Nathaniel & Ryan's Unrecognized Battle with Twin to Twin Transfusion Syndrome (TTTS)

[lowndesie]

thank you for sharing was a lovely video, i lost both my girls to TTTS i lost makayla @ 24wks when we were told about TTTS and then i had then both at 29weeks and grace lived for 7hrs it is so sad exspecially when the hospital or doctor doesnt warn u about it untill one baby dies.

[lima12810]

I am so sorry about makayla and grace. It is so heartbreaking to hear of other losses. If you ever need to talk to other parents for support and understanding on facebook, there is a TTTS grief support group and one called TTTS hope and connections. xxxx to you...

[lima12810]

Thank you for your caring thoughts support! TTTS, mommy I am so truly sorry about your loss. It breaks my heart for you <3. Habiscusgirl, thanks for your kind words. I am sure that you don't take any moments with your sister for granted. Twinmommy, I am so relieved to hear that you won over your battle with TTTS. What a blessing they surely are to you!!! xxxx to all..

[TTTSmommy]

I'm very sorry to hear about your baby boy! I was also diagnosed with TTTS at only 21 weeks. I never heard of anything before then! I went to get a procedure done to stop the sharing of the vessels in the placenta to try to save them both! Before I got the procedure done they did another ultrasound check only to tell us that we had already lost our Jayden at 22 weeks, he was the donor. Since they were still attached they monitored Ricky, the recipient, very close. Ricky came at only 24 weeks.

[habiscusgirl]

Beautiful video! Best I've seen. I am a twin and I could never imagine life without my twin! My mother is a twin also. You and your family will always have a place in my heart and thank you for raising awareness!

[2011TwinMom]

I have watched a bunch of videos about TTTS. This is BY FAR the best one I have seen. My twins were diagnosed at 16w 4d. My husband and I decided to go with the laser procedure, which was very successful. I made it to 34 weeks and delivered two beautiful boys. My heart breaks for you and your family. I can't imagine one minute without my boys.You are such wonderful people to share your story to show others how scary TTTS can be. I appreciate you for educating everyone. Thank you!