Focal Dystonia (1) Understanding and Treatment as an emotional condition 1

[animalliberator]

Dave, I would very much like to communicate with you about focal dystonia. I was a French horn player. About 20 years ago, I was preparing for a recital, as well as getting ready to transfer to the New England Conservatory, when I began to experience muscle spasms in my lips. In a short period of time the spasms grew worse. Ultimately, they ended my career as a musician, as I was no longer able to play. To this day, if I try to play the horn, I experience the spasms. Please contact me to discuss

[rockitboy2004]

My Name is Thomas Wade. I was diagnosed with Oromandibular Dystonia in 2006. I was a singer/ recording artist and suffered a decline in ability that is very much like some of the experiences in this video, with the added challenge that after my voice quality , strength and range were gone, it became difficult to form words. I am now on the mend largely due to hypnotherapy, and a great deal of learning about neuro-plasticity. Read "the brain that changes itself" and " Evolve your brain" amazing!

[clodoaldoljr]

I am a cellist and it seems that I have focal distonia; after a year going to many doctors and doing physical therapy I've finally got a diagnosis; my problem is having my right thumb in place (bow arm)

[sireel]

it's from playing with too much tension. It is treatable by retraining your hand to function with no tension. it takes a long time to undo, but that's the answer. I tried botox, accupuncture, etc. nothing works except physical therapy, ie. for a guitarist like myself, you can use a guitar with thread instead of strings and do finger exercises and undo the tension. it does come back but it's reversible

[nonsulen]

Don't be fooled by the medical cartel, I recovered. There is a way out of dystonia. Soon I will be putting up videos to show dystonia sufferes how to help themselves. Deep brain stumulation is a farce and so is botox, figures they would go find something expensive to inject us with so they can make money.

[Loonatiks3]

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[sherstudios]

HI everyone,

the last posting came from my son's youtube sight, so if anyone wants to reach me I'm at sherstudios, not coolmamiacs360!

[coolmaniacs360]

Dave,

Thanks for posting the extended interviews with Joachim and his students. I am a faculty member at the Berklee College of Music and have suffered with focal dystonia for two years. I have been working with Joachim for about 6 months. I thought I was making some progress but in the last month I feel alot worse. It was very helpful to listen to the two trombonists talk about their experience , I think it's enabling me to refocus on the way I'm approaching this condition.

[davescragg]

Hi and thanks for your comments. I would be very interested in hearing your story. Please email me when you've got a spare minute..

Dave

[guitarsoul77]

Hi Dave. Thanks for your helpful videos as there many FD sufferers like myself who have been seeking answers and treatment. I would not mind sharing my story with you.

All the Best

[davescragg]

Please note!!

If you try to email me through the golobalbones site, they may not get to me at the moment!!!

Best to contact me through youtube!!

D

[slowmovingclot]

Hi Dave. Is there anybody in the UK I could talk to about this problem? My playing began to deteriorate in 2003. I gave up on it after four years. I recognise most of the symptoms as those I have experienced. Thanks for your time and the videos!

[davescragg]

Hi, can you email some contact details and I'll get in touch ..

Dave

[celticberrybhoy]

Super intresting!!