I had no feeling and no orgasm for 8yrs! It sucked cos I had no interest and it was hard for my partners. Ended realationships as they just cant comprehend how I cant feel anything. Thankyou for sharing
It's so refreshing to hear someone talk about this so honestly, thanks Kelly! It's so true!! Nearly destroyed my marriage of 20 years! There's nothing worse than to be a woman and to feel like an unfeeling receptacle! What it does to your self image and your sexuality is horrific, really!
Thank you for sharing! I was diagnosed with transverse Mylitis which is a lot like MS when I was 21. I have a lot of the same issues and this video helped my boyfriend understand me a little better.
thanks for sharing. although my ex was not affected that way. she had many other cognitive issues, which may be a far worse penalty. I guess as you said, it is experienced differently. thanks for explaining this nevertheless.
kelli, my name is Kim Johnson - and I could not have explained it better... I am in Yuma AZ - and was diagnosed with MS 7 years ago.... But according to the Doc I have had it much much longer. It is in my head and spin... I do not know anyone else with this, and my partner is great because he is sticking with me... he even has looked it up and helped me with my meds.... so great to hear you.
It's a terrible problem that adults are not really encouraged to experience non-sexual intimacy. We're touch starved and that turns into sex starved because that's our only outlet. so next time your girlfriend or boyfriend isn't in the mood when you are try calming down not taking it personally and cuddling. or maybe a back or scalp massage. conversation, recite poetry even if you're bad at it, even sing to eachother.
My wife is an MS-er. Aside from the up and down cycles where she sometimes has full sensitivity and feeling and then doesn't for a while, we had to deal with one other problem which you touched on - antidepressants. They put her on Paxil, and six months went by where she had NO EMOTION.
She was like a robot! We finally tried cutting the dose in half and suddenly the old her came back! Still we are very lucky - our intimacy is wonderful. Quality over quantity you know!
I would reommend the DVD called "sexuality Reborn" of which you can take out on loan free of charge from the christopher and dana reeve foundation. It's iformation is invaluable to anyone with a disability!! JennyO63
i must say kelli...im very open about my case to those who would like to understand...but good going girl!! how wonderful and brave of you to reach out to everyone on youtube :-D
alemtuzumab ... search that drug name for youtube videos. There is hope for us. If I can offer one other suggestion for stress relief.. Try self hypnosis and it could change how you deal with your MS completely. I did and it works.
The BBC reported a new drug for M S on 10-22-08 Does anyone know the name of this drug? It's claim is that it stops the progression of M S and even reverses M S in a lot of cases.
If you find the name of this drug you are talking about, please post it. I was only diagnosed 3 months ago and have been on Betaferon (think it's called Betaseron in the US & Canada) and it's supposedly the better drug of them all for remitting relapsing MS.
danielashithead, how dare you be so rude and insensitive?! You wouldn't have the faintest idea what it's like to have MS and how badly it can affect every aspect of your life. Have some respect.
Yes the positive comments are good but as someone who was diagnosed with MS I think that reinforcing the negative aspects only help serve those who choose to suffer. Right now I have severe sensory (numbness) problems but have a strong positive belief that all will be well very soon and i'll be back in the gym nex week.
Aim high and BELIEVE that there is always a bright side and your mind will take your body there too.
Stress and perpetual negative thinking are the cause of MS.
I am 14 years old and I do not have MS, but I am very interested in how it affects people, can you please tell me if the numbnes is permanant, and if it is all over? Or is it just sometimes in different places? Thankyou, and I wish well, and just try to keep your spirits up even when you do want to curl up in a ball and sleep for the whole year.
hey, i'm 15 and i don't have MS either but my mom does and i'm very involved with the MS Society and other stuff like that and i know a lot about the disease. to answer your question--numbness is different in everyone. my mom started out with just her left side and its kinda gone all over the place, others it is all over the place all the time, some its just in certain areas some of the time. im pretty sure it all varies depending on the person and what stage you are in.
my mom has ms 2 umm well and it started on her left sside 2 quinkadinkly hehe but she go REALLLLY bolistic nd yells a lot wen shes in a bad mood nd sleeps ALOT
omg! my mom goes crazy too!!! its HORRIBLE. its like she cant control herself. but what's really wierd is that she is tired during the day but has the worst time getting to sleep at night. she isnt as tired as every other person i hear of with MS.
I have watched you for a year now. I thank you SO MUCH - MS is a very strange, you look normal but it is hell inside. Please disregard all bad comments, they just don't know. I do and you have been an inspiration - I have used your videos to explain to other people, keep it up.
thank you for posting this video,I have met a girl with MS on a dating site,and I'd like to date her,but I wanted to learn about MS so that I know how to behave. I have ME so the symptoms that you described,are not extraneous to me,although I am pretty sure MS and ME is not the same thing. Thank you Kelli, you did a great job and I feel I have learned something from you.
hi. i hope i dont seem like an annoying kid budding into your business but my mom is single and has MS and she has to deal with telling the guys she gets close to about her MS. she is ALWAYS so afraid that the men are going to treat her differently after she tells them. she lets them get to know her first to show them that she is normal. i'm just speaking from personal experience-kind of- but i dont think the fact that the woman you know has MS should effect the way you treat her. thank you.
This comment has received too many negative votesshow
... c'mon girl, .... your "body language" is betraying you!... in all of your "nice" comments.... it looks to me as you haven't had "any" in a while, ... you're suffering, you're down... whatever... so, what are you waiting for???? - go out, have fun, ... let some hot dude lick & fuck you good....., that's what you need! - and I wish you GOOD LUCK!
This lady is bearing her soul and going out on a limb to share her hardship with others who may be going through the same thing.I don't want her to get discouraged about posting videos because it helps to connect with others going through the same thing you are.I don't know what your intentions are with your comments,but if you where going through what she described,I think you would be a little more understanding and careful with your choice of words.
your a great person trying to help others with ms i was diagnosed 5 months ago and yes im 14 my sex thrive is going beserk with puberty and ms at the saem time its difficult but i can deal with it
Glad to see this topic addressed. I feel so inadequate sometimes as I know I'm pretty much just a body for my husband in some respects. It took time for him to understand, but now he knows it has nothing to do with him and him not doing something right. The big "O" just doesn't happen anymore. And my legs flopping around . . . Thank goodness he's such a love. Glad to know I'm not alone.
Thank you for sharing this for all of us who are going through it. I have actually cried during intimate times, due to the fact that I couldn't do anything. Fatigue was too bad :( But I'm glad that you were able to talk about what a lot of people don't want to talk about. You were dead on for me
Hey thanks for this video. We all are not alone! I'm 35 and Male. My wife and I have this issue in our lives but we have been married now for 16 years and if God wants to allow it we will be married for many years to come. God bless you all everyday. Thanks again for posting this video for all of us with M.S.
great vid, Kel, thank you. BTW, my urologist Rx'd Viagra for me (I'm female), just as an experiment to see if it might help the numbness. Viagra works by increasing blood flow to the genitalia. Wish I could tell you it worked, but it didn't. Gave me migraines, too.
Glad I found your channel. Hope you are doing as well as you can.
RealCujo 1 month ago in playlist More videos from kwazykelli
Rough. Only see it from the outside
doe702lv 1 month ago
I had no feeling and no orgasm for 8yrs! It sucked cos I had no interest and it was hard for my partners. Ended realationships as they just cant comprehend how I cant feel anything. Thankyou for sharing
joanie383 1 month ago in playlist More videos from kwazykelli
It's so refreshing to hear someone talk about this so honestly, thanks Kelly! It's so true!! Nearly destroyed my marriage of 20 years! There's nothing worse than to be a woman and to feel like an unfeeling receptacle! What it does to your self image and your sexuality is horrific, really!
globalpreparation 2 months ago in playlist More videos from kwazykelli
Thank you for sharing! I was diagnosed with transverse Mylitis which is a lot like MS when I was 21. I have a lot of the same issues and this video helped my boyfriend understand me a little better.
alisha3163 2 months ago
my wife and i watched this TY
danhudson101 2 months ago in playlist Uploaded videos
thanks for sharing. although my ex was not affected that way. she had many other cognitive issues, which may be a far worse penalty. I guess as you said, it is experienced differently. thanks for explaining this nevertheless.
VolatileDisposition 5 months ago in playlist More videos from kwazykelli
This has been flagged as spam show
You would like to cum surrounded by my sister benaughtyman.info
piumibotheju 1 year ago
kelli, my name is Kim Johnson - and I could not have explained it better... I am in Yuma AZ - and was diagnosed with MS 7 years ago.... But according to the Doc I have had it much much longer. It is in my head and spin... I do not know anyone else with this, and my partner is great because he is sticking with me... he even has looked it up and helped me with my meds.... so great to hear you.
datadatado 1 year ago
It's a terrible problem that adults are not really encouraged to experience non-sexual intimacy. We're touch starved and that turns into sex starved because that's our only outlet. so next time your girlfriend or boyfriend isn't in the mood when you are try calming down not taking it personally and cuddling. or maybe a back or scalp massage. conversation, recite poetry even if you're bad at it, even sing to eachother.
Cthorne81 2 years ago
This has been flagged as spam show
Nice work. keep it up. mean time come for social media marketing for esteembpo**com
rndllhllw 2 years ago
Oh you are so goin to hell, if there is one Tccote01.
ExNihiloJimmy 2 years ago
Kelli,U are awesome,real and cool to listen too.I will say more next time but I am way too tired to type anymore @4 am.
Wow I am normal, just livin w/MS Thx
Jonathan (Dx Since 99'
jbskj9 2 years ago
My wife is an MS-er. Aside from the up and down cycles where she sometimes has full sensitivity and feeling and then doesn't for a while, we had to deal with one other problem which you touched on - antidepressants. They put her on Paxil, and six months went by where she had NO EMOTION.
She was like a robot! We finally tried cutting the dose in half and suddenly the old her came back! Still we are very lucky - our intimacy is wonderful. Quality over quantity you know!
deepfreezevideo 2 years ago
This comment has received too many negative votes show
My friend has MS, he snorts washing powder. You should try that.
AresKrl 3 years ago
I would reommend the DVD called "sexuality Reborn" of which you can take out on loan free of charge from the christopher and dana reeve foundation. It's iformation is invaluable to anyone with a disability!! JennyO63
MS Society Patient Advocate
JennyO63 3 years ago
i must say kelli...im very open about my case to those who would like to understand...but good going girl!! how wonderful and brave of you to reach out to everyone on youtube :-D
sweetgirlBri8 3 years ago 2
It's kind of like cancer in a way isn't it. The body acting incorrectly
speakman7 3 years ago
alemtuzumab ... search that drug name for youtube videos. There is hope for us. If I can offer one other suggestion for stress relief.. Try self hypnosis and it could change how you deal with your MS completely. I did and it works.
ChucknMcNuggets 3 years ago
The BBC reported a new drug for M S on 10-22-08 Does anyone know the name of this drug? It's claim is that it stops the progression of M S and even reverses M S in a lot of cases.
BaknBegl 3 years ago
If you find the name of this drug you are talking about, please post it. I was only diagnosed 3 months ago and have been on Betaferon (think it's called Betaseron in the US & Canada) and it's supposedly the better drug of them all for remitting relapsing MS.
anebanane83 3 years ago
danielashithead, how dare you be so rude and insensitive?! You wouldn't have the faintest idea what it's like to have MS and how badly it can affect every aspect of your life. Have some respect.
anebanane83 3 years ago 7
This comment has received too many negative votes show
u look wierd.
danielashtiani 3 years ago
Yes the positive comments are good but as someone who was diagnosed with MS I think that reinforcing the negative aspects only help serve those who choose to suffer. Right now I have severe sensory (numbness) problems but have a strong positive belief that all will be well very soon and i'll be back in the gym nex week.
Aim high and BELIEVE that there is always a bright side and your mind will take your body there too.
Stress and perpetual negative thinking are the cause of MS.
jacob290999 3 years ago 3
I am 14 years old and I do not have MS, but I am very interested in how it affects people, can you please tell me if the numbnes is permanant, and if it is all over? Or is it just sometimes in different places? Thankyou, and I wish well, and just try to keep your spirits up even when you do want to curl up in a ball and sleep for the whole year.
XxX
VamLoveAndKisses 3 years ago
hey, i'm 15 and i don't have MS either but my mom does and i'm very involved with the MS Society and other stuff like that and i know a lot about the disease. to answer your question--numbness is different in everyone. my mom started out with just her left side and its kinda gone all over the place, others it is all over the place all the time, some its just in certain areas some of the time. im pretty sure it all varies depending on the person and what stage you are in.
LexiLynn80 3 years ago
Oh thanks! It's been bugging me for ages! I wish your mum well, and I hope you have a nice day. :)
VamLoveAndKisses 3 years ago
my mom has ms 2 umm well and it started on her left sside 2 quinkadinkly hehe but she go REALLLLY bolistic nd yells a lot wen shes in a bad mood nd sleeps ALOT
XxXkendramonroeXxX 3 years ago
omg! my mom goes crazy too!!! its HORRIBLE. its like she cant control herself. but what's really wierd is that she is tired during the day but has the worst time getting to sleep at night. she isnt as tired as every other person i hear of with MS.
LexiLynn80 3 years ago
I have watched you for a year now. I thank you SO MUCH - MS is a very strange, you look normal but it is hell inside. Please disregard all bad comments, they just don't know. I do and you have been an inspiration - I have used your videos to explain to other people, keep it up.
jwasko777 3 years ago
thank you for posting this video,I have met a girl with MS on a dating site,and I'd like to date her,but I wanted to learn about MS so that I know how to behave. I have ME so the symptoms that you described,are not extraneous to me,although I am pretty sure MS and ME is not the same thing. Thank you Kelli, you did a great job and I feel I have learned something from you.
luigiperso 3 years ago
hi. i hope i dont seem like an annoying kid budding into your business but my mom is single and has MS and she has to deal with telling the guys she gets close to about her MS. she is ALWAYS so afraid that the men are going to treat her differently after she tells them. she lets them get to know her first to show them that she is normal. i'm just speaking from personal experience-kind of- but i dont think the fact that the woman you know has MS should effect the way you treat her. thank you.
LexiLynn80 3 years ago
k66nyc ,what a moronic ignoramus you are. Really stupid and ignorant....
luigiperso 3 years ago
This comment has received too many negative votes show
... c'mon girl, .... your "body language" is betraying you!... in all of your "nice" comments.... it looks to me as you haven't had "any" in a while, ... you're suffering, you're down... whatever... so, what are you waiting for???? - go out, have fun, ... let some hot dude lick & fuck you good....., that's what you need! - and I wish you GOOD LUCK!
k66nyc 3 years ago
This lady is bearing her soul and going out on a limb to share her hardship with others who may be going through the same thing.I don't want her to get discouraged about posting videos because it helps to connect with others going through the same thing you are.I don't know what your intentions are with your comments,but if you where going through what she described,I think you would be a little more understanding and careful with your choice of words.
hoturtu87 3 years ago
You are a strong, beautiful woman. Thank you.
cfennis 3 years ago 2
Ginkgo Biloba extract has helped me a great deal in bed. And it also helps to deal with depression. That might be our miracle drug!!!
youtuba87 3 years ago
your a great person trying to help others with ms i was diagnosed 5 months ago and yes im 14 my sex thrive is going beserk with puberty and ms at the saem time its difficult but i can deal with it
thanks for the video :D
Lipplz 3 years ago 2
wow...kudos to you for being so open...
sdpguy1 3 years ago 4
Generous are the teachers.
How brave, attractive, pragmatic and honestly direct you are.
Good luck and love.
saintbarbara 3 years ago 5
Very good kelli. Thank you
ramblnrose 3 years ago 2
Glad to see this topic addressed. I feel so inadequate sometimes as I know I'm pretty much just a body for my husband in some respects. It took time for him to understand, but now he knows it has nothing to do with him and him not doing something right. The big "O" just doesn't happen anymore. And my legs flopping around . . . Thank goodness he's such a love. Glad to know I'm not alone.
mombisquet 4 years ago
((((HUG)))) thankyou so much im new to it all and dont have the support ur videos are helping me learn moreabout me
HuggableAngel 4 years ago
Kelly, I JUST LOVE YOU:)
UUCinc 4 years ago 2
Thank you for sharing this for all of us who are going through it. I have actually cried during intimate times, due to the fact that I couldn't do anything. Fatigue was too bad :( But I'm glad that you were able to talk about what a lot of people don't want to talk about. You were dead on for me
brannray 4 years ago
I know what you mean
jwasko777 4 years ago
Excellent. I do a lot of work regarding intimacy issues, and it's good to see someone else tackling the topic.
jesterspace 4 years ago
I do think the discovery health channel needs to give you your own show.
Dixiered03 4 years ago
Hey thanks for this video. We all are not alone! I'm 35 and Male. My wife and I have this issue in our lives but we have been married now for 16 years and if God wants to allow it we will be married for many years to come. God bless you all everyday. Thanks again for posting this video for all of us with M.S.
Jcrane722
jcrane722 4 years ago
great vid, Kel, thank you. BTW, my urologist Rx'd Viagra for me (I'm female), just as an experiment to see if it might help the numbness. Viagra works by increasing blood flow to the genitalia. Wish I could tell you it worked, but it didn't. Gave me migraines, too.
kasparcat 4 years ago
LuisM. Same problems although I am an older person than you. Live-day-to-day and try to "enjoy" as much as possible. Good luck!
Sefardisafran 4 years ago
This is such an important topic. Thanks for sharing and enlightening!
educator70 5 years ago