Essential Tremors - Why I support Stem Cell Research

[sparticus214]

i totaly support steam cell research people are aragant and ignerant to what it is and what embreos

[GNut1980]

god bless u sister,,, u are a lovely soul

[rubixcubexo]

I've had this since I was roughly 7/8 ?(now 19) and I know all too well what you mean about going out for dinner.

Also it means I can't work locally (I live in Cornwall, UK so most jobs are Cafe's and restuarants) as I would spill everything everywhere!

Get's me down sometimes, as I also agree with what you say about surgery.

I wish this was well recognised in Britain :(

[Amhran80]

@rubixcubexo It's not a well recognized disorder in general. Too often it is linked with Parkinsons even though it's not one and the same. All of the medication and research is being put towards disorders which rob people of ..so much more, like their lives.

That's not a bad thing. But it would be helpful if ET was recognized as well as a separate entity.

[martinclembo]

Well let me tell you, you come across great and I enjoyed watching your video. I am having a bad time with this at the moment, it started about 6 months ago and now I can feel it in my head, it’s just the worry of how bad it might get. There is very little info out there on this condition.

Regards Martin

[martinclembo]

Thank you for your video on ET, I have ET often in my hands and sometimes in my head. If you don't mind me asking, when did you first notice symptoms and is it progressing any? What if anything do you find helps to relieve symptoms.

Regards Martin

[Amhran80]

@martinclembo The symptoms first appeared when I was nine. Or rather, that's when they were pronounced enough that I and kids around me noticed. Over time, the tremors have gotten worse; but, most medications don't work for me. Limiting caffeine intake has helped only a little. Massages help with the residual soreness from being in a state of perpetual motion. That's really about it.

[martinclembo]

Thank you for your video on ET, I have ET often in my hands and sometimes in my head. If you don't mind me asking, when did you first notice symptoms and is it progressing any? What if anything do you find helps to relieve symptoms.

Regards Martin

[dararat27]

Your video kicked butt. My mom who is 72 has ET. She's already paralyzed on one side due to a stroke. Now her 'good' side has the tremors. It's a bad, sad situation right now. I sure could use some tips/support on what's helped you on a daily basis. Is there anything I can do, govt wise, to help on this issue?

[trakat77]

While I personally have a difficult time with stem cell research, I am doing all that I can to promote awareness of the disorder and have ultimately elected to donate my brain to ET research when that day comes. There is a HUGE need for people to make these brain donations, so I would encourage others to consider it. I had bilateral DBS surgery at the age of 34 and several corrective surgeries thereafter. 5 brain surgeries is not fun. STILL the best decision I ever made.

[michelle027girl]

hello.. well i'm 15 yrs old and i think i might have this but i'm not sure. it started when i was alot of stress last yr. it was a minor but constant twich on my toe then my eye and now its everywhere.. now when i try to keep my hands straight in front of me they shake its not just a twitch. anyone know how to help me find out if i have this? i know it'll just keep getting worse. i asked my doctor about my twich but she didnt seem to care and my parents think its nothing. i disagree.

[Amhran80]

@michelle027girl Essential Tremors is usually genetic and manifests at varying ages. However, the fact that you endured a lot of stress suggests to me that you're dealing more with anxiety. If you're doctor isn't concerned, you're probably okay. But, ask for a referral to a neurologist just in case, for you own peace of mind.

[trakat77]

@michelle027girl Hi, Michelle. Essential Tremor is EXTREMELY rare to see in someone so young, so it's very unlikely that this is what you have. Mine appeared at the age of 30 and my neurologist and neurosurgeon (some of the best in the country) made a point of saying that 30 yrs old was considered extremely young for ET to show itself. If your worried, I also recommend a visit to a reputable neurologist who can put your mind at ease.

[xxxKiefferFamilyxxx]

Hi! I am sorry for what you are going through. My sister was just diagnosed with this... it came on suddenly one week ago. She has been under a great deal of stress (including the unexpected death of our brother in an auto accident 4 months ago), as well as other things. Shes 34 years old. She wants me to ask if this affects your voice & your eyes. Her eyes jerk around constantly&she can't walk uptairs. She on a beta blocker & it only helped the hand tremors.  Any advice? Thanks SO much

[elianeaparecidasilva]

i still looking for an answer you are so not aloon , im there faiting ever inch itch you believe me

[timidas]

It is a difficult thing to live with sometimes

these are the things that make my head tremor worse caffiene,confrontation, argueing, anger,lack of sleep,vigerous exercise,excitement,large meals, spicy food,to much alcohol meaning more than two pints.But i find is the best way of controlling my tremor if i need to.Also i find its worse in the morning

going down to breakfast when i go on holiday is a nightmare.Essential Tremor use to make me very paranoid but know i don,t care what people think

[SelSun83]

@timidas I fully agree with you!

[timidas]

what frustrates me the most is the lack of understanding from other people everbody knows parkinsons but so very few know of essential tremor.

[Amhran80]

Precisely. It is frustrating as hell. Most of the medication for tremors of any sorts, most of the treatments for tremors or any sorts, are geared for tremors that result from Parkinsons.

It's frustrating as hell.

[azthundercloud]

saw your video. i am on primidone now. side effects suck..literally. i cracked my head open in the military and it really came out. i am having the brain implants done shortly. keep your head up and god bless

[Overratedboys]

Thank you for posting, I was born with ET and it runs through my family, my dad, all of my sisters and my nephew who is 6 even has it and even a 2nd cousin of mine does. I was taught though that ET is what makes you, you. I know there are days where it is almost impossible to do anything.

I hope all goes well and I hear March 2010 will be Essential Tremor Awareness Month :).

[mrgeniusontv]

great video, and thanks for using it as a response to mine. my ET also affects my gait on certain days. i am saddened to hear that you have not been able to find a medication that works effectively without unmanageable side effects. i share your distress about eating drinking and music. i am a classical musician and rely on propranolol in order to earn a living on horn. best wishes!

[shanti1001]

thank u so much for ur video i too have e.t i had it sense i was a baby i also had a fratured skull so my eyes went crose and now im legally blind but able to see some what my tremors where not understood by docs intil i was 38 wow what a hard a long frustrating situation i was beat up as a child my hands and head shake im on ssi now at 41 in my life i just found away to rise and i went into doing heaiing as holistic healer :) the wouned healer who understands ahhh but it just got so painful