Living with Multiple Sclerosis - Tremors are almost gone!

[2ndSamuel710]

There is now a Reformed Multiple Sclerosis Society that is urging for the medical community to check out Dr Paolo Zamboni's discovery that MS is caused by poor blood drainage from the brain. The answer to restore blood drainage from the brain is angioplasty. Watch the before & afters for this surgery called CCSVI on youtube- simply amazing. In just 24 hours a world of difference. Standing on one foot eyes closed in just 24 hours!

[laurenvparrott]

@2ndSamuel710 I've made videos about this! Very exciting! Thank you for writing.

[sagaertj]

He gave me subscribtion for a drug called Symmetrel , this would make the fatigue less ,i will let you know if it makes any difference. ( it seems to be used for other purposes too) anyway the active substance is amantadinehydrochloride.

I will evaluate and let you know.

Bye for now, and keep the good work up !

Johan

[sagaertj]

Hi !

Have been to the neurologist yesterday.

Bad news the new drug in the form of pills was rejected by medical test commision, it was to nice to be true.. , then i asked about the tysabri : it costs 50% more than the rebif i have now and would not be accepted for my state of MS, he said only people with several relapses per year can apply for the tysabri and the PML is also a major concern to take in mind.

wow almost out of available characters ... ..have to continue in anothere reply

[sagaertj]

Hi !

Have been to the neurologist yesterday.

Bad news the new drug in the form of pills was rejected by medical test commision, it was to nice to be true.. , then i asked about the tysabri : it costs 50% more than the rebif i have now and would not be accepted for my state of MS, he said only people with several relapses per year can apply for the tysabri and the PML is also a major concern to take in mind.

wow almost out of avalable characters ...

[sagaertj]

Hi

Im 48 and have ms for almost 3 years now and use rebif to keep it under control.

Had a hard time accepting it and had meny sleepless nights.

My look on live has changed a lot and i think you can agree with that.

I wish you al the best ,keep the head up and continue smiling. After all there are worse things that people can meet on their life.

Johan

[laurenvparrott]

@sagaertj Hi Johan! I completely agree with you...things could definitely be much worse, so we need to keep our heads up and continue smiling! I wish you the very best!

[RockhoundIM]

Good Luck to you !!! 

[laurenvparrott]

@RockhoundIM Thank you so much!

[lmhitar]

DIANETICS IS THE ANSWER.

STOP SUFFERING unless you enjoy it.

[Counterbrilliance]

Poor thing. She's shaking like a leaf.... how admirable of her to go on camera, knowing the obvious that she'll be made fun of.

[MsSweetPea831]

Thanks for responding. It is great to see someone the same age as I am doing so well with ms.

[laurenvparrott]

@MsSweetPea831 It's great to hear from you, too!

[MsSweetPea831]

I am so glad to see u r doing so well. I am 26 and was recently diagnosed with RRMS. Ur videos have been very inspirational and have helped make getting this diagnosis a bit easier to handle

[laurenvparrott]

@MsSweetPea831 I'm so glad that my videos have been helpful for you!! I'm 26 as well! Please write anytime!

[worktosser]

I look forward to your song m'dear. I am so glad to hear of your progress! I don't just see a lovely young lady when I watch your videos, I see a lovely soul and a beautiful heart. I wish I knew you in person. lol. Wishing you and the people lucky enough to know you the best.

[laurenvparrott]

@worktosser Aww, thanks! You can see me sing the National Anthem! Oh my gosh, your comment was so incredibly thoughtful! Thank you very much!!

[ADAIERS]

Your so bubbly, I got diagnosed with ms when i was 19 im turning 23 this year

ive been on beta feron and copaxone, which was dubbed useless so they resorted to putting me on tysabri.

I normally dont view ms in general cause im more scared of seeing someone worse off than me or a possible what i could be like in a few years. Seeing how you are kinda makes it more worth my time to have done it, and i thank you for sharing your thoughts on youtube.

[laurenvparrott]

@ADAIERS Thank you so much for your comment! I wish you the very best with everything!

[darrelleric]

Sorry about your grandma, I am 48 and I have had E.T. for several years , sometimes it's very difficult how did you find out you had M.S. I have a lot of the same symptoms that you have ????

[laurenvparrott]

Thank you for your condolences. I found out I had MS by seeing a neurologist and getting an MRI and spinal tap.

[mannybatia]

hi um you know how you said you dont now any body your age with ms well my moms sisster has it and she is your age so dont feel bad remember it is not your foult god wanted it that way for a reason if you wouldnt have ms you wouldnt have theses video and i wouldnt have told you this p.s my brothers birth day is 12-27 to

[laurenvparrott]

Thank you for writing to me! I appreciate you telling me that. That's so cool that your brother's birthday is 12/27! Not many people have that birthday :)

[FendRhodes]

Well aren't you just the cutest thing ever. I have personally been tested for ms among other things, i have trouble with my balance, my left hand shakes and i sometimes have slurred speech even though i don't drink or do anything like that. They said it might have been the concussion i had as a kid. I was happy that i didn't have it but i really hope they find a cure through something along the lines of stemcell treatment. I think what your doing is great, keep it up.

[laurenvparrott]

Thank you so much for your comment! I really hope they find a cure too - and I hope you're feeling well!

[newgnewg1]

I was diagnosed with MS 2 weeks ago and I'm still in shock and very scared. One thing I've quickly learned though is how wonderful and sharing the MS community is - I found your video by chance. Thanks you! You are so beautiful and full of life - I know I'll be getting strength from watching your videos.

[laurenvparrott]

Thank you so much for your comment! That means so much to me. You are going to be just fine! I know it's hard to think like that now, but I've had MS for 9 years and I'm doing great! You're right - sharing your story in the MS community on YouTube is so helpful. Please write to me anytime!!

[trojantjl]

what dotake for your tremors

[laurenvparrott]

I take Klonopin which is an anti-anxiety pill that calms my nerves.

[DiGiT1971]

You are a beautiful women. Hope you are still well, i too have ms and am still going strong. I am on copaxone , rebif did not like my liver.

God bless

[laurenvparrott]

Thank you so much! Copaxone and Beta Seron didn't like me either. I hope you are doing well!!

[Semtexxt]

you are so lucky that you are not forbidden from ever having any manner, sort or whatever kind of contact with your loved ones and family ...

... just because you have multiple sclerosis...

..sound odd? thank the heavens you are Italian and not Irish!@

[laurenvparrott]

Oh goodness - I never really thought about this. My family has always been supportive. Please write to me anytime if you ever need to vent! I hope you are well!

[eyesofpassion]

I'm feeling really well, this has been a really good year for me. I loss my grandmother 2 years ago (she was also my mother), it was really tough, but time does heal and friends and family really help during the holidays. I hope you're able to think of all the good times with her, that keeps me going..

[laurenvparrott]

That's great! I'm sorry about your grandmother, but you're right. Time does heal and friends and family definitely help. That's what keeps me going too!

[eyesofpassion]

Thanks for sharing..I'm 30 and I have MS. I was diagnosed 1.24.06. How are you doing?

[laurenvparrott]

Hello! I am doing extremely well! I am absolutely dreading December 3rd, because that's the day my Grandma passed away, and the holidays will be a challenge but physically I'm doing well. How are you feeling?

[commun08]

Actually I am just in awe right now. I can't believe after all this time, my hands going numb or tingly...I though was normal. I am praying really hard it's not MS. But looks like there is a cure!!!

[laurenvparrott]

I hope you don't have MS, but if you do, there are plenty of medications available to keep your condition stable! I wouldn't worry about anything :)

[tonymac2008jtv]

Dude anytime i need some information your gonna be my number one source , take care and peace out

[laurenvparrott]

I'm so glad! Write anytime!

[tonymac2008jtv]

Tremors cant you like get them in one part of your foot , like the soul cause am just wondering. Some information would be cool

[laurenvparrott]

I get tingling in the bottoms of my feet, but that's different from tremors. Tremors are when my nerves are out of control and my hands shake, or my head shakes a little bit. They're not that noticable luckily, but they're annoying as hell. You can definitely have tingling in one part of your foot...like the sole, so don't worry that's normal. I hope this helps!

[lolitalov234]

Also I sometimes feel like my fingers are all... how do I describe it. Prickling. I don't know. lol. But um... It doesn't hurt. I's just tingly. Thnxs again. Even if you don't get this. You are great.

[laurenvparrott]

I know what you mean = I have that in my feet sometimes. Good luck and I hope the tingling stays painless!!

[lolitalov234]

Sorry I had to cut it short. Here's the rest. The ones before were more like flailing, while this is a vibration. I was just wondering what you thought. By the way I turned 15 a month ago, if that changes anything.

[laurenvparrott]

With the vibration, it's hard to say - I would definitely see a neurologist. Please write anytime!!

[lolitalov234]

Hi! First off, you're wonderful, and you're videos are amazing. I found you because I believe I have MS, but I do not know for sure. I've had symptoms. I had uncontrollable tremors in my legs twice. It's like they're vibrating. Also, my arms sometimes feel like they're shaking. I had pain in my eye. It was like a dull aching pain behind my eye that hurt when I moved it. I'm not sure because when I was seven I had a movement diorder that caused me to have epileptic seizures. These are different.

[laurenvparrott]

Youn are so sweet!! You are very mature for being 15 years old!! Have you seen a neurologist? Yoursymptoms sound like MS, but I would get confirmation from a doctor. Good luck and write to me anytime!

[vamscanadainc]

I just want to know if you are able to walk without assistance. You look well and wonderful!

[laurenvparrott]

Hello!  Yes, fortunately I am able to walk without assistance. I needed assistance during my relapse, but I have recovered from that and I am fine. Thank you for writing! I hope you are well!

[lilo3116]

You're such a cool person :o)

another gr8 vid

sorry to hear about ur grandmother, but she's with god and her husband now

cliona x

[laurenvparrott]

You are so sweet! Thank you for your condolences - I'm sure she's very happy to be with my grandfather. I miss her though!

[made2luvhim]

im 14

my grandma died in November of 2007

and then 7 weeks later my grandpa died

so i know where you are coming from

and you are so inspiring

thanks for everything

[laurenvparrott]

Hello! I am so sorry to hear about your losses. I thought losing my Grandma was hard enough, but I can't even imagine losing both grandparents to close to each other. You stay strong and write to me anytime!

[avrillavigneissexy]

my name is aiden and i am 12 years old and last year my mum passed on and please look at my vidio's on multiple sclorosis...i found out some fact's on the internet!

you doing well!

(aiden)

[jgperry73]

They're doing awesome job! Keep it up girlfriend! I know exactly what you're going through. God bless you!

[laurenvparrott]

Thank you! God Bless you too!

[jcrane722]

5 min 2 thumbs up...2 funny!!!

[laurenvparrott]

Isn't that embarrassing?? My Dad said it was 5 minutes, then when I put it on YouTube I said, "DAD! It's more than 8 minutes! I look ridiculous!" Hahaha :)

[jcrane722]

Lauren your great. I'm a 36 year old male. Married with Children (and 3 dogs) I love your video's keep it up. Believe me if you keep your head up like you have been doing you will do great. jcrane722

[laurenvparrott]

Thank you so much! I'm trying my best!

[headyo]

You look fabulous! Thanks for making people feel better and for spreading the word about this hellish disease.

~Heady (DX 11/16/05)

[laurenvparrott]

Thank you so much!  I hope you're doing well!

[gingerandjake]

Lauren. I am SO sorry to hear your grandmother passed away. I could hear from your voice how important she was you. I loved the story where you told about her name. God Bless you and your family.

[laurenvparrott]

Thank you so much. It's been a few months now and I still can't believe she's gone. She would always laugh about her name...hahah. I'm so proud that my middle name is Victoria after her. Thank you so much for writing!

God Bless,

Lauren :)

[ChereRyl]

Lauren, you are a big help to so many people living with MS and those of us who care for them. What is going on with you recently? How are you feeling? My husband is SPMS and we just discontinued Copaxone because it was only for RRMS, now we are not sure what will happen.

I've been enjoying your videos and you are an inspiration!

Much love,

Sheryl

[laurenvparrott]

Hi Sheryl! Thank you for writing! I'm currently working at a restaurant as a hostess! It's going well so far and I feel great!

Have you talked to your husband's neurologist about Tysabri or Chemotherapy? I know that several people, including myself, are really seeing improvements with those 2 options, (I've only had Tysabri).

Good luck to you both and please keep me posted!

xoxo

Lauren

[ChereRyl]

Hi Lauren! It's great to hear from you. We are currently looking for a new one.His MS is definitely progressing and we are frantic to find a way to slow it down. He used a cane for a few years, but this year has been bad and he's now using a rollator. He can't walk without it. We just got MARRIED in 2006! We have wanted to try Tysabri, but not sure if Canada's healthcare will cover the cost. We have enjoyed your videos and you're doing something special. Love..Sheryl xoxo

[ChereRyl]

I meant to say looking for a new neurologist! We feel she is not helping us. She offers no alternatives or other treatments. When he told her he had spasticity in his legs, she wrote a slip for more drugs and never offered Physical Therapy. I arranged it and he is starting this week. He should have had it years ago. Anyway, stay in touch! xoxo

[laurenvparrott]

Hi Sheryl! I'm so glad you're looking for a new neurologist - that can really make a difference! I really hope the physical therapy will help your husband! Congratulations on getting married! I know this is difficult but I'm sure your husband is going to get through and I'll pray that he finds the best medicine!

God Bless and lots of love,

Lauren :)

[Italian1983Dude]

Ur an angel.. God bless you and your family.. I hope someday you tell us, that you're fully recovered, because you are a true Angel..

[laurenvparrott]

Thank you so much!  You are so sweet! That's one of the nicest things anyone has ever said!

[remaria3]

God be with you!

[laurenvparrott]

Thank you so much! God bless!

[jermeal385]

i'm 22 had ms since 19 well diagnosed but you are you an inspiration

[laurenvparrott]

Thank you so much!!!

[fabsparky]

Merry Christmas and I hope 2008 is a wonderful year for you. I am looking forward to your song. God bless.

[laurenvparrott]

Merry Christmas to you, too! Thank you and I hope you also have a wonderful 2008! I will sing as soon as my voice is ready. God bless!

[shockermum]

Hi Lauren! I feel like I know you! As a fellow MSer I can relate so much. I'm gonna e-mail you because I share a lot of things in common with you! You are the strongest person, and I am so glad you have such a supportive family.

Joelle

[laurenvparrott]

Hi Joelle! I also responded to your email so you can check that too. Thank you so much for writing!

[shockermum]

Hi again Lauren! Somehow, I didn't receive your e-mail. I didn't want you to think I wasn't responding to you, LOL! Joelle

[Entropy56]

Hi, I'm pretty cynical about MS since having it now for 11 years. But when I saw your other video crying I couldn't help but cry also.

I have a long story of my own but won't get into it. I just want to say thanks for sharing your smile.

[laurenvparrott]

Hello! Thank you so much for writing! I can be pretty negative sometimes but I try very hard to stay positive. I really appreciate you writing and I hope you are feeling well!

[7mumfred7]

Lauren ..... So sad about your Grandma, I was hoping for better news, you will miss her for sure ..... but that is great about your tremors, and once again your speech has improved, it sounds effortless (although I bet this tires you out), and just in time for the holidays too.

Well I for one will be staying tuned ! But an early Happpy Birthday if I miss the next update.

[laurenvparrott]

Hey!! Thank you so much for staying tuned! And thank you for the birthday wishes! I'll be posting one this week because now I'm current and up to date with my videos. Thanks so much again!

Lauren

[7mumfred7]

Lauren.....I forgot to ask some questions, first do you think your 2 infusions of Tysabri have made a difference, and also when are you due to go back for your next Tysabri infusion ? I am sure it's once per-month, but is that to happen before the New Year ? Thnkx Again and KEEP IMPROVING !

[laurenvparrott]

Hey! I just noticed this comment - I'm sorry for the delay! I do think that Tysabri is helping me, especially with my balance. I had my 3rd infusion on 12/28 and I talk a lot about medications on the video that was shot on 12/21. I hope you're feeling well and have a blessed New Year!