this will be the last PhilCommander has to say about autism on YouTube? Sad times. What can we, our loyal viewers, expect to see from you in the future?

Thanks for sharing your journey with us! I know it's been a long, hard road to travel to get to this point, but Jake's journey has just begun! I look forward to updates!

[unitedmonkie]

(c) once again phil, you & your family are an inspiration. jake, little dude, more power to you..you will fully understand just how amazing your recovery is the older you get and it will blow you away..

god bless & long distance hugs'n'high-fives to the phil-fam for being so awesome and sharing the journey with us,

m.

[unitedmonkie]

okay, sitting here crying now. my little guy has his 6th birthday in a few days and cannot yet speak..it's strange feeling hopeless while at the same time having lots of hope and knowing you will *never* give up..we're actually going to be getting him some more supplements just as soon as we are able to.

(tbc..)

[caitlinandlissa]

you have done a wonderful job with your son, i have been watching your post for a long time and am so happy for you and jake...my son is a long way from jakes progress but we have faith he will get better with all the interventions

[doulostheou777]

Thanks for putting this video up, and glad to see Jake making progress. Our son who is seven has autism too and we have gone down the biochemical route also. GFCF diet, yeast treament and EPA have shown the biggest improvements. Still to try enzymes and B12. Keep up the good work and look forward to more videos.

[liamjakesmum]

Great progress. I love the conversation at the end!

[twinky2jess]

jake-e has come such a long way!

I love that lil guy! He is truly an inspirational little boy.

I hope one day to play catch with my son too :)

Please keep the videos coming!

[leoleponge]

testing 1,2,3

[rainbowmummy]

I can hear you in the back, lol.

[leoleponge]

OK, usually, I am blocked, not sure why, maybe because I had Christschools video of Eye Contact. It is a touchy subject to Phil but you also should learn about why people has non-eye contact.

[rainbowmummy]

Is that the CS vid you have up now? i ,ove that one! Don't get me started on eye contact.

philcommander i think we have different views on asd.

[leoleponge]

No, it was a different video, one CS did on his views of eye contact. Not that I don't believe that children should learn it, they should but there are reasons why they don't.

I like the music on this video. Jake is cute too and has progressed quite a bit, so has my son but I haven't done any biochemical intervention.

[rainbowmummy]

We might be different on that, I will only give/recieve eye contact if it is desired, I actually found a load of CS vids on line, I will send you the address if you like. I have been in tears already.

[leoleponge]

Yes please for the address. TY

[nervousneuron]

Nice! Glad to see some more videos from you :)

[666sigma]

The boy's got good hands. I'm not sure about Daddy's (I assume) arm.

[iliciaq]

I hope one day my baby can catch a football and ride a bike.... and ask questions... hold a conversation...we will work on all that though.

[iliciaq]

Hey Phil! Just wanted to say thank you for all your videos. I really appreciate what you are doing. My son has benefited from your WH questions and he is learning to read at an alarming rate! I am so happy and proud of him. His speech therapist is "shocked" at his comprehension of questions and answers and his sense of humor. Thank you so much!

[smcnary]

Phil,

I love how you love and care for your son. Please always keep doing this for him, as he will continue to need you throughout his life. I am a mom of 2 ASD boys, ages 13 and 11. Mine are recovered for the most part; my experience is that once the bodies are healed the social deficits become more of a priority and require compassion, patience, support and continued intervention. God bless you and your family! Jake is awesome!

[KnoxvilleJavaGirl]

Great!!!!!!!!!!!! I loved it! I will use this as a reference for newbies that come my way. Thanks, Phil!

ps....I have a daughter in the process of recovery...you may view her at my youtube account.

[mommyrn2]

Thank you so much for all your hard work and for being such an inspiration. Jake has won my heart...keep up the good work.

[Skymaker69]

Thats great! Well done, what an amazing catch! I love the Easter egg hunt and most of all how Jack is expressing himself and has a conversation with you; a lot of skills are in place and this is really fantastic. I have witness progress like these with many other children, not my son though, but that does not change my loving and supporting attitude. Well done.

[chumkiu62]

I am happy to see the subsequent advancements in your sons

abilities, and I am happy to see how you are engaged in his life.

[jon2xu]

Hey Phil great vid!!!!! Jake can catch a football. He keeps his eyes on the ball. Looking forward to your next vid.

[whitequeen96]

Thank you for posting this; I really needed it right now. My DS11, mild autism, has recently become very aggressive and his cognitive function seems to have decreased. I am just girding up for some serious bio-medical interventions, as well as ramping up the behavior management. It's so good to see such success with your son; it gives me hope!

[thrillcats]

Great job Phil!!!!!

Catching those footballs really got to me. I'm crying like a baby too.

Your son reminds me a lot of my son (you have probably seen that). How amazing this whole thing is huh? Great job on never giving up!

Take care- Christine

[cd30613]

Excuse me while I compose myself after several minutes of crying. Phil, that was wonderful I am so happy for Jake and the rest of your family. Congratulations on everything. You guys are a great inspiration to all of us with ASD children. Thanks so much for the videos!

[sandwin85]

This is an excellent video! I've been watching your videos. This inspired us to try B-12 with our son, Jack now 8. We saw nice language improvements so far. ability to have a longer conversation. Increased cognitive skills and EMPATHY!!

This is very exciting. Thank you for sharing your story.

We will keep watching!

[shav0nne]

Does he attend speech therapy or occupational behavioral therapy? My son does and omg has it made a difference. Hes like a completely different child now.

[shav0nne]

Oh yea and I'm still curious as to why the majority of autistic children are males. Have you noticed that?

[PhilCommander2]

Hi, Jake has speech therapy in school and it is helping him to improve. His speech is an area that does need work and I feel that by his early teens it should be pretty much normal. There are issues with enunciation and it is still slightly monotone still. Again, I feel these issues will eventually disappear.

I personally feel that whatever chemical differences there are between boys and girls is the root cause for more boys having autism. Maybe estrogen vs. testosterone or something like that.

[PhilCommander2]

But maybe more boys have autism due to a difference in early brain development. Boys and Girls brains develop slightly differntly early on...maybe it has something to do with this. There are also some slight differnces in the brains themselves...some of which are thought to be in the areas of the brain that deal with math.

Actually i am now TOTALLY interested if girls with autism show a tendency to be accelerated in math like many autistic children are.

hmmm...gonna research this!

[nervousneuron]

Good question! My hypothesis is that it's oxytocin (a hormone involved in female smooth muscle contraction, now found to be important in the brain to facilitate social interactions and trust) involved, possibly 'alleviating' some of the symptoms in girls.

Then again, because of my research interest, I say oxytocin in important in everything!

[nervousneuron]

Might answer my own comment: Doing a quickee search on Ovid, a scientific journal database, there are 47 articles on autism an oxytocin. The first few in 1999-2001 looking at genesan their peptides. Then the whole oxytocin, trust and social interactions thing really took off last year. It's even getting suggestions as a 'novel treatment for autism'.

[nervousneuron]

I know there are a few clinical trials for oxytocin to treat social anxiety in males around my uni.

It also works in rats :)

[Ninette111]

Your doing an awesome job! My son has PDD-NOS, and he is VERY high functioning and we are always looking for more ways to help him.

i have a few vids of him on my youtube as well.....some of hism reading at 3 and 1/2 and another one of his car obsession. i look foward to more of your videos. keep up the good work.

[NunaFeedTheDucks]

The video made me cry Phil, not out of pity for Jack but tears of joy because of his progress. I applaud your hard work and dedication because it's all down to your excalent parenting. Sending my love to you all love Margaret x x x x

[NunaFeedTheDucks]

So sorry I Phill, "Jake" not jack. x x x

[Serge165]

I wish I could show some of the BS papers they had on me on Youtube, if anyone from here met me in person, they'd probably laugh their asses off

[ThatDyslexicGuy]

"OMG" I love King's of Leon...

But any way I'm a big fan of you're vid & it's nice to see vid's about autism that don't have the word Fight or Save or Cure next to it,

By the way Me & My Bro have Asperger Syndrome & we are Dyslexic as well...

[PhilCommander2]

Thanks! Totally love kings of leon...i wish i could use one of their songs in every video!

[flangum]

I want to thank you for your courage in posting all of this. My son has high functioning autism and I can so relate to the challenges (and progress!) you have faced and celebrated. God bless you and your family.

[PhilCommander2]

Thankyou so much for your kind words :)