i too am a sufferer of dermatomyositis, i was diagnosed at an early age of 6 years i am now 25.. i had mainly downs with this condition, as well as ups. but i have never come across any one that is a sufferer of this drastic condition. if you are willing to get in touch you can do so via e-mail nazmeenparveen@hotmail.co.uk. I feel for this little tough guy i am sure you will b a fighter just like me... :).. it would be great to know how he is getting on.
I'm 22, I've had it since I was 11. It has only marginally gotten better. I can walk now but pain is constant. I walk crooked, my spine is damaged, I have atrophied muscles in my back/neck/legs/arms/and hands, I take risky medication (cancer causing). I grew up in the hospital, was clinically dead for 47 seconds, coma 11 hours. I've ridden in ambulances and helicopters. I can give myself an IV to help the nurses with my small veins, I relapse every fall. I pray for everyone out there with this.
i was officially diagnosed 2 years back bu ive had it in minor form all my life sorry for anyone with any problems but you look like you have a great family and that is deffinetly a huge hell no matter what life brings. nice video hope you have a good life.
i was just wandering.. whyh is chemotherapy used for JM i understand why it is used for cancer but i dont understand why it is used for JM could you please tell me??
i too am a sufferer of dermatomyositis, i was diagnosed at an early age of 6 years i am now 25.. i had mainly downs with this condition, as well as ups. but i have never come across any one that is a sufferer of this drastic condition. if you are willing to get in touch you can do so via e-mail nazmeenparveen@hotmail.co.uk. I feel for this little tough guy i am sure you will b a fighter just like me... :).. it would be great to know how he is getting on.
nazmeen29 1 week ago
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I'm 22, I've had it since I was 11. It has only marginally gotten better. I can walk now but pain is constant. I walk crooked, my spine is damaged, I have atrophied muscles in my back/neck/legs/arms/and hands, I take risky medication (cancer causing). I grew up in the hospital, was clinically dead for 47 seconds, coma 11 hours. I've ridden in ambulances and helicopters. I can give myself an IV to help the nurses with my small veins, I relapse every fall. I pray for everyone out there with this.
WorldOfKaroo 2 months ago
i was officially diagnosed 2 years back bu ive had it in minor form all my life sorry for anyone with any problems but you look like you have a great family and that is deffinetly a huge hell no matter what life brings. nice video hope you have a good life.
amdismat1 3 months ago
My daughter has it please contact my if I am not asking to much @ kendracarter101@Comcast.net
Kendracarter101 5 months ago
@Kendracarter101 i have sent you a personal email i look forward to hearing from you soon.
nazmeen29 1 week ago
i was just wandering.. whyh is chemotherapy used for JM i understand why it is used for cancer but i dont understand why it is used for JM could you please tell me??
horseloverxxo 10 months ago
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TheBeckyboowoo 11 months ago