reading end now. my dad, when alive, just died last year sadly, fought constantly for 2 on 1 support. they'll fight you back and we constantly have to still fight for it.
After many years working with children with many complex disabilities and diagnoses I have experienced the challenges that you deal with every day and I admire your strenghth, children would come to us normally around the age of 14 or 15 when the parents were at the their total end and could not cope anymore...better home funding at an earlier stage and with more community awareness and support then parents of disabled children would have same choices to keep their child at home as we all expect
God bless Jamey... my heart bleeds for him...thats gotta be so hard watching someone restrain your child. but doing it so he dont hurt himself. Your an incrediable lady!!!! God bless you too.....
I was wondering why it was so difficult to have him cared for outside the home. Obviously that's a cruel thing to do, since J wouldn't understand what's going on, and it would be cruel to his family. I just feel bad for the other children and husband since everyone has grown up in the shadow of his care.
I saw that you mentioned something about a network after you and your husband pass on. Will one of your other children take care of him? I think you're remarkable and there is no easy way.
@MairiBerry Every family of an autistic child has the fear of what will happen after they are gone. We do have people in place, but I don't expect them to do what we are doing here. It's too much. I do expect they will protect and advocate for him in the best place possible in the future, which is one major reason I'm trying hard NOW to bring more awareness and better care and treatment to this delicate population
Amazing but difficult videos to watch. What about parents of adults with severe autism who don't have the money for nurses and all the special help? What will happen when you are no longer able to give this high level of care? Thank you for giving us a reality check.
@shipcritic Thanks for watching. To answer your questions: Parents who don't fight for the services and win them as we did (with help of great disabliity right's attorney), suffer immensely. No doubt, services and supports should be based on triage...those who need the most support should get more than those who don't. Nothing complicated about that. Also, so long as special help continues supporting a family, there is NO reason a family wouldn't be able to do this high level of care.
i found these videos purely by accident but couldnt stop watching. i think its incredibly brave of u to put this info out there in the publics face. ive never dealt with autistic adults primarily but i work as an stna(cna) in a nursing home. i cant imagine the struggles that u face in daily life taking care of ur son and dealing with the publics ignorance.(i.e. PorkChopMissPiggy). i cant even believe she(it?) dared to post such things about ur child.
@PorkChopMissPiggy Well well now, isn't this interesting...ONE of your subscriptions is to Liberal VIewer, a dad who volunteered on Obama campaign and champions free speech and CIVIL RIGHTS FOR ALL. Guess you outta cancel that sub honey cuz it seems like you don't honor that code when it comes to autistic persons. Typical FAKE liberal. Hides behind alturistic motives, slogans and PRETENDS to care about others and wants to help.
@kgaccount yes I am a liberal. At the same time I use my common sense. What can this person contribute to society? What will become of him after his parents are dead? His wearing diapers for gods sake. Put a bullet between his eyes and get rid of it. Stop hanging out to this creature.
@PorkChopMissPiggy So you admit you're a liberal, but you want my son to be shot between the eyes? Wow, that's amazing. A very poor example for the liberals out there who would advocate to HELP the poor, defenseless, disabled and needy. Shame on you.
@PorkChopMissPiggy We have a strong circle of support. And I'm a young mom for James. He's 22, I'm 45, so it's not like I'm on my last leg here. But i get your question. It's a valid one. A question that haunts many parents caring for adult disabled children. It takes creative planning. Fighting for what you need now and in future. There is much good to be done in community helping families with autistic adults. Have empathy for unique trials and tribulations of families with autistic kids
@PorkChopMissPiggy He has every right to be here and to be cared for as you do. I can't believe you'd say something so hideously immoral as that, especially to the mother of the child. How wicked and twisted is your morality? The last person to entertain your ideas was Adolf Hitler
@PorkChopMissPiggy Some people are born without morality. We call the first group the sociopathic and the second the psychopathic. It's not Kgaccount's responsibility to identify which group you fall into, and it isn't mine either.
@PorkChopMissPiggy you should kill yourself. you're fucking useless to society. Jamey is an amazing man who has a loving family and the support of most youtubers.
@PorkChopMissPiggy I almost made me physically ill to read this. How could you say something like that about this beautiful young man? You are sick and shouldn't be allowed to have interaction with other human beings if that's your view on life.
You are a wonderful mother and I can tell that you love your son and is doing what is best for him. He seems like a great guy!
@PorkChopMissPiggy how insensitive of you. Liberals always claim they are non judgemental however it seems you all are the most judgemental people in the America
@jazcor Being judgmental is important. It's immoral to say "don't judge". If we weren't judgmental we wouldn't have locked away Charles Manson, Jeffrey Dahmer, pedophiles, rapists, serial killers, etc. Just make sure you judge correctly, and Porkchopmisspiggy did not judge correctly. That's the way to look at it.
I have a son with Aspergers who self injures when upset. Was going through YouTube and found your videos. Your family are an inspiration to us all. Jamey seems a fantastic young man (and handsome with it!) and I hope that you finally get all the help that you need. We have to fight for every little bit of help here in the UK too. Best of luck and I'll keep watching your channel x
@Shoes454 Medical insurance only covers wheelchairs inside the house, so that's what we got, as it can also serve as a place he can rest, if out in community, and he gets tired or needs to sit, so the nurse can keep up with rest of group.
i have twin brothers, they are 4 years old , one of them is autistic its true me n my mom struggle to give him a bath , he started showing some self abusing behavior which is worrying us both....i always show my mom some of your vids to give her some strength ...i hope u can help us n tell us what to do with my little brother we r really lost...i love how u deal with jaime its just amazing i ask god to give u n us the strength
Anyone who opposes soft restraints should spend some time with Jamey and others like him who have serious SIBs that are out of their control and can cause SERIOUS harm. I understand that you are trying to educate the general public but please don't feel that you have to justify your actions. All of the naysayers need to spend a day in your life, I imagine that would be a real awakening for them.
this video is so true. I am glad to watch your videos. you really get to the point about how gov. wants to handle autistic people. keep up the good work.
A very easy oversight in non-verbal individuals with sensory integration issues: shoes do not fit. There is a difference between acute pain and ongoing chronic lower grade pain. Responses are expected to be different. Hope all works out well.
How did he get blisters there? My guess is that he has some motor issues, beyond the obvious of course. That is what would cause this type of blister. If you can, and I know this is easier said than done, get him to a podiatrist, sedated if need be and have them cast his feet for orthotics. It will solve the problem, guaranteed.
I can tell you it is the "little" things that cause the biggest behavior reaction in my son, ironically not the big injuries which he sort of slugs off.
jamey is very lucky to have u for a mom. u take great care of him. i have disabilities, not autism but mental illness. i want to work with autistic children and adults. autism interests me. u have a beautiful son. god bless u and ur family.
You are a strong mother fight for Jamey's rights.I will pray for you to get all the help you need.My son was also sick he wanted to bang head all day and screamed,its hard people really dont understand what we are going through.Stay strong God bless
aww poor jamie! his feet look sore :( i have a different chanel i was cutternamednina. your so amazing at being a mum to him :) its appaling people wont help! and i want to tell you something amazing! after watching your vids i wanted to do something to help and for my work experience im working with special need children in a unit :D i want to do anything to help so thank you your vids have inspired me to do something and i hope it will help other too aswell!
reading end now. my dad, when alive, just died last year sadly, fought constantly for 2 on 1 support. they'll fight you back and we constantly have to still fight for it.
Lynnieburd 2 weeks ago
After many years working with children with many complex disabilities and diagnoses I have experienced the challenges that you deal with every day and I admire your strenghth, children would come to us normally around the age of 14 or 15 when the parents were at the their total end and could not cope anymore...better home funding at an earlier stage and with more community awareness and support then parents of disabled children would have same choices to keep their child at home as we all expect
frances1025 1 month ago in playlist Uploaded videos
God bless Jamey... my heart bleeds for him...thats gotta be so hard watching someone restrain your child. but doing it so he dont hurt himself. Your an incrediable lady!!!! God bless you too.....
witcheypooh2000 4 months ago
I was wondering why it was so difficult to have him cared for outside the home. Obviously that's a cruel thing to do, since J wouldn't understand what's going on, and it would be cruel to his family. I just feel bad for the other children and husband since everyone has grown up in the shadow of his care.
I saw that you mentioned something about a network after you and your husband pass on. Will one of your other children take care of him? I think you're remarkable and there is no easy way.
MairiBerry 5 months ago
@MairiBerry Every family of an autistic child has the fear of what will happen after they are gone. We do have people in place, but I don't expect them to do what we are doing here. It's too much. I do expect they will protect and advocate for him in the best place possible in the future, which is one major reason I'm trying hard NOW to bring more awareness and better care and treatment to this delicate population
kgaccount 5 months ago
Amazing but difficult videos to watch. What about parents of adults with severe autism who don't have the money for nurses and all the special help? What will happen when you are no longer able to give this high level of care? Thank you for giving us a reality check.
shipcritic 8 months ago
@shipcritic Thanks for watching. To answer your questions: Parents who don't fight for the services and win them as we did (with help of great disabliity right's attorney), suffer immensely. No doubt, services and supports should be based on triage...those who need the most support should get more than those who don't. Nothing complicated about that. Also, so long as special help continues supporting a family, there is NO reason a family wouldn't be able to do this high level of care.
kgaccount 8 months ago
i found these videos purely by accident but couldnt stop watching. i think its incredibly brave of u to put this info out there in the publics face. ive never dealt with autistic adults primarily but i work as an stna(cna) in a nursing home. i cant imagine the struggles that u face in daily life taking care of ur son and dealing with the publics ignorance.(i.e. PorkChopMissPiggy). i cant even believe she(it?) dared to post such things about ur child.
ygina55 9 months ago
why don`t you guys just put him to sleep. He is nothing but a waste of tax dollars and when you guys die who will take care of him
PorkChopMissPiggy 1 year ago
@PorkChopMissPiggy Well well now, isn't this interesting...ONE of your subscriptions is to Liberal VIewer, a dad who volunteered on Obama campaign and champions free speech and CIVIL RIGHTS FOR ALL. Guess you outta cancel that sub honey cuz it seems like you don't honor that code when it comes to autistic persons. Typical FAKE liberal. Hides behind alturistic motives, slogans and PRETENDS to care about others and wants to help.
kgaccount 1 year ago 5
@kgaccount yes I am a liberal. At the same time I use my common sense. What can this person contribute to society? What will become of him after his parents are dead? His wearing diapers for gods sake. Put a bullet between his eyes and get rid of it. Stop hanging out to this creature.
PorkChopMissPiggy 1 year ago
@PorkChopMissPiggy So you admit you're a liberal, but you want my son to be shot between the eyes? Wow, that's amazing. A very poor example for the liberals out there who would advocate to HELP the poor, defenseless, disabled and needy. Shame on you.
kgaccount 11 months ago 4
@kgaccount who will take care of your son after you die.
PorkChopMissPiggy 11 months ago
@PorkChopMissPiggy We have a strong circle of support. And I'm a young mom for James. He's 22, I'm 45, so it's not like I'm on my last leg here. But i get your question. It's a valid one. A question that haunts many parents caring for adult disabled children. It takes creative planning. Fighting for what you need now and in future. There is much good to be done in community helping families with autistic adults. Have empathy for unique trials and tribulations of families with autistic kids
kgaccount 7 months ago
@PorkChopMissPiggy He has every right to be here and to be cared for as you do. I can't believe you'd say something so hideously immoral as that, especially to the mother of the child. How wicked and twisted is your morality? The last person to entertain your ideas was Adolf Hitler
XforeverlongingX 9 months ago
@PorkChopMissPiggy Some people are born without morality. We call the first group the sociopathic and the second the psychopathic. It's not Kgaccount's responsibility to identify which group you fall into, and it isn't mine either.
XforeverlongingX 9 months ago
@PorkChopMissPiggy you should kill yourself. you're fucking useless to society. Jamey is an amazing man who has a loving family and the support of most youtubers.
queenfan45 1 year ago
@PorkChopMissPiggy I almost made me physically ill to read this. How could you say something like that about this beautiful young man? You are sick and shouldn't be allowed to have interaction with other human beings if that's your view on life.
You are a wonderful mother and I can tell that you love your son and is doing what is best for him. He seems like a great guy!
kassiercoffman 10 months ago
@PorkChopMissPiggy how insensitive of you. Liberals always claim they are non judgemental however it seems you all are the most judgemental people in the America
jazcor 10 months ago
@jazcor Being judgmental is important. It's immoral to say "don't judge". If we weren't judgmental we wouldn't have locked away Charles Manson, Jeffrey Dahmer, pedophiles, rapists, serial killers, etc. Just make sure you judge correctly, and Porkchopmisspiggy did not judge correctly. That's the way to look at it.
XforeverlongingX 9 months ago
I have a son with Aspergers who self injures when upset. Was going through YouTube and found your videos. Your family are an inspiration to us all. Jamey seems a fantastic young man (and handsome with it!) and I hope that you finally get all the help that you need. We have to fight for every little bit of help here in the UK too. Best of luck and I'll keep watching your channel x
MsWhippet1 1 year ago
why does he need a wheelchair? Is it just a specail chair for him?
Shoes454 1 year ago
@Shoes454 Medical insurance only covers wheelchairs inside the house, so that's what we got, as it can also serve as a place he can rest, if out in community, and he gets tired or needs to sit, so the nurse can keep up with rest of group.
kgaccount 1 year ago
i have twin brothers, they are 4 years old , one of them is autistic its true me n my mom struggle to give him a bath , he started showing some self abusing behavior which is worrying us both....i always show my mom some of your vids to give her some strength ...i hope u can help us n tell us what to do with my little brother we r really lost...i love how u deal with jaime its just amazing i ask god to give u n us the strength
RJF2010 1 year ago
Again, this assistant is amazing! Please let him know that us watching truly see his level of dedication to Jamey.
julie575 1 year ago
Anyone who opposes soft restraints should spend some time with Jamey and others like him who have serious SIBs that are out of their control and can cause SERIOUS harm. I understand that you are trying to educate the general public but please don't feel that you have to justify your actions. All of the naysayers need to spend a day in your life, I imagine that would be a real awakening for them.
julie575 1 year ago
I seriously don't know how you do it.... GOD BLESS YOU!
TheAutumBlog 1 year ago
this video is so true. I am glad to watch your videos. you really get to the point about how gov. wants to handle autistic people. keep up the good work.
pshepherd58 1 year ago
A very easy oversight in non-verbal individuals with sensory integration issues: shoes do not fit. There is a difference between acute pain and ongoing chronic lower grade pain. Responses are expected to be different. Hope all works out well.
Skymaker69 1 year ago
did you ever think his sibs are seizure related ?
i mean there like seizures ?
sexiilicous1 1 year ago
I REALLY hope you guys get more nursing help.
aspie1966 1 year ago
How did he get blisters there? My guess is that he has some motor issues, beyond the obvious of course. That is what would cause this type of blister. If you can, and I know this is easier said than done, get him to a podiatrist, sedated if need be and have them cast his feet for orthotics. It will solve the problem, guaranteed.
I can tell you it is the "little" things that cause the biggest behavior reaction in my son, ironically not the big injuries which he sort of slugs off.
christschool 1 year ago
Lol hes like an animal
Agravain3 1 year ago
jamey is very lucky to have u for a mom. u take great care of him. i have disabilities, not autism but mental illness. i want to work with autistic children and adults. autism interests me. u have a beautiful son. god bless u and ur family.
qtpa2tee97 1 year ago
You are a strong mother fight for Jamey's rights.I will pray for you to get all the help you need.My son was also sick he wanted to bang head all day and screamed,its hard people really dont understand what we are going through.Stay strong God bless
Karenatx4 1 year ago 3
@Karenatx4 I dont wanna work I just wanna bang my head all day
Agravain3 1 year ago
aww poor jamie! his feet look sore :( i have a different chanel i was cutternamednina. your so amazing at being a mum to him :) its appaling people wont help! and i want to tell you something amazing! after watching your vids i wanted to do something to help and for my work experience im working with special need children in a unit :D i want to do anything to help so thank you your vids have inspired me to do something and i hope it will help other too aswell!
lovefornina 1 year ago