GOD BLESS Dylan and his family! Love WILL help him through this! He is a GORGEOUS little boy and I hope and pray that there will be a cure for him and others!
I have NF1 just turned 45 and doing ok , i'm sure he'll be fine and have a great life if you have any questions on what i' went through and still deal with on a daily basics just ask,
I'm about to be nineteen , I have nf1 and the only one in my family with it or any health problems at all , I lost half of my hearing at the age of seventeen .
My son, who will be 4 in November, was diagnosed with NF1 on the 2nd of August. We believe he may have gotten it from me, and I got it from my father. We got lucky. My dad has neurofibromas on his abdomen, bony growths on his elbows and ringing in his ears, but all these years, he never knew that's what caused it until we put two and two together. I will get migraines triggered by caffeine but no other symptoms. Right now, my son has cafe-au'-lait spots and significant developmental delay.
I have NF too. Have had many complications; Im in college now though. Its tough no body understands. i have a facial disfigurment due to a neurofibroma that was on my face they removed most when I turned 14 but my muscule never grew so i have a dent and Ive had many tumors and surgeries as well as brain tumors.
@adge84 I have NF also and I know how tough it is because nobody understands. I have a few neurofibromas on my back right now but that is all. I am lucky that they are only small ones and I do hope that there are no more that appear. Someday I too hope that they find a cure for NF.
What an Amazing video! Dylan you are one very loved young man! And a cutie pie too!! By the way..that is one of my all time favorite songs too!! lol..
My Son and I also have NF1. We are praying or a cure as well!
i was born with nf1. im 23 so far i ahve had not probelms i do have the spots and some nerofibromas. i two was the first in my family to have. i two hope for a cure one day
wow, I had no idea of all of the struggles he's been through! Poor kid! I feel so bad for him as well as your entire family. I didn't see the link to donate? I'll google it. Hugs to you all!
As an NF patient myself, I understand your plight Dylan. Oh, and we are distant relatives too, You know my sister Judy. I send you my best. Be strong, keep the faith and NEVER give up. I have outlived all expectations. I am sure you will do the same, afterall, we are from the same stock.
im raising money for neurofibromatosis.. if you use ebay every time you goto the ebay site goto the site below and it raises money.
nfonline.co.uk then goto the ebay items tab and click the link
if your buying or selling click through that link to access ebay every time you use it to raise money for neurofibromatosis. it doesnt cost you anything! support nf now.
this is a sad medical problem because most people shy away from it. It has happen to me throughout my years many girls didn't want to date me because of those bumps on my face and most other friends shy away also. but i did find a nice woman and a few good friends so it has ahappy ending but it happen later on in life.there is hope for all of us. just keep smiling and keep loving and that will make you beautiful.
thanks for making this great video! I have NF-2 and I lost my hearing at age 18. (would Dylan benifit from a cochlear implant, auditory brainstem implant, or a BAHA? see cochlear. com ) I am running with the Children's Tumor Foundation, and my goal for 2010 is to personally raise $10,000 to help find a cure for NF!!! God Bless Dylan and your family!!
w w w. active. com/ donate /nfnyc2010 /Anne Shigley (no gaps in the links)
What a handsome little guy and from what he's gone through so far, very brave and strong. Thanks for making this, I have nf1 as well more people need to know about NF, it amazes me how little funding nf studies get when so many are affected, keep fighting the good fight :)
KICK ASS DUDE WE (ALL) CAN GET THROUGH THIS DISSORDER (TOGETHER) WHAT A GOOD LOOKIN BOY MAY PEACE BE WITH YOU AND TOURS
splitwig1963 1 week ago
i'm 100 % like him
superrkoman 3 weeks ago
wwow hes very confident in his moves for being blind :L
moddingtalk321 1 month ago
he's such a hansome young kid.. (: GO DYLANN
oNeOFthESoluTiOn 1 month ago
He is lucky to have such wonderful parents, he is an adoreable child.
peeoui1 2 months ago
Thank you for not losing smile, Dylan.
brazilianspiritzz 2 months ago
Good on you Dylan!!!! :)
TheJanineja9 3 months ago
I wish all the best to Dylan
mallorcaJG 3 months ago
i have nf1 too
TheSHARKHEADS 4 months ago
GOD BLESS Dylan and his family! Love WILL help him through this! He is a GORGEOUS little boy and I hope and pray that there will be a cure for him and others!
bambis46 4 months ago
I have NF1 just turned 45 and doing ok , i'm sure he'll be fine and have a great life if you have any questions on what i' went through and still deal with on a daily basics just ask,
Rickberg1966 4 months ago
me and two of my kids have nf1 xx
9joda 5 months ago
I'm about to be nineteen , I have nf1 and the only one in my family with it or any health problems at all , I lost half of my hearing at the age of seventeen .
You have one brave beautiful son
OthTeamMia 6 months ago
My son, who will be 4 in November, was diagnosed with NF1 on the 2nd of August. We believe he may have gotten it from me, and I got it from my father. We got lucky. My dad has neurofibromas on his abdomen, bony growths on his elbows and ringing in his ears, but all these years, he never knew that's what caused it until we put two and two together. I will get migraines triggered by caffeine but no other symptoms. Right now, my son has cafe-au'-lait spots and significant developmental delay.
bnanamkin 6 months ago
i love this video. My child (age 3)also has NF1 and no one else has it so i undserstand exactly where you're coming from.
nickey2badd 6 months ago
forgot to say your brave dylan!
adge84 7 months ago
I have NF too. Have had many complications; Im in college now though. Its tough no body understands. i have a facial disfigurment due to a neurofibroma that was on my face they removed most when I turned 14 but my muscule never grew so i have a dent and Ive had many tumors and surgeries as well as brain tumors.
adge84 7 months ago
@adge84 I have NF also and I know how tough it is because nobody understands. I have a few neurofibromas on my back right now but that is all. I am lucky that they are only small ones and I do hope that there are no more that appear. Someday I too hope that they find a cure for NF.
XDarkxGirlx4everX 6 months ago
What an Amazing video! Dylan you are one very loved young man! And a cutie pie too!! By the way..that is one of my all time favorite songs too!! lol..
My Son and I also have NF1. We are praying or a cure as well!
Karrmar 8 months ago
i was born with nf1. im 23 so far i ahve had not probelms i do have the spots and some nerofibromas. i two was the first in my family to have. i two hope for a cure one day
whiterabbitconley 9 months ago
i was born with nf1
whiterabbitconley 9 months ago
wow, I had no idea of all of the struggles he's been through! Poor kid! I feel so bad for him as well as your entire family. I didn't see the link to donate? I'll google it. Hugs to you all!
karenmanh 9 months ago
Happy NF Awareness Month!!!
SweetBrwnSuga 9 months ago
ha ha i love that shirt hes wearing at 1:51 "AB CD"
Awtted 10 months ago
Me and my Son have NF too may God be with you
LAHINKY61 1 year ago
As an NF patient myself, I understand your plight Dylan. Oh, and we are distant relatives too, You know my sister Judy. I send you my best. Be strong, keep the faith and NEVER give up. I have outlived all expectations. I am sure you will do the same, afterall, we are from the same stock.
stormchaserCO 1 year ago 2
I wish there was a cure too. So i won'[t have all these crazy things.
cooliopiekids 1 year ago
This has been flagged as spam show
i have nf1
im raising money for neurofibromatosis.. if you use ebay every time you goto the ebay site goto the site below and it raises money.
nfonline.co.uk then goto the ebay items tab and click the link
if your buying or selling click through that link to access ebay every time you use it to raise money for neurofibromatosis. it doesnt cost you anything! support nf now.
whooseyerdaddy 1 year ago
this is a sad medical problem because most people shy away from it. It has happen to me throughout my years many girls didn't want to date me because of those bumps on my face and most other friends shy away also. but i did find a nice woman and a few good friends so it has ahappy ending but it happen later on in life.there is hope for all of us. just keep smiling and keep loving and that will make you beautiful.
taggguy 1 year ago
this is so sad it breaks my heart living with NF is a victory all in its own. Stay strong little man hopefully someday we will all have our NF cured
Tankallen0510 1 year ago
Wonderful video.
morguebabe 1 year ago
thanks for making this great video! I have NF-2 and I lost my hearing at age 18. (would Dylan benifit from a cochlear implant, auditory brainstem implant, or a BAHA? see cochlear. com ) I am running with the Children's Tumor Foundation, and my goal for 2010 is to personally raise $10,000 to help find a cure for NF!!! God Bless Dylan and your family!!
w w w. active. com/ donate /nfnyc2010 /Anne Shigley (no gaps in the links)
RunChick87 1 year ago
Comment removed
RunChick87 1 year ago
What a handsome little guy and from what he's gone through so far, very brave and strong. Thanks for making this, I have nf1 as well more people need to know about NF, it amazes me how little funding nf studies get when so many are affected, keep fighting the good fight :)
browneyes04047 1 year ago