I have watched a few of your videos, I'm not an MS sufferer myself but I am a nurse and have a couple of friends that have MS so I have seen how MS affects people, and I must say you truly are an inspiration to all! I just love your outlook on life and your vivacious spirit. What you do is truly indescribably amazing.
All the best Loren, you truly are a special girl and the people around you are blessed to have you in their lives, but im sure they already know that :)
I visited the fly for ms site, its awesome Im very interested will watch the site for updates too, so I wonder then will there be pbs specials or something when are they flying folks?
i watched your first video ... and then this one. and WOW :O i can hardly belive its the same person! you are a true inspirarion, beautiful inside and out. i wsh you all the best in the future and im so happy that i watched this, you make me feel happy.
@bucketchild749 Oh my gosh thank you so much! That first video was filmed about 3 years ago and I feel so much better than I did at that time! I hope you are doing well!
hi lauren my name juan g im 26 just got told i have ms my doctor wants to put me on tysabri tell u the truth i am scared can u plz email me ss_villian@yahoo.com i would love a friend that is going thru what im going thru
Hi Lauren! You are so beautiful and inspiring! U are truly fluent, truly emotional and passionate, your messages are so clear. Thanks also to Andrei and his team!
Thank you soo much for all you are doing for us, MS patients and families. I try to be the best advocate I can be in my country, Portugal, and I wish one day we can meet somewhere. Maybe in the sky :)
I have been working in 2 informal patients groups, and now I also work on the portuguese MS Society.
I was initially very excited when I read that they were even going to help people access medical treatment in other countries since I assumed they were going to help people get this breakthrough treatment by flying them to some of the few countries that are providing it. Then I looked at the website and there was no mention of it.
@rickileeway Hi Rick! Are you talking about CCSVI? I think they are just helping patients who normally wouldn't have access to any kind of treatment for MS. I hope you are doing well!!
Hi Lauren, lovely to see how well you look. I'm so glad the tysabri is working for you. These people who are organising this flight obviously feel passionate about bringing awareness about people with MS to the wider world to want to undertake this novel and original way to achieve their goal. Do you know if they are bringing any awareness to the CCSVI cause?
@rickileeway Oh thank you very much! I feel that this group of people definitely feels passionate!! I don't think they are going to talk about CCSVI, but we will see what happens!
For me I try to relax all the time and not thinking of MS as much as I can …as you know there's a side effects of using Tysabri and I know that but I try to ignore them and just relax after each infusion …and it's going well.
Flying is a little difficult for now because of my wheelchair and I still remember my flight to Amman/Jordan for the "Liberation Procedure" it was horrible …but I did it to see what can Dr.Zamboni's theory affect my MS..And I'm still waiting …and sooo Happy :)
If I could walk again surly I'll fly any where and everywhere …maybe Michigan too …
thank you so much for helping us spreading the word. I'm helping Andrei by organizing the flight and stay in Iceland. Thank you so much again. It's very inspiring for us to see your response.
@mallakj1 Hi Malla! No problem! I think this is an amazing thing that is happening! Andrei is so sweet and he has worked so hard! I can't wait to hear how it goes!
I wonder will they stop in Vietnam!! Cause in my home country don't even have these meds there!! I'm trying 2 get my nurse doctors to help!!
LuckJustBad 9 months ago
@LuckJustBad Oh gosh, I'm not sure - you can check their website that's in my video and find out! Good luck!
laurenvparrott 9 months ago
I have watched a few of your videos, I'm not an MS sufferer myself but I am a nurse and have a couple of friends that have MS so I have seen how MS affects people, and I must say you truly are an inspiration to all! I just love your outlook on life and your vivacious spirit. What you do is truly indescribably amazing.
All the best Loren, you truly are a special girl and the people around you are blessed to have you in their lives, but im sure they already know that :)
Love from Australia
-Tina
hawtnuss 1 year ago
@hawtnuss
Sorry, accidently spelt you name wrong :)
hawtnuss 1 year ago
@hawtnuss Hi Tina! Thank you so much for your lovely comment! That really means a lot to me!
laurenvparrott 1 year ago
I visited the fly for ms site, its awesome Im very interested will watch the site for updates too, so I wonder then will there be pbs specials or something when are they flying folks?
Thanks for info! :)
slothofms 1 year ago
@slothofms I'm going to stay tuned for that information as well!
laurenvparrott 1 year ago
you are soooooooooooooooooooooooooooooooooooooo cute
masaratasm 1 year ago
@masaratasm Aww, thank you so much!
laurenvparrott 1 year ago
i watched your first video ... and then this one. and WOW :O i can hardly belive its the same person! you are a true inspirarion, beautiful inside and out. i wsh you all the best in the future and im so happy that i watched this, you make me feel happy.
bucketchild749 1 year ago
@bucketchild749 Oh my gosh thank you so much! That first video was filmed about 3 years ago and I feel so much better than I did at that time! I hope you are doing well!
laurenvparrott 1 year ago
i love Your "hi everybody/everyone, today is [date]" its make me smile, You're amazing :)
enodmeedgraffa 1 year ago
@enodmeedgraffa Aww, thank you so much!
laurenvparrott 1 year ago
@laurenvparrott Do You have facebook? :P
enodmeedgraffa 1 year ago
hi lauren my name juan g im 26 just got told i have ms my doctor wants to put me on tysabri tell u the truth i am scared can u plz email me ss_villian@yahoo.com i would love a friend that is going thru what im going thru
mfgutierrez07 1 year ago
Hi Lauren! You are so beautiful and inspiring! U are truly fluent, truly emotional and passionate, your messages are so clear. Thanks also to Andrei and his team!
Thank you soo much for all you are doing for us, MS patients and families. I try to be the best advocate I can be in my country, Portugal, and I wish one day we can meet somewhere. Maybe in the sky :)
I have been working in 2 informal patients groups, and now I also work on the portuguese MS Society.
Take care! All the best to you
loisa4 1 year ago
These videos are truly inspiring!
realtimehealth 1 year ago
@realtimehealth Thank you so much!!
laurenvparrott 1 year ago
Beautifully presented as always.Wish you all the very best.
reoreason 1 year ago
@reoreason Thank you so much! I wish you the best as well!
laurenvparrott 1 year ago
another cute necklace! you look beautiful!
dmslova 1 year ago
@dmslova Oh my gosh, thank you so much!
laurenvparrott 1 year ago
I was initially very excited when I read that they were even going to help people access medical treatment in other countries since I assumed they were going to help people get this breakthrough treatment by flying them to some of the few countries that are providing it. Then I looked at the website and there was no mention of it.
Take care Lauren, and stay well.
Rick.
rickileeway 1 year ago
@rickileeway Hi Rick! Are you talking about CCSVI? I think they are just helping patients who normally wouldn't have access to any kind of treatment for MS. I hope you are doing well!!
laurenvparrott 1 year ago
Hi Lauren, lovely to see how well you look. I'm so glad the tysabri is working for you. These people who are organising this flight obviously feel passionate about bringing awareness about people with MS to the wider world to want to undertake this novel and original way to achieve their goal. Do you know if they are bringing any awareness to the CCSVI cause?
rickileeway 1 year ago
@rickileeway Oh thank you very much! I feel that this group of people definitely feels passionate!! I don't think they are going to talk about CCSVI, but we will see what happens!
laurenvparrott 1 year ago
Hi Lauren;
I do think FlyForMS is a great endeavor for increasing awareness. I, too, have talked to Andrei and am excited about the possibilities.
vbeachy 1 year ago
@vbeachy Hi Vern!! Isn't it a great idea? Andrei is great and I'm also excited about the possibilities!
laurenvparrott 1 year ago
Wonderful.good job and very best wishes :D
ppsf1958nr 1 year ago
@ppsf1958nr Thank you so much! Best wishes to you!
laurenvparrott 1 year ago
Hi Lauren
For me I try to relax all the time and not thinking of MS as much as I can …as you know there's a side effects of using Tysabri and I know that but I try to ignore them and just relax after each infusion …and it's going well.
Mody :)
medad1 1 year ago
@medad1 I know what you mean...and I'm so glad it's going well!! :)
laurenvparrott 1 year ago
Flying is a little difficult for now because of my wheelchair and I still remember my flight to Amman/Jordan for the "Liberation Procedure" it was horrible …but I did it to see what can Dr.Zamboni's theory affect my MS..And I'm still waiting …and sooo Happy :)
If I could walk again surly I'll fly any where and everywhere …maybe Michigan too …
Mody :)
medad1 1 year ago
@medad1 Hi Mody!! I really hope that you see results from the Liberation Procedure soon! It would be awesome if you could fly to the States!!
laurenvparrott 1 year ago
yay good job lauren :)
Babydolljami 1 year ago
@Babydolljami Thank you!!
laurenvparrott 1 year ago
Great job Laruen
ThePennygirl 1 year ago
@ThePennygirl Thank you so much!
laurenvparrott 1 year ago
Hi Lauren,
thank you so much for helping us spreading the word. I'm helping Andrei by organizing the flight and stay in Iceland. Thank you so much again. It's very inspiring for us to see your response.
Best wishes,
Malla.
mallakj1 1 year ago
@mallakj1 Hi Malla! No problem! I think this is an amazing thing that is happening! Andrei is so sweet and he has worked so hard! I can't wait to hear how it goes!
laurenvparrott 1 year ago