After My Acoustic Neuroma Removal - Part 2

[dishy200]

did you end up recovering or improving? I'm a 30 yr old female and I have minor but similar condition for two years. I just hope you improved so much. I know how it feels. I just seen a doctor today who will be doing my tests. It's depressing me so much. Best of luck

[TorontoEdmonton]

@dishy200 Nope, I haven't had a whole lot of change in the last year or so. I just have to deal with my limitations and still carry on. Basically, the quality of your life is forever altered and you kind of adopt to dealing with pain. (fortunately, the pain is moderate) I try not to let any of my limitations stop me from doing the things I love, it's just a little harder to do them.

[wozg360]

Hi i had the same facial problem as you once but mine wasn't anywhere near the trauma uve been through moine was from a term called " bells polsey"! Thought i had a stroke or summat! anyway keep on trucking friend!

[321shells]

Hi, wish I'd come across this sooner. Had the same as you in Nov 2007,my facial paralysis lasted about 3 months

Even though I still have a lot of problems I am thankful they found and removed it. It was located by the brain stem 5cm and all my nerves were wrapped around it so a lot of nerve damage.....but It could have been a lot worse. However 22 months later my vocal chord is still paralysed so having surgery tomorrow, wish me luck, and hope things are going well for you

[TorontoEdmonton]

Good luck with that. Things are going ok with me. I also might go back in for another operation, for the facial paralysis, as my face has not progressed much. I'm just waiting to hear what my doctor recommends. I dread going back into a hospital. Good luck, Shells.

[TheBoldnanny]

you are a brave guy ! i had my surgery 28 th jan 09 left me in bad shape .wish i looked on utube .i have severe facial paralasis severe balance problem and now deaf on left side , and look like well i look in the mirror and wonder where i went trying to get the courage post video to let people know what this is like

[TorontoEdmonton]

People keep saying I'm a brave guy. lol I'M NOT! I was totally scared sh*%less going in for my operation. Hospitals scare me, so brave, I am not. Since I had no choice in the matter, I went and had it done. After my operation, my normal personality changed. My normal shyness was replaced by "I don't give a damn!". But guess what, I'm back to being my shy self. This is strange but the spinning in my head, made me feel drunk, 24/7. Once it stopped, I went back to being my shy self.

[anirockn3]

I feel nothing but compassion for you. Please, please get right with Jesus. He is your only hope. He's my only hope. All you have to do is say a simple prayer and ask Jesus into your heart. Believe truly He died on the cross for your sins and resurrected on the third day. All illnesses and sicknesses He borne on the cross. You can't get healed without the Healer.

[pompeyboyy]

Man i share all your going through ive been there so to speak mine was caused by ear i have had many ear ops i have many facial spasms paralasis on 1 side or other mine was called abcess on brain i was in hospital months fully drugged up lucky to be alive i was 19 at the time and HEY im 57 now, but thing is im still having paralasis lisps fluttering eyes side of mouth stops and starts corner of mouth going up you know what i mean

I have severe balance problem im also Profoundly deaf

[EdmontonToronto]

you did these videos on the same day.

[cheriton153]

hello!i found your videos very helpful,i had my acoustic neuroma removed 3 weeks ago.

I am finding time a great healer,and i hope to look as good as you do now.

Many thanks emma

[METALGOD3667]

The ringing is awful for sure---had it in both ears for almost 20 years. I can understand the taste thing I cannot eat much anymore but love Pepsi.

You'll recover most things with time.

[TorontoEdmonton]

Ringing for 20 years, YIKES! That sucks! My one ear is ok but my deaf ear is the one that constantly makes noise/rings. I wish the damn thing would just STFU but so far the ringing won't stop. I figured deafness meant no sound, silly me. lol I can deal with it, I just wish I didn't have to. I guess after 20 years, you've just adjusted it.

[andy372]

Do you still have ear noises (this is called tinnitus)? I have a suggestion: Try to find a sound that it is very simiar to the tinnitus you feel. Is is simiar to the TV static? Well, then listen to this sound with your non-lesioned side for a while. Try it to be as isolated as posible not to get mixed up sounds. My theory: inhibition of auditory neuronal input (desensitation). Try it for a while. Rational: Neurons in your hearing cortex will abolish constant background sounds. Let me know.