Gastroschisis

[gottigurl2]

i was born with this too plus was 3 months premature.I am now 21 yrs old and in nursing school.I havent had any serious complications.Knock on wood.My parents too were bombarded with nothing but negativity from the medical field regarding my medical condition, however none have been true.I successfully played all types of sports and eat all types of foods, which still amazes my mother to this day.I too dont have a REAL bellybutton, but instead a man-made one! Hope your daughter is doing well!

[baabaaish]

my neice had this

[shortie303720]

i was born with this and i am now 22! i dont have a belly button and still people tease me for these :(

[sugelulla500]

my daughter is now 2 years old and very talkative... she wants to play with other kids and she is so sweet.. i have a lot of photos of her in my facebook account gracepairat@gmail.com

she has a little brother now bigger than her and more heavier as well..:D

[sugelulla500]

thank you, yes my girl is a very happy girl.. doctors also before only telling negative things on us.. but now look at.. i am so happy to have this angel in my life, in our life. she makes us smile everyday... and i am so proud of her.. she is so happy and active.. she greeted every people she saw... and i'm happy that there are people sharing their stories like my daughter and everything went well..

GOD BLESS US ALL

[negruma2702]

@sugelulla500 bueno aquí en en mexico ahí buenos doctores mi nena nació con gastrosquisis y solo necesito una sola operación fue prematura ahora esta por cumplir tres años y gracias a dios no ha presentado ninguna complicación osea tanto aqui como en ee.uu ahi buenos doctores amigaa

[sls2896]

All I was born in 1976 and was one of the 1st cases recorded in Louisville Ky with Gastrioschisis. I'm now 33 years old. I had a complete abdominal reversal this is where the rib cage is turned inside out like a Tshirt. I wasn't at that time expected to make it at all. With steroids for growth assistance at a young age I went to doctors until I was 16 telling me nothing but the negatives. At 18 I was rejected from the military......................­..............................­.continued below.

[sls2896]

Keep your chin's up, be positive, being realistic is good but don't let them here about their complications too much. they will hear it enough in life. At 33 I'm healthier then any friend I had in high school, I have 3 children and the best wife a man could hope for, the only thing missing is a belly button. So tell your kids to play rough and live life. They can be anything they want to be. God Bless..... my prayers are with you all. ..............................­......Dan S.

[auryrivera]

My princes born with gastroschisis too, she spend 3 months at hospital, but, thank god, she's all right now, recentle, she was diagnostic with atipic autism, but i love her, she is the best of my life, and i know that God have a lot of plans with my little angel, God bless your little girl!!!

[Itachiismine1]

I had it to when i was born *sigh* i was in the hospital for 3 months :( im glad that your daughter is ok Great big wishes to you all.

[alayah0312]

My son was born with this as well... they gave him less than a 2% chance of a normal life... he was born a little over a month and a half early.... spent a little over a month in the hospital. After a total of 5 surgeries i am happy to say that he is a perfectly healthy and happy little boy. He will be three in june 2010. He is a strong boy and fought through everything with more courage than i would have... congratulations and i hope the best for you and your family.

[nunukapunu21]

My son was born with Gastroschisis in July 2005 he is now 4, a very intelligent boy, playing rugby & looking forward to school, I named him in Caden ... which means "little fighter" & yes God has a plan for you special chosen one's .. blessings from Auckland, New Zealand.

[mklrsn29]

@nunukapunu21 i do understand u all what ur saying about this i had my son in 98 and they said that he will not make it and do sparts ever but he showed them all off and i was young when i had him no 1 to talk to about his but he is my football player now since he is 12 so ty to IU from indiana

[Jaushkev]

i was born with gastro in lake charles louisisana and im now 20 it really conforting to know there are others that were born like i was

god had a special plan for us

[makerofchange]

another gastro! people used to ask me if it was true that i didn't have a belly button, and when i said yes, they'd beg to see it. they kept asking why and i always said, "my guts were outside my body when i was born." i had the gastro repair, 2-stage bowel repair, and later on, a hernia repair right at the top of the scar already there. now i'm 16 years old, and its awesome to see that there are other people out there like me

[chloexxrhiannaxx]

Your soo lucky my nephew had that and survived its really sad:(

[Skittlez0609]

my son was also born with gastroschesis on feb 5 2009. I had a csection. I still wonder what causes this but i do believe these babies are very strong and are fighters. My son made me a stronger person. He is now 1 just had his first birthday and i love talkin to others with the same experience. We are all truly blessed. I thank god and the doctors and nurses that were watching over my lil man. Alexandra, st louis missouri

[ericaforbes04]

LindsMandy.... i hope your niece gets her transplant! my daughter was born with the same thing and her intestines were also "dead" and she got a liver small bowel pancreas transplant in Oct '07 when she was 10 months old ...... shes now 3 years old and running around CrAzY as ever! i recently wrote the donor family and found out that her donor was a 2 1/2 yr old names Jacob. Thank God for him and his family! ..... Everything will be ok

[DenaWoods]

My unborn Granddaughter Madison has gastroschisis, she is due on March 8, 2010. My daughter Samantha goes every 2 weeks for a ultrasound, the bowels are getting worse they are looping, so they might have to induce my daughter if it gets any worse. I have faith in this little girl and I know she will be fine, she's got to be. Thank you for all your stories. Dena Woods, Stony Plain, Alberta, Canada

[lakmak14]

i had gastrolscesis!!! i was in the hospital for 2 months. Im 14 now and very lucky. My scar is something that reminds me that im very lucky to be aive.(:

[LindsMandy]

my niece was born with this. she will spend the first year of her life in the hospital. they said she wouldnt make it. she is a premi. she had a severe case and we were told she wouldnt make it. most of her intestines died and she grew them back. she needs a transplant. she will make it.

[jojo4bwb]

hi im luke i am 21 and i was born wiv gastro...i got rushed to lester wen born 4 my op ware they gave me 5% chance ov survival but pulled through...i then had part ov my bowel die n had to b removed n i didnt come out ov hospital till i was 2,i had alot ov complications n had my last op 5 years ago to remove a narrowing wich was my 13th op....its bin a hard rocky road but we prove we can do it.......n ur gorjus angel will 2....if u hv this or wana no more add on facebook..luke walton.x

[xheartagramxVALOx]

I was born with gastro, and I was born in a little town in Iowa that couldn't help me and my mom out, so I had to be driven (by ambulance, in the middle of a blizzard!) to Des Monies where I got all stitched up. My mom wasn't allowed to see me for a week, because she was getting all her testing done. Two weeks later, I got to go home.

Now I'm 18 and living every part of my life, and loving all of it. My mom is my best friend, and shes one of the greatest, and strongest people I know!

[bbaegreene]

i know what its like.. i was picked on for the longest time being called a no belly botton freak, among other names.. i had the largest "hole" Albany nicu had ever since* figure my entire torso is 3 feet long.. my scar is 2 feet long it goes from under my breast" where your bra lines, to my public bone" i wasnt supose to walk, sit up or even live the. docotrs didnt even write my birth cerficiate untill the day after.... after the 7 hours surgery..17 years later i saw them all and thanked them

[John1962R]

my daughter was a gastro baby i made a video for her she truly is a miracle the video is on my page if anyone wants to see ,if anyone has questions about gastroschisis just write to me and hopefully i can help

[ag062183]

Im 26 and was told a couple months ago my baby will be born with this defect. That was the day I was going in to find out the sex of the baby and was told it was a boy but he had a defect. Even before the doctor said anything I knew something wasn't right. My life turned upside down. I've become very depressed and had so many mixed emotions. I hope my baby's story turned out with a happy ending. Thank you for sharing your story. It gives me hope.

[imo07]

Im 16 years old and i was a gastro baby the doctors told my parents i wouldnt survive and wanted my mam to donate my organs bu i had my surgery when i was an hour old and i survived,i was in hospital for 5 weeks and have a 4 inch scar bu i dont mind its a sign ov a fighter i fought to stay alive and here i am

[RiotAndAnger]

i was born with gastrochisis, and my name is also angel :) i love the irony!

[Dillan1794]

The same thing happened to me i was born as a premi at two pounds six ounces with gastroschisis and i am 15 and i am so happy to be alive and proud of my scar it is sign of survival i wasnt supposed to live but i made it

[angelzeeMd21157]

I had a son that was born with this condition in 2001 but my angel didnt make it.. I hope everything gos well with your little one..

[AmandaBuck50]

im 5 1/2 months pregnant and just was told my baby has this condition. i have night terrors because of it. im 26 years old and always dreamed of being a mommie. i hope i have a happy ending like you did. very touching story. im anticipating this all for myself. i hope my little man pulls through

[Skittlez0609]

he will..... i was just like u and had a lil man with gastroschesis except i had another son already and i was 20 years old. he is now one and is doing greatt and is the happiest baby. u and ur family have my prayers. feel free to ask me any questions u might have.

[nenafer421]

@AmandaBuck50 Just wondering how things turned out for you.......... Hope all is well

[staceym2704]

my little girl who i also named angel, was born with gastroschsis , she was in nicu for 3 weeks and came home , she is nearly 9 months old and she is doing really well, good luck with your little angel x

[Morticai88]

my sister had her baby 3 months ago,a nd she was born with her intestines out of her stomach. i'm afraid by the time she wa born it was to later to recover her intestines because the were already dead. so the removed 90 percent of her intestines. the doctors gave them less then 2 days for the baby to live. but our little baby is a fighter. she goes for surgery in 2 day to reconict what intestines she has left. i just wanted to thank you guys for posting news about all this.

[linda063]

My Gastro Baby Is now.....26 years old, with Babys of her own.

Just to give you all a lttle hope.

((((( To all l)))))

[dathe91]

thats exactly what happened to me. the doctor told my parentsthat i wasnt supposed to live past 3 days. well here is am 18 years later and fine and healthy i have a scar as a belly button but i dont mind cuz it makes me who i am today. i hope u little princess has a wonderful life. :)

[stanley06122009]

hi everyone...im happy for all of you coz' you still have your babies....i had a son with the same condition...unfortunately he didn't make it..he was born june 2009..by the way where you all from??t

[stanley06122009]

hello

[Lunacee]

i was born with that condition... every thing in my tummy was on the outside... lived in a incubator for 6months. im 24 years old now and i breakdance, do shows and travel... which has been my dream since i was a kid... your baby will turn out fine and beautiful ;) i did.

[ericaforbes04]

i know exactly what you are going through. my daughter was born with the same thing in Dec '06. she actually had to have a small bowel, liver pancreas transplant 10 months later. But shes doing pretty good now! good luck with your little princess!

[KkissinBeauty]

I am Sooo scared. Finally I am going to be an aunt but my niece has a light case of Gastroschisis they say she will be fine but im still a nervous wreck.

[mary75090]

Thank you for commenting back and I am so glad that she is doing good. I am so happy for you

[Expresodetokio]

I have a daughter that was born March 2 2009 with the same problem and in these moments she is recovering, but she cannot still eat, I hope the things come out us well like to you.

[Expresodetokio]

I have a daughter that was born March 2 2009 with the same problem and in these moments she is recovering, but she cannot still eat, I hope the things come out us well like to you.

[mary75090]

My son was born with this condition as well he only spent 4 weeks in the hospital, and now is a heathly almost 4 year old. May god bless you

[tfairhead]

i kbow exactly what u went through m little boy was born with the same problem but we were in hosp for 6 months keep chin up gets easy. bless u all x

[adrianaluiscarlos]

good bless you, i wish your baby a speedy recovery , i am 26 weeks pregnant and my little babe has gastrocshsis, nice video

[mary75090]

By now you probley have your little one and hopeful he/she is doing well. My son was born with it at 35 weeks and everything went very well. May god bless you

[adrianaluiscarlos]

actualy she born this past january 3rd. she was only 32 weeks she stayed in the hospital for 2 months and 2 weeks and she came home this past march 20th so i'm the happiest mom in earth

[adrianaluiscarlos]

actualy she born this past january 3rd. she was only 32 weeks she stayed in the hospital for 2 months and 2 weeks and she came home this past march 20th so i'm the happiest mom in earth

[ampplays]

Congratulations!  I have a special little "gastro" girl myself. She was in the NICU for almost 5 months. I did not get to hold her for 41 days after she was born. I understand. She is now a 7 year old in the second grade and one of the most wonderful things to ever come to Earth.

[eliaspaty]

well it was nice to see you in this video my son was born on 10/24/07 with gastroschesis but nobody told me that my son was with this problem so when i saw him it was really sad but he is fine now he is big and i love him to dead he is my everything this video remind me of all my tears when i saw him for that first time well take good care

[emogoth56]

hi dear is a plesure 2 meet you. well i was looking all the viddeos and i saw your. let me tell you i have a kid now he is 5 years old and he is a healthy kid who loves candies, go 2 the park i even think he got more energi than i do ha ha and you know what my kid is a few years apart he was born 06/16/03 at U.C.L.A

well it was nice 2 meet you take care and god bless you all today, tomorrow and always.

[Snisser44]

I am so happy for you. I was born with gastroschesis in 1978 and lived through it. Your video made me cry. And to set your mind at ease, I have a beautiful daughter of my own now and she was not born with any problems.

I am glad that the hospital stays are shorter for these precious babies. I was not released until 6 months of age. If you have any questions at all I would be more than happy to talk to you.

My prayers to you and your family! This is so wonderful!

[linibinee]

@Snisser44

hi, i am from germany and i am also born with gastrochisis, i read your comment here and that you were also born with it, i am really happy for you that your daughter was born without any problems.

my huband and me we would also like to get kids but i am a bit worried that there will beany problems during pregnancy.

did you have any complications cause of your gastrochisis?

i would be happy to hear from you

[BlaqSaphire]

aww thats soo sweet grad she made it