This is one of my favourite videos. It's honest, accurate and really sets out the situation for how it is. Sorry you have suffered so much, I admire your courage and sprit and coming online to be an advocate, well done!
This is the first time I have seen anyone put this disease in simple terms that everyone can understand. I too have M.E. and yet it is placed second to the name CFS/ME when in fact it should not be joined together at all. CFS can be reversed if caught early enough while M.E. quite literally for me, took me from life in mid sentence into qn oncouncious state of being. From there it was downhill.
heartbreaking, thanks for the info. i'm on my own journey of discovery right now, trying to figure out what docs aren't interested in considering. very frustrating.
All of us who have M.E we should all blow our fucking brains out, that will fix the fucking problem!
life10124 8 months ago
This is one of my favourite videos. It's honest, accurate and really sets out the situation for how it is. Sorry you have suffered so much, I admire your courage and sprit and coming online to be an advocate, well done!
thx1138mindlock 1 year ago
I would like to read or see the story about Casy by Pat but cannot find it. Can you give us a link?
I love your speech as it is true and givien in detail but very simply. Thankyou for speaking for all of us.
dutchieu 1 year ago
can you post the link to Pat's story of losing her young son to ME?
dutchieu 1 year ago
This is the first time I have seen anyone put this disease in simple terms that everyone can understand. I too have M.E. and yet it is placed second to the name CFS/ME when in fact it should not be joined together at all. CFS can be reversed if caught early enough while M.E. quite literally for me, took me from life in mid sentence into qn oncouncious state of being. From there it was downhill.
dutchieu 1 year ago
Excellent video by a true neuro immune disease sufferer. Well done.
Pantomime4castaways 1 year ago
heartbreaking, thanks for the info. i'm on my own journey of discovery right now, trying to figure out what docs aren't interested in considering. very frustrating.
dromenon 1 year ago
Amen Mary... thank you for doing the articulating that many of us can't...Bless you.
bodieangels 1 year ago
Superb video, very calm, very to the point and heartfelt with it.
Well done for making this!
luminescentfeeling 2 years ago 3