Thank you for posting this! I, like you, didn't like to talk about having CFS because there are so many misconceptions about the illness. I was diagnosed Jan 2011 after coming down with some virus in the fall of 2007. I have had a myriad of symptoms just like you, with some being different, but I now deal with the new frustration of thinking I'm "cured" from being totally fine for months and then having a crash that can last from days to weeks to months. It's truly horrible.
I'm 13 years old with chronic fatigue which is really hard because of school.
In 2010 I got glandular fever and missed out on a term of school, last year I had two whole terms off and I've only just recently been diagnosed with cfs.
I've seen many specialists and I am currently taking 8 tablets a day, my mum rarely let's me out of the house not wanting me to over-do it, the maximum exercise I'm allowed is a 15 minute walk each day.
For the last 4 years I have been put on 25 different antibiotic
HUGE division about Fibro & CFS - I read HUNDREDS various postings on research sites, & by patients, & by doctors & therapists - I think 90% of what Ive read OR watched are either only partially correct or just missing the boat entirely wrong. NOTICE she says THEY "THINK" - no - there are major researchers who DO NOT THINK they know - years of study of thousands of patients. A MIXTURE of things attacking you when your immune system collapses. MIX of internal problems creates the SYMPTOMS
Unlike a lot of you, I've yet to be diagnosed with anything but have many of the same symptoms. I got mine after failed back surgeries followed by rheumatoid arthritis but the fatigue I had from my RA is NOTHING compared to this. I believe it has more to do with extreme stress and the body turning on itself like your immune system does with RA. It's just my belief as not much is known about this. Doctors around here don't even bring up CFS.
You people that think a simple solution like flushing your system, juicing or eating the proper diet, organic foods, herbs vitamins, exercise etc is going to cure this don't have a clue. None of that crap has worked.
So many people misjudge CFS sufferers, aka; calling them lazy...but as a CFS sufferer, I know its not as simple as tiredness. It has so much depth; as medication and exercise plans, bad days, good days... It's good that people should know it's not as easy as "tiredness".
oh my god, your like the girl version of me! same sals job i had too but in insurance, i have all the symptoms except a couple you read out on the symptom list, i really feel for you, as im going through exactly the same myself. been off sick two years from work now, destroyed my life xx
How many of you have been tested for lyme disease??? I was diagnosed with chronic fatigue syndrome for 3 years, before finally getting a correct diagnosis of chronic lyme. The symptoms of cfs are virtually inentical to those of lyme disease, but standard lyme tests will often miss the cronic, or cystic form of lyme.
OMG ur video gave me alot of insight. I have been feel unwell for about 4 months now & doctor hasn't been able to explain it. But from reading I reckon it is CFS. :S could u please inbox me? Id really love to talk to u about this. Hope ur feeling better today! :)
I am 41 Single never married and have Chronic fatigue syndrome and EBV so many doctors for so long told me it was all in my head. They send me to doctors for depression then like you they thought it was lupus and ms. Finally after five years I got diagnosed. Thank you for making this video
I'm heading in for a sleep study. They think maybe sleep apnea. I don't know what's going on. I am tired all the time, doc thinks I have fibro myalgia, etc, etc. Lots of things going on with me that seem to have increased in the last few years. I had more energy as a kid and college student, but when I went back to school later, I could hardly do my homework. No energy after classes and everything else.
I hope you're doing better in recent years. Take good care.
I've heard that CFS is actually an immunodeficient or autoimmune disorder, that it can happen after an illness. That's what happened to a friend of mine.
I worry when I see people blame diet, exercise, and not being fully holistic. While I'm sure this would help, there isn't always a simple fix for what happens in our bodies. Even if you were 100% holistic, disease and illness happens. C'mon now.
My heart goes out to all of you dealing with this. (continue in next post)
thanks for this video. im really struggling with people not understanding that ive been telling myself for years that im just useless. get the eye twitches, i worry a lot. depression. constantly exhausted but sometimes i have massive spurts of energy and then just burn out. gettting my bloods done next week. will they help?
Chronic fatigue is not a lack of energy, it's having too much energy for the environment you are in or the life you are living. This in turn causes your energy to flow inwards rather than it would in an outwardly healthy person.
@fastinggurl31 change that quote girl....naturally as humans we all have suffering...but to see unison through it conjours a need for having a support group for a support group! Make time to release animals from the cruelty, feed soil ingredients that dont kill the microbes, eat foods that you pick from the earth herself...do that in unity and there will be less suffering
lock ourselves into the dogma of creativity. There is no creativity within the researchers lab only the thoughts of the wellbeing of her/his family. Without family we are nothing...slowly decaying in the melay of destruction that a western medicinal system upholds. A new born child born with terminal illness is ominous to the feeding frenzey that the pharma industry has generated. Gone or the beloved coffin dodgers of old that spoke with natures cure...
to label something or give it a name generates 'power' over the cell thats being named...to name a bunch of cells generates more 'power'...to name an ease would be entirely against the propogandian logic of pharma versus people. Nature and within 30 yards from your door theres a cure for whatever ails you, that being said the protocals of suberbia denounce this ritual. Wholeness comes with age, as lifes moral teaches us to share this abundance with the 8 hundred million species held within it we
have you found anything else out about cfs? I have been doing a lot of reading and have found a lot of supplements that are meant to help and even some prescription medications, holistic therapies that I had no idea existed. There's also a book called fatigued to fantastic that a doctor who specialized in cfs and fibro wrote.
Thank you for all your comments. To those of you who suffer from CFS my heart goes out to you. I still have CFS & Fibro. I was diagnosed with Cancer this Jan (2011)......I am scared to death what chemo will do to my already disabled body...if you have CFS and have beat cancer or are currently trying please message me!! Much love ...we are united through our suffering....
A great film about ME/CFS entitled VOICES FROM THE SHADOWS recently screened at the Mill Valley Film Festival. It was made by a woman in Great Britain whose daughter has been ill w/ME for years & it is now being made available to stream online in the USA only until October 30th courtesy of MVFF & MUBI. You Tube won’t allow me to post the website, but try to find it!!
Hi! I am a currently diagnosed with CFS.I was very healthy and energetic.
But my life is totally running by this disease.I have been following your video blog since I got this disease.I thank for all your precious information to share with all of us.
I have several question about CFS disease. I wonder if you can help me on them.
1. Is the CFS a sexual transmitted disease?Because I though I might get it from that.
I've been diagnosed with Chronic fatigue syndrome and I'm 14 years old, the year I start my GCSE's and I haven't even started the year yet because I've been off and I'm considering to be home schooled - what do you think~?
I hate being called lazy because of having cfs I'm so sorry if you have any haters on here because believe me I know how hard it is. I had cancer and the heavy chemo caused cfs for me but there are multiple causes. The kind of exhaustion you get when you're sick trying to fight something off is how I feel all the time. I can't even get out of bed until noon. I can't hold a job and can barely get to school and I'm only 19. It's debilitating. and there are no real treatments!
Check to see if you have Candida infection, more than likely it maybe masking under the Chronic Fatigue Syndrome. Go to a allopathic doctor than a recommended Naturopathic Physician and ask them to diagnose if you have Chronic Fatigue or a symptom of a severe Candida infection. I wrote down what's helping me to cure my Candida infection on "Animal ability" board - diet links if this helps let me know.
I recommend a really good book called The Journey Through ME/Chronic Fatigue by Janet Hurrell it is an A to Z to helping you find the best nutrition and finding practitioners and clinics. You can google it and find it on Auther House
The only thing that sets "CFS" apart from borreliosis (lyme disease) is history of tick bite and the "bullseye" rash. ALL THE OTHER SYMPTOMS are EXACTLY THE SAME. If you present to the DR. without a history of tick bite or bullseye rash, they will label you with "CFS" or "fibromyalgia" because it is more profitable for them to treat you for 15 years to lifetime for a "cure/cause unknown" "syndrome".
Our medical doctors are little more than drug pushers.
CFS is not a disease. It's a name that's been slapped on a list of symptoms in order to placate the patient and obfuscate the REAL cause of illness, which is most likely a man-made biologically weaponized bacterium. I wouldn't let a doctor tell me I have "Chronic fatigue syndrome" or "fibromyalgia" or any other "made up" syndrome. I have borreliosis (Lyme Disease), and you probably do, too.
@blog4change Please do some research before making such a claim. You sound like a complete moron, accusing those that are actually looking for a cure (researchers) of creating the syndrome. I am a researcher, I want to research CFS because of its numerous sufferers.
@Bionuker You might want to go back and read what I wrote. I said nothing about researchers. Not a thing. It would do you good to read more carefully. I'd hate to see what your "research" looks like if you can't even comprehend a one paragraph YouTube comment.
@Bionuker I've spent several long months doing nothing BUT researching, since I was crippled and couldn't walk due to a bacterial infection that shares EVERY SYMPTOM with this mystical "Chronic fatigue syndrome". Why don't YOU do some research, since you are a "researcher". You'll find lots of studies on chronic fatigue syndrome and borreliosis; some that even have the audacity to suggest that CFS has a bacterial cause and others that suggest that the bacterium responsible are BORRELIA.
@blog4change I'm sorry to hear you suffer from berreliosos. No one deserves to go through that. The thing that bothered me about your post is the "man made biologically weaponized bacterium". I hear that sort of claims quite often. Researchers like me are actually being threatened, because people believe we create diseases instead of cure them. I find it horrible to hear this, because I've done nothing more than looking for cures for diseases in the past few years.
@Bionuker To deny that scientists are working on biological weapons is awfully naive. The US has at least a hundred facilities where biological weapons research and development are taking place as we speak. I don't blame the researchers or the scientists (I am a scientist myself) because I'm sure they could not have imagined in their wildest dreams that so many people would become ill as a result of their research and experimentation.
@Bionuker I do blame the government and the medical establishment for pulling the wool over the public's eyes. Instead of denying the existence of chronic bacterial infections, they should be WARNING the public of the very real risk we all face every time we venture out of doors. Unfortunately, the pharmaceutical companies can't make stellar profits selling generic antibiotics, so instead we have invented all these "syndromes" that we can treat with a lifetime of expensive designer drugs.
@Bionuker : There is nothing to "research," Einstein! All dis-ease begins with a common cause: TOXINS. We are surrounded by germs constantly but only "catch" things when our toxic overload weakens the immune system! Whether it's cancer or the common cold, to use the term "research for a cure" implies that people are just sitting ducks and it's random whether or not they get a particular malady. Nonsense! What we eat (or don't eat) is the most important thing, along with what we think.
@lemurianchick You clearly haven't got the slightest clue of what you are talking about. Some diseases are caused by toxins, but certainly not a very large amount. Many diseases are caused by mutations in the genes, or are simply genetically determined. Toxins aren't the only things that weaken the immune system. What we eat & think is far from the most important thing...
Fuck this discussing on the internet with morons who don't even try to read up before making extraordinary claims.
@supahfreeak : "Number of things," as in WHAT? Environmental toxins, toxins taken into the body in the form of chemicals in foods or drugs, or the food itself? It didn't just happen! And yes, the vast majority of "triggering" (or as Harvey Diamond calls it: "driving your cells crazy") comes in the form of something that exists from the outside rather than it being innate.
I'm fourteen with CFS. Being at school with this is completely insane. No one believes you. Even some of your friends doubt you. Only the most loyal stick by your side - but even they start to leave you as you can go to school less and less.
Thank you for creating this video - people may soon begin to understand what is really happening to us all. Maybe we won't be completely understood in future anymore, maybe news will come out, the media will catch hold... we can only hope, can't we?
I really appreciate your video. I just came across it. Im 26, female from Australia and not many people here are familiar with CFS. Ive been diagnosed since Feb 2007 and I totally relate to everything you have said. When you said that CFS has totally robbed you /detroyed your life I teared up. Thanks for putting the word out there that this is much more than just being tired! xoxo
I'm having Insomnia. For someone who needs 12 hours of sleep per day, this is making me miserable. Note: It's not just weight gain. I've lost down to below 98 lbs with CFS and Insomnia.
silly question....u re 100% its not lyme desease??couse lyme can be negative yet u can have it for many years and all Your symptoms totally fits lyme too.'
I recovered. The highlights: Fluoride sits in your pineal gland, slowing down melatonin production. If you stop sleeping, you'll never recover. I went on the raw food diet. My PH went up to 6.6. (my lowest was 4.5 yikes! At 8 oclock, all our lights are turned off. From 10-12 oclock, your liver does magnificent work. If you have any questions, please ask. I wish someone could have told me all this, instead of experimenting over and over. Also feel free to look at my blog about my experience.
Those sufferers, caregivers & friends, with Facebook!--ChaseGiving is giving donating money to your favorite charity (up to $500,000). Including CFIDS/ME.
Search the "Chase Community Giving App" & "Chase Community ['Community Page]" hit "like", and vote for favorites, including:
***Whittemore Peterson Insitute***
(Biomedical research into M.E.; setting up a clinic & found XMRV/MLV in M.E.);
***American Blue Ribbon Awareness for Myalgic Encephalomyelitis***
@WestcoastMusicals it's relly not that simple yes its helps a bit but depending on how long you have had it and depending on how bad it is and if your stange 1,2 or 3 stage 3 there is nothing thay can do and you wont get better ow and men can have it
@WestcoastMusicals: Haha, Westcoast, exercise seems like a good idea but belive me with CFS it's not! I was working out four times a week. A really good split training and proper diet Before I got CFS. In the early stages of CFS I could exercise but not properly any more and even worse, it FELT wrong. Now after more than 10years of being ill I can do about 10 pushups but feel devastated for days after that. I understand where you're coming from....
I do have CFS. I was dx June 2007, this disease has changed my life forever. I Will never be able to work again. GIRL I so can feel your pain. I've had family members accuse me of being lazy. I get so tired of explaining myself all the time. But you said your video perfectl
I have had ME/CFS for 19 years - since I was 18. I have not been able to work since. To anyone that says exercise even when your body says no and that exercise cured them along with vitamins and diet, you did not have true ME/CFS. Exercise makes ME/CFS worse, this has been proven in many scientific studies and is backed up by the best ME/CFS specialists in the world. ME/CFS is killing people, it is a serious severe illness and is NOT "chronic fatigue".
i really feel your pain. i wish i could type more i hope iu can come back n discuss some of my life with you. do i have cfs think so but not for sure. have what they now call pediatric juvinile fibromyalgia.fixing to turn 40.the older i get the harder it is to type sorry.no one should have this for so long.god bless you:) emily
Hi, I have recovered from CFS after 2 1/2 years of hell. Been 9 months now and my health is almost back to normal. Memory is slow sometimes but other than that I am ok. You have to change your whole way of eating, take right vitamins, filter water, exercise even if your body says no and learn to relax and take time for yourself. There is hope, I recovered, hope it happens for you guys soon. It was hell for me, just thought I would post to give you guys so hope.
By the way, I just learned that CFS has to do with our hypothalamus gland. So for those who meditate I would suggest you focus your attention and intent on this gland in order to make it work normally.
Please check Dr. Mickel's explanation about it. That video alone is helping already because now I know what it is about and can start working on it.
WOW! So many suffering people out there... You all have my deepest sympathy. I know what it is. I have had it for more than 15 years now. I have been on welfare since Dec.2002 but I was not diagnosed by the doctor I saw back then, he would not listen to me. I was diagnosed with fibromyalgia in 2001. Unless a doctor signs a form I get the lowest amount of money each month. I had a few remissions but they never lasted more than a couple of months.
I have recently been diagnosed with CFS. This was helpful to watch cos its good to know Im not going crazy or alone. They thing Ive had it for about 3yrs.
Well my mom has this and we are trying to figure out how to stop this.. Because its upsetting me to see my mom come home from work upset and stressed. But i kind of do blame her work from part of this because ever since she worked in a new section of her work they all of the sudden popped up? Her doctors tell her to 'relax' more but she cant just do that because her work doesn't ever let her rest..
I still suffer from this with it . CIFIDS of America.org has gives you you all the info you may be looking for. Your info is great to let family members who think you may just think you cannot sleep you are correct of being robbed of your life .look up utube there are a lot of info under CIFDS check it out
look at cfids.org as cdc is in denial first it was only depression could not find cause nothing there its in your head they said officical remember cfsids more on utube than most places ckeck out bob beck youtube & google i have sence 1988 uable to work sence retired eary at 62 to have some income good nutrition helps a little good luck drluke
Truth is I had to find out what was wrong pretty much on my own. I went to the doctor with books and info I got off the CDC site. I actually had to go through the it is in your head crap too. I did see a video on here and some info other sites about how it is showing up in spinal fluid. This could be a major break through for us. Though I do not wish to have a spinal tap especially when they are not going to do anything anyway but maybe it will lead to a real treatment.
Also,I think the only reason CFS is still "a big mystery" isn't because it's some complicated puzzle that's too sophisticated for anyone to figure out. The problem is no one will actually try figuring it out. Doctors disregard it, and tell us to get more sleep, or to see a psychiatrist. They disregard it, marginalize it, and pass it off as "all in your head" because they want you in and out of their office in 2 minutes. I have yet to see someone that was motivated about finding what was going on
--> Go to NPR website and look up a report from 02/15/2011 called "Psychotherapy And Exercise Look Best To Treat Chronic Fatigue Syndrome" - It reports about the most recent study done on chronic fatigue, which found that graduate increase in physical exercise is an effective treatment. The results for this study was published at the Lancet Medical Journal.
I first my Chronic Fatigue after I had pnemonia in both my lungs and spent half a year in hospital for rehabilitation to walk etc.. when I was 7.. I'm 15 and I still have CFS! I'm failing all my exams as I am never in school and my mum has tried everything from change of diet, drugs, B12 injections every day and a strict programme and NOTHING is working. I constantly get infections and viruses and I have no friends anymore as I don't go to school. I need help!
Before I got this I worked 2 jobs (one full one part) went to school, had a family, jogged and worked out regular. After I got this I pushed on for a couple months till I could do nothing. I was miss diagnosed as having strep throat originally. I lost my jobs my home (i got the boot) and almost everything I owned. I had family write me and tell me it was in my head and I was lazy. I am so thankful I got my disability. My health has improved gradually. I can't wait till I fully recover.
Before I got this I worked 2 jobs (one full one part) went to school, had a family, jogged and worked out regular. After I got this I pushed on for a couple months till I could do nothing. I was miss diagnosed as having strep throat originally. I lost my jobs my home (i got the boot) and almost everything I owned. I had family write me and tell me it was in my head and I was lazy. I am so thankful I got my disability. My health has improved gradually. I can't wait till I fully recover.
@1001erickp congratulations getting the disability. I have experienced a similar situation as you've described. It really can ruin ones life....hope you fully recover...if you stumble on anything that helps let us know
@SpiceyGrooves Thank you, the thing that got to me most was how my family has treated me. I am pretty much ostracized. They act like its my fault. I had over 7,000 in blood tests. It showed I have an active epstein bar infection and many things out of whack like potassium and blood pressure. An x ray showed i had swelling in my organs but I guess it was not enough proof. A few people have been understanding but wow what an eye opener. Hey thanks for the comment.
It's tough...I get "but you like fine" a lot. After a while you just stop caring or listening to what people think or say because they really just have no clue. I try not to get upset and realize they're just ignorant. But yeah, it's lonely dealing with this because no one understands, and forget about being social when you can barely get out of bed. I really blame the doctors, I really feel that if they actually put some effort into looking into this it would have been solved years ago.
@SpiceyGrooves My pychatists and all of them, doctors, etc. are the same way. I sleep for 13-18 hours and I'm still tired. When I worked out and did have a job I was still constantly tired. Yet they insist on treating other symptoms or giving me antipsychotics despite the terrible side effects. They don't listen.
@SpiceyGrooves hey My names Clare and I have Chronic Fatigue too, had it for about 10years, I'm starting a blog-journal here on youtube about my experiences and heaps of other stuff relating to CFS, been thinking about it for ages and finally decided people like us need compassion, support and PEP talks! :) Only got my first vid up and trying to work out technical difficulties ha ha but I'm sure you'll find it more supportive than this dribble! LOL
Since this video is the most popular CFS video, I'll ask this question here: has anyone researched the SkyPaint chromosomal damage test that proved Gulf War Illness to be a valid disease? Does anyone know if CFS patients also show abnormalities with this test? I am not a believer in the current XMRVirus theory of CFS, so I'm trying to find other avenues to ask my doctor about, but my internet research ability is limited, at present.
Viral diseases (including my own case of severe CFS) have no chance with blood electrification, search Bob Beck right here on Youtube! Visit my channel for a link to more info.
OMG I have all those symtoms, everyone is just saying Im lazy or its in my head, or its because I take care of my kids all day, but I used to watch 10 toddlers at a time and never felt this tired. Now I can go to bed at 9 and the alarm will wake me at 8.
i have had this illness since i was 11 yrs old. I was only diagnosed when i was 15. Now i'm 19, and have also been diagnosed with 3 other conditions but am managing to live my life (as best as i can) as a university student. It bugs me so much when those who dont have the conditon call me lazy, a scrounger etc. Just because it cannot be seen doesn't mean it doesnt exist!
called lyme disease... mycoplasma, babesia, bartonella... Candida albicans/tropicarnia... if you get chronic fatigue your diseased with something. Carotenoids, eating fats helps (vitamin D supps can make you worse - lower immune system). Raise IFN-gamma, raise Th1 response. Higher fat diet, olive oil, butter, chicken wings, beef/lamb fats, lower carbs, high carotenoid type veggies like kale, broccoli, sprouts, wheat grass, chlorella, spirulina
How come it's always people who don't have this condition claim to know it all? I have had this since 1973. I reckon if everyone in the medical profession had cfs for 6 months, they would soon find out what caused it.
@Shytalking: That is not fair, because most of the scientific researchers who uncovered the remedy also did not have it. They just did it because they did not like seeing people suffer.
I am 25 and BEDRIDDEN with severe cfs. I was running 5 miles a day and one day my life changed forever! This disease is SERIOUS and can be deadly, do research!
I can relate so much to alot of what u said, i was diagnosed in 2001 with fms and cfs and my sis also has these too! not sure how i came across ur video it was linked at the side to another one, but i just wanted to say ur very brave for doing this vid, well done and thanks for sharing x
I can relate so much to alot of what u said, i was diagnosed in 2001 with fms and cfs and my sis also has these too! not sure how i came across ur video it was linked at the side to another one, but i just wanted to say ur very brave for doing this vid, well done and thanks for sharing x
had similiar symptoms for years, then my labs showed High heavy metals & candida. Anti-candida diet kept me on roller coaster, but felt better soon after going
80% Raw, juicing, adding fruit/veggies 2 my diet,avoiding grains. Research about Monsanto,Future of Food dvd and others,like it it's not worth researching WHY becuz Monsanto, EPA, FDA are all corrupt and GMOs were given green light w/out full research if safe. now we have more new health issues. Just focus on Detox, Raw, Juicing
had similiar symptoms for years, then my labs showed High heavy metals & candida. Anti-candida diet kept me on roller coaster, but felt better soon after going
80% Raw, juicing, adding fruit/veggies 2 my diet,avoiding grains. Research about Monsanto,Future of Food dvd and others,like it it's not worth researching WHY becuz Monsanto, EPA, FDA are all corrupt and GMOs were given green light w/out full research if safe. now we have more new health issues. Just focus on Detox, Raw, Juicing
Perhaps getting extensive blood work from Naturopathic Dr (most drs don't use same labs or believe in these issues) for heavy metals, parasites, celiac etc... Then maybe consider a whole body detox, parasite cleanse etc..I got extensive blood work from NDs and just push their supplements although if you get a Myers brigg cocktail IV, you can get concentrated Vitamins/Minerals straigh to your system - great. But, i recommend going to local Herbalist for advice/consult for custom teas/herbs/detox
Have you tried juicing organic Raw veggie juicing + Dark leafy greens (like kale, spinach etc..) and smoothies with vegetable protein powder+superfoods to nourish down the the cells and tissues. Adrenal supplements like glandulars or from herbs can help boost energy if your adrenals are shot like mine. helps me get through daily activity & exercise few times a week.
Hi! I was so excited when my daughter showed me your videos - especially on Chronic Fatigue. I got sick Sept 16, 1994, in the U.K. (we're in the U.S. now) and I've learned how to manage myself better, but it has not gone away. I was so excited to hear some of your journey, because I was really distressed, when we moved to the States, to find out how LITTLE doctors, and people in general, know about it over here! This illness has taught me is how to REALLY live. To be thankful & to enjoy . .
Hello hun ~ Wishing you the best on your journey of health. I have had this myself and took care of it by completely revamping my diet, removing alot of the things we call 'food' and looking at a wholistic way of eating, supplements and living I no longer have it. I would love for you to check out my page.. and just give me your thoughts. Yes no or otherwise i'd love to hear your feedback . You are a beautiful young lady and deserve to live. You are not stuck with this forever. I know. =)
i have had CFS for 7 years!! ive had it since i was 7 and now I am 14.....i have half days at school and people never understand my illness..........I get ALOT of comments from pupils...one of my teachers called the 'Attendence Officer' and 'Social Services' Because my teacher thought my mum wasn't feeding me properly....lucky the officer new my mum and new that i was being fed properly!! ;(
got diagnosed in november last (though been ill for a long long time now as drs got me into believing i was a faker myself/nuts, so only way i survived was initially through self medication which brought about endless problems (as you'd expect) which delayed things further...this thing knocked me off my feet 4-5 yrs ago 4 real) anyhow i was originally in the ranks of the "me: diagnosis of exclusion: 0" untill my last appt then seeing your (and others vids here) now i know! god bless, will sub, m
This comment has received too many negative votesshow
Jesus Christ, what an ugly and fat tart. I am pretty sure that she even doesn't swallow! Can somebody delete that shit video? Immediately please! Thank you!
oh i feel like everyday when i wake up like i was hit by a truck.. its been that way for a long time. i have schizo-affective disorder and think it may be my meds. i feel like shit almost everyday super depressed i havent been able to work or go to school in 6 years. i feel so tired that my face hurts i feel like i have a flu throughout my body but im not sick. a ,lot of this sounds like it could be symtoms of having schizo as well like cognitive imparment and weight gain im so confuesd now
@fastinggurl31 Have you researched heavy metals and food sensitivities. These are two things linked to CFS. Diet can play a major role in this and is vital in any illness.
@fastinggurl31 Do you have a feeling all over your body, where it feels so tired, it feel like it needs to be stretched badly. Even after stretching you still feel kind of lethargic!
I have not yet watched your video but I think I have chronic fatigue, but I'm afraid that my doctor will blame it on my chronic (social) anxiety and depression. Sometimes I feel like a vegetable, like yesterday for example. It lasted for 7 hours and I couldn't do anything.
@fastinggurl31 - Hi, 18 years ago I had this same, i was hooooorible, it lasted 2-4 years. In the university I got a glandular fever, it is caused by an EB virus, that is very hard to detect, then doctors found that my liver was not working OK. Then I was on a diet and after 6 months my liver was OK, but then I needed back to school and then appeared CFS. Before I had been an excellent student but from that time i struggled very heavily with school. Beacause the CFS I was few .....
Because the CFS I was few times in hospital. They couldn't find me anything, also the tests of my liver were OK. But I think the CFS was caused by my liver that was not subliminally still OK.
What helped me ? Normally I had to have the diet for 6 months, but I extended it for 4 years - no fried , no alcohol,
no fat, no pepper ..., I do not know what else , then I started to go for a run for very long distances -15 km, I took one aspirin per day also.
I also found, the CFS can be caused by immunity. May be some psychofarmacs can help to stabilize the body.
I do not mean, you would be somehow psychically ...., but your body does not feel well, may be the psychofarmacs could help also, I would try it. You have the CFS very long time, it is necessary to fight..
Hi, My wife has ME and Fibro. We are new to you tube but are very pleased that someone has spoken about this illness. My wife had a fantastic job, we traveled, we were out every night and weekends. We had the life that we wanted. She became ill about 7 years ago and from that point on our lives have changed. We cope with her illness as there is little more we can do. We feel for you as ME is something you wouldn't wish on anyone. Wish I could write more. Keep going, chin up.
I saw your video and I can totally relate. I was diagnosed w/Chronic Fatigue, then Fibromyalga. I thought I was semi-paralyzed from the waste down one morning. I called to my children to call an ambulance. It was frightening. It started in the 80's then I had a good few years, got married had 2 children, was on constant overload and I wasn't getting enough sleep due to a snoring husband and 2 babies. stress brings it on bad. I try to exercise, eat right, take my omega balance
I saw your video and I can totally relate. I was diagnosed w/Chronic Fatigue, then Fibromyalga. I thought I was semi-paralyzed from the waste down one morning. I called to my children to call an ambulance. It was frightening. It started in the 80's then I had a good few years, got married had 2 children, was on constant overload and I wasn't getting enough sleep due to a snoring husband and 2 babies. stress brings it on bad. I exercise, eat right, take my omega balance Marianne
I saw your video and I can totally relate. I was diagnosed w/Chronic Fatigue, then Fibromyalga. I thought I was semi-paralyzed from the waste down one morning. I called to my children to call an ambulance. It was frightening. It started in the 80's then I had a good few years, got married had 2 children, was on constant overload and I wasn't getting enough sleep due to a snoring husband and 2 babies. stress brings it on bad. I exercise, eat right, take my omega balance Marianne
Sweetie you said theres nothing on (youTube) about FIBRO/CFS well you are ? I am a fellow suffer, and I thank you for telling your story... everyone that comes on here is (helping) educating people... I try & watch all the fibro videos... I always learn something new, and of course just knowing Im not alone with this struggle..God Bless...
You are talking about me...it's so strange to hear a complete stranger know exactly how i feel. Even tho I talk to people with CFS and Fibromyalgia on a daily basis. I was off work for 3 1/2 years and lost my home that i worked so hard being a single mom. I was dx;d in 1995 but was showing symptoms much earlier...can't prove but believe hit me after a flu shot. Now with all the xmrv and other retro virus papers out it really fits. My life changes daily...i never know how I am going to feel.
That sounds awful. Thank you very much for explaining this syndrome to everyone. I feel bad for you. I'm glad you're better now than you were at the beginning. Because of this video, I now have sympathy for people with this syndrome. Thank you.
By the way, do CFS and fybromyalgia always come together? I'm wondering because I know someone else who has both.
i fit most the symptoms , but doctor said my blood lacks iron , and i take iron pills but it is not helping much , and my eyes always itch and are very dry , visine does nothing - what meds do you take? - ithink i have been miss diagnosed
Most of what your explaining I go through every day. I don't know how to explain to my friends that I am in pain or i just don't feel good. I pray I don't have this but after researching just way too much is what I go through. Would be nice to know other people who I can talk to so I don't feel like i'm the only one.
i think (especially and mostly refined) sugar has a lot to do with it, but it's hard to overcome and break the addiction because it results in hypoglycemic-like symptoms and even more severe disability (which will happen in some form whenever you try to break an addiction, it will always be hard)
I have CFS and I just started a sort of blog thing about it if anyone is at all interested. It's sort of just a personal story/ you're not alone thing. Please check my profile for the link if you're interested!!
I am amazed at the info you've posted in your other videos not to mention the changes u've made in your appearance. I too have been suffering from CFS and still looking for light at the end of the tunnel. I would really like to opportunity to touch baisis with you via email regarding this condition as I really need help. My address is vozranchera@yahoo.com.
CFS is just a lable, as the word 'syndrome' means in medical terms ("a bunch of symptoms where the cause is totally unknown)
I'm pretty sure everyone with CFS actually has XMRV which has been found in most CFS patients. XMRV is a retrovirus that takes down your imume system, like HIV does, however it is weaker than HIV. This is not the only comparison to HIV, as XMRV is a retrovirus that settles in your DNA, so you can't get rid of it ever. Look up XMRV to learn more about it
Honey, i didnt watch the video all the way to the end, but have you still got CFS? i hope you have managed to heal it by now, but if you havent, please know that CFS is nothing more than candida (a yeast-like fungus) overgrowth in the blood stream. CFS (Candida) can be cured by straving the fungus of sugar and acid. Go on a sugar free diet and you will no longer have CFS. Buy the book "Sick and Tired" and I promise it will be gone by 6 months if you stick to the diet . Lots of love & good luck
I am a recovered fibromyalgic who left the care of the medical profession to discover the cause and cure of this horrific condition without drugs, and am living proof you can cure this and take back your life. Symptoms are mistaken for the cause and treatments that help do not cure. Please, do not be discouraged by failed hope and keep going!!!
Valerie Lumley, Recovered Fibromyalgic and author of
"Curing Chronic Fibromyalgia - Choosing What Works"
This Video has been so helpful ,,my eldest girl has had her energy levels zapped by this condition for about 8 months now, your information and ordering of events has been amazingly helpful , Thankyou so much X
I suffered with chronic fatigue syndrome for a while. My Epstein Bar antibodies kept rising each time they were taken. Waking up exhausted, walking felt like wearing a lead suit. One day I figured what the heck, I feel terrible anyway, & I went out and drank a few dark beers - next day my energy level was fantastic! I started eating whole grains, brown rice, barley, millet etc. I started feeling better. The difference was remarkable! Try it it might help you! Its good nutrition too! God Bless!
@4chango I believe the virus well under control and out of my body now. I haven't be troubled by it in a long time. Knock Knock! But it was a struggle. My emphasis on nutrition really helped. My doctor concurred it was a good approach. I was eating foods that were high in the nutrients that they have found effective in treating this disease. I recommend everyone try it. Its easy and you don't have much to loose if you feel terrible all the time anyway. Best wishes!
Thank You. I have discovered the only cause of CFS is a candida overgrowth in your stomach and colon. Acidophilus will sometimes remedy this. Est. 80% population has candida problem. Correcting this is key to a strong immune system. Some people do need things besides the acidophilus if they have a serious case. Oregano oil, silver, garlic etc. No RX for me. The anti-fungal rx can kill your immune system..leaving you with no defense. God Bless.
There are multiple sites and videos on Youtube explaining how each portion of the Protocol functions to help those suffering from primarily viral diseases and has personally helped me with my CFS. Please visit the Unleash Health site for more information on the Protocol and therapy!
Its ridiculous how exactly alike your symptoms are with mine...the only thing i dont have is the paralysis and seizures (Thank god). I'm am starting to get really mad over this, I've been staying up til 4am everyday looking up things because my doctors all say im ok, "ummmm your mono is gone you seem fine."
@Tehyamz been through that many times. "well your mono should be gone by now" well apparently it's not ass hole so how about you look into whats going on. Lazy ass piece of shit doctors
I am 18, i have had anxiety problems since i was 14. Lucky me i had to get mono about 4 months ago. I was pretty ill for about 2 weeks. Immediately after i recovered i started getting a bunch of problems, i started getting random terrible chills, got tired, felt light headed, my anxiety worsened, night sweats, jaw pain and clicking, and just random fatigue. For the most part it is on and off. I will be fine for 1 or 2 days, then bam a week of bullshit. I can't even skateboard good anymore :(
i think i have cfs and it's not just a retrovirus but many virus Hepatitis C and so many i will not list them all .. a sun burn can give cfs. most of the time they do not help you unless you are going to die because you have a cancer.
interesting video and very informative
clairebehun 1 week ago
Thank you for posting this! I, like you, didn't like to talk about having CFS because there are so many misconceptions about the illness. I was diagnosed Jan 2011 after coming down with some virus in the fall of 2007. I have had a myriad of symptoms just like you, with some being different, but I now deal with the new frustration of thinking I'm "cured" from being totally fine for months and then having a crash that can last from days to weeks to months. It's truly horrible.
liongirl25 1 week ago
I'm 13 years old with chronic fatigue which is really hard because of school.
In 2010 I got glandular fever and missed out on a term of school, last year I had two whole terms off and I've only just recently been diagnosed with cfs.
I've seen many specialists and I am currently taking 8 tablets a day, my mum rarely let's me out of the house not wanting me to over-do it, the maximum exercise I'm allowed is a 15 minute walk each day.
For the last 4 years I have been put on 25 different antibiotic
TwilightEdwrdBlla 2 weeks ago
HUGE division about Fibro & CFS - I read HUNDREDS various postings on research sites, & by patients, & by doctors & therapists - I think 90% of what Ive read OR watched are either only partially correct or just missing the boat entirely wrong. NOTICE she says THEY "THINK" - no - there are major researchers who DO NOT THINK they know - years of study of thousands of patients. A MIXTURE of things attacking you when your immune system collapses. MIX of internal problems creates the SYMPTOMS
charles43110 3 weeks ago
Unlike a lot of you, I've yet to be diagnosed with anything but have many of the same symptoms. I got mine after failed back surgeries followed by rheumatoid arthritis but the fatigue I had from my RA is NOTHING compared to this. I believe it has more to do with extreme stress and the body turning on itself like your immune system does with RA. It's just my belief as not much is known about this. Doctors around here don't even bring up CFS.
Magnus2131 2 months ago
You people that think a simple solution like flushing your system, juicing or eating the proper diet, organic foods, herbs vitamins, exercise etc is going to cure this don't have a clue. None of that crap has worked.
Magnus2131 2 months ago
Great video. What was your life like before you were diagnosed? At what age are most people diagnosed?
livefreewithlove 2 months ago
un blog en espanol sobre sfc guardiolasfc.blogspot.com/
nikod9410 2 months ago
maybe you can see the gerson's treatment for cancer and other diseases. i think it s interesting. good luck!
flavia2061 3 months ago
So many people misjudge CFS sufferers, aka; calling them lazy...but as a CFS sufferer, I know its not as simple as tiredness. It has so much depth; as medication and exercise plans, bad days, good days... It's good that people should know it's not as easy as "tiredness".
BeccaJayne17 3 months ago
oh my god, your like the girl version of me! same sals job i had too but in insurance, i have all the symptoms except a couple you read out on the symptom list, i really feel for you, as im going through exactly the same myself. been off sick two years from work now, destroyed my life xx
shaunyboy12345 3 months ago
How many of you have been tested for lyme disease??? I was diagnosed with chronic fatigue syndrome for 3 years, before finally getting a correct diagnosis of chronic lyme. The symptoms of cfs are virtually inentical to those of lyme disease, but standard lyme tests will often miss the cronic, or cystic form of lyme.
lordhelmet77 3 months ago
chronic fatique syndrome . in shorter terms = Lazy bastard .
petechett 3 months ago
This has been flagged as spam show
ww w.youtube. com/watch?v=ihfmY3heWxw
sowpouse 3 months ago
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sowpouse 3 months ago
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sowpouse 3 months ago
OMG ur video gave me alot of insight. I have been feel unwell for about 4 months now & doctor hasn't been able to explain it. But from reading I reckon it is CFS. :S could u please inbox me? Id really love to talk to u about this. Hope ur feeling better today! :)
jmws13314 3 months ago
I am 41 Single never married and have Chronic fatigue syndrome and EBV so many doctors for so long told me it was all in my head. They send me to doctors for depression then like you they thought it was lupus and ms. Finally after five years I got diagnosed. Thank you for making this video
jewelsnmissouri 3 months ago
I'm heading in for a sleep study. They think maybe sleep apnea. I don't know what's going on. I am tired all the time, doc thinks I have fibro myalgia, etc, etc. Lots of things going on with me that seem to have increased in the last few years. I had more energy as a kid and college student, but when I went back to school later, I could hardly do my homework. No energy after classes and everything else.
I hope you're doing better in recent years. Take good care.
LostJedi26 3 months ago
I've heard that CFS is actually an immunodeficient or autoimmune disorder, that it can happen after an illness. That's what happened to a friend of mine.
I worry when I see people blame diet, exercise, and not being fully holistic. While I'm sure this would help, there isn't always a simple fix for what happens in our bodies. Even if you were 100% holistic, disease and illness happens. C'mon now.
My heart goes out to all of you dealing with this. (continue in next post)
LostJedi26 3 months ago
thanks for this video. im really struggling with people not understanding that ive been telling myself for years that im just useless. get the eye twitches, i worry a lot. depression. constantly exhausted but sometimes i have massive spurts of energy and then just burn out. gettting my bloods done next week. will they help?
HippyElliott 3 months ago
Chronic fatigue is not a lack of energy, it's having too much energy for the environment you are in or the life you are living. This in turn causes your energy to flow inwards rather than it would in an outwardly healthy person.
Liam2621 3 months ago
Please check the trailer on my youtube channel from the FIRST MOVIE ABOUT CFS / ME ! Release on october 8 (2011) "Voices from the Shadows"
Ramzyy007 3 months ago
@fastinggurl31 change that quote girl....naturally as humans we all have suffering...but to see unison through it conjours a need for having a support group for a support group! Make time to release animals from the cruelty, feed soil ingredients that dont kill the microbes, eat foods that you pick from the earth herself...do that in unity and there will be less suffering
ivesaidits400years 4 months ago
lock ourselves into the dogma of creativity. There is no creativity within the researchers lab only the thoughts of the wellbeing of her/his family. Without family we are nothing...slowly decaying in the melay of destruction that a western medicinal system upholds. A new born child born with terminal illness is ominous to the feeding frenzey that the pharma industry has generated. Gone or the beloved coffin dodgers of old that spoke with natures cure...
ivesaidits400years 4 months ago
to label something or give it a name generates 'power' over the cell thats being named...to name a bunch of cells generates more 'power'...to name an ease would be entirely against the propogandian logic of pharma versus people. Nature and within 30 yards from your door theres a cure for whatever ails you, that being said the protocals of suberbia denounce this ritual. Wholeness comes with age, as lifes moral teaches us to share this abundance with the 8 hundred million species held within it we
ivesaidits400years 4 months ago
have you found anything else out about cfs? I have been doing a lot of reading and have found a lot of supplements that are meant to help and even some prescription medications, holistic therapies that I had no idea existed. There's also a book called fatigued to fantastic that a doctor who specialized in cfs and fibro wrote.
supahfreeak 4 months ago
Thank you for all your comments. To those of you who suffer from CFS my heart goes out to you. I still have CFS & Fibro. I was diagnosed with Cancer this Jan (2011)......I am scared to death what chemo will do to my already disabled body...if you have CFS and have beat cancer or are currently trying please message me!! Much love ...we are united through our suffering....
fastinggurl31 4 months ago
This has been flagged as spam show
@fastinggurl31
A great film about ME/CFS entitled VOICES FROM THE SHADOWS recently screened at the Mill Valley Film Festival. It was made by a woman in Great Britain whose daughter has been ill w/ME for years & it is now being made available to stream online in the USA only until October 30th courtesy of MVFF & MUBI. You Tube won’t allow me to post the website, but try to find it!!
settspin 3 months ago
@fastinggurl31
Hi! I am a currently diagnosed with CFS.I was very healthy and energetic.
But my life is totally running by this disease.I have been following your video blog since I got this disease.I thank for all your precious information to share with all of us.
I have several question about CFS disease. I wonder if you can help me on them.
1. Is the CFS a sexual transmitted disease?Because I though I might get it from that.
2 .Is CFS a factor for causing the cancer?Thanks
hsiang002002 1 month ago
I've been diagnosed with Chronic fatigue syndrome and I'm 14 years old, the year I start my GCSE's and I haven't even started the year yet because I've been off and I'm considering to be home schooled - what do you think~?
Enchantelover247 4 months ago
I hate being called lazy because of having cfs I'm so sorry if you have any haters on here because believe me I know how hard it is. I had cancer and the heavy chemo caused cfs for me but there are multiple causes. The kind of exhaustion you get when you're sick trying to fight something off is how I feel all the time. I can't even get out of bed until noon. I can't hold a job and can barely get to school and I'm only 19. It's debilitating. and there are no real treatments!
supahfreeak 4 months ago
Your really cute! I know how hard CFS can be as a sufferer myself. How is your health now?
neil1758 5 months ago
Check to see if you have Candida infection, more than likely it maybe masking under the Chronic Fatigue Syndrome. Go to a allopathic doctor than a recommended Naturopathic Physician and ask them to diagnose if you have Chronic Fatigue or a symptom of a severe Candida infection. I wrote down what's helping me to cure my Candida infection on "Animal ability" board - diet links if this helps let me know.
curtisb3000 6 months ago
I recommend a really good book called The Journey Through ME/Chronic Fatigue by Janet Hurrell it is an A to Z to helping you find the best nutrition and finding practitioners and clinics. You can google it and find it on Auther House
essy111 6 months ago
I'm willing to bet its WAY more then 1 million people who have CFS.
TREBLEnBAYCE 7 months ago
The only thing that sets "CFS" apart from borreliosis (lyme disease) is history of tick bite and the "bullseye" rash. ALL THE OTHER SYMPTOMS are EXACTLY THE SAME. If you present to the DR. without a history of tick bite or bullseye rash, they will label you with "CFS" or "fibromyalgia" because it is more profitable for them to treat you for 15 years to lifetime for a "cure/cause unknown" "syndrome".
Our medical doctors are little more than drug pushers.
blog4change 7 months ago
CFS is not a disease. It's a name that's been slapped on a list of symptoms in order to placate the patient and obfuscate the REAL cause of illness, which is most likely a man-made biologically weaponized bacterium. I wouldn't let a doctor tell me I have "Chronic fatigue syndrome" or "fibromyalgia" or any other "made up" syndrome. I have borreliosis (Lyme Disease), and you probably do, too.
blog4change 7 months ago
@blog4change Please do some research before making such a claim. You sound like a complete moron, accusing those that are actually looking for a cure (researchers) of creating the syndrome. I am a researcher, I want to research CFS because of its numerous sufferers.
Bionuker 6 months ago 8
@Bionuker You might want to go back and read what I wrote. I said nothing about researchers. Not a thing. It would do you good to read more carefully. I'd hate to see what your "research" looks like if you can't even comprehend a one paragraph YouTube comment.
blog4change 6 months ago
@Bionuker I've spent several long months doing nothing BUT researching, since I was crippled and couldn't walk due to a bacterial infection that shares EVERY SYMPTOM with this mystical "Chronic fatigue syndrome". Why don't YOU do some research, since you are a "researcher". You'll find lots of studies on chronic fatigue syndrome and borreliosis; some that even have the audacity to suggest that CFS has a bacterial cause and others that suggest that the bacterium responsible are BORRELIA.
blog4change 6 months ago
@blog4change I'm sorry to hear you suffer from berreliosos. No one deserves to go through that. The thing that bothered me about your post is the "man made biologically weaponized bacterium". I hear that sort of claims quite often. Researchers like me are actually being threatened, because people believe we create diseases instead of cure them. I find it horrible to hear this, because I've done nothing more than looking for cures for diseases in the past few years.
Bionuker 6 months ago 4
@Bionuker To deny that scientists are working on biological weapons is awfully naive. The US has at least a hundred facilities where biological weapons research and development are taking place as we speak. I don't blame the researchers or the scientists (I am a scientist myself) because I'm sure they could not have imagined in their wildest dreams that so many people would become ill as a result of their research and experimentation.
blog4change 6 months ago
@Bionuker I do blame the government and the medical establishment for pulling the wool over the public's eyes. Instead of denying the existence of chronic bacterial infections, they should be WARNING the public of the very real risk we all face every time we venture out of doors. Unfortunately, the pharmaceutical companies can't make stellar profits selling generic antibiotics, so instead we have invented all these "syndromes" that we can treat with a lifetime of expensive designer drugs.
blog4change 6 months ago
@Bionuker : There is nothing to "research," Einstein! All dis-ease begins with a common cause: TOXINS. We are surrounded by germs constantly but only "catch" things when our toxic overload weakens the immune system! Whether it's cancer or the common cold, to use the term "research for a cure" implies that people are just sitting ducks and it's random whether or not they get a particular malady. Nonsense! What we eat (or don't eat) is the most important thing, along with what we think.
lemurianchick 4 months ago
@lemurianchick You clearly haven't got the slightest clue of what you are talking about. Some diseases are caused by toxins, but certainly not a very large amount. Many diseases are caused by mutations in the genes, or are simply genetically determined. Toxins aren't the only things that weaken the immune system. What we eat & think is far from the most important thing...
Fuck this discussing on the internet with morons who don't even try to read up before making extraordinary claims.
Bionuker 4 months ago
@lemurianchick as the other person said, you are WRONG. I had cancer and it was caused by a gene mutation that can be triggered by numerous things.
supahfreeak 4 months ago
@supahfreeak : "Number of things," as in WHAT? Environmental toxins, toxins taken into the body in the form of chemicals in foods or drugs, or the food itself? It didn't just happen! And yes, the vast majority of "triggering" (or as Harvey Diamond calls it: "driving your cells crazy") comes in the form of something that exists from the outside rather than it being innate.
lemurianchick 4 months ago
I'm fourteen with CFS. Being at school with this is completely insane. No one believes you. Even some of your friends doubt you. Only the most loyal stick by your side - but even they start to leave you as you can go to school less and less.
Thank you for creating this video - people may soon begin to understand what is really happening to us all. Maybe we won't be completely understood in future anymore, maybe news will come out, the media will catch hold... we can only hope, can't we?
Mineforge 7 months ago
I really appreciate your video. I just came across it. Im 26, female from Australia and not many people here are familiar with CFS. Ive been diagnosed since Feb 2007 and I totally relate to everything you have said. When you said that CFS has totally robbed you /detroyed your life I teared up. Thanks for putting the word out there that this is much more than just being tired! xoxo
nikkikuvstrev 7 months ago
I'm having Insomnia. For someone who needs 12 hours of sleep per day, this is making me miserable. Note: It's not just weight gain. I've lost down to below 98 lbs with CFS and Insomnia.
XXXVideoVomit 7 months ago
Thank you so much for making this heartfelt video. You're doing a lot to help raise awareness of CFS.
OxytocinCentral 7 months ago
What medicines are you taking? Do they help?
TallerPCReparar 8 months ago
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LadyPineapple97 8 months ago
silly question....u re 100% its not lyme desease??couse lyme can be negative yet u can have it for many years and all Your symptoms totally fits lyme too.'
just my 5 cents
mystiqueboutique 9 months ago
I recovered. The highlights: Fluoride sits in your pineal gland, slowing down melatonin production. If you stop sleeping, you'll never recover. I went on the raw food diet. My PH went up to 6.6. (my lowest was 4.5 yikes! At 8 oclock, all our lights are turned off. From 10-12 oclock, your liver does magnificent work. If you have any questions, please ask. I wish someone could have told me all this, instead of experimenting over and over. Also feel free to look at my blog about my experience.
PamelaViktoria 9 months ago
Those sufferers, caregivers & friends, with Facebook!--ChaseGiving is giving donating money to your favorite charity (up to $500,000). Including CFIDS/ME.
Search the "Chase Community Giving App" & "Chase Community ['Community Page]" hit "like", and vote for favorites, including:
***Whittemore Peterson Insitute***
(Biomedical research into M.E.; setting up a clinic & found XMRV/MLV in M.E.);
***American Blue Ribbon Awareness for Myalgic Encephalomyelitis***
***CFIDS Assoc.****
& many more.
KnightofZeroME 9 months ago
This sounds depressing. You girls need to eat organic,drink distilled water,exercise,and take the best of vitamins to fix this CFS
WestcoastMusicals 9 months ago
@WestcoastMusicals it's relly not that simple yes its helps a bit but depending on how long you have had it and depending on how bad it is and if your stange 1,2 or 3 stage 3 there is nothing thay can do and you wont get better ow and men can have it
mandy1231973 9 months ago
@mandy1231973 Trust me I'm a man I know t fix your illness.
WestcoastMusicals 9 months ago
@WestcoastMusicals: Haha, Westcoast, exercise seems like a good idea but belive me with CFS it's not! I was working out four times a week. A really good split training and proper diet Before I got CFS. In the early stages of CFS I could exercise but not properly any more and even worse, it FELT wrong. Now after more than 10years of being ill I can do about 10 pushups but feel devastated for days after that. I understand where you're coming from....
RyuBlade1980 8 months ago
@WestcoastMusicals ...and I believe that working out would help most people to feel better. But not for people with CFS.
RyuBlade1980 8 months ago
I do have CFS. I was dx June 2007, this disease has changed my life forever. I Will never be able to work again. GIRL I so can feel your pain. I've had family members accuse me of being lazy. I get so tired of explaining myself all the time. But you said your video perfectl
Jackledunn 9 months ago
i didnt know why i was so tired. today i found out i have chronic fatigue FML
flaredrafire 9 months ago
2:03
It's not Lupus!
Suiton1 9 months ago
I have had ME/CFS for 19 years - since I was 18. I have not been able to work since. To anyone that says exercise even when your body says no and that exercise cured them along with vitamins and diet, you did not have true ME/CFS. Exercise makes ME/CFS worse, this has been proven in many scientific studies and is backed up by the best ME/CFS specialists in the world. ME/CFS is killing people, it is a serious severe illness and is NOT "chronic fatigue".
SeraphinaRaine 9 months ago
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creasicle 10 months ago
i really feel your pain. i wish i could type more i hope iu can come back n discuss some of my life with you. do i have cfs think so but not for sure. have what they now call pediatric juvinile fibromyalgia.fixing to turn 40.the older i get the harder it is to type sorry.no one should have this for so long.god bless you:) emily
emilylamar 10 months ago
Hi, I have recovered from CFS after 2 1/2 years of hell. Been 9 months now and my health is almost back to normal. Memory is slow sometimes but other than that I am ok. You have to change your whole way of eating, take right vitamins, filter water, exercise even if your body says no and learn to relax and take time for yourself. There is hope, I recovered, hope it happens for you guys soon. It was hell for me, just thought I would post to give you guys so hope.
hoppytherabbit1 10 months ago
By the way, I just learned that CFS has to do with our hypothalamus gland. So for those who meditate I would suggest you focus your attention and intent on this gland in order to make it work normally.
Please check Dr. Mickel's explanation about it. That video alone is helping already because now I know what it is about and can start working on it.
It is on Youtube.
renee119 10 months ago
WOW! So many suffering people out there... You all have my deepest sympathy. I know what it is. I have had it for more than 15 years now. I have been on welfare since Dec.2002 but I was not diagnosed by the doctor I saw back then, he would not listen to me. I was diagnosed with fibromyalgia in 2001. Unless a doctor signs a form I get the lowest amount of money each month. I had a few remissions but they never lasted more than a couple of months.
Love you all.
Sylvie from Québec Prov. Canada
renee119 10 months ago
I have recently been diagnosed with CFS. This was helpful to watch cos its good to know Im not going crazy or alone. They thing Ive had it for about 3yrs.
TwylaVardon 10 months ago
Well my mom has this and we are trying to figure out how to stop this.. Because its upsetting me to see my mom come home from work upset and stressed. But i kind of do blame her work from part of this because ever since she worked in a new section of her work they all of the sudden popped up? Her doctors tell her to 'relax' more but she cant just do that because her work doesn't ever let her rest..
vegassk8ter 10 months ago
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jtslabach 10 months ago
I still suffer from this with it . CIFIDS of America.org has gives you you all the info you may be looking for. Your info is great to let family members who think you may just think you cannot sleep you are correct of being robbed of your life .look up utube there are a lot of info under CIFDS check it out
n300zx1 10 months ago
I like your info on CIFIDs I have been suffering since 1995 I have not been able to work since then
n300zx1 10 months ago
i may propose q10 and extra virgin olive oil...
mariotubegr 11 months ago
look at cfids.org as cdc is in denial first it was only depression could not find cause nothing there its in your head they said officical remember cfsids more on utube than most places ckeck out bob beck youtube & google i have sence 1988 uable to work sence retired eary at 62 to have some income good nutrition helps a little good luck drluke
drluke0079 11 months ago
Okay and why is this related with ain't nothing but a G-thang?
Wilaaaaaay 11 months ago
Truth is I had to find out what was wrong pretty much on my own. I went to the doctor with books and info I got off the CDC site. I actually had to go through the it is in your head crap too. I did see a video on here and some info other sites about how it is showing up in spinal fluid. This could be a major break through for us. Though I do not wish to have a spinal tap especially when they are not going to do anything anyway but maybe it will lead to a real treatment.
1001erickp 11 months ago
Also,I think the only reason CFS is still "a big mystery" isn't because it's some complicated puzzle that's too sophisticated for anyone to figure out. The problem is no one will actually try figuring it out. Doctors disregard it, and tell us to get more sleep, or to see a psychiatrist. They disregard it, marginalize it, and pass it off as "all in your head" because they want you in and out of their office in 2 minutes. I have yet to see someone that was motivated about finding what was going on
SpiceyGrooves 11 months ago
--> Go to NPR website and look up a report from 02/15/2011 called "Psychotherapy And Exercise Look Best To Treat Chronic Fatigue Syndrome" - It reports about the most recent study done on chronic fatigue, which found that graduate increase in physical exercise is an effective treatment. The results for this study was published at the Lancet Medical Journal.
esiosan 11 months ago
I first my Chronic Fatigue after I had pnemonia in both my lungs and spent half a year in hospital for rehabilitation to walk etc.. when I was 7.. I'm 15 and I still have CFS! I'm failing all my exams as I am never in school and my mum has tried everything from change of diet, drugs, B12 injections every day and a strict programme and NOTHING is working. I constantly get infections and viruses and I have no friends anymore as I don't go to school. I need help!
TheChocolateCheese 11 months ago
has anyone considered mycoplasma?
steveruston 11 months ago
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Before I got this I worked 2 jobs (one full one part) went to school, had a family, jogged and worked out regular. After I got this I pushed on for a couple months till I could do nothing. I was miss diagnosed as having strep throat originally. I lost my jobs my home (i got the boot) and almost everything I owned. I had family write me and tell me it was in my head and I was lazy. I am so thankful I got my disability. My health has improved gradually. I can't wait till I fully recover.
1001erickp 11 months ago
Before I got this I worked 2 jobs (one full one part) went to school, had a family, jogged and worked out regular. After I got this I pushed on for a couple months till I could do nothing. I was miss diagnosed as having strep throat originally. I lost my jobs my home (i got the boot) and almost everything I owned. I had family write me and tell me it was in my head and I was lazy. I am so thankful I got my disability. My health has improved gradually. I can't wait till I fully recover.
1001erickp 11 months ago
@1001erickp congratulations getting the disability. I have experienced a similar situation as you've described. It really can ruin ones life....hope you fully recover...if you stumble on anything that helps let us know
SpiceyGrooves 11 months ago
@SpiceyGrooves Thank you, the thing that got to me most was how my family has treated me. I am pretty much ostracized. They act like its my fault. I had over 7,000 in blood tests. It showed I have an active epstein bar infection and many things out of whack like potassium and blood pressure. An x ray showed i had swelling in my organs but I guess it was not enough proof. A few people have been understanding but wow what an eye opener. Hey thanks for the comment.
1001erickp 11 months ago
It's tough...I get "but you like fine" a lot. After a while you just stop caring or listening to what people think or say because they really just have no clue. I try not to get upset and realize they're just ignorant. But yeah, it's lonely dealing with this because no one understands, and forget about being social when you can barely get out of bed. I really blame the doctors, I really feel that if they actually put some effort into looking into this it would have been solved years ago.
SpiceyGrooves 11 months ago 5
@SpiceyGrooves My pychatists and all of them, doctors, etc. are the same way. I sleep for 13-18 hours and I'm still tired. When I worked out and did have a job I was still constantly tired. Yet they insist on treating other symptoms or giving me antipsychotics despite the terrible side effects. They don't listen.
MsAgnosticatheist 9 months ago
@SpiceyGrooves hey My names Clare and I have Chronic Fatigue too, had it for about 10years, I'm starting a blog-journal here on youtube about my experiences and heaps of other stuff relating to CFS, been thinking about it for ages and finally decided people like us need compassion, support and PEP talks! :) Only got my first vid up and trying to work out technical difficulties ha ha but I'm sure you'll find it more supportive than this dribble! LOL
ChronicFatigueHope 5 months ago
@SpiceyGrooves THANKYOU, you just put my feelings into words perfectly
City96Girl 4 months ago
search mitosynergy on you-tube or the web MITOSYNERGY
Mitosynergy 11 months ago
Since this video is the most popular CFS video, I'll ask this question here: has anyone researched the SkyPaint chromosomal damage test that proved Gulf War Illness to be a valid disease? Does anyone know if CFS patients also show abnormalities with this test? I am not a believer in the current XMRVirus theory of CFS, so I'm trying to find other avenues to ask my doctor about, but my internet research ability is limited, at present.
stillwaterguy04 1 year ago
Viral diseases (including my own case of severe CFS) have no chance with blood electrification, search Bob Beck right here on Youtube! Visit my channel for a link to more info.
unleashhealth 1 year ago
SEE WHY YOU MAY HAVE BEEN BORN WITH THIS IN MY VIDS 5. TERRAMYCIN 1 AND 10. TERRAMYCIN 2. AND SOME RELATED SYMPTOMS.
wedgewood578 1 year ago
Capture The Flag - CTF
shivayavoda 1 year ago
The solution to CFS is here: Reverse Therapy by Dr.John Eaton, phD
AznVi3tx 1 year ago
@MissAvail: You need to rebuild your adrenal and spleen.
4chango 1 year ago
OMG I have all those symtoms, everyone is just saying Im lazy or its in my head, or its because I take care of my kids all day, but I used to watch 10 toddlers at a time and never felt this tired. Now I can go to bed at 9 and the alarm will wake me at 8.
lulu2dani 1 year ago
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Asian beauties are waiting for you "busizz4me.info"
kzkleyoile 1 year ago
I have M.E check out my video, all my thyroid, iron, minerals, vitamins, adrenal glands, cortisol levels everything was checked.
mark41620 1 year ago
Out of curiousity have you had your thyroid levels check. A low thyroid will knock you down,
GreenEyeXLII 1 year ago
i have had this illness since i was 11 yrs old. I was only diagnosed when i was 15. Now i'm 19, and have also been diagnosed with 3 other conditions but am managing to live my life (as best as i can) as a university student. It bugs me so much when those who dont have the conditon call me lazy, a scrounger etc. Just because it cannot be seen doesn't mean it doesnt exist!
boltoniangirl 1 year ago
I have this.......... so discouraged right now :(
hollybee43 1 year ago
hope you get better soon its a bastard of a disease
Rigyy 1 year ago
how does it effect your metablism ?
bri4u2906 1 year ago
called lyme disease... mycoplasma, babesia, bartonella... Candida albicans/tropicarnia... if you get chronic fatigue your diseased with something. Carotenoids, eating fats helps (vitamin D supps can make you worse - lower immune system). Raise IFN-gamma, raise Th1 response. Higher fat diet, olive oil, butter, chicken wings, beef/lamb fats, lower carbs, high carotenoid type veggies like kale, broccoli, sprouts, wheat grass, chlorella, spirulina
Catherine8raw 1 year ago
How come it's always people who don't have this condition claim to know it all? I have had this since 1973. I reckon if everyone in the medical profession had cfs for 6 months, they would soon find out what caused it.
Shytalking 1 year ago 19
@Shytalking: That is not fair, because most of the scientific researchers who uncovered the remedy also did not have it. They just did it because they did not like seeing people suffer.
4chango 1 year ago
google this "CFS - The Central Cause: Mitochondrial Failure" - drmyhill.co.uk
trailriderresearch 1 year ago
Dr Myhill "buy my test kit" Always someone out to make a buck or two as well!!
Shytalking 1 year ago
I am 25 and BEDRIDDEN with severe cfs. I was running 5 miles a day and one day my life changed forever! This disease is SERIOUS and can be deadly, do research!
casielee18 1 year ago
@casielee18: Have you tried herbs?
4chango 1 year ago
This has been flagged as spam show
I can relate so much to alot of what u said, i was diagnosed in 2001 with fms and cfs and my sis also has these too! not sure how i came across ur video it was linked at the side to another one, but i just wanted to say ur very brave for doing this vid, well done and thanks for sharing x
daynauk 1 year ago
I can relate so much to alot of what u said, i was diagnosed in 2001 with fms and cfs and my sis also has these too! not sure how i came across ur video it was linked at the side to another one, but i just wanted to say ur very brave for doing this vid, well done and thanks for sharing x
daynauk 1 year ago
had similiar symptoms for years, then my labs showed High heavy metals & candida. Anti-candida diet kept me on roller coaster, but felt better soon after going
80% Raw, juicing, adding fruit/veggies 2 my diet,avoiding grains. Research about Monsanto,Future of Food dvd and others,like it it's not worth researching WHY becuz Monsanto, EPA, FDA are all corrupt and GMOs were given green light w/out full research if safe. now we have more new health issues. Just focus on Detox, Raw, Juicing
TheCrosswind 1 year ago
had similiar symptoms for years, then my labs showed High heavy metals & candida. Anti-candida diet kept me on roller coaster, but felt better soon after going
80% Raw, juicing, adding fruit/veggies 2 my diet,avoiding grains. Research about Monsanto,Future of Food dvd and others,like it it's not worth researching WHY becuz Monsanto, EPA, FDA are all corrupt and GMOs were given green light w/out full research if safe. now we have more new health issues. Just focus on Detox, Raw, Juicing
TheCrosswind 1 year ago
Perhaps getting extensive blood work from Naturopathic Dr (most drs don't use same labs or believe in these issues) for heavy metals, parasites, celiac etc... Then maybe consider a whole body detox, parasite cleanse etc..I got extensive blood work from NDs and just push their supplements although if you get a Myers brigg cocktail IV, you can get concentrated Vitamins/Minerals straigh to your system - great. But, i recommend going to local Herbalist for advice/consult for custom teas/herbs/detox
TheCrosswind 1 year ago
Have you tried juicing organic Raw veggie juicing + Dark leafy greens (like kale, spinach etc..) and smoothies with vegetable protein powder+superfoods to nourish down the the cells and tissues. Adrenal supplements like glandulars or from herbs can help boost energy if your adrenals are shot like mine. helps me get through daily activity & exercise few times a week.
TheCrosswind 1 year ago
Hi! I was so excited when my daughter showed me your videos - especially on Chronic Fatigue. I got sick Sept 16, 1994, in the U.K. (we're in the U.S. now) and I've learned how to manage myself better, but it has not gone away. I was so excited to hear some of your journey, because I was really distressed, when we moved to the States, to find out how LITTLE doctors, and people in general, know about it over here! This illness has taught me is how to REALLY live. To be thankful & to enjoy . .
singvickilou 1 year ago
Hello hun ~ Wishing you the best on your journey of health. I have had this myself and took care of it by completely revamping my diet, removing alot of the things we call 'food' and looking at a wholistic way of eating, supplements and living I no longer have it. I would love for you to check out my page.. and just give me your thoughts. Yes no or otherwise i'd love to hear your feedback . You are a beautiful young lady and deserve to live. You are not stuck with this forever. I know. =)
HealingYouToday 1 year ago
i have had CFS for 7 years!! ive had it since i was 7 and now I am 14.....i have half days at school and people never understand my illness..........I get ALOT of comments from pupils...one of my teachers called the 'Attendence Officer' and 'Social Services' Because my teacher thought my mum wasn't feeding me properly....lucky the officer new my mum and new that i was being fed properly!! ;(
TheChocolateCheese 1 year ago
got diagnosed in november last (though been ill for a long long time now as drs got me into believing i was a faker myself/nuts, so only way i survived was initially through self medication which brought about endless problems (as you'd expect) which delayed things further...this thing knocked me off my feet 4-5 yrs ago 4 real) anyhow i was originally in the ranks of the "me: diagnosis of exclusion: 0" untill my last appt then seeing your (and others vids here) now i know! god bless, will sub, m
martimotion 1 year ago
This comment has received too many negative votes show
Jesus Christ, what an ugly and fat tart. I am pretty sure that she even doesn't swallow! Can somebody delete that shit video? Immediately please! Thank you!
kafor1999 1 year ago
Type the words:
Why 'CFS' is a wastebasket diagnosis
in the Youtube Search box.
Watch the video.
oneeightywest 1 year ago
oh i feel like everyday when i wake up like i was hit by a truck.. its been that way for a long time. i have schizo-affective disorder and think it may be my meds. i feel like shit almost everyday super depressed i havent been able to work or go to school in 6 years. i feel so tired that my face hurts i feel like i have a flu throughout my body but im not sick. a ,lot of this sounds like it could be symtoms of having schizo as well like cognitive imparment and weight gain im so confuesd now
blackkat77 1 year ago
I still have CFS. This video is 4 years old now but everything still applies. Much love in your journey to health.
fastinggurl31 1 year ago
@fastinggurl31 Have you researched heavy metals and food sensitivities. These are two things linked to CFS. Diet can play a major role in this and is vital in any illness.
apocalist420 1 year ago
@fastinggurl31 Do you have a feeling all over your body, where it feels so tired, it feel like it needs to be stretched badly. Even after stretching you still feel kind of lethargic!
smartboxing 1 year ago
@fastinggurl31
I have not yet watched your video but I think I have chronic fatigue, but I'm afraid that my doctor will blame it on my chronic (social) anxiety and depression. Sometimes I feel like a vegetable, like yesterday for example. It lasted for 7 hours and I couldn't do anything.
Metsada007 1 year ago
@fastinggurl31:Have you tried a naturopathic approach? You need to rebuild your adrenal and spleen.
4chango 1 year ago
@fastinggurl31 - Hi, 18 years ago I had this same, i was hooooorible, it lasted 2-4 years. In the university I got a glandular fever, it is caused by an EB virus, that is very hard to detect, then doctors found that my liver was not working OK. Then I was on a diet and after 6 months my liver was OK, but then I needed back to school and then appeared CFS. Before I had been an excellent student but from that time i struggled very heavily with school. Beacause the CFS I was few .....
ScienceAndTrue 1 year ago
Because the CFS I was few times in hospital. They couldn't find me anything, also the tests of my liver were OK. But I think the CFS was caused by my liver that was not subliminally still OK.
What helped me ? Normally I had to have the diet for 6 months, but I extended it for 4 years - no fried , no alcohol,
no fat, no pepper ..., I do not know what else , then I started to go for a run for very long distances -15 km, I took one aspirin per day also.
ScienceAndTrue 1 year ago
I also found, the CFS can be caused by immunity. May be some psychofarmacs can help to stabilize the body.
I do not mean, you would be somehow psychically ...., but your body does not feel well, may be the psychofarmacs could help also, I would try it. You have the CFS very long time, it is necessary to fight..
ScienceAndTrue 1 year ago
@fastinggurl31
Hi, My wife has ME and Fibro. We are new to you tube but are very pleased that someone has spoken about this illness. My wife had a fantastic job, we traveled, we were out every night and weekends. We had the life that we wanted. She became ill about 7 years ago and from that point on our lives have changed. We cope with her illness as there is little more we can do. We feel for you as ME is something you wouldn't wish on anyone. Wish I could write more. Keep going, chin up.
pompeyphil2009 11 months ago
@fastinggurl31
I saw your video and I can totally relate. I was diagnosed w/Chronic Fatigue, then Fibromyalga. I thought I was semi-paralyzed from the waste down one morning. I called to my children to call an ambulance. It was frightening. It started in the 80's then I had a good few years, got married had 2 children, was on constant overload and I wasn't getting enough sleep due to a snoring husband and 2 babies. stress brings it on bad. I try to exercise, eat right, take my omega balance
4mcd 8 months ago
@fastinggurl31
I saw your video and I can totally relate. I was diagnosed w/Chronic Fatigue, then Fibromyalga. I thought I was semi-paralyzed from the waste down one morning. I called to my children to call an ambulance. It was frightening. It started in the 80's then I had a good few years, got married had 2 children, was on constant overload and I wasn't getting enough sleep due to a snoring husband and 2 babies. stress brings it on bad. I exercise, eat right, take my omega balance Marianne
4mcd 8 months ago
@fastinggurl31
I saw your video and I can totally relate. I was diagnosed w/Chronic Fatigue, then Fibromyalga. I thought I was semi-paralyzed from the waste down one morning. I called to my children to call an ambulance. It was frightening. It started in the 80's then I had a good few years, got married had 2 children, was on constant overload and I wasn't getting enough sleep due to a snoring husband and 2 babies. stress brings it on bad. I exercise, eat right, take my omega balance Marianne
4mcd 8 months ago
Sweetie you said theres nothing on (youTube) about FIBRO/CFS well you are ? I am a fellow suffer, and I thank you for telling your story... everyone that comes on here is (helping) educating people... I try & watch all the fibro videos... I always learn something new, and of course just knowing Im not alone with this struggle..God Bless...
sunny35b2 1 year ago
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Katnet1 1 year ago
You are talking about me...it's so strange to hear a complete stranger know exactly how i feel. Even tho I talk to people with CFS and Fibromyalgia on a daily basis. I was off work for 3 1/2 years and lost my home that i worked so hard being a single mom. I was dx;d in 1995 but was showing symptoms much earlier...can't prove but believe hit me after a flu shot. Now with all the xmrv and other retro virus papers out it really fits. My life changes daily...i never know how I am going to feel.
Katnet1 1 year ago
@Katnet1: I placed a naturopathic approach on my site, it will remain posted for a few more days.
4chango 1 year ago
That sounds awful. Thank you very much for explaining this syndrome to everyone. I feel bad for you. I'm glad you're better now than you were at the beginning. Because of this video, I now have sympathy for people with this syndrome. Thank you.
By the way, do CFS and fybromyalgia always come together? I'm wondering because I know someone else who has both.
AutisticWhoLives4God 1 year ago
i fit most the symptoms , but doctor said my blood lacks iron , and i take iron pills but it is not helping much , and my eyes always itch and are very dry , visine does nothing - what meds do you take? - ithink i have been miss diagnosed
butterball1234abcd 1 year ago
Most of what your explaining I go through every day. I don't know how to explain to my friends that I am in pain or i just don't feel good. I pray I don't have this but after researching just way too much is what I go through. Would be nice to know other people who I can talk to so I don't feel like i'm the only one.
nyxong24 1 year ago
i think (especially and mostly refined) sugar has a lot to do with it, but it's hard to overcome and break the addiction because it results in hypoglycemic-like symptoms and even more severe disability (which will happen in some form whenever you try to break an addiction, it will always be hard)
paschalli 1 year ago
I have CFS and I just started a sort of blog thing about it if anyone is at all interested. It's sort of just a personal story/ you're not alone thing. Please check my profile for the link if you're interested!!
strappingyounggirl 1 year ago
Comment removed
strappingyounggirl 1 year ago
I am amazed at the info you've posted in your other videos not to mention the changes u've made in your appearance. I too have been suffering from CFS and still looking for light at the end of the tunnel. I would really like to opportunity to touch baisis with you via email regarding this condition as I really need help. My address is vozranchera@yahoo.com.
Thank u,
Robert
robertolegaspi 1 year ago
thank you for posting this, im really grateful to anyone who helps people know about this awful illness. xx
VivaciaDreams 1 year ago
CFS is just a lable, as the word 'syndrome' means in medical terms ("a bunch of symptoms where the cause is totally unknown)
I'm pretty sure everyone with CFS actually has XMRV which has been found in most CFS patients. XMRV is a retrovirus that takes down your imume system, like HIV does, however it is weaker than HIV. This is not the only comparison to HIV, as XMRV is a retrovirus that settles in your DNA, so you can't get rid of it ever. Look up XMRV to learn more about it
PowerRedBull 1 year ago
Comment removed
alexsantoro 1 year ago
Honey, i didnt watch the video all the way to the end, but have you still got CFS? i hope you have managed to heal it by now, but if you havent, please know that CFS is nothing more than candida (a yeast-like fungus) overgrowth in the blood stream. CFS (Candida) can be cured by straving the fungus of sugar and acid. Go on a sugar free diet and you will no longer have CFS. Buy the book "Sick and Tired" and I promise it will be gone by 6 months if you stick to the diet . Lots of love & good luck
alexsantoro 1 year ago
This has been flagged as spam show
I am a recovered fibromyalgic who left the care of the medical profession to discover the cause and cure of this horrific condition without drugs, and am living proof you can cure this and take back your life. Symptoms are mistaken for the cause and treatments that help do not cure. Please, do not be discouraged by failed hope and keep going!!!
Valerie Lumley, Recovered Fibromyalgic and author of
"Curing Chronic Fibromyalgia - Choosing What Works"
ValerieLumley 1 year ago
This Video has been so helpful ,,my eldest girl has had her energy levels zapped by this condition for about 8 months now, your information and ordering of events has been amazingly helpful , Thankyou so much X
ThingsToMakeAnDo 1 year ago
have you tried to avoid aspartame (diet cokes,no sugar gums,etc) and msg?
buxilala 1 year ago
I suffered with chronic fatigue syndrome for a while. My Epstein Bar antibodies kept rising each time they were taken. Waking up exhausted, walking felt like wearing a lead suit. One day I figured what the heck, I feel terrible anyway, & I went out and drank a few dark beers - next day my energy level was fantastic! I started eating whole grains, brown rice, barley, millet etc. I started feeling better. The difference was remarkable! Try it it might help you! Its good nutrition too! God Bless!
ContaMuir17a 1 year ago
@ContaMuir17a: Sounds like you have an active virus that has not been flushed out.
4chango 1 year ago
@4chango I believe the virus well under control and out of my body now. I haven't be troubled by it in a long time. Knock Knock! But it was a struggle. My emphasis on nutrition really helped. My doctor concurred it was a good approach. I was eating foods that were high in the nutrients that they have found effective in treating this disease. I recommend everyone try it. Its easy and you don't have much to loose if you feel terrible all the time anyway. Best wishes!
ContaMuir17a 1 year ago
thanks so much for posting this. i have CFS too. i often feel so bad all i can do is cry. your video reminds me that i'm not alone.
tna33311 1 year ago
Have you had your thyroid checked?
VickyGoss 1 year ago
Thank You. I have discovered the only cause of CFS is a candida overgrowth in your stomach and colon. Acidophilus will sometimes remedy this. Est. 80% population has candida problem. Correcting this is key to a strong immune system. Some people do need things besides the acidophilus if they have a serious case. Oregano oil, silver, garlic etc. No RX for me. The anti-fungal rx can kill your immune system..leaving you with no defense. God Bless.
prosperitysecret 1 year ago
@Jeffieboi
fibromyalgia flare up, jeff?
BaldySperman2 1 year ago
This has been flagged as spam show
There are multiple sites and videos on Youtube explaining how each portion of the Protocol functions to help those suffering from primarily viral diseases and has personally helped me with my CFS. Please visit the Unleash Health site for more information on the Protocol and therapy!
unleashhealth 1 year ago
Its ridiculous how exactly alike your symptoms are with mine...the only thing i dont have is the paralysis and seizures (Thank god). I'm am starting to get really mad over this, I've been staying up til 4am everyday looking up things because my doctors all say im ok, "ummmm your mono is gone you seem fine."
Tehyamz 1 year ago
@Tehyamz been through that many times. "well your mono should be gone by now" well apparently it's not ass hole so how about you look into whats going on. Lazy ass piece of shit doctors
csplendrig 1 year ago
@Tehyamz: You ever thought of herbs?
4chango 1 year ago
Comment removed
Tehyamz 1 year ago
I am 18, i have had anxiety problems since i was 14. Lucky me i had to get mono about 4 months ago. I was pretty ill for about 2 weeks. Immediately after i recovered i started getting a bunch of problems, i started getting random terrible chills, got tired, felt light headed, my anxiety worsened, night sweats, jaw pain and clicking, and just random fatigue. For the most part it is on and off. I will be fine for 1 or 2 days, then bam a week of bullshit. I can't even skateboard good anymore :(
Tehyamz 1 year ago
i think i have cfs and it's not just a retrovirus but many virus Hepatitis C and so many i will not list them all .. a sun burn can give cfs. most of the time they do not help you unless you are going to die because you have a cancer.
aaronlovespot 1 year ago