Hidradenitis Suppurativa aka HS Awareness

[chandathemoongoddess]

Omg who wud dislike this video? Such idiots.. . simple fact is my doctor told me they aren't looking for a cure.. if we help push the issue ppl like me lives in pain most days can get a cure.. also untreated this disease will kill u. I don't wish this disease on even my worst enemy. Those who live with it are strong ppl. Much love to those struggling. I treat mine with pure silver (liquid form), and it helps. It's a natural antibiotic and won't make u sick like regular antibiotics.

[thescarletswan]

Great Video!! I have had HS from the age of 18 and I'm now 31 and really respect your stream of awareness!! This has at time's been a very painful and shameful disorder. Thank you for you kindness god bless!

[talent2k]

Thank you I wish more famous people would help like you create awareness. I am 39 and have had it since I am 16, 23 years. It sucks, but I have learned to live and cope! Again I thank you.

[misstip2006]

I HAVE HS SENSE 2006 I AM 24 AND I FEEL LIKE MY LIFE IS OVER. I HAVE THEM UNDER MY ARM PITS, MY GROIN AREA, BREAST, N STOMACH.......EVERYWHERER. I FEEL SOOO DEPRESSED ALOT N LIKR MY LIFE IS OVER. I HAVE BEEN FIGHTING THIS FOR SOOO LONG I JST WANT IT TO GO AWAY. I HAVE A 4YEAR OLD N I TRY NOT TO LET HER C ME CRY. ALL I WANT TO DO IS SEEP I JST HOPE N PRAY 1DAY THEY CAN FIND A CUE FOR THIS B4 ITS TO LATE 4 ME OR N E ONE ELSE

[yemaya71]

I have had HS for more than a decade unfortunately no money to treat it. Also it seems to be a abandoned disease. Most MD I have gone to who have NEVER done a rotation in dermatology have NO clue what it is. Kudos to you from bringing awareness to this condition.

[SERENAJANELOPEZ]

That is soo nice of u to make a video... I was thinking about making a video today to give some tips on how i deal with my hs but was planning on not showing my face. But i will show my face.... And u know y not make a t shirt? Hs is hereditary and i have a 2 yr old son who i hope doesnt have hs like i do. I want to raise awareness so my son doesnt have to suffer or b depressed or ashamed because i want a cure i wAnt something that will prevent these boils from appearing... I have HS! I dont wa

[ambda]

You made me cry. Thank you for the kindness and concern. I'm trying to fight, but after 20 years with nothing helping, it's hard to find the strength to continue.

[kk6downing]

OOOO you have sparkly lips

[Ragnnar]

I, also, have lived with this for several years now, since I was 16. I am now 31. I can say that the information in this video is correct, except, for me, it's not generally painful, unless a lesion is formed, then it's debilitatingly painful, and those seem to be spurred by stress. Thank you for helping to raise awareness.

[stepherable]

Anyone who has one of these or bad acne needs to use a good quality turmeric. Look in the organic bulk seasoning section of your grocery. In some heated broth, about 6 oz, 1/2 teaspoon turmeric, cayenne pepper to taste, dash of blk pepper, teaspoon coconut oil.2-3 per day Yummy. And it will get these things under control. Google it! Try it! It will work - don't give up. Homeopathic hepar sulphuris calcareum 30c and belladonna30c and silicea 30c. these things will work for you too! hang in there

[chord2k7]

i appreciate this video so much. i have had HS since i was 12 and i am now 25. it does hurt but i have come to terms with the fact that i have it. i have man who accepts me for who i am and i love him for that. it is a very painful disease and sometimes shameful...but i love that you are spreading awarness!!!!!!!!!!!

[xRareLove]

I HAVE HS! It's not something pretty or easy. I've had it since I was 14 and I kept it a secret from my whole family for 4 years, and I'm 18 right now, so imagine the pain I went trough. Theirs help out their, and I got it. The last time I was in pain was in July in California, in my right arm. For almost my entire vacation, I couldn't raise my arm at all. It was sad, but thank God, the medication i have has been working out for me. Anybody out their who's suffering can get help :)

[KRpresjak]

over 2000 views and 51 comments-- thats what im talking about!!!!!! lyndah your my bright lil shining star over there in california! u have forever changed my life for the better!

[25Bestfriend]

This is sooo hard to deal with. My baby have 18yrs and recently diagnose with the hs.What the doctor told me reading it from a book. Well this diseases have no cure use warm compress soo boils go down faster, for pain use Motrin. And if they come out on the same area again she will need surgery.But surgery will not cure it anyway.My daughter doesn't talk, have Mitochondrial disorder ,diabetes,severe autism,she turns super aggressive.GOD help all of us. Prayers for all of you guys.

[alfreeheather21]

I think its awesome that you are raising awareness. means so much to me. Thank you! !!!!! oh and i love your lip gloss i know has nothing to do with video. but very pretty

[lyndahpizarro1]

@alfreeheather21 Your very welcome and thank you for the compliment.

[alfreeheather21]

It really is hard. Lyndah thank you so much for raising awareness. Alot of people just dont understand. To be told something you have has no cure. Its hard to describe how you feel inside. i felt lost. But this is what i suggest to anyone who has it. It has helped me so much and many others. ADVANCED COLLIODAL SILVER

[alfreeheather21]

Im only 20. and to not to beable to enjoy life feels like somebody robbed you.i have it on my thighs. underarms and breast. i cant even wear a bra anymore. i been dating a guys for 5yrs he was my first and I'm shocked he has not left me because of this. I cant really enjoy anything sexual anymore. and if so has to be pitch black in the room. and gotta be careful. i break down and cry afterwards. no matter what he says i still feel extremely unattractive. I cant even work because of this.

[lyndahpizarro1]

@alfreeheather21 So sorry you have to go through that. And he's still around because he truly loves you. Cherish that forever and allow that love to allow you to be more confident with him because confidence is the sexiest thing ever to anyone no matter what you think about yourself. Hope this video helps raise awareness and helps find a cure.

[alfreeheather21]

You were my favorite on operation Repo. Thanks so much for this video. Alot of people do not understand how painful this is. I have been a suffering of HS for 3years. I went to so many doctors. They misdiagnosed me several times. It ruins your day to day life. Ever since i was diagnosed, i have had severe depression. i cant wear jeans anymore. Have to wear really loose clothing or none at all. Cant enjoy the summer weather. cause you have to try to prevent from sweating. i weigh 160lbs.

[lyndahpizarro1]

@alfreeheather21 Your very welcome. It's the least I could do. Hope it helps and hope you get better.

[TeaandTimW707]

Great video! My husband has HS and is just now after 6 years getting help. Most doctors don't know or dont care so thank you for this video.

[cloudstrife182000]

Being someone who has HS I thank you from the bottom of my heart for spreading more awareness.  I hope that more people become less ashamed of this disease. There is nothing to be ashamed of because we have done nothing wrong. We all just want a cure. Thank you very much.

[EmpressKay1979]

Thank you for informing others, very well presented.

[FamousnBlunt]

OMG LOVE THE VIDEO <3 YOUR SOOO AMAZINGGG LYNDAH! BTW LOVE UR LIP GLOSS

[guccigurl008]

thank you for sharing:) I've had hs for 16 yrs. and finally 5 days ago got the diagnosis, which is sad cuz i new all those yrs, but they never did anything about it. It's so frustrating... God bless you all:) xxx

[lyndahpizarro1]

@guccigurl008 Your very welcome. God Bless you as well.

[gp1628]

Agree with others. You have a beautiful screen presence. Thank you for this video.

I do wish you had mentioned support groups. As you say, doctors can still be pretty clueless about HS. EVERYONE who has it should join one of the groups on groups.yahoo.com or on FaceBook.com where we share things we try and what works or doesnt work.

[lyndahpizarro1]

@gp1628 Your very welcome for the video. I would have mentioned support groups but I really don't know the best ones or the legit ones that's why I just sent everyone to Kayla's facebook profile cause she has a group. Her profile link is in the info box. : o )

[HSansMe]

Lyndah, I just wanted to thank you for taking the time to use your voice in a way that can help those of us who suffer from HS!!!!!! There aren't enough words to say how grateful I, and everyone else I know in the HS community, is!!! You are an absolute blessing & gift!!!!

[myhoundroscoe]

Thank you so much for the video. I am too suffer from h.s. I am 2 weeks post op from double breast surgery. I was misdiagnosed for years and finally was lucky enough to happen upon a wonderful, knowledgeable, compasionate surgeon. I have the boils in other areas but this was the most frequent area. H.S. is such a horrible thing. I would love for thee suffers to get in touch. We need a forum, a group to help raise awareness. I am ready to speak out, who else is??? @myhoundroscoe on twitter

[teezywifey]

SORRY THIS HAS NOTHING TO DO WITH THE VIDEO BUT WHAT R U WEARING ON YOUR LIPS?

[lyndahpizarro1]

@teezywifey its by tarina tarintino and its called parade its in a tube. thank you for watching the video

[teezywifey]

YOU HAVE BEAUTIFUL EYES!!! GOOD VIDEO!=)

[lyndahpizarro1]

@teezywifey Thank you

[lyndahpizarro1]

@teezywifey Thank you

[KRpresjak]

Lyndah is the best! :D

[lyndahpizarro1]

@KRpresjak *blushes*

[lyndahpizarro1]

@KRpresjak :o )

[AethyrPrime]

Takes heart to make a video like this. Gentle give to you darlin. As a fellow sufferer my heart goes out to you.

[lyndahpizarro1]

@AethyrPrime Awww thank you very much. It was the least I could do.

[BabyLoveEllie]

OMG! this just breaks my heart! Def. makes you think about all things we do take for granted! I admire you for speaking out for ppl who suffer from this horrible disease! & i will def. help raise more awareness by sharing on twitter, facebook, & blogs!!

[lyndahpizarro1]

@BabyLoveEllie Thank you for the admiration. Means a ton.

[tkkayy]

Thank you so much for doing this. :) I'm so glad kayla got a hold of you. :)

[TheHa2s]

Awesome! I suffer from HS and have for over 10 years now! Hopefully we can get more doctors to research and study it!

[kdwyermedia]

if an illness has a cause then it has a cure, don't believe in the no solution way, sometimes people need to calm their minds down to deal with the solution being longer term. skin diseases often relate to the liver and then there's also the emotions that realte to the liver. my own personal view is something like this, sickness needs energy, needs feeding, stop the energy source to the illness .Kd

[lyndahpizarro1]

@kdwyermedia Well said.

[jkschmidt83]

Lyndah Thank you So much for doing this! I have suffered from this for about 11 years. Its so good to see people finally reaching out to help and raise awarness, Once again thank you from the bottom of my heart this really means alot to all of us!!!

[almightyzan]

Thank you for this. From someone who's suffered from HS for almost 25 years (since I was 9)...its so touching to see this disease taken seriously by someone who hasn't experienced it first hand. No one in my family understands the pain we live with every single day. Again...thank you so much.

[lyndahpizarro1]

@almightyzan Your very welcome. It's the least I can do. Hopefully this video will help people understand just how uncomfortable it is to and to show more compassion and spread awareness.

[dangeloandthangs]

This is wonderful. I have been diagnosed with HS. thanks for sharing!

[lyndahpizarro1]

@dangeloandthangs Glad you like the video. Hopefully it helps find a cure for your HS and everyone else out there suffering from it. 

[lyndahpizarro1]

Your very welcome : o ) 

[charlie9873]

Thank you...I have had this for years...Thank You!

[Capple80]

Thank you for raising awareness. I'm often scared to tell someone I have it because I know when they read the description they will think "eww", those that do can get out of my life, it will keep the decent people around. But still. I'm scared I will never find someone who will love me despite it. It stops me doing the things I love. I was too scared to go to a doctor for 4 years. (I had been twice before but misdiagnosed). I couldn't leave my flat for 3 months from the pain. C'mon Drs, help us!

[lyndahpizarro1]

@Capple80 Your very welcome. And your very right. Those that respond like that are doing you a favor by letting you know they're not right to be in your life and don't deserve your friendship. Continue to be strong for yourself and for everyone else suffering from this rare disease.

[katmap78]

Thanks so much for doing this video. Means a lot to us who suffer.

[lyndahpizarro1]

@katmap78 Your very welcome

[KRpresjak]

lyndah thank you so much for doing this video. I cannot thank you enough! Much love and appreciation to last a lifetime!!!!!!

[lyndahpizarro1]

@KRpresjak Your very welcome. It's the least I could do. Much love back to you. : o )

[TJKorri]

Awesome and thank you so much from an HS sufferer. Your comment about being able to hug someone brought me to tears. I went 3 years without being able to hug my own children and even now they are very cautious around me. Thank you thank you thank you......

[lyndahpizarro1]

@TJKorri Your very welcome. Many soft hugs to you and the kiddies. : o )

[TJKorri]

@lyndahpizarro1 I relayed your comment to my kids and they were very impressed. It seems they are huge fans of both you and the show so they thought it was (in their words) "Way cool" I have been passing the video to local papers and radio. By the time I am done everyone in my area will know that you have a huge kind heart. You have my eternal gratitude and should I ever be able to repay you in anyway I will and then some. *big hugs from Canada*

[lyndahpizarro1]

@TJKorri Awwww great! Tell them thank you for all the love and support. It means a ton. And thank you for using my video in such a positive manner. I really hope it helps with the cause.