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i have EDS and i just love it how ppl say like that having EDS holds them back from doing things and i am NOT saying that this lady is saying that. but a lot of ppl say that it holds them back from doing things when im enjoying every min of having and im very active with many things
not only do i have EDS but i also have Scholioses, dout thats spelt right, but yea. i only have the hypermobility part of it nothing worse sooo yea......
kaylovshim 2 years ago
You do know that no two cases are the same right? Some people have little problems with it and it leaves others completely disabled!
kellybellows1 2 years ago
My name is Kylie and I had EDS III. I also have fibromyalgia...and have been on Lyrcia for 4 months and I must say, yes it's a bloody godsend. Finally some of the burning has settled, however my insurance here in australia ALSO wont pay...
Im petitioning for Lyrica to be put on the 'cheap med' scheme here called PBS...
EDSSUX 3 years ago
THANK YOU SOOOO MUCH FOR POSTING THIS!!! My 2 year old was originally being tested for Marfan Syndrome and recently the cardiologist decided it was possible that he actually has EDS, although it's not definitive he told me he would be amazed if he didn't have EDS. Not having a single inkling of what EDS is I have been researching this thing for weeks. He's 2 now and I refuse to treat him differently because even at 2 he is very smart and he will pick up on it. I worry a LOT. How do you feel?
Camay74 3 years ago
Hey did you know that pfeizer has Rx assistance?
ReineDeLaSeine14 3 years ago
It makes me so mad these dotors are so stupid they don't wanted to lear about this and they wanted clean cut cases well not all people are simple and clean cut . We have problems we are all different..
EDSGIRL021 3 years ago
Just to let you know that Eds types can overlap although usually not type 4. However, doctors are finding that many with other types are experiencing problems with the Aeorta due to the defective Collagen and it has nothing to do with size :(
Elfins 3 years ago
Great vlog. I too have fibromyalgia and agree with you its so painful at times. I wear clothes much bigger than my actual size because I cant bear the weight of it on my skin, it feels like its burning and stretched. Glad to see you vlogging about Eds, the more people that spread the word the more we can educate the population into this dreadful condition.
Elfins 3 years ago