I have recently started a Retinitis Pigmentosa Awareness Page on Facebook. If anyone is interested in spreading awareness and helping support finding a cure for RP, please visit my site and hit the "Like" button. It should be one of the first sites that pop-up if you type it in the search bar on Facebook. The picture is of a purple ribbon. Feel free to post personal stories on the wall also. Thank you for your time reading this short paragraph.
ANY OF YOU R,P"ERS OUT THERE WANT A FRIEND OR A MOAN THEN FACEBOOK ME BRADLEY WOODAGE ,......... AND SOMEONE INVENT RUBBER BOLLARDS AND FOAM SIGN POSTS FOR GOD SAKE I"M BEGINNING TO LOOK LIKE A SCARRED UP BRAWLER ,,,
HEY MASTEROF PUPPETS DO LIKE THE REST OF DO PINBALL YA WAY THROUGH LIFE BOUNCEING OFF EVERYTHING THAT GETS IN YA WAY ,, A WARNING "YOU COULD BE YOUR BIGGEST DISABILITY" I JUST SMILE COS I DON"T KNOW HOW LONG IT WILL BE TILL A LAMPOST KNOCKS MY FRONT TEETH OUT ,, LMAO ,, "ENJOY IT WHILE YOU"VE GOT IT BEFOR IT DISSAPEARS "
This is a synopsis of my film I am currently directing Diagnosed with Retinitis Pigmentosa at an early age -legally blind filmmaker Victor MIFSUD presents, THE WAY EYE SEE IT a documentary film about the struggle and constant adaptation to a world where visual ability is an assumption. Shining light on a rare and irreversible condition, which has literally transformed his visual field into a constant, framed vision of the world - ironically leaving him forever looking through a camera lens."
My RP never looks like I'm riding a bike with a used toilet paper tube held up to my eye. This video reminds me of one of the opening credits for a James Bond film. 8)
Hey :) I have RP too and I know what do you feel. But dont give your depression a chance its not worth it. Have fun with all the things you will do in your life. Learn to play an instrument it helps. You have to learn to live with it. Dont fight it !! Accept your RP as a part of you. Bye :)
im 19 and yes it is a bitch but mine has gotten worse this year quite a bit but you adapt. im at uni and living with friends the worst thing to do is to let it rule your life
RP is a collection of genetic disorders which cause the rods and cone cells of ones retina to slowly get destroyed.
Usually it starts with nightblindness (the inability to see in dark or dimly lit places) and as it progresses one starts to see less and less side vision (the tunnel vision) and eventually total blindness.
I have this condition as well..it's especially troublesome in busy streets with lots of traffic and crossing streets.
You simply miss things and people and they just appear.
I have RP and it is similar to this. Especially as how it seems when you look to the distance that you seem to see more area, but things close up you see less.
I have recently started a Retinitis Pigmentosa Awareness Page on Facebook. If anyone is interested in spreading awareness and helping support finding a cure for RP, please visit my site and hit the "Like" button. It should be one of the first sites that pop-up if you type it in the search bar on Facebook. The picture is of a purple ribbon. Feel free to post personal stories on the wall also. Thank you for your time reading this short paragraph.
IronMaidenMan1 2 months ago
I retines pigmentosa and it is not so nice,
so I do not think you should put some music underneath
jepie15 1 year ago
basuraaaaaaaa
esteban666ful 1 year ago
THIS HAS GOT TO BE MY FAVOURITE SONG ,,, EVER ,,, LOVE IT TO PIECES ,, WHO DONE IT ?? ,, PLEASE TELL ....
MrWoodage 1 year ago
ANY OF YOU R,P"ERS OUT THERE WANT A FRIEND OR A MOAN THEN FACEBOOK ME BRADLEY WOODAGE ,......... AND SOMEONE INVENT RUBBER BOLLARDS AND FOAM SIGN POSTS FOR GOD SAKE I"M BEGINNING TO LOOK LIKE A SCARRED UP BRAWLER ,,,
MrWoodage 1 year ago
HEY MASTEROF PUPPETS DO LIKE THE REST OF DO PINBALL YA WAY THROUGH LIFE BOUNCEING OFF EVERYTHING THAT GETS IN YA WAY ,, A WARNING "YOU COULD BE YOUR BIGGEST DISABILITY" I JUST SMILE COS I DON"T KNOW HOW LONG IT WILL BE TILL A LAMPOST KNOCKS MY FRONT TEETH OUT ,, LMAO ,, "ENJOY IT WHILE YOU"VE GOT IT BEFOR IT DISSAPEARS "
MrWoodage 1 year ago
Like, wonderful way to recycle the core from a roll of buttwipes. Way to go, babe!
pantyflash 1 year ago
This has been flagged as spam show
This is a synopsis of my film I am currently directing Diagnosed with Retinitis Pigmentosa at an early age -legally blind filmmaker Victor MIFSUD presents, THE WAY EYE SEE IT a documentary film about the struggle and constant adaptation to a world where visual ability is an assumption. Shining light on a rare and irreversible condition, which has literally transformed his visual field into a constant, framed vision of the world - ironically leaving him forever looking through a camera lens."
bossaperdue 1 year ago
My RP never looks like I'm riding a bike with a used toilet paper tube held up to my eye. This video reminds me of one of the opening credits for a James Bond film. 8)
chadc0613 1 year ago 2
I have rp and im only 17
i just am praying for some treatment
life really isnt worth living, if it gets worse, i dont know what i would do.
its really depressing but yeah, need to look on bright side if any, and just hope
Masterofpuppets07 2 years ago
Hey :) I have RP too and I know what do you feel. But dont give your depression a chance its not worth it. Have fun with all the things you will do in your life. Learn to play an instrument it helps. You have to learn to live with it. Dont fight it !! Accept your RP as a part of you. Bye :)
Healery1978 2 years ago
I do play an instrument and Hmm, i will always resent it and fight it.. its just me lol
Cheers for advice anyways
Cya
Masterofpuppets07 2 years ago
@Masterofpuppets07
im 19 and yes it is a bitch but mine has gotten worse this year quite a bit but you adapt. im at uni and living with friends the worst thing to do is to let it rule your life
good luck
samlong38 1 year ago
@Masterofpuppets07 i can´t speak good english, but i think we can do something to heal this Illnes ;)!!!
Ailoex 1 year ago
RP is a collection of genetic disorders which cause the rods and cone cells of ones retina to slowly get destroyed.
Usually it starts with nightblindness (the inability to see in dark or dimly lit places) and as it progresses one starts to see less and less side vision (the tunnel vision) and eventually total blindness.
I have this condition as well..it's especially troublesome in busy streets with lots of traffic and crossing streets.
You simply miss things and people and they just appear.
Batavian187 2 years ago
Check out RP International's Channel and join its "Fight Against Blindness"
RPInternational1972 3 years ago
i think u cud explain it a bit.....give more info on rp....i think rp is genetically transmitted disease....it runs in my family.....
HARIER416 3 years ago
I have RP and it is similar to this. Especially as how it seems when you look to the distance that you seem to see more area, but things close up you see less.
nacianell219 4 years ago
i like it but would like more info. cuz i'm doing a researuch paper
hijaabiforlife 4 years ago
Love it. I have RP and it is a good way of people seeing what it is like. Not exactly like this as you can imagine
Yarnaguide 4 years ago