I am so excited to see this! My daughter in law took your poll that you posted on the IDEA League forum. It is so nice that you were able get information from other Dravet families to use on your documentary. I can't imagine where my son and daughter-in-law would be without the IDEA League. Thanks for taking the time to create this video.
my son is 4 and my brother is 37 and both with dravet syndrome if was for my brother joshua fits wouldnt be so early or found the gene.
michelleenglish1 1 year ago
Wow this is so sad. What a beautiful child. How hard it must be for his parents. Great parents btw.
aussiegirlonamission 1 year ago
I am so excited to see this! My daughter in law took your poll that you posted on the IDEA League forum. It is so nice that you were able get information from other Dravet families to use on your documentary. I can't imagine where my son and daughter-in-law would be without the IDEA League. Thanks for taking the time to create this video.
mvbook22 1 year ago