Great work on raising awareness - I wish we had someone as high profile as you raising awareness here is Australia. Our group VCFS 22q11 Foundation is doing our best but its a hard slog! Would love any tips or recommendations, Lucy Jackson
THANKYOU THANKYOU THANKYOU... You have helped raise awareness to a syndrome that effects so many families, including mine. I too was very upset at the minimal awareness of this syndrome when my son was diagnosed at 6 months of age. I was scared and I thought my son would die then as time went on I realized there are so many facets to 22q and as more people like you decided to talk about it, the more I realized how common it is and it gives me hope for my son. Please keep raising awareness!
Great work on raising awareness - I wish we had someone as high profile as you raising awareness here is Australia. Our group VCFS 22q11 Foundation is doing our best but its a hard slog! Would love any tips or recommendations, Lucy Jackson
bindipeanut 2 months ago
THANKYOU THANKYOU THANKYOU... You have helped raise awareness to a syndrome that effects so many families, including mine. I too was very upset at the minimal awareness of this syndrome when my son was diagnosed at 6 months of age. I was scared and I thought my son would die then as time went on I realized there are so many facets to 22q and as more people like you decided to talk about it, the more I realized how common it is and it gives me hope for my son. Please keep raising awareness!
nicholebyers1 5 months ago
I met him!!
Squilliam1745 6 months ago