Added: 4 years ago
From: sjmolitor
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  • I hope Philip will get better soon.Doctors said the cure will be out in 10 years or less.They already test it on a group of children.He is an amazing,beautiful kid.Philip,I hope one day I will have such a nice son,as you are.Best luck,Judit

  • what happned to your son?

  • Im from Germany and Im only 14 so I dont know if you understand what I write.

    I think kids are little wonders

    Kids are our future and they make the world a little bit better and happier

    When we look in their eyes we want to smile or we want to cry.

    So I want to pray for you and your family because my brother is dead since Im 13 and noone prayed for him. But I want to make it better

  • I'm praying for you.

    God bless.

  • ím no speak inglish,i hope you understand my words. i´m from México, Los cabos Baja California Sur. i have two child in my school with DMD. Im teacher and i like help the family of two child. i know no cure, but i like have more information and how can help this people.

  • God bless you and your family. Even with his disease he still smiles in most of the pictures. I doubt he could ask for a better family than yours.

  • i have 4 boys we have challanges to god bless you love helps my sons are everything to me

  • This little boy in the video has quite a resemblance to my little brother, though my brother doesn't have DMD. He just looks like him in the face and this video touches my heart because if my little brother was faced with this or even my own son I don't know if I could be as strong as you. I'd want to hug that child and never let go to do anything ever again. I'd be so pathetic. :) I want to find a cure for it too. good luck and may he have a beautiful life.

  • this video sparked my interest in the disease. I am in school for massage therapy and my paper is going to be about this particular disease. I can see how my chosen profession would be benificial for victims and I want to work with babies and children.

  • aww keep up the good work and never give in!!! make sure he goes to summer camp its the best place ever!!! (i have CMT)

  • Wow what a powerful video. I have been involved with dystrophy since I was 10 as my best friend has Spinal Muscular Atrophy. I have attended kids summer camp and Adult dystrophy camp. The video brought tears to my eyes. Hope your son goes to MDA camp cause it's the most fun beautiful place ever. Peace and happy thoughts to you and your family

  • A beautiful song and video

  • Tears In My Eyes.

  • He's adorable.. he sure is a lucky kid to have such a devoted mom that would do something like this.

    God bless you guys.

  • This is a very heart movin@ video.

    A very good school friend die from MD Duchenne at he tender age of 25 and his brother also backend of last year.

    It puts a lump in my throut when ever I hear about somebody with the very debiliting disese.

    It's to late for my friend and his bro but wish it wasn't and they found a cure I miss them dearly.

    If got to go to his Memorial onn the 12/7/2008 and I'm dreading it being un able to hold back the tears.

  • If this video touches your heart as it does mine, I have a Grandson 4 yrs old with DMD, Please visit Parent Project website and donate with help we can find a cure for this generation of boys, 1 out of 3500 boys born will have DMD, I never thought it would touch my family, no one in my family ever had MD, yet here we are ..... Please help find a cure!

    Philip, You are such a handsome young man, Thank you for putting a face on this devestating disease so others may join the fight for a cure!

  • GOD BLESS YOU!

    This brought tears to my eyes. I know the pain. My cousin has it, and he is only 9. It's terrible. But, God be with you. That's an adorable little boy. <3

  • My thoughts and Prayers are with you, and your family. Most of all with your son Philip.

    May Gods Grace be with you, and may you find strength in God as the Healer. Your son must be an amazing boy, and must also be an inspiration to all those around him.

    God Bless

  • I've tried to post this comment before but, it never went through. In a nutshell, this is an amazing video and definitely captures the heart of a family as they journey through a challenging period. I am blessed and awed by the care, commitment, dedication, and perseverance of not only Philip but of his family as well. I pray that God's Grace be sufficient and that the Faith of the family not fail. To Philip, stay in the race! You have blessed more people than you know... by just being YOU!!

  • What a beautiful video.  I studied Duchenne's Muscular Dystrophy in my A-level Biology. What a CRUEL genetic condition!!! I was in tears by the time the video finished. God bless that adorable little boy and his mum. xxx

  • Your video really moved me! I hope they come up with something very soon to cure this disease! God bless you and your son!

  • Beautiful to see how much Love is in your family.

    God Bless.

  • Bless you by God's grace! Philip looks SO HAPPY and blessed to have such an awesome mom!

    Jodi & JUNI (service dog daughter)

    30 with SMA I/II

    huggs

  • I pray that they find a cure. It is so sad

  • I am a nurse who takes care of a young man 24 years old with Duchennes MD and he is the strongest person I have ever met. His mother is truly an angel. I am truly blessed to know him.

  • Having this damn disease pisses me off so much I can't put into the words the pain you go through . Slowly losing all your muscle knowing how to things but never being able to do them.

  • I'm the mother of Eric, 23 with dmd. I feel your pain.....

  • as a father of matthew who has dmd i just pray we all get a cure that our kids deserve .God bless and good luck -Trevor ,ireland

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  • My nephew suffers from DMD and he's now in a wheel chair at age 10. I know exactly how you feel so my prayers are with you. My heart goes out to your little boy...he's so full of life, it's amazing. Hang in there, I have so much faith that better treatments or a cure is just around the corner.

  • Can't stop crying after seeing this video. Here's a mother writing from the Netherlands with 2 beautiful boys (ages 3 and 7 years old) with a progressive muscle disease...

    We wish yoy ALL THE BEST !!!

  • My cousin has DMD and he is 16, during the Video I acctually started Crying, it reminded me of times before, good and bad and how hes always smiled throu them, hope they find a cure, and you get to see your son walk agian I know I hope to see my cousin Walk agian but its not the likeily now, Bless you and your family.

    -Samantha.

  • I hope you have many years together, he seems like a sweet boy. <3

    i used to ride like that behind my twinbrother, and i miss him so much<3

  • what's the name of the song

    I also have DMD

  • Thank you

  • hes ded?

  • that is an awesome video. i hope you get many more happy days with your son.

  • I love this video. We've a 5 yr old w/ DMD. Your son is awesome & I can see he is about as precious as they come. I can tell from this film that he is the light of your world. As I type this, I am praying for some break throws for our boys. They are so courageous....certainly, they are ones I get my strength from. I am very hopeful that something will come through soon....if not in t/ US, something elsewhere...I love t/ music & t/ photos of your family.... DMD Mom to Will - age 5

  • I have a rare form of MD this song is so MDA reminds me of the telethon and MDA camp

  • my son is suspected of having congenital MD, and this video really meant a lot to see. Thank you!

  • Very good video... I love this song.... I listen to it alot...

  • this is so sad ima doing a project on this rii now and wow these vids are so sad ill keep all these fams in ma prayers may jesus b wiid u!! god bless!

  • Cool video. Hope everythings going Well.

  • this song makes me cry every time I hear it.

  • with PTC 124 the future looks a lot better,lets hope when available 2009,with the help of God and science it does its job

  • hi.....i lost a good friend to duchenne he was only 18! he was tryin to over come nasty resp. infection back in Feb. 2000 and died from complications in May 2000.. He lives forever in my heart becuz i used to help in business class while he was out. We got him an email account to keep in touch and i used to print his daily work out... If you the computer is great tool for him to be able to communicate if he is unable to use pencil and paper. Takes time but he will love it!

  • we pray for a cure.

  • GOD gave Phillip to the right Mom! Watching this video was like watching my son Steven (Duchenne's and Autism). The school is identical, all the challenges etc..We love you- The Geary family-Florida

  • words can't decribe a mothers love for her child but u managed to capture it in a single video, best wishes to u, ur son, and ur family

  • All the best to you and yours, Phillip!

    A father of another Duchenne's-boy.

  • Phillip, what an amazing boy you are! I have 2 sons about your age, with duchenne muscular dystrophy! I hope you overcome your fears everyday! God bless you

  • lovely video and the words in the song are amazing...

  • Thats an awsome song mom...now we know who you favor...-_-...Just kidding...awsome video!

  • The words are great, dont add more, or take away!

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