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I saw this program today on UWTV. My son, who is now 31, was born with a midline cleft and also had three encephaloceles. Dr. Gruss performed his last surgery at the age of 16. I would love to be able to talk to other parents who have been through this. Perhaps start a support group.
candice2466 2 months ago
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Gregmills007 10 months ago
wonder which insurance company they are with
lostangel912 1 year ago 3
Is there any way I could get in contact with this family? My son also was born with a mid face cleft with an encephalocele. He had the encephalocele repair at 1 1/2 years old. He is now 3 years old and we are interested in pursuing a team that would be able to preform this surgery.
dolphinsdive 2 years ago