Lyme Disease

[ecftube]

Wrote a Lyme disease brochure with the help of 2 Lyme disease specialists. Will email a copy to anyone interested.

[MzProgressive]

NEWS FLASH: If you missed the award winning film on the Lyme Controversy called "Under Our Skin" on PBS, you can now see it for free on Hulu HERE: huluDOTcom/watch/268761/under-­our-skin

ANYONE who SUSPECTS they may have Lyme should watch this!

The Lyme spirochete looks similar to the SYPHILLIS bacteria and needs to be treated with LONG TERM IV antibiotics for relief - most in the medical profession do NOT know this!

Good luck & God Bless!

[precicia]

This disease and others can be stopped with Colloidal Silver Atoms! True atomic size particles of silver will kill any bioweapon

[DaniellaMelton]

DON"T EVER GIVE UP, FIGHT FIGHT FIGHT, THE TIMES WHEN YOU FEEL ALONE FOLLOW THE LORD. FOR HE WILL BRING YOU THROUGH.

[adamclemens]

Please be aware of suddenly coming down with a fever or flu like symptoms in the middle of summer. Followed by loss of short term memory (phone numbers, names etc). Followed by loss of breath by walking up a simple flight of stairs. And alcohol intolerance (used to be able to have 4-6 drinks but now get drunk from 1) Most people don't remember a rash or bulls-eyes so I always refer them to tangible symptoms.

[MissKrisNails]

This so sucks. I'm pretty sure like 99% that this is what I have. It's so frustrating. My NP is the only one who seems to care... And that's only because she knew me before I got so sick. I've just started the doxycycline and it seems to be helping. Not sure if I can convince her to give me more if one round doesn't "cure" it. I'm 39 and applying for disability. I was studying for my BScN with a 3.65 GPA. Now I'll probably not remember I posted this in the morning. God help us all. -3

[numaiunaltblog]

I searched over the internet for people who managed to get rid of lyme disease but I still haven't found any case which worries me. everyone is sick but nobody is cured? what happens with people suffering from lyme disease? why they don't write testimonials about their curing?

[WatchMeGoDown]

Thank you for this video. VERY informative and in an "easy to read" format for people who don't understand Lyme. I suffer greatly from Chronic Lyme. I went from the most vibrant person anyone knew, to basically bedridden most of the time. I trained horses and gave lessons and worked 16 hrs a day farm labor.... now I lay here in a dark room, heartbroken that even the sound of my children laughing kills my ears due to the increased sensitivity. LYME KILLS. Spread the word!!

[LymieAwareness]

I am 15 and lyme disease has basically destroyed my life. I created Lyme Teens, a social network for teens with lyme to connect. Here is a link to anyone who may be interested.. lymeteens.socialgo.com/

[fugazipythons]

Never had a rash....was given the initial 200 mg dose of doxy and few days later felt crappy, tick tested positive and now i'm a wreck......it's been a month now and hopeing that's still early....i'm ready to go to a mental ward....i was crying half the day......would appreciate any positive stories with people who have this and are ok

[ExZonie]

I just had a live blood analysis and saw the Lyme bacteria for myself, swimming around happily. There were at least two of them in a tiny drop of blood - now that I've had cancer and numerous tumors, the pieces are coming together. And so many doctors have all missed it regardless of hundreds of tests... just - wow.

[Catherine8raw]

High fatty lamb, beef dripping diet, no carbs apart from veggies, forget sugar and junk food. Fruit diet will murder you if your a lyme patient. Eat the fattiest meat available, (no constipation), read Gary taubes book, Rob Wolf, this diet will not kill you. See famously fit dot com. I am 16months into lymes, and if you want to get up and work, protect your NS & brain have LOADS of saturated fat, no veggie oil. No dairy. Only grass fed animals. I have had no antibiotics, doin it alone! luv U

[drcorina57]

I was misdiagnosed 35 years ago and if i had not used the internet I would still be unaware

[Jburdo4680]

Misdiagnosis is HUGE in Arkansas!

[colla16]

this video is my life in a nutshell........wow.

[colla16]

this video is my life in a nutshell.

[babyboom58]

Awwwwwwesome! Thank you for sharing it.

[danlmt6]

thank you ! this will help explain what I've endured while I am on my way to full recovery and survivorship after 38 years of mis-diagnosis...before it was even named in 1975, I was bit boy scout camping in 1972

[klrathome]

I dont know about other locations, but in Maine, black flies are also carriers of lyme disease.

[iLoveSydBarrett]

PLEASE PLEASE PLEASE do internet research on using SEA SALT for curing Lyme. I had it for seven months before I was diagnosed, and doxycycline only made me sicker. I took a shot of about 1/2 teaspoon of RAW SEA SALT in a small amount of water, and in only hours I felt better than I had in months! I continued this maybe three times a day for several days and it ended my Lyme. I take this "shot" every now and then just to be sure it stays gone. IT WORKS. DO RESEARCH. TELL THE PEOPLE!!

[mikespikejones]

The CDC is part of the government's coverup of this terrible disease.

It has stolen my life from me.

If I didn't have 3 children and a wife, I would give up and swim with the sharks (and I can't swim).

[AkimboLizard]

I have had it for 3 years, had a PICC-LINE for 8 months, allergic reaction for 8 months, school said I was truant, it's 3:18 right now because I can't sleep, I wake up a 12 o' clock, I haven't been to school in years, I'm on 20+ vitamins/anti-biotics a day... yeah you guys are lucky =/

[Amos1010]

I am going on 2 years battling this disease. No one understands how I feel. Thank you for posting this video. I am going to a little chapel near my house to pray. Currently I am doing a special diet called The Fat Resistance Diet for anti-inflammation and overall immune building through whole, organic foods. Plus I am on Amoxicillin and will be adding Flagyl. Does anyone know about Clindamycin. Don't give up on yourselves. Fight!

[hangman9090]

I was just told by my doctor that I have LD. Luckily, I think I have only had it for a month or two but my symptoms are still very bad. My friends do not understand how bad it is and therefore I am receiving barely any sympathy. I am awaiting the results of a second test on LD. Wish me luck.

[redEQUALSgreen]

I was diagnosed two years ago. I now 13

[AkimboLizard]

same here, but for 3 years, I wasn't diagnosed until 6 months after the bite, I'm pretty sure I'm never gonna get better =p

[poppymoone]

I have been untreated for 24 years, only properly diagnosed in July this year. Both my children I passed it to congenitally. I never had the Lyme rash. However my oldest daughter has THREE times. It does not always appear in connection with a bite. We need to stay strong and raise out voices. Here in the Uk we are such a small country the word is getting our more slowly. Thankyou for videos like this that help raise awareness.

[vandlent]

picc line since march w 4 diff abx,,,it;s hell

[Cammster101]

Thanks for making this. Lyme is a horrid disease ! It destroys lives !

I am on Licc Pine 4 lyme

puppet show about lyme on my page

Cammster101 ..please comment and rate

thank U

[LymeReality]

Hi,

I was just published, proved chronic Lyme!!!!

I am trying my best , helping, want to do more.

i will start support group again, love you all, its the hardest battle, people do care, we are working 7 days a week.

[ecftube]

Wrote a Lyme disease brochure with the help of 2 Lyme specialists. Will email to anyone interested.

[txsherrie]

I am interested in you e-mailing the Lyme brochure! Had it for 35 yrs. IV's not enough. On Doxycycline 3 mos. 10 more to go.

[DnRsledparts]

@txsherrie im so happy to here there are people goiong throigh the sme stuff im not CRAZY

[babyboom58]

@DnRsledparts YOu aren't crazy & you are not alone!

[terrystreehouse13]

@ecftube please email me what you have. thanks terrystreehouse@yahoo.com

[znoodlelady]

Thank you for the video. It portrayed everything I've been through. This is my 29th year of LD, the first 10 untreated. I'll share this with the many people who still don't understand LD.

[tigr7170]

Dr. Jeff Sutherland of 'The Frequency Foundation' has some very interesting recent research articles on Lymes disease. If you see photos of some microscopic kinds, maybe we can understand why it feels like peices of GLASS in the brain or joints, etc. at times??? My health protocols has involved 'The Hart Dietary Procedure Plan' which has U.S. Patent, and frequency work, etc. Thank you for the video, & stimulus to more research, & greater awareness on this topic.

[igspal]

The ONLY problem with this video is that it doesn't elaborate on the FACT that only a SMALL percentage of Lyme patients ever had a rash!

[TruthAboutLD]

This is true - studies now show as few as 15% may see a rash.  Thanks for bringing up an important point.

[ecftube]

Wrote a Lyme Disease Brochure with the help of 2 Lyme specialists. Will be happy to email to anyone.

Elaine in VA

[fastgirl321]

ive been living with it for 9 years.

the doctors did a echo and found water around my heart.

i hate u lyme disease! i wont let u beat me

[lymefighter30]

this is an amazing video. THis was done by my best friend and her son, two of the sweetest people you could ever know. As sick as they are, they are still trying to educate and fight for our rights. God bless them. Please take this disease from all of us who suffer so terribly. I know things happen for a reason, and I do believe God WILL heal us. We have lost a very dear friend from this disease, it does kill. We need to make our voices heard NOW! Before we loose more wonderful people.

[awarenessdaytributes]

This has to be one of the best lyme disease videos I've even seen. It's so hard for people who don't have lyme to understand what it's like, but hopefully with enough exposure they will get the idea. It takes over everything. It's just such a debilitating and awful disease. Thank you so much for posting this video!

[melkerns]

This is one of the best. Not asking for money, not selling books, not selling bogus cures. Thank you, M.

[lymelights]

For those of you who think you have lyme - join a lyme support forum, they show one at the end of this video, there are many online. Patients can tell you how and where to see a Lyme literate Md and get checked through Igenex Tick Borne Specialty lab. Lyme disease is the fastest growing infectious disease in the U.S. and has surpassed AIDS by far - ticks live in your yard and are the size of a poppy seed. Get to a forum and talk w/the experts - the lyme patients. Great video covers it all.

[imduch]

where can i get check holly shit i might have lymes

[neelubird]

Look online for ILADS and look for an LLMD (Lyme Literate Dr) because most mainstream conventional Drs use inaccurate tests and follow very outdated and bad guidelines when it comes to diagnosis and treatment of this. Don't go to any Dr who follows standard government or IDSA guidelines on treating this. Treatment for chronic lyme has to last for months or years not weeks.

[imduch]

wow i have a lot of symptoms scary

[gatorlyme]

Gainesville Florida"Home of the fighting gators. Shands @ U.F!

My son has Lyme and co-infections! I had to search the internet to get help for my child. Lost BCBS Have only MEDICAID! We were flown to CT by Angel FLight! What an experince for my child the hard way, to have to travel to another state becuase his Doctors would not help him! To be told he is faking or it's the parents fault because of DIVORICE! That's why he is in pain!It's stress!The mother is crazy! Yes! Crazy about my kids!

[TruthAboutLD]

Whitney, thanks for your post.  You don't know what it means to us to know that this video helped someone to find the answer, this was our main hope..thank you. May you be well soon sweetie..take care.

[synchrogirl21]

If it wasnt for the internet that lead me to lymes disease i would still be seeing doctors that were no help, they always say "that im crazy, i have no pain it is just in my head" After seeing over 25 doctors, my family and i finally started searching for an answer to all my pain. i have had lymes disease since i was 5(now 14). This video is my life, it is the one i first discored about lymes, and that lead me into reading more about lymes

thank you so much

whitney

[synchrogirl21]

If it wasnt for the internet that lead me to lymes disease i would still be seeing doctors that were no help, they always say "that im crazy, i have no pain it is just in my head" After seeing over 25 doctors, my family and i finally started searching for an answer to all my pain. i have had lymes disease since i was 5(now 14). This video is my life, it is the one i first discored about lymes, and that lead me into reading more about lymes

thank you so much

whitney

[DaisyDenHaag]

This is the best video I have seen yet over Lyme, people now know what it is really like for us and I hope they understand and accept the way we are, big hugs.

[TruthAboutLD]

Without the internet & self-diagnosis 6 people in my family would all be suffering still. I had an MD yell at me to stop reading the internet and let him be the doctor! Had I not been persistent in finding out what was wrong with me & listened to him I doubt I'd be here today. My Lyme doctor told me that in medical school they are not taught about Ld. So, if any Md's read this, search lyme forums, see how we suffer, contact Turn the Corner Foundation & ILADS (dot org) - get educated!

[purefire47]

2:37 could not describe these 5 years any better. Internet became the most valuable resource to lead to the diagnosis

[AmyPW8]

Fabulous.

LYMIES ROCK! ;)

[MsMaddyAddie]

We suffer while doctors who are not lyme literate decide the CDC has all the answers. There are thousands of us who are suffering because doctors refuse to listen, learn,& see us who we are. We are human beings who are sick & deserve quality and empathtic care in the USA. There are over 100 symptoms. I have atleast 40 & was misdiagnosed for almost 3 years after seeing 20 doctors. We are crying out for help and not only have to fight the medical community but the disease too. God help us.

[HCritelli]

Great video! When i saw over 100 symptoms, I felt like someone did really understand me!!!

[fastgirl321]

I hate lymes disease. I got it when i was 9 and it really messed me up good. I am 15 now i used to be able to run and run and do all kinds of stuff...

I have awfull pain every day cause of doctors who didnt give a damn!

I would no like to thank the tons of doctors ive seen by saying "YOU SUCK ASS"

and i mean that with every ounce of my self i have

i had a good life lyme disease really ruined it...

[whistlepighunter]

These doctors in Kentucky are just as lyme illiterate as any others, they don't believe you can get lyme disease in this state period!!! I was told this over & over even though I had the tick and the rash at the beginning of the symptoms. I'm really ticked off at some of these doctors for some of their arrogant and smart mouth remarks and I will never forget how they treated me for many misdiagnosed diseases, now that I've found a product that works I'm hoping get rid of it. NO LYME DR'S IN KY.

[TruthAboutLD]

Thank you for your comments and ratings. LymeliterateRN I myself learned doctor's were wrong the hard way. It is an epidemic in EVERY state. Here in Calif Md's think of this as an East Coast Disease. There are so many here misdiagnosed I am sure! Jramsboy, my son is your age and has had to put off college due to LD treatment. No matter how old or young we are Lyme is a life thief, I am glad you are doing better. What seems impossible you have proven is possible, wellness! Wellness to all, TALD

[lymeliterateRN]

Thank you. There are too many of us to be ignored any longer.

I'm a Lyme pt who saw 40+ drs over 6 yrs despite a classic onset of this illness. I'm an RN & trusted that drs were right when they insisted "we don't have Lyme in WA." WRONG. It's in every state & it's epidemic.

Their ignorance has cost me any semblance of a normal life. I could have been cured; many could have been cured. Instead we're suffering with a dz marred in controversy.

We're in the millions. Enough is enough.

[TruthAboutLD]

Please go to our website shown at the end of the video for literally every subject about lyme disease. It is all educational, click on stories, resources and forum and at the board index are nearly 90 articles regarding LD. We also have a lyme disease forum with educated lyme patients available to help answer any question you may have.

[jramsboy89]

your not alone. i lost the best 4 years of my childhood to Lyme. throughout my 4 years of highschool i was so sick and tired all the time i would miss over 30 total days of school each year. junior year i was homebound for 6 months. i was an athlete my whole life up to 14. but during highschool i had to watch from the stands as the best years of my life ran by me. im 19 better now. at community college from missing so much school. i dream i getter better so i can join the Marines after college.

[gwhmnd]

AMAZING, PROFESSIONAL JOB! Video covers it all. This seriously deserves an award. Music fits perfectly, just a great job all round! Wow! is right!

[jcarreraaj]

Wow

[cotmh]

I have now forwarded this video to many people. I have been told a mother & son w/Lyme made this video? Amazing so professional. Thanks for educating people and I hope you are both well soon. God bless.

[TruthAboutLD]

Hi everyone, yes my son and I made the video. 6 members of our family have Lyme. (Yes California..we have lyme big time!) Thanks to all kind comments here. Our goal is to help educate our world, we are hoping this is one more way of doing that. We hope you will forward the link to family and friends and they will learn more about what you are suffering & hopefully it will help people that might have LD and not even know it. Blessings and wellness to all Lyme patients.

TruthAboutLymeDisease

[nawdik]

Great video. Straight to the point and accurate. Everyone should see this!

[lymelights]

I have never seen a video so totally complete explain in less than 5 minutes about this sickening disease. I am sure I speak for all of us w/Lyme ...thank you..I will be sure to pass this on. Perfect song from Creed too.

[baumsy18]

GREAT video! I am a chronic Lyme patient, as are my husband, neighbors, colleagues, and many students (I'm a counselor). We're getting there! May-June Psychology today has a Lyme article and quotes ILADS docs and addresses the controversy. The political denial and complicituous medical community cannot last much longer! Glad my daughter let me use her youtube account to post!

[ecftube]

Hi there,

I am a Lyme patient that wrote a brochure with the help of 2 Lyme specialists.

Would be happy to email anyone a copy.

Elaine in Virginia

[lennonlegend0909]

i have weird rashes i think might be lyme could i email them to u....

[ecftube]

I am not a physician but you do not have to have a perfect bulls-eye rash to have Lyme disease. In fact, you do not have to have a rash at all to have it. Send me your email and I will send you a very helpful brochure. One of the Lyme specialists that helped me with this brochure is world reknown.

Elaine in VA

[AmyPW8]

I would love one Elaine.

Amy

[ecftube]

What is your email address AmyPW8 ?

[gratefulwife2brad]

Excellent job!!

Dawn Irons, Editor

Public Health Alert

[MrsMozart]

Very well done -- 5 stars! Thanks for giving those of us with Lyme Disease a voice.

[zxoxmissyxoxz]

:D

ilmb!

[destiny4mee]

Great job, luv the song :-)

[rorocigio]

awesome video! Good job. Love the song too.

[cotmh]

AWESOME - BEST LD VIDEO HERE!! WOW!!