My Shocking Story-Dying to Sleep-part 4

[nikanor32]

those 3 dislikers sucks! 

[Rodolfomr12]

Thumbs up if you hate reading the comments before the video but still do it.

[wangzongxiang123]

can i just go to a doctor to take a genetic test although I dont know what disease me or my family have? or can they detect any potential disease I might have in the future by taking the genetic test?

[fizzletto3]

@wangzongxiang123 Yeah but it costs thousands of dollars

[AnontheOP]

What I saw was a bunch of clinical and clueless lab coats with useless college degrees harassing this family. Hours and hours before they're even allowed the option of taking the genetic test? That's torture. They should have been bending over backward for that family. I would have been like "shut the fuck up, take the blood, and get this shit started." So sad to see this family treated like lab rats. No wonder if was so hard.

[Jsledge85]

@AnontheOP How could you possibly allege the doctors and medical staff were unprofessional under the circumstances? How exactly is a "college degree" worthless, considering without trained medical professionals these families would be left to their own devices?. Perhaps you are jealious because you lack a college degree? Furthermore, the patients consented to the examinations, no one forced them to participate!

[AnontheOP]

@Jsledge85 I am more educated than you realize, sir. My comment was 10 months ago, but what I meant was that they treated the testing like a lottery and made the family go through the interviews and massive red tape instead of just cutting to the chase. I've seen doctors who get right to the meat and potatoes and others who hem-haw around for months - years even, presumably to squeeze extra money and for bureaucratic nonsense. Such is the way of our medical industry these days, sir.

[Tooolie13]

the brother is hot!!

[cantroos]

you know I don't understand this kind of thing at all, how can you contract a prion disease just by having certain jeans? I mean I thought it was transmitted by infected animal meat or something like that, not fibres. This makes me really nervous because I have four pairs, 2 from GAP and 2 from Old Navy. Lets just say I'm wearing sweat pants right now, I wouldn't wish this disease on the worst of them.

[SuperNaTaA]

@cantroos GENES your idiot :( It has nothing with clothes to do :) It's in their genes! :(

[McFappin]

@SuperNaTaA get trolled harder...lol that's not even close to being a good troll 3/10 you should be ashamed.

[bibi5027]

@cantroos it is genetic,what you bubbled about jeans

[Mariah4fun]

@cantroos: seriously? LOL!!!

[r0galik]

@cantroos hahahahaha :D awfully funny man ;d

[fingerprint211b]

Damn, I hope they don't have it.

[Freyaloulou]

This disease is not only attack on those who inherited by the family, but also sporadically happen to a healthy middle age woman. To see how they suffer before they terminated by the disease is totally a terrible nightmare!!

[brianandrewwong1989]

The two White children, if they wanted to have children they could. They could simply adopt. I was adopted.

[piasillo]

@brianandrewwong1989 - Sadly, if they did have it, their adopted children would have to lose another set of parents.

[pokemonprincess1988]

I think that some of you are being very selfish. How is it any of your business whether or not Andy or Meghan have the disease? It's obviously something that they might want to keep private and it's not for any of you to say whether they should or not just for the sake of voyeurism.

These are real people dealing with real issues, it's not a soap opera. Please be a bit more sensitive.

[pokemonprincess1988]

I see some of the comments written here and I do wonder, how can people be so selfish? Does it matter whether or not they want to tell us whether or not they have the disease?

Wouldn't you want the option of keeping that to yourself? Try putting yourself in their shoes.

You are lucky and don't have to live with the same burdon as they do. If you are going to be like that go and watch a soap opera or something, because these are real people going through some very serious obstacles.

[Qodaet]

Megan seems to be a good person. I hope she doesn't have it. Her brother too. I also hope that science may find a way to convert prions into normal proteins again, or some other way to stop the infection. Prion diseases are for sure the most terrible diseases one can get. There is no escape, death is by now the only possible end.

[airmaxltd94]

25 years of my life well spent. I now love sleep!

[icekat83]

Glad this is up. I missed the last five minutes.

Poses ethical debates though. What about children, do we screen them for things like this and then abort them if they have it? Some would say we'd be saving them, others would argue that it's still death, just earlier and without the time they might have had.

I don't have the answers and I sure hope I never have to make that kind of choice, I wouldn't wish it on anyone.

[mfentruck]

@icekat83

What? Why in the world would anyone have an abortion just because their child could have this disease? People can live up to 50 years before their death begins with FFI. I'm sorry but I find it impossible to comprehend how 0 could be better than 50 years of life. If you knew that you were going to die at age 50 would you commit suicide at age 20?

[icekat83]

@mfentruck Hang on. I did Not say we should abort! I just said it's sad that people have to live through this, and sad for their parents too. I raised some of the questions which would have been raised eventually anyway. Some things like this will be debated soon I'm sure of it. I don't stand on a side. Just offer best wishes for people and families with this disorder.

[KMGaza]

@mfentruck Maybe 50 years is better than none, but then you're passing this genetic disease on for another generation, and then those kids may be passing it on for another generation and so on. If people with the disease decided not to have kids then the disease would die out.

[Skywalker91]

@mfentruck - If I had or carried that disease, and I got pregnant, I would definitely abort. It is not fair to risk putting someone through such a outdrawn, torturous death.

[mfentruck]

If you knew you had the disease and lived your 50 or so years then you can come to Oregon and get assisted suicide.

But none of that matters because if you knew you carried the disease then why not just not get pregnant in the first place. Same fucking outcome

[TheTifaLockhart]

Megan had it,

ive seen it before,

dunno if she died,

[Asteroidking13]

Thanks for spoling the ending, jerk

[WeatherMondacicci]

Don't know... they never did say. The family probably wanted it to be private or something

[corneta001]

But I think this program has been cut, because when i saw it in spanish version they finally said they didn`t have the disease

[WeatherMondacicci]

I know but I didn't cut it as this was the full program...I was curious myself.

I'm learning Spanish myself but don't know much to watch an entire video.

[mickeymouse12678]

@corneta001 They don't have it?

Oh thank goodness.

[homeostasis4me]

Thanks for posting this. Instant fave....

[MiKJnr]

wtf do they have it or not :L?