Remicade
3:35
Added: 4 years ago
From: hurricanerae
Views: 19,600
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  • Haha, feel your pain love! Your are the sweetest thing ever! Started to cough really hard recently and wondered if it had anything to do with this medicine, who know? No one, but in 20 years well know! :D F it, i wouldnt be able to live a normal life without it! Wish her all the best / Love

  • This is like playing Russian roulette.

    Possible Association between TNF Blockers and Cancer Aug. 08

    /watch?v=4UJoYZmzokM

  • I'm on remicade every 6 weeks and here it's 9,000$ a infusion but I'm on disability because of it, I'm also on asacol and imuran as well and alot of other drugs (I was on prednisone for three years and it destroyed my body, my joints hurt alot now and I've been diagnosed with ostioporosis and I'm only 21) but yeah I will agree with the remicade making you tired, I always thought it was the anti allergy medication i was told to take before but no i always fell alseep, if you want to talk everpmme

  • at about 0:35 that is really true, im just trying to find out about remicade. my doctor was recommending it and now i have an infection called c diff.

  • I've been using it for like three years. Chrons. It has been working quite well.

  • Hi. Thanks for the interesting video. Just curious to see if you are still using Remicade.

  • When I am done with the iv treatment I'm always tired. I have also under go some bad side affects.

  • NATURAL!

  • I am really leary about big pharma drugs but my disease has left me no choice but to try remicade. Lets hope it works for me with less side effects than pred or immuran. I am so scared to take my first infusion.

  • so u take ramicade, and u take immuran.... ugh i had immuran and i ended up in the hospital....

    What are the side effects for remicade?

  • does it cause acne

  • I had bad acne from steroids, i want to know if remicade causes acne too...

  • message me in a few months and i'll tell you about if. yeah damn steroids gave me acne too it's embrassing.

  • I've been on remicade for years,and I just started using FLAX SEED capsules 1000 mg with omega 3's...and all of a sudden,actually took 3 days,all my UC symptoms were gone...Been on this for 5 weeks now,and still no symptoms....awesome..maybe it will work for you,,,a 60 tablet bottle was 5.00 at walmart and i take 2 aday....both at night before bed....good luck

  • I too have to get a remicade infusion every eight weeks for Chron's disease. When I was diagnosed three years ago it was a new drug and not a lot of extensive medical reports were out on it. It has been proven to this point that people who get this treatment every eight weeks tend to show vast improvements. As for being tried it has a lot to do with the Benadryl, at least for me that's what gets me all murky. Thank god for insurance. Hope you're doing well.

  • Hey do you have to it once and then your good for 8 weeks or do you have take it everyday (the infusion that is)

  • i am up in canada the program i am on starts with 3 loading doses 2 weeks apart then 1 infusion every 8 weeks i have been on emmeran methotrexate and have had 3 ft of bowel removed i have had crohns sine i was 11 i was the youngest diagnosed in canada i am now 32 and weigh 220 play hockey and go to the gym 4 times a week remicade has changed my life

  • wow im on remicade too i just had my 3rd infusion

  • i live in the uk and get remicade every 8 weeks and its free.i take imuran and its free too. sorry to here you have to pay big money for it or pay big insurance.

  • Thanks for rubbing it in... :P

  • Im about to get started on this treatment.... Would you say it is worth the trouble? Would you recommend its use? Please answer back ASAP!!! Thanx

  • whiteboygangsta,

    Are you getting benedril shots prior to the infusion? That can help mitigate a bad reaction.

    Remicade contains a mouse protein. It is natural for your body to react to a foreign substance. It may never become an issue for you. I went from Remicade to injections of Humira. That did not work. long story short: I had my colon removed. Best decision I ever made.

    Best of luck to you. Don't be afraid to ask questions.

    allen

  • At the time of taping, I did not because I hadn't any reactions during the infusion. Since then I did have a small reaction. I now get Benadryl and Cortisone before the infusion.

  • i go to florida every year for my holidays and watch a lot of american news channels home and away and heard them going on about how bad the uk health service was. it couldnt be that bad. i would like to live in the usa but i cant go anywhere because i depend on these drugs.

  • I took Remicade for 3 years every 6 weeks. One day I went into convulsions during the infusion. No more Remicade.

  • holy shit! I hope that never happens to me. Im on remicade 10 mg/kg every 4 weeks. Which is double my previous dose. Im sorry to hear about your misfortunes.

  • I have used that medisin for 3 years. And it have help me so well.

    I just love that medisin. what diagnose do you have?

  • Do you got IBD?

  • After remicade I got very active and had a lot of energy. This last about 3 to 4 days. It's like taking drugs (speed). I was never tired after remicade

  • Goes to show, everyone's bodies are different and people's responds are going to be different, sometimes very different from each other. Also, one's reactions may change over time or be a little different from one infusion to another. Anyway, long-windedness besides. Thanks for your response.

  • The best advice I can give you is to stop taking those drugs or any drug, and go to an upper cervical specific only care doctor. Some can be found going to upcspine. Drugs are not chemically designed to support cellular activity in the body. They are actually toxic to the body. Supplements cant do. U, C, S. doctors can do. They balance the body. I know how to guide you in your choices. Dont wait for pain best preventative care for any age.

  • That's written to much like an advertisement for me to take it seriously. But good for you and anyone else who can do it.

  • I am a u, c, s, advocate. Please take this seriously, I beg of you! Everyone should have an upper cervical specific evaluation, Must know how to avoid Full spine, diversified chiropractors. They practice cavitation. That is popping of the joints. Learn how to find a Good U, C, S, read upcspine. Knee chest is a good technique too. I learn all that I can. We are woefully short on these kinds of doctors Sherman collage is the place to learn Duff method way of measuring. Atlas orthogonal is good.

  • These drugs chemically don't even belong in a human body. No cellular function is supported whatsoever.

    These drugs would never be found in food, why ingest them at all. I am directing whoever to a better way. I am telling you the truth the beginning of a life long problem can begin at birth.natural or a Cesarean.

  • @hurricanerae There is so much information I almost for me to write about this care have to write it the way I write it. The way humans have to think about health care has to be turned on its ear, and upside down.The world is upside down. The world has to be right side up from what it is. I am getting some where in some cases. Iran has a video that is calling out for Jesus to help them. I have been doing a lot of work with those humans. They need more guidance not to go astray with The E,O,R,

  • @kobidobidog You ought to be ashamed of yourself and the misinformation you are spouting here.

    Unlucky for you hurricanerae seems to have the brains to know you are full of BS.

    What kind of advice is that? 'stop taking any drug'.

    OK that would really help someone with Crohn's in their worst moments.

    Dangerous moron!

  • @HitMeWithIt I am never never ashamed of anything I say. I am giving you a door to go through just like the humans of Noah day had a door to go through, and not have the flood take them all away. Simply walk thorough the door. You have two feet, and can walk can't you? Drugs are not what they are purported to be, trust me. Crohn's, and many things can be helped, but wait, and a chronic condition will develop. what ever age should be evaluated. Adjustment of the atlas given only if necessary.

  • @kobidobidog Sorry but your advice is DANGEROUS. The fact that you are never ashamed of anything you say just shows your arrogance! I don't think you should continue in an advisory role... you are shit at it.

    Also, take my word for it: This girl will KNOW when to take the drugs and when not to. She feels the PAIN of DISEASE every day of her life.

    Stop belittling her suffering.

  • @kobidobidog Right, and when the "adjustment", which is more of a fingertip rub, goes wrong, what do you do? You send your clients to a real doctor, that's what.

  • @ampbains X rays are needed to see what direction end force needed. This is way better that a drug of whatever kind, and the U,C, specific doctor can do more good than you imagine. care is taken to give the proper adjustment. The U,C,S, is a type of doctor that has been underutilized. Those doctors relying on drugs, and surgery to solve a problem an upper cervical can do,but waite to long and ere irreversible damage to the spinal disks will result in a chronic condition. Best early in life.

  • @kobidobidog Since when is plain film radiography an adequate way to visualize discs? And please explain what cervical discs have to do with the GI tract.

  • @ampbains having a healthy nervous system is everything concerning once over all health.a worn down disk will not regenerate, and irritates the nerve. going wherever in the body. When the nerve is irritated it produces heat that an infrared scanner senses one has to know how to use one properly.one name is the Tyrone. I will try to talk to you tomorrow it is one clock in the morning where I am.

  • @kobidobidog I agree, discs can irritate and stimulate nerves of the spinal column, but a review of very basic anatomy will tell you that the parasympathetic nerves (i.e. the ones responsible for smooth muscle and visceral innervation, function, and pain sensation) responsible for carrying signals to the GI tract do NOT come down the spinal cord. Sympathetic fibers, which are associated with the gray matter of the spinal cord, do not carry pain sensation. You need to learn your anatomy.

  • @ampbains Many things can be going wrong in the body due to a malfunctioning nervous system. pain does not have to be present. These problems sneak up on you over a period of time and do not have to happen when they happen. The pharmaceutical industry is literally making a killing off of humans. Regardless, all should go to upcspine web page,go to a U,C,S, NOW. I am telling you because I care. Real health care has been kept from you by sorceress who want you to believe a lie.I kid you not.

  • @kobidobidog You have not specifically addressed the inconsistency in your argument which I pointed out; you have merely given talking points about the pharmaceutical industry. Explain to me how a problem with a disc in the cervical cord can lead to Crohn's disease or the sensation of pain in the abdomen when the nerve fibers in the spinal cord do not modulate any part of this disease.

  • @ampbains All of those names are just a name someone made up. Crohn's disease has been helped by U,C,S, care doctors. This shows that the so called Crohn's disease is preventable with the early treatment, and maintenance of the spinal nervous system. Just Go to a U,C,S, and know how to recognizance one.Waiting for symptoms is what the pharmaceutical companies want you to do and then panic to go, and by a drug. Just say no to drugs,and say yes to U,C,S, keep appointments to maintain brain memory.

  • @kobidobidog Show me a peer reviewed study that backs up your claim. Bear in mind that anecdotes and case studies are not studies. If the cure and prevention is so simple, cite an research article and prove it to me, if you can.

  • @ampbains sSome studies on upcspine ,web page evidence, scientific, studies. I tell humans to look at that to see humans can be helped with what humans call aids. Medical sorcerers will not acknowledge Upper cervival specific. I hate to be blunt, but don't do what I am asking, and you are going to be the one who is going to suffer.You are suffering inside right now. The sooner you go the more of a chance the atlas will hold an adjustment. Many of the U,C,S web sites have case studies.

  • @ampbains Have you read the Nike commercial? Just do it, right now. Head is stable, and does not move. The moment is quick The light toggle recoil is 9-10 thousandths of a second. The atlas oscillates back to its proper position. When you see the human structure twisting tilting are the humans who did not listen to me. Humans with knee replacements.Hip replacements. Steal rods but up their backs.languishing in hospitals given drugs that never work always promising the next time over,and over.

  • @ampbains I am showing you what heaven would show you.,and you are accepting what the unholy drugs. The statement everyone is saying about drug is, just say no, well it also applys to other drugs too. I am offering a superior way, and I am getting less than nothing for it. I am tired working long hours for my brothers I care about in the world.I spend long hours doing what I do.

  • @kobidobidog Then show me one of your so called articles. As I told you, case studies are NOT peer reviewed articles; they are nothing more than stories. A scientific study is one which can be repeated in order to verify the results. You have zero evidence, otherwise you would be posting it; it's as simple as that. Continue on with your vague statements, and go ahead and pretend to be a spokesperson for heaven. It shows your arrogance as well as your ignorance.

  • @ampbains You will answer to God, count on it. Your laziness is going to hurt many, and yourself. All you have to do is look for practitioners a list of states. All I want to do is help you, and others, that is all. Do what I am asking ,and that possibility will become a reality.No drugs to take ether. You are buying the evil lie of a nation who is an idolatrous nation worshiping the false god of war. All nations that war are idol worshipers,sacrificing human,and you are failing for their lies.

  • @ampbains I am a spokes person For God who is life in more ways than one, and so can everyone. The more the better. Whoever does will want to to unto others what they want to be done unto them loving their neighbor as themselves. This will put heaven in whoever preparing them for Christs second comming to be able to withstand the light that shined on the first day of creation. The sun moon, stars on the fourth day. The light on the fist day out shined the sun. Creation light is Gods judgment.

  • Comment removed

  • @ampbains I am telling you the prevent,and or cure will only work as well as the health of your spinal discs. When you pop your neck, and spine is a symptom of a primary cause. One or more disks are not floating properly, and as a result will pop. I cannot do that because my spine is normalized. I know what to do,and I am telling others. The worse the spinal discs are the longer recovery will take, and the longer you wait the optimum % of what you could have had will be lost. Thinking of you.

  • Spinal discs have absolutely nothing to do with the course of Crohn's disease, or any other visceral pathology that is independent of skeletal muscle. Every current anatomy textbook (at any level) refutes your magical thinking. It's not possible to carry on an intelligible debate with you because you simply fall back on your vague and completely unsubstantiated statements. You offer zero proof. Until you can offer that rigorous scientific evidence, you're a quack and have no credibility.

  • @ampbains There are trillion or more things being controlled by the spinal nervous system. you are piddling your short life away arguing with me. if you go before a chronic condition occurs you will be thanking me for even telling you to go doing all that I tell you to do.

  • @kobidobidog A trillion or more? Sensation in the GI tract is not one of those things. As I said before, you have yet to address the inconsistencies I pointed out. It's ok, I know you can't.

  • @ampbains Don't go, don't get help , don't teach others to do likewise,it is that simple.

  • @kobidobidog And again, I gave you a very simple face that it taught in college level anatomy courses. You have been unable to refute it. Thus, why is there any reason to trust you? I don't seek help from those I don't trust.

  • I am the same after my treatments. I get home and sleep and my skin seems to be really yellow after every treatment. Now I am worried because its about two months that my salivary gland in my neck keeps swelling up. I am not sure if its cause of the remicade. I am seeing my doctor and the 8th...

  • It could be your thyroid. I have hypothyroidism. Ask your doctor and get your blood checked for TSH levels.

  • hey there, hope you are well. I actually has a scan done and my throid glands are fine. I am doing a scan on my neck next week. keeping my fingers crossed

  • I have been getting remicade for about 8 months now - after some recent blood work it appears I have developed hypthyroidism - I have to wonder if the two are related!!

  • You really should look into the blood type diet. I had celiac disease since the age of 15, and I've always had severe allergies all my life, and the BTD stopped it all within a week.

    I did some blood type diet videos; you might want to check them out. It really does make a difference.

  • So sorry you have had celiac disease for so long. How did you find out? Who suggested a test?

    Kindly let me know. I just got blood work for celiac, but where can you find a BTD or is it also called IgA and IgG blood tests? Which videos have you watched?

    Thanks!

  • I had it diagnosed by a doctor about four years ago. The blood type diet is not named for the immunoglobulins called IgA or IgG, although it is an immunology-based diet. It's based on the blood type antigens O, A, B, and AB. If you look for a YouTube account called "obertancat" you can see the videos there.

  • i think i should try that. my med. dont do a thing for me

  • I take Remicade for Ulcerative Colitis and have to do it every 8 weeks. I've been told and read that if you just do it sporadically, your body can develop antibodies to it which will then react when you try to take it again, and then you can't get it. I hope it worked for you. It's been 3 infusions for me, and it has really helped, prob. 80% better than before.

  • considered the new drug Tysabri? Its not like remicade or humira (not a TNF drug). The effects dont wear off over time as much as remicade or humira. I have Crohns, but amazingly caught a break with a remission going on 4 months. But if and when it comes back, I have already failed the TNF drugs so it will probably be Tysabri for me.

  • I'm in the same spot, and have heard some good things about Trsabri. I've gone though every drug they have for Crohn's and they just don't last. I've only had the disease 2 years and have already had surgery and done remicade and others, I'm losing hope. Let me know if you or anyone else has any info on Tysabri.

  • Well my history almost mirrors yours, except that I am in some kind of lucky remission and not on any DMD right now. But my next one (am resigned to it, some day) will be Tysabri, as it is FDA-approved not just to "induce" but also to "sustain" remission. Do a google for those words with Tysabri and you will find it easy enough.

    But I think in general our GI docs are fairly laid back, they prefer stapling people up, at least that's what I think happens where I go.

  • I was on Remicade for approx 6 months.After $39.000 dollars it did not do a thing for me.I am now trying Humira.

    Rock On Sister

  • I'm staring to fear the worst. one week after my lastest infusion, I started to have moderate stomach pain. More accurately, pain around my back, and all pain hard greart sensetivity to touch and movie. Just reporting where I am at now.

    Thank all for you helpful and encouraging messeges to me and others with crohn's. :D

  • did the crohn's make you lose weight?

  • hey thx for sharing your story. I am on imuran right now for leukocytoclastic vasculitis

  • Hello, i think you should try himirra

    it will be worth it.

    good luck

    i know how u feel. good luck to u

  • Hello there, I had Remicade infusions every 5weeks for 2 years, with lots of difficult side affects. It did help for most of the time, then it stopped working as well. Exhaustion is normal, especially the day of & day after. It was a relief to switch to Humira; however, that didn't work as well, now I'm getting Enbrel shots. These seem to be helping, but there's still a lot to deal with. Keep getting rest, take care and don't let it get you down.

  • I've been hearing about these Enbrel shots, do you know anymore about them and are they working for you?

  • embrel is allright, i took it for my psoriasis condition, it didnt do much for me but, i only took it for about 2 months or so, before that i took raptiva which did very well at first then it almost gave me lukemia, so im rather affraid of these meds now that mess with my TNF cells, just be careful get regular blood work done if you decide to take any of these

  • Hi I have Crohns too. My story is I had this for many years, like 35 yrs. I have been on Remicade for almost 2 years. I go every 2 months and I can't beleive it but I do feel better, now I just wish the Dr.could help me with my diariah I go 2,3,4 times a day. I have good days and no so good. I have to say I do feel 70% better. I hope it works out for you.

  • Hi, i have Crohns to and getting Remicade every 8/10 weeks just like you, i got it 5 times so far and its working great for me.

    I get a lower dose then most people but i seem to react good to it, so thats ok.

    My life is a lot better now then before they gave me Remicade, and yes im always very tired to after the infusion :D

    Good luck to you ad lets hope for more great medicines in the future.

  • I like the lighting.  How do you do that?

  • It's just an effect I ad after shooting. I use Nero to edit my videos.

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