MULTIPLE SCLEROSIS, Anne Barre's story

[Ginaa1967]

R.I.P John. My thoughts are with you Anne

[epousebar]

@Ginaa1967 Thank you Gina, how did you know John passed on?

Anne

[Ginaa1967]

@epousebar . Vicki is my sister. I met John at Vicki's house and I got such a wonderful feeling meeting him. He has done so much for her. Hope your doing okay.

[rosieno1]

I am inded participating in CCSVI treatment, thanks for your interest

[omexmc80]

please search CCSVI for multiple sclerosis.. the treatment the world of MS is fighting for..

[angelangi]

I have been watching your vids for a few months now due to me being a new eclectus owner in november, never knew you had MS. Keep doing what your doing Ann, your an inspiration. Love your vids. x

[rosieno1]

Thanks for your inspiring comment, we can only do our best....

I hope you enjoy the Eclectus experience. Do you have a male or a female, or maybe both??

They have quite different personalities.

There's a video from our ABC about their life in the wild.

Let me know if you wish to have the link.

Anne

[angelangi]

Hi Anne,

We have a male eclectus, his name is Gizmo. I have uploaded several vids of him, you should take a look if you get a chance. There is one which is my favourite, where he is playing on his back in the drainer on the kitchen sink.

And yes, I would love the link to see about their life in the wild.

Thanks Ann. xx

[jactress]

Terrfic video!!

I have started with the weights - I hope i'M doind it right. Lifting the front part of my foot. Its ms, I know it will take time, but I'm giving it my best shot, thanks for your input, Jacalyn

[rosieno1]

Thanks Jacalyn,  Keep up the good work - the dorsiflex action is really important. Also stretching the hamstrings will be a great help. It will take time, but what else is there thats more important??

Regards, Anne

[teslagirlM]

I love your message! I have MS too. You are quite right about living your life and enjoying yourself!

Very best wishes,

Marlo

[ElizaPS]

Thank you for the wonderful video. My husband has advanced progressive MS. And I am a bird lover.

Elizabeth Pennsylvania USA

[rosieno1]

Its nice to think we've made two new friends. We wish your husband well.

John and Anne

[lizzy890]

Best wishes. I am 19 years old and was diagnosed last summer.

[rosieno1]

We wish you well. Keep up your exercise to retain your strength, its so easy to loose your mobility through muscle wasteage.

John and Anne

[Sefardisafran]

Anne: I have progressive MS for almost 25 years, also Motor Neuron Disease (not ALS) but the kind that attacks the nerves with unrelenting pain.

Copaxone almost killed me.

Good luck,

Sefardisafran

Hoboken NJ

USA

[rosieno1]

Thanks for your comments. Sorry to hear you have pain as a symptom. The only pain I have is with arthritus which is in the family. I took Avonex for a few years but eventually stopped that too. Have you lost your mobility?

I'm only just managing at present and not looking forward to our hot summer!

Regards,

Anne

[dkm59]

lovely video, lovely people-the birds look like a lot of fun! -thanks for posting video.xx

[7mumfred7]

I saw a news item days ago where the Australian Health ministry has just approved Tysabri for full reimbursement - please tell Anne to research it - look on YouTube or the Tysabri User Diaries on the MSRC site.

[epousebar]

Thanks for caring - however, my form of MS will not be applicable to Tysabri, as with all the interferons.

Anne

[p0pular54]

Great story!!! Thanks for posting it.