Professor Alan Ebringer on Diet and Ankylosing Spondylitis

[1sysyphus]

Why is anyone trying a "low" gluten diet? Gluten should be a "no" gluten diet if you are going that way. It is all or nothing. A low Gluten diet is a waste of effort. And Gluten is NOT a starch, it is a protein. I am just in the first days of this low starch diet for my AS and I am feeling great. I can't say it is going to work, but I can say that I am feeling very good so far. It is worth trying.

[TehPicksy]

Dear Professor Ebringer,

I love you. THANK YOU. I feel better than I have in a long time.

[ReWir3d]

In GENERAL, there have been MANY studies trying to de-bunk Ebringer's and his colleagues at Kings College and elsewhere work. Most of these lack an understanding of the disease mechanism details (like measuring Klebsiella levels in ALL, including INACTIVE patients).

Improper DOE, very clumsy techniques, unscientific data collection can all be cobbled together into a "scientific-looking" paper, but when properly and thoroughly analyzed they nearly all fall apart.

SUCCESS is enough support 4 me

[ReWir3d]

The NoStarchDiet is NOT LOW GLUTEN. A Low-gluten diet will not eliminate Klebsiella substrate, so such an assertion is invalid; simply going low-gluten SHOULD NOT reduce AS symptoms. DIET is KEY in AS: Prove it to Yourself by FASTING, long-term. I have fasted--water-only--for 20 days and had very lasting remission as a result. It takes at least four days, due to half-life of IgA. I have had AS since late 1971, and now too many surgeries! HEALTH!

[3948jeff]

@ReWir3d Sorry, ReWir3d, I misspoke, I meant the Low starch diet that Dr. Edringer recommends on KickASdotORG "The London AS Diet", which reduces starchy foods & increases high protein foods, vegables & fruit. I have not read that fasting is part Dr. Edringer's diet. After 37 years of personnal research on myself, I found a diet low in saturated fat with a whole grain (wild rice, oats, oat bran), a vegatable (broccoli, spinach, carrots, salad) & a meat/fish protein is best for my AS & my bowels.

[3948jeff]

@ReWir3d I want to add that just because a low starch diet did not work for me does not mean that it will not work for other people. I strongly suggest that people with AS try it & see if it works for them. I wanted to add that there are clinical studies out there that found no link between active AS & Klebsiella. Search for the article titled "Somatic Serogroups, Capsular Types, and Species of Fecal Klebsiella in Patients with Ankylosing Spondylitis" from Finland, an interesting counterpoint

.

[3948jeff]

I wanted to add that my AS started in my neck, not in my lower back. My family doctor refered me to an Ortho doctor, who did not know what it was either. Then after doing sit-ups in gym class I started to get spasms in my lower back. I went back to the Ortho doctor who took X-rays which showed bone spurs. After that my ortho doctor suspected that it might be AS, so he tested me for the HLA-B27 antigen, which was positive and finally diagnose me with AS at 15 years old. I've had AS for 37 years.

[3948jeff]

I've tried the low gluten diet, but it did not work for me. I had no reduction in my AS pain. This suggests that the Klebsiella bacteria is not the only trigger for AS. I’ve found that 3 meals averaging about 600 cal each, low in saturated fat & high in fiber containing a starch (wild rice, oats), a vegetable, and a protein is best for me. I do know one trigger was when I was brushing my teeth & my back shifted and that brought an attack that has lasted a long time, that's when I tried the diet.

[dollie4349]

Thank you so much for sharing this! :)

[ReWir3d]

Now understand who is speaking: Ebringer has 20 years and over 600 patients experience and myriad research papers published. He is a scientist while his detractors are usually physicians with less than a minor percentage of his experience.

[ReWir3d]

Hi, missshebella! The diet for AS requires exclusion of starches, especially unnatural ones (flour products), improperly cooked (fried), and soluble (potatoes and corn). It is not so much that we eat these once in a while--but our diets have come to rely upon daily starch--daily bread--and that is a major factor in producing AS in the first place. The intestinal tract can be healed so that, eventually, some starches can be eaten, but this requires strict diet, initially.

[missshebella]

What exactly does the diet entail?

[biakuya]

Everyone is different, there might be better ways to deal with this, i hope this is helpful to someone and i hope everyone can find a spot as close to the cure as possible. Also, the meds started having more effect about 3 months after i started, so be patient if you start under a similar prescription by your doc and don't hurt yourself, listen to your body.

[biakuya]

This is just my experience, i did not eliminate the pain 100%, i still feel mild pain and stiffness, but i feel i progressed a lot and i have faith i will get even better with time. I can walk fast normally, have a good posture, i do back swim etc and i'm taking it easy so as to not hurt myself more.

[biakuya]

while there might be no cure there are documented cases where the symptons came to a halt completely (something hard to find when you look on the net because the ones in pain feel more need of talking about it and when you are feeling good you don't want to remember it again, i was feeling great but just researching about it and watching/reading about people with pain made me feel pain too), your emotional and psychological is VERY important to be kept strong and as relaxed as possible. Cont...

[biakuya]

Being active doing/achieving something you like will be very benefical too.

Let your mind go off the disease (not for a day or two, but almost never think about it, and don't think of yourself as ill, think of yourself as a beautiful, healthy and strong human being) ignore and overcome it. Continues...

[biakuya]

low starch and no milk + sulphasalazine helped me a lot, i used to not be able to sleep because i woke up after 3 hours with a terrible pain and stiffness, i was not able to walk without limping and further hurting myself, you have to relax and do very minor exercises that won't get you worse and wait the meds and your diet to have effect. I also had a burning feeling on my back close to the arms during the day with sometimes a feeling like there are ants walking in your skin,this all went away

[ReWir3d]

I will not delete your message. Calcium fluoride is a naturally occurring mineral but the sodium fluoride they have dumped into our drinking water is a poison that can prevent proper assimilation of both primary and trace minerals even selenium, a low level of which can lead to cancer. But many things can cause cancer and I hope that you can defeat this, as well as AS.

--For daenz0THE No-Starch Diet works--but it takes much patience to 'make it work.' Fasting also helps.

HEALTH,

John

[tracy10UT]

Hi. I noticed that every comment I made on all the AS boards has been deleted so I'll make them all again. I have every symptom described as AS, but it hasn't yet been diagnosed. In fact, I have other accompanying diseases such as cancer also. Am really interested in the connection of this disease with fluoride being added to the water as well as the 7 years I was exposed in Canada to spraying with Agents orange, purple, and white.

Wonder if this message will be deleted too.

[daenz]

Hey guys i have AS as well

can anybody verify low starch diet?

i never heard about this before since my specialist never told me this

[eternalease]

i cut out gluten thinking it was the problem and got better but not completely.

havent been on no-starch for long but i feel better already.

starch is junk food anyway, calories with no vitamins/minerals

[klbcowan33]

I have suffered with AS since the age of 10 . I am now 34 . The doctors really did a number on me now I am in the worse possible shape. I hurt everyday all day long. All they will do is give out pain killers and of course they love to do surgeries ! I have had 24 so far ! The last one was 3 years ago and it seems to have made my pain worse. Does anyone know why ? It started in my hips and just 5 short years ago my back started hurting. Can anyone help me ?

[klbcowan33]

I have suffered with AS since the age of 10 . I am now 34 . The doctors really did a number on me now I am in the worse possible shape. I hurt everyday all day long. All they will do is give out pain killers and of course they love to do surgeries ! I have had 24 so far ! The last one was 3 years ago and it seems to have made my pain worse. Does anyone know why ? It started in my hips and just 5 short years ago my back started hurting. Can anyone help me ?

[tridoug]

The the Specific Carbohydrate Diet as outlined in the book Breaking The Vicious Cycle.

[eternalease]

Make veggie juice or tea with ginger to relieve inflammation. i find its the best.

Apply Comfrey Cream to joints, it is anti-inflammatory and cold acting. it reduces muscle swelling which puts pressure on joint/bone and causes pain.

omega 3 / 6 balance affects inflammation response. you can take omega 3 capsules to bring down inflammation response.

starch is evil dont eat it!

Mary Jane is best for the Pain!

also, garlic, tumeric, cayenne pepper, bicarb, apple cider vinegar...

[Wivanunu]

Did you start the kickas(dot)org website? I've been going there for years...especially when I flare and need support!!

[Wivanunu]

I have had no x-ray changes but have every other symptom on that list. I started with severe symptoms when I was 15 years old and was sent from one doc to another for years. Finally, when I was in my upper 20's I had simple bloods tests and was diagnosed wit AS. At that time I had no x-ray changes...but now at 37 I should see if I do. I did have a rheumy tell me that no changes meant there was no way I could have AS....completely untrue. I am in tons of pain and have lost faith in my docs.

[ReWir3d]

I regret that physicians are a major part of the problem, lacking so far behind the science that there really is no valid excuse! You can find many who will do more harm than good--the best I had caused my AS to accelerate--well, I took those bad drugs, but their ignorance continues even to this day to cause suffering and even death for some of us with AS and related conditions. Beware!

[ar1340]

You have points about doctors ingnorance. However, you have shown enough ingronace on your part in taking those drugs as well.

[ReWir3d]

You are exactly correct, and this is my main point--don't go down the path I have already gone; I was duped by the medical establishment enough for every living person with AS.

[ar1340]

Medical professions(RA doctors) at start prescribe NASID which runis the gut and colon and actually make the conditon much worse. After NASID, they will prescribe biolobics and other toxic meds such as Arava, MTX that will ruin your complete immune sysetm. When no longer have answers, they say take painkillers. This is a road most travelled by most paitents. Please everyone look at diet and alternatives and dont be duped by RA doctors.

[glawrence9]

@ar1340 which diet have you tried? so you have AS?

[3948jeff]

@ar1340 I've tried all sorts of diets including the low gluten diet and I moved to a very dry weather climit area, but none of that has helped me except for aspirin, Aleve, which I can only take very sparingly, and my special exercize routine. But you are right about NSAIDS ruining my stomach and causing GERD, so I must take them sparingly with food. I'm very leery of taking any of the immune suppressing drugs like Humira which are much too expensive for me anyway.

[glawrence9]

@Wivanunu I have AS too the doc thinks so the chiro doesn't . I am 39 and have chronic pain and stiffness in my upper back. I have become so desperate I am now on an elimination diet, have you heard or tried this yet?

[Wivanunu]

@glawrence9 No I haven't done this. How do you do it?

[jtnerd]

Thankyou for posting this video.

[ReWir3d]

You are very welcome; I hope that this helps you more even than it has helped myself!