i will get baclofen pump soon,maybe about 20-30 days but im still thinking do i really wanna do that or not,i really dont know what to do,im thinking that bp will make me crazy...can that thing do something wrong to you stomach?
@jelenic88 well, r u comfortable w/ the way u r now or is spasticity severely affecting ur life? y would it make u crazy? no, it doesnt affect ur stomach. it gets implanted in ur abdomen, not stomach.
@BCAD01 yes, i get pt. i love swimming, but unfortunately, i dont have a pool. i do usually swim when i get the opportunity but the water has 2 be quite warm otherwise my muscles tighten up badly.
good! i love 2 hear that!
exactly. only, im almost 21, so im not a kid, hehe.
That is a very cool chair... what exactly does it have? and how much is it? it looks very cool I'd like to know. Get back to me on this please. bye!!!
wow, you inspire me sooooo much. i have been so depressed & hating my life lately because i was recently diagnosed spasticity in my left arm & hand & leg pretty bad, & i'm a chemist, so i need my hands. i take oral baclofen too, along with botox injections. i just feel so hopeless :( how do you do it???
@powerchairchick Thats exactly how i feel i have C.P and its always been there but i count my blessings' its never stopped me from doing what i want! you can achieve anything you want with heart and determination bless you ;-)
You should hit the weights. Even without any working out you show signs that you can develop muscles with great ease. Someone may need to help you keep the weight straight as you lift, but after a while it will be second nature. Go for it. You also have nice shoulders.
Hi From Montreal,Quebec :) i've been strugling with depression and panik attacks for several years now .. seeing you working sooo hard like that inspire me to be stronger
hi, i'm from spain, you are an awersome person, and very beautiful, i'd hope that your improvements will increase, thank youfor make this videos. good bye!!
Awsome to see the improvement. Are the week by week impreovents mainly do to the increases in dose or does it improve as you "get used to it". Also are there any serious side effects that you have experienced. If so, would you say the benefits by far outweigh the negatives? One last question, is there much difference in the spasticity throughout the day? Wish you all the best!
due 2 the dosage increase. ive had no side effects other than abdominal pain & a bad spinal headache (a horrible stiff neck & headache when i sat up) 4 a week after the surgery. it also felt really weird bending over. it felt like the pump was hitting my rib.
its hard 2 tell if theres less spasticity. i would say yes, slightly. thing is, im dont just have spastic quad (tight muscles), i also have athetoid cp (wiggly, uncontrollable movements).
wow so much improvement..will you continue to do this, making videos every week because u are my insparation....will you every be able to talk? i take oral baclofin for leg spasms...this is going to saound weird but do you have an e-mail, i would love to just chat...like a pen pail
@12345whatever ur nickname is - go die.
@powerchairchick god bless girlie. From russia with love)
zloykotenok28 6 months ago
kill her a waste of a human being
1234548840 6 months ago
ur very nice
Paulydlover1000 1 year ago
i will get baclofen pump soon,maybe about 20-30 days but im still thinking do i really wanna do that or not,i really dont know what to do,im thinking that bp will make me crazy...can that thing do something wrong to you stomach?
jelenic88 1 year ago
@jelenic88 well, r u comfortable w/ the way u r now or is spasticity severely affecting ur life? y would it make u crazy? no, it doesnt affect ur stomach. it gets implanted in ur abdomen, not stomach.
powerchairchick 1 year ago
My good you make me think alot abut my live, my best for you sweetheart
DeeJayMontevideo 1 year ago
holy crap looks like it is working quite well....
dissturbbed 1 year ago
Wow, look at this beauty girl!!!
rebistudydk 1 year ago
Hi,powerchairchick! Do you get physical therapy and do you ever go swimming? From what I understand, water therapy is quite relaxing.
You did post earlier that you could walk with assistance. I gotta tell you that I have learned so much from you,young lady!
My impression is that you don't want pity and that to me is your strength. Just be treated like any other kid.
I think and read about what you say and really hits home. I'll bet you have lots of friends and I can believe that quite easily.
BCAD01 1 year ago
@BCAD01 yes, i get pt. i love swimming, but unfortunately, i dont have a pool. i do usually swim when i get the opportunity but the water has 2 be quite warm otherwise my muscles tighten up badly.
good! i love 2 hear that!
exactly. only, im almost 21, so im not a kid, hehe.
powerchairchick 1 year ago
That is a very cool chair... what exactly does it have? and how much is it? it looks very cool I'd like to know. Get back to me on this please. bye!!!
heavenessence1234 1 year ago
@heavenessence1234 wut do u mean by "wut exactly does it have?" r u disabled?
powerchairchick 1 year ago
wow, you inspire me sooooo much. i have been so depressed & hating my life lately because i was recently diagnosed spasticity in my left arm & hand & leg pretty bad, & i'm a chemist, so i need my hands. i take oral baclofen too, along with botox injections. i just feel so hopeless :( how do you do it???
lkeintz 2 years ago
did you try contacting an occupational or physical therapist? maybe they can recommend adaptive equipment to help you.
my disability occurred during birth. so, i know no other way of life. remember, things could be worse.
powerchairchick 2 years ago
@powerchairchick Thats exactly how i feel i have C.P and its always been there but i count my blessings' its never stopped me from doing what i want! you can achieve anything you want with heart and determination bless you ;-)
Rajalord27 1 year ago
You should hit the weights. Even without any working out you show signs that you can develop muscles with great ease. Someone may need to help you keep the weight straight as you lift, but after a while it will be second nature. Go for it. You also have nice shoulders.
bonchidude 2 years ago
Hi From Montreal,Quebec :) i've been strugling with depression and panik attacks for several years now .. seeing you working sooo hard like that inspire me to be stronger
diesel7803 2 years ago
hi, i'm from spain, you are an awersome person, and very beautiful, i'd hope that your improvements will increase, thank youfor make this videos. good bye!!
xokuiki1 2 years ago
thanks!
powerchairchick 2 years ago
Awsome to see the improvement. Are the week by week impreovents mainly do to the increases in dose or does it improve as you "get used to it". Also are there any serious side effects that you have experienced. If so, would you say the benefits by far outweigh the negatives? One last question, is there much difference in the spasticity throughout the day? Wish you all the best!
Vaterkrater 2 years ago
due 2 the dosage increase. ive had no side effects other than abdominal pain & a bad spinal headache (a horrible stiff neck & headache when i sat up) 4 a week after the surgery. it also felt really weird bending over. it felt like the pump was hitting my rib.
its hard 2 tell if theres less spasticity. i would say yes, slightly. thing is, im dont just have spastic quad (tight muscles), i also have athetoid cp (wiggly, uncontrollable movements).
powerchairchick 2 years ago
wow so much improvement..will you continue to do this, making videos every week because u are my insparation....will you every be able to talk? i take oral baclofin for leg spasms...this is going to saound weird but do you have an e-mail, i would love to just chat...like a pen pail
PastryPanic0506 2 years ago
idk.
i do talk, lol. if u mean will i ever be able 2 speak clearly, the answer is no.
um, i dont like giving my e-mail add out 2 ppl idk. im sorry.
powerchairchick 2 years ago