I don't know if they are still active but I had joined a Bible Study based support group for the chronically ill in yahoo groups called Hope Keepers Online. I'm sure you're all hooked up with everything you need. Just wanted to pass it on.
Lyme triggered lupus for me. Main symptoms (post treatment): joint swelling, pain, fatigue, and HAIR LOSS. Two months of Plaquenil, and my hair loss has stopped. Considering how well prednisone worked for you, you might want to talk to your doctor about getting tested for autoimmune diseases. I believe in chronic Lyme, but I've also found a lot of research that indicates autoimmune disease can occur as a result of Lyme infection. God bless.
thank you for all your information i know about prednazone i have to use every day too your videos are very inspireing keep up the good work hopefully one day they will find a cure
Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go." Joshua 1:9
"When they saw the courage of Peter and John and realized that they were unschooled, ordinary men, they were astonished and they took note that these men had been with Jesus."
It is obvious that you dear sister, have been with Jesus. People are taking note of this. Your mission is being fulfilled and the Lord goes with you due to your obedience to glorify Him.
I'm sending you a friend request, because i'd like to send you a pm about this...i'm no 'expert'! LOL I just wanted to say thanks for posting this...I have been struggling with symptoms and problems like this for years...the fact that you got a diagnosis and answers gives me hope. Thank you VK. :)
I've watched this twice now and it still breaks my heart. I'm at a loss for words because I just do'nt like to see you suffer. I know you are handling this well, but it still bothers me. I'm am glad to hear your mother is a doctor. What a plus there! About your hair. Maybe your mother already told you, but sometimes the hair loss stops. Asuming its from the Predisone. The Predisone might balance out your weight too. It can make you hungry. Know that I am praying for you sweetheart. God Bless you
Thankyou for taking the time to share your experience. It actually has been helpful. My lil' sister was diagnosed with lyme and treated when she was young. For the most part she has been symptom free for decades. Recently, she has been experiencing symptom(similar to what you have described) that her doctors have labeled arthritic. After watching your vid.s, I had suggested to her that she should be tested again for a Lyme. I or her may have never thought of this if not for your info. :)
Hang in there, VK. You will get through this. I'm glad the prednisone helped, and that your parents have been so supportive in offering assistance to you.
Good job on the video.
Another tick borne disease people know little about is human Ehrlichiosis (I did a paper on this years ago for a micro class). Back then, only the CDC tested for . It was often mistaken as lyme... probably still is. The treatment is pretty much the same, though.
PS: Someone wants proof of your illness? Wow, I didn't think it was people's business to have it unless they're your attending physician. Well, that's youtube trolls for ya.
I have known a number of people who have had Lyme's disease it can certainly be a serious problem. If you don't have energy to read you might try listening to some of the BBC programs which are available free online. Beyond Belief is a particularly good series. Google: "Ernie Rea explores the place of faith in today's world, teasing out the hidden and often contradictory truths behind the experiences, values and traditions of our lives."
What a strong and brave lady you are. It is wonderful to watch how you deal with these problems. its an inspiration. Stay strong good and kind lady. One of my favs on YouTube always will be. Warm and loving regards,
Oh My- Keep the faith sis- and thanks for informing us- what a gem you are to think of informing others as you do not have to do that- as for the trolls- how amazing and idiotic~ not worth your thoughts- Just keep positive and around folks who love you- thank God for your supportive family and friends around you sis- God bless you. Agape for now- Rebecca
PS- I think these things help us understand what the Lord went through- certainly not because He puts it on us- just as a side effect... one of the things you may find in all of this is what unbelievers are like- the suspicious evilness of that- the Lord had to deal with this ad nauseum and so did His disciples- What did He do? I guess He handled every case in context as led by the Holy Spirit in trust and so obeying the Father Will...Anyway- just my extra thoughts- free associations- GBU- RM
I am shocked someone demanded proof, goodness. I do understand your heartbreak of not being able to stand during worship. I know a gal from our church that has been living with Lyme for over 20 years - Bless her heart. She told me a story of walking in her yard and dropping to the ground and not being able to move, she could only lay there until her husband came home. I can't imagine the effects fully. Yep, You have to be happy. Keeping you in my prayers!
I love your attitude. I hope you show some of your scarves if you start to wear them. I'm so glad your mom is taking such good care of you. xox - Beth
Lily I am sorry tis is happening to you. I hope your family, friends and faith sustain you in order to deal with this maddening disease. You are in my thoughts.
You are truly an inspiration to me and I thank you for that. You may find this hard to believe, but I am actually allergic to Prednisone and I too have been told that it is impossible to allergic to this drug, but I am living proof (no pun intended) of it. It actually causes me to go into anaphylactic shock...go figure, LOL!
I'm just writing showing support for you. You will be up and about sooner or later, I believe. God is gracious. It's ridiculous someone asked for prove for your illness. There is no reason to fake this illness. It's not like you're saying you broke a Guiness world of records.
Well I just love you sis and you are beautiful inside and out.....you are in my prayers always and if you need me just let me know.....you know Ariel is usually around somewhere online ;)
Hey VK,its sad to think that there are some people out there are thinking this is all a drama ,you do look very thin in the shoulders,all i can say is if you need someone to talk to ,if you get that bored then you can bother me anytime you like ,i wont mind :-),providing im around ,of course , (i work shifts ),actualy im wondering if i should move my schedule forward a bit ,what do i mean ?, lets just say ,if my editing program was a parot ,it would know every swear word under the sun ,!
I continue to pray for you. That you will have relief from pain, that the infections will be driven out of your body, that strength will build. Healing is occurring in your body and light and truth is burning away all of the darkness of infection. Fear of course cannot abide in you as we walk through the valley of the shadow of death and fear no evil.
May you continue to fight the fight physically and spiritually and may others with the same disease be victorious as well. Amen
I am pretty sure I've only had it for 5 months so I have a good chance of beating it. Sadly, many patients go years before they are identified and they will never beat it but die from it.
I don't know if they are still active but I had joined a Bible Study based support group for the chronically ill in yahoo groups called Hope Keepers Online. I'm sure you're all hooked up with everything you need. Just wanted to pass it on.
Sending prayers and positive thoughts your way.
violettfem 1 year ago
Lyme triggered lupus for me. Main symptoms (post treatment): joint swelling, pain, fatigue, and HAIR LOSS. Two months of Plaquenil, and my hair loss has stopped. Considering how well prednisone worked for you, you might want to talk to your doctor about getting tested for autoimmune diseases. I believe in chronic Lyme, but I've also found a lot of research that indicates autoimmune disease can occur as a result of Lyme infection. God bless.
CerebralWriter 2 years ago
I would really like to talk to you... I'm having the same experience <3
nicky0727 2 years ago
thank you for all your information i know about prednazone i have to use every day too your videos are very inspireing keep up the good work hopefully one day they will find a cure
thom2448 2 years ago
Have courage and I pray for you ♥
EmCSpiteri1 2 years ago
The Holy Spirit speaks:
Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go." Joshua 1:9
pbar1000 2 years ago
Acts 4:13
"When they saw the courage of Peter and John and realized that they were unschooled, ordinary men, they were astonished and they took note that these men had been with Jesus."
It is obvious that you dear sister, have been with Jesus. People are taking note of this. Your mission is being fulfilled and the Lord goes with you due to your obedience to glorify Him.
pbar1000 2 years ago
Hey VK, sorry to hear this is giving you such a hard time. I don't know enough to offer you any advice, but I'll be praying for you.
preacherman777 2 years ago
I'm sending you a friend request, because i'd like to send you a pm about this...i'm no 'expert'! LOL I just wanted to say thanks for posting this...I have been struggling with symptoms and problems like this for years...the fact that you got a diagnosis and answers gives me hope. Thank you VK. :)
sammwa713 2 years ago
Take care and only use predensone sp?
for a short time-It lead to my moms death due to how it weakens and kills off organs after prolonged use-bless ya!
nesterhaus 2 years ago
I will keep you in my thoughts and prayer.
dickponderous 2 years ago
You're in my prayers, VK!
Vivenda48 2 years ago
I've watched this twice now and it still breaks my heart. I'm at a loss for words because I just do'nt like to see you suffer. I know you are handling this well, but it still bothers me. I'm am glad to hear your mother is a doctor. What a plus there! About your hair. Maybe your mother already told you, but sometimes the hair loss stops. Asuming its from the Predisone. The Predisone might balance out your weight too. It can make you hungry. Know that I am praying for you sweetheart. God Bless you
DLB79 2 years ago
Comment removed
RiverBirch1967 2 years ago
cute n wispsy, for sure; you look awesome, but cute n wispy would look SO cute on you. forget this, just stylish
RiverBirch1967 2 years ago
Pls email me, I want to talk to you about this, but I lost all gmail on switch to Mac?
RiverBirch1967 2 years ago
Thankyou for taking the time to share your experience. It actually has been helpful. My lil' sister was diagnosed with lyme and treated when she was young. For the most part she has been symptom free for decades. Recently, she has been experiencing symptom(similar to what you have described) that her doctors have labeled arthritic. After watching your vid.s, I had suggested to her that she should be tested again for a Lyme. I or her may have never thought of this if not for your info. :)
NoWattz 2 years ago
Hang in there, VK. You will get through this. I'm glad the prednisone helped, and that your parents have been so supportive in offering assistance to you.
Good job on the video.
Another tick borne disease people know little about is human Ehrlichiosis (I did a paper on this years ago for a micro class). Back then, only the CDC tested for . It was often mistaken as lyme... probably still is. The treatment is pretty much the same, though.
CircaRigeI 2 years ago
Please know you're in my thoughts, and I hope you're recovery is swift.
CircaRigeI 2 years ago
My lady of awesome you be.
scottklaw 2 years ago
PS: Someone wants proof of your illness? Wow, I didn't think it was people's business to have it unless they're your attending physician. Well, that's youtube trolls for ya.
Or as I like to call them "polli malakis", lol.
I'll pray for you.
craigzwicker 2 years ago
Holy crap. I hope you feel better soon.
craigzwicker 2 years ago
I have known a number of people who have had Lyme's disease it can certainly be a serious problem. If you don't have energy to read you might try listening to some of the BBC programs which are available free online. Beyond Belief is a particularly good series. Google: "Ernie Rea explores the place of faith in today's world, teasing out the hidden and often contradictory truths behind the experiences, values and traditions of our lives."
happyjesus123 2 years ago
What a strong and brave lady you are. It is wonderful to watch how you deal with these problems. its an inspiration. Stay strong good and kind lady. One of my favs on YouTube always will be. Warm and loving regards,
TheWisemonkey8 2 years ago
Thinking about you,
Don
blockster911 2 years ago
Oh My- Keep the faith sis- and thanks for informing us- what a gem you are to think of informing others as you do not have to do that- as for the trolls- how amazing and idiotic~ not worth your thoughts- Just keep positive and around folks who love you- thank God for your supportive family and friends around you sis- God bless you. Agape for now- Rebecca
RebeccaMichael7 2 years ago
PS- I think these things help us understand what the Lord went through- certainly not because He puts it on us- just as a side effect... one of the things you may find in all of this is what unbelievers are like- the suspicious evilness of that- the Lord had to deal with this ad nauseum and so did His disciples- What did He do? I guess He handled every case in context as led by the Holy Spirit in trust and so obeying the Father Will...Anyway- just my extra thoughts- free associations- GBU- RM
RebeccaMichael7 2 years ago
look good!!! chipper....
SuteUp2 2 years ago
Your attitude is such a testimony! :) Love you sis. Keep on making videos. You *will* help someone.
bondservant40 2 years ago
I am shocked someone demanded proof, goodness. I do understand your heartbreak of not being able to stand during worship. I know a gal from our church that has been living with Lyme for over 20 years - Bless her heart. She told me a story of walking in her yard and dropping to the ground and not being able to move, she could only lay there until her husband came home. I can't imagine the effects fully. Yep, You have to be happy. Keeping you in my prayers!
Jinxie228 2 years ago
I love your attitude. I hope you show some of your scarves if you start to wear them. I'm so glad your mom is taking such good care of you. xox - Beth
Elizabeth01010101 2 years ago
Yes!!!!
"And yet shall I praise Him." Glory to our Father dear sister.
You are awesome.
pbar1000 2 years ago
Praise God sis you look so much better than your last video.
You are always in my prayers sis.
Agape, donny
donny71954 2 years ago
you are still such a beautiful lady inside and out, hair no hair, your smiling spirit shines through. SO brave!!!
Blessings
Tara
tdawgsmitz 2 years ago
Lily I am sorry tis is happening to you. I hope your family, friends and faith sustain you in order to deal with this maddening disease. You are in my thoughts.
Nanee715 2 years ago
Hi VK,
You are truly an inspiration to me and I thank you for that. You may find this hard to believe, but I am actually allergic to Prednisone and I too have been told that it is impossible to allergic to this drug, but I am living proof (no pun intended) of it. It actually causes me to go into anaphylactic shock...go figure, LOL!
Keeping you in my prayers,
your brother in Christ,
Jeff
jd450lh 2 years ago
VK, do not hesitate in making videos. I love hearing from you regarding your condition, and what you have to say!
GooseHinson 2 years ago
I'm just writing showing support for you. You will be up and about sooner or later, I believe. God is gracious. It's ridiculous someone asked for prove for your illness. There is no reason to fake this illness. It's not like you're saying you broke a Guiness world of records.
GooseHinson 2 years ago
I hope you feel better.
cguevara12 2 years ago
Well I just love you sis and you are beautiful inside and out.....you are in my prayers always and if you need me just let me know.....you know Ariel is usually around somewhere online ;)
ZionzLioness 2 years ago
hey lily. anybody demanding proof is just... ahem.
sorry your hairs still coming out =(. youre still one of the prettiest people i know hair or no hair.
i want to reach through the screen and just give you a big hug.i like your jeans and sweater you look spiffy.=P
ttyl.
ghostinthefog1666 2 years ago
you would look beautiful with no hair...
take good care and peace2U
IChoseTheRedPill 2 years ago
The only thing I know about Lyme disease is that I wish it would leave you alone.
We have been so very blessed to add you to the congregation that meets with us on line and continue to pray for your complete healing.
pastorgeorgec 2 years ago
Hey VK,its sad to think that there are some people out there are thinking this is all a drama ,you do look very thin in the shoulders,all i can say is if you need someone to talk to ,if you get that bored then you can bother me anytime you like ,i wont mind :-),providing im around ,of course , (i work shifts ),actualy im wondering if i should move my schedule forward a bit ,what do i mean ?, lets just say ,if my editing program was a parot ,it would know every swear word under the sun ,!
THEENGLISHGHOUL 2 years ago
Since beauty comes from within you will always be pretty miss kitty. Best wishes on your struggles.
Rudenewt 2 years ago
I continue to pray for you. That you will have relief from pain, that the infections will be driven out of your body, that strength will build. Healing is occurring in your body and light and truth is burning away all of the darkness of infection. Fear of course cannot abide in you as we walk through the valley of the shadow of death and fear no evil.
May you continue to fight the fight physically and spiritually and may others with the same disease be victorious as well. Amen
TruthCeeker333 2 years ago
Do you know HeidiSaid? She should watch these videos because she lives in the woods and I think she has mentioned ticks in a few videos.
robrobbins 2 years ago
No I don't know her but please forward this...I am pretty sure I got it in my parents' front yard.
VioletKitty411 2 years ago
wow I'm going to have to research Lyme disease!!!!!
SisterSunnshine 2 years ago
Yes you will because FMS is a common misdiagnosis before getting a Lyme diagnosis.
VioletKitty411 2 years ago
is this something that you get over?
audionautix 2 years ago
I am pretty sure I've only had it for 5 months so I have a good chance of beating it. Sadly, many patients go years before they are identified and they will never beat it but die from it.
VioletKitty411 2 years ago
blessings
agfigueroaa 2 years ago
A wise muppet should always call her Mom
:-)
Baconhunter1 2 years ago
God speed.
coolgangstakillah 2 years ago