I asked my initial neuro probably around the time MRF incepted if ideas were being shared by drug companies to reach a shared cure. He, of course, said they did. Don't know if he knew MRF had formed. I doubt it. But I have MS and so GLAD
it has formed. I will continue to look on their website for progress. Thank you Scott J.
Interesting video - what a bizarre disease !! - Some very close friends of mine have a little boy who's suffering from "Demyelinating Leukodystrophy", like MS the Myelin breaks down, all this is way over my head, but with all the reasearch you guys are doing, what is the prospect of reversing his condition in the future - ie: if somehow it became possible for his Myelin to be re-generated, is there any prospect of him becoming a regular person again, or is he stuck with it permanently?
Collaborative, mission driven science is key -- not capitalistic secrecy. Unfortunately, the $ is the bottom line in terms of motivation to find cures for ms and other maladies. I wish you all the greatest of success and everyone who works on this project should know that if you DO succeed, you will have the unbridled gratitude of MS sufferers.
As a person with MS I have to be positive. I received the great news in mys 30's. I'm now 40. So saying use your head and talking negatuve about the pharma business is just pure stupidity. Think positive or we will find no cure. Keep up the good work..
This was a great video and brings hope into my life! My stepmother has MS. I already lost my mother to cancer and I don't want to loose my stepmother too!
Thanks for the kind words! Fortunately, MS is rarely as life-threatening as cancer, but we are still working as fast as we can to develop a myelin repair treatment for folks with MS, like your stepmother.
i hate to say it folks....use your head...if they find a cure, cure meaning no more traces of MS in body, then you will not need meds anymore.....no more meds means no business for the billion dollar Pharma business...use your head....
GREAT video, however, I don't believe this will ever happen in my life time! If I am wrong, then prove it!Sick, & disabled people don't have the time 2 wait! PLUS, we want a CURE, not a drug!!OMG!!We are not fools! We R sick, & helpless! We need your help 4 a cure, not a speech of what U R doing!Time is flyN by!!Hurry up, and stop talkN aboutIT!!!!!!!!!!
thats crazy i have ms since 2005 my lil sister has als now aswell 2 years now yo thats crazy don't know my father can't speak on him i have a son i pray he never has no sickness
We're doing both! We have folks who work on videos and folks who work on the cures here, and trust me, there are many many more folks working on the cures than on the videos. :)
And more to your point: We are speeding research toward an MS therapeutic faster than anyone else in the non-profit world. Period.
Visit our website for details on our research and our progress. Good luck!
this is crazy!!! Rick Simpson HAVE cure but they don't alow him to have licence for it. This is TRULY crazy! Why no one talk about that? Crazy!!!!
1mashoman 9 months ago
I asked my initial neuro probably around the time MRF incepted if ideas were being shared by drug companies to reach a shared cure. He, of course, said they did. Don't know if he knew MRF had formed. I doubt it. But I have MS and so GLAD
it has formed. I will continue to look on their website for progress. Thank you Scott J.
jets7021 9 months ago
Interesting video - what a bizarre disease !! - Some very close friends of mine have a little boy who's suffering from "Demyelinating Leukodystrophy", like MS the Myelin breaks down, all this is way over my head, but with all the reasearch you guys are doing, what is the prospect of reversing his condition in the future - ie: if somehow it became possible for his Myelin to be re-generated, is there any prospect of him becoming a regular person again, or is he stuck with it permanently?
activerog 10 months ago
XMRV XMRV XMRV XMRV
omv08 1 year ago
Collaborative, mission driven science is key -- not capitalistic secrecy. Unfortunately, the $ is the bottom line in terms of motivation to find cures for ms and other maladies. I wish you all the greatest of success and everyone who works on this project should know that if you DO succeed, you will have the unbridled gratitude of MS sufferers.
worktosser 2 years ago
As a person with MS I have to be positive. I received the great news in mys 30's. I'm now 40. So saying use your head and talking negatuve about the pharma business is just pure stupidity. Think positive or we will find no cure. Keep up the good work..
susan7006 2 years ago
This was a great video and brings hope into my life! My stepmother has MS. I already lost my mother to cancer and I don't want to loose my stepmother too!
emurphy071107 3 years ago
Thanks for the kind words! Fortunately, MS is rarely as life-threatening as cancer, but we are still working as fast as we can to develop a myelin repair treatment for folks with MS, like your stepmother.
myelinrepair 3 years ago
Thank you MRF!
Treeshalee83 3 years ago
i hate to say it folks....use your head...if they find a cure, cure meaning no more traces of MS in body, then you will not need meds anymore.....no more meds means no business for the billion dollar Pharma business...use your head....
migo53333 3 years ago
GREAT video, however, I don't believe this will ever happen in my life time! If I am wrong, then prove it!Sick, & disabled people don't have the time 2 wait! PLUS, we want a CURE, not a drug!!OMG!!We are not fools! We R sick, & helpless! We need your help 4 a cure, not a speech of what U R doing!Time is flyN by!!Hurry up, and stop talkN aboutIT!!!!!!!!!!
karena321 3 years ago
I agree. You are right!
My father had MS since 1959 and died in 1979.
We kept saying that they would find a cure for him.
Now I have MS since 1995 and don't want to die like him. There is basically nothing still.
My brother died of ALS 10 years ago too!
All talk...
Entropy56 3 years ago 2
thats crazy i have ms since 2005 my lil sister has als now aswell 2 years now yo thats crazy don't know my father can't speak on him i have a son i pray he never has no sickness
jermeal385 2 years ago
We're doing both! We have folks who work on videos and folks who work on the cures here, and trust me, there are many many more folks working on the cures than on the videos. :)
And more to your point: We are speeding research toward an MS therapeutic faster than anyone else in the non-profit world. Period.
Visit our website for details on our research and our progress. Good luck!
-Peggy
myelinrepair 3 years ago
This was Good Video. Collaboration is definitely the Key!
qualisarx 4 years ago 2