As a person and a performer, the granulomas covering my arms and legs made me terrified of people looking at me. I had to quit certain activities because of my lungs and arthritis. I too gave up on love. I felt ugly and alone. Then, I snapped out of it. Depression be damned. I tell myself every day that I am living with a condition, not dying from a disease. I want to remind you that you are beautiful and valuable and fighting this will make you stronger. No, you are not alone. Keep in touch.
my brther was diagnosed with this four years ago its affecting his feet lungs and now hes heard from the doctors that he may have to have a hip relacement due to the condition..its a brutal dissorder at times but all the same please try to stay possetive spirit bless you saha be strong
I was diagnosed with Sarcoidosis in Feb. 2010 after several weeks in the hospital. I was battling what I was told was lung cancer and pneumonia. I had pneumonia for the past 5or 6 years straight, chest pain, constant cough, severe fatigue, fainting spells (which occurred more frequently). I had to have a pacemaker implanted due to my heart pausing and causing me to pass out all the time. It has affected my whole body, life, my whole family. I pray for you all as well as myself. God Bless!!!!
You all can begin to help yourself. However, there is no magic bullet. The best thing that you can do follow the Aden Protocol to the letter. That entails fasting for three days, becoming a vegetarian, eliminating sugar, alcohol, weed & stress. Become familiar w/ the following: Quercetin, Serrapeptase. This is not the half! Type in Aden Protocol into a search engine. It is not easy. However, it is worth it! Inform your MD of this plan. Have your liver enzymes checked.
@SimonDB2006 By "this," I presume that you are referring to the Aden Protocol? By changing your diet, you can greatly reduce the inflammation in your body. Meat, alcohol, SUGAR, and most hings that we enjoy are pro-inflammatory. That is, they promote inflammation. Quercetin is a supplement that helps w/ inflammation. However, it is a supplement to your diet. You're on the internet, Search the Protocol and the other supplements listed..
@LETMEC4FREE Thanks for this, so tell me... I don't drink a lot but I occasionally do will that be a problem? Same thing with cookies and cakes, would it be a problem?
I fill the same way noones understands it effects my whole life my husband is in the army and I worry about him cuz Iam alway sick in bed iam blind cuz of my sarcoidosis its in my eyez lungs chest it hard everyday liveing with this I Have facebook i will add u we can be friends help eachother throw this its not a joke my name mary rochelle reed victor
stay strong i was just diagnosed with sarcoidosis, and i used to joke with my bf that i was getting old because the joint pain. I think to myself everyday that there r people who have worse then me . I am on the pills im sure u know what they are, but i will keep u in my prayers.
stay strong i was just diagnosed with sarcoidosis, and i used to joke with my bf that i was getting old because the joint pain. I think to myself everyday that there r people who have worse then me . I am on the pills im sure u know what they are, but i will keep u in my prayers.
I feel the same way, Its hard to out yourself as a sick person especially on video, but yeah I have sarcoidosis diagnosed in 2008 by mediastinoscopy, and I have the lovely keloid to prove it! Fatigue, no sex drive, thristy all the time, joint pain, weird skin eruptions that come and go, and MY doctor refuses to put me on Prednisone because he thinks it wil cause more problems then it would solve (diabetes). So there is really no treatment for us.jemmyd@gmail.com
I too have sarcoidosis and lupus. I have the same side effects and feelings. I understand what you are going through. Anytime you need someone to talk to let me know.
. i too have sarcoid, I understand but I just wanted to tell you I think you are beautiful!
MegaDebbers 1 week ago
I'm 15 living with sarcoidosis, it took the doctors like 9-10 years to diagnose me with it.
lordisholy1 3 weeks ago
As a person and a performer, the granulomas covering my arms and legs made me terrified of people looking at me. I had to quit certain activities because of my lungs and arthritis. I too gave up on love. I felt ugly and alone. Then, I snapped out of it. Depression be damned. I tell myself every day that I am living with a condition, not dying from a disease. I want to remind you that you are beautiful and valuable and fighting this will make you stronger. No, you are not alone. Keep in touch.
theceddy 4 weeks ago
Peace Queen, we are one
awakeisrael 1 month ago
my brther was diagnosed with this four years ago its affecting his feet lungs and now hes heard from the doctors that he may have to have a hip relacement due to the condition..its a brutal dissorder at times but all the same please try to stay possetive spirit bless you saha be strong
TheWolfinspirit 3 months ago
I was diagnosed with Sarcoidosis in Feb. 2010 after several weeks in the hospital. I was battling what I was told was lung cancer and pneumonia. I had pneumonia for the past 5or 6 years straight, chest pain, constant cough, severe fatigue, fainting spells (which occurred more frequently). I had to have a pacemaker implanted due to my heart pausing and causing me to pass out all the time. It has affected my whole body, life, my whole family. I pray for you all as well as myself. God Bless!!!!
melzboo1970 10 months ago
Greetings,
You all can begin to help yourself. However, there is no magic bullet. The best thing that you can do follow the Aden Protocol to the letter. That entails fasting for three days, becoming a vegetarian, eliminating sugar, alcohol, weed & stress. Become familiar w/ the following: Quercetin, Serrapeptase. This is not the half! Type in Aden Protocol into a search engine. It is not easy. However, it is worth it! Inform your MD of this plan. Have your liver enzymes checked.
LETMEC4FREE 10 months ago
@LETMEC4FREE What does this do, how does it help?
SimonDB2006 2 months ago
@SimonDB2006 By "this," I presume that you are referring to the Aden Protocol? By changing your diet, you can greatly reduce the inflammation in your body. Meat, alcohol, SUGAR, and most hings that we enjoy are pro-inflammatory. That is, they promote inflammation. Quercetin is a supplement that helps w/ inflammation. However, it is a supplement to your diet. You're on the internet, Search the Protocol and the other supplements listed..
LETMEC4FREE 2 months ago
@LETMEC4FREE Thanks for this, so tell me... I don't drink a lot but I occasionally do will that be a problem? Same thing with cookies and cakes, would it be a problem?
SimonDB2006 2 months ago
I fill the same way noones understands it effects my whole life my husband is in the army and I worry about him cuz Iam alway sick in bed iam blind cuz of my sarcoidosis its in my eyez lungs chest it hard everyday liveing with this I Have facebook i will add u we can be friends help eachother throw this its not a joke my name mary rochelle reed victor
rochelley2k 1 year ago
stay strong i was just diagnosed with sarcoidosis, and i used to joke with my bf that i was getting old because the joint pain. I think to myself everyday that there r people who have worse then me . I am on the pills im sure u know what they are, but i will keep u in my prayers.
jaredL18 1 year ago
stay strong i was just diagnosed with sarcoidosis, and i used to joke with my bf that i was getting old because the joint pain. I think to myself everyday that there r people who have worse then me . I am on the pills im sure u know what they are, but i will keep u in my prayers.
jaredL18 1 year ago
I feel the same way, Its hard to out yourself as a sick person especially on video, but yeah I have sarcoidosis diagnosed in 2008 by mediastinoscopy, and I have the lovely keloid to prove it! Fatigue, no sex drive, thristy all the time, joint pain, weird skin eruptions that come and go, and MY doctor refuses to put me on Prednisone because he thinks it wil cause more problems then it would solve (diabetes). So there is really no treatment for us.jemmyd@gmail.com
jemmyd1 1 year ago
I too have sarcoidosis and lupus. I have the same side effects and feelings. I understand what you are going through. Anytime you need someone to talk to let me know.
therealbosslady 1 year ago
@therealbosslady ,...............ty ! i added you,im on face book also, sasha kirchoff
scottandsasha 1 year ago
The sarc community is really quiet on Youtube. I hope they raise some noise!
gphx 1 year ago