Added: 2 years ago
From: babydepape
Views: 3,225
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  • My sister has brain damage

  • Im sorry for your lost.I feel your pain, my son died 1 day after he was born on december 2009, he was lacked of oxygen and blood when he was in my belly, when i delivered my son(emergency c-section), was too late cause his brain, lungs and kidneys were damaged; and he was in a coma already. The doctors tried but we couldnt save him :(.

  • i feel bad for you. i feel you pain my baby sister died at 47minutes her head wasn't complete and her lugs were still forming.

  • she is beautiful .

  • Hi just watched your video and wanted to share mine. You can search him under Kai Yi 136 days. I just lost my son after 4 month he was bored with undiagnosed CDH.. He was recovering very well but he was reemitted to the hospital with sudden brain swelling after 3 month from ecmo to surgery.

    It's been so hard and my heart aches for you too..

  • I hope all is ok with your family as you approach Mikayla's 2nd birthday.

    Our baby Jayden was diagnosed with CDH about the time Mikayla was born & wound up on ECMO also. I hope Mikayla & Jayden are good friends in Heaven! :-)

    Thank you for having the courage to tell her story & spread CDH awareness. Maybe see you on the CHERUBS forums? <3<3<3

  • I am so sorry for your loss, its so hard to see your child suffer. I have experianced that myself my son had a rare blood disorder called Neonatal Alloimmune Thrombocytopinea. I am sorry for your loss.

  • wow i cant stop crying my throat hurts from holding it in, :( I cant imagin moving forward after losing a precious gift.. I have a 1 year old daughter and she was taken to the hospital numerious times for breathing problems and I cried like a baby everytime! Seeing this makes me feel so lucky and sad for you :( She was a doll!

  • So touching!

  • heven is a better place because there is no suffering

  • my heart goes out to you and your family she was beautiful.. too beautiful for this earth! xx

  • This video brought tears to my eyes so sorry for the loss of ur beautiful angel sorry to ask this but what song was used on this video id like to use it for a rememberance video for my husbands niece who passed from cdh back in january 2006

  • @ERicAbFLy 'Natalie Grant - In Better Hands'

    Hope this helps

  • Rest in peace Mikayla you are with the other CDH cherub angels. I'm so sorry for your loss. I lost my baby girl in November 09 and my heart aches for you too!

  • Rest peacefully Mikayla.

  • I think about you every day Mikayla.... Love you

  • @babydepape This was the most heart breaking thing I've ever seen. Can't even begin to imagine how the parents dealt with this. Seeing such a beautiful, innocent person struggling from birth. Someonething no child should ever have to go through :/

  • God bless you Mikayla we will always remember you in our CDH family loveClaire and Connie.x.Fly free sweetheart.x

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