DysautonomiaMD: DO BODIES HAVE TO HIT THE FLOOR? NOOOooooooo!

[jd450lh]

Wow, what a difference one year can make! I have been reviewing some of your older videos and what an improvement in your overall condition. At least now you can walk, eat (and keep it down), the migraines are almost non-existent, and all the praise and glory goes to our loving Heavenly Father. This just proves how powerful prayer in numbers really is.

G.B.U.

Your Brother In Christ,

Jeff

[DysautonomiaMD]

@jd450lh ...and I had a migraine and tinnitus in this vid/that was a daily thing. I never really knew that my neck collar was there because I had so much pain.....so one year later, ha there I was on the OR table again, getting my spine fused. Ewe. Could not swallow for 3 months that felt like 3 years.

Next time we go out to dinner, don't give me the Heimlick Maneuver if I choke! Just wait for sign language, eh :-)....cough...choke....

G.B.U. my Brother,

Me

[jd450lh]

@DysautonomiaMD ~ Gotcha Sis! The worst is behind you now, thank God our Great Physician!!!

Love ya Sis,

Jeff

[DysautonomiaMD]

@jd450lh : yes, God has been so good. I hope we can continue to help others in this same effort. See ya soon, bro'!

Your Sister in Christ,

Margaret

[DysautonomiaMD]

Research, both bench and clinical trials are needed. We, People who have it, need to stand up.

Look at the history of this video and one year from now. Let the List Grow.

Clinical Trial of the People #1: Done by the People. And For the People. I will not lie. And use my answer here so a winderful pre-med student from a family of surgeons can make this issue clearly researched.

I am ? Years Old

God Bless You,

Dr. Margaret

[DysautonomiaMD]

If you "YouTube" Search now, "d" "y" "s" now leads to:

"Dysautonomia", "Dysautonomiamd" and "Dysautonomia POTS"...if you keep typing, you also get familial dysautonomia. The computer must be keeping track! Our numbers are growing and/or something NEW has happened! Am I the only one who noticed? I just noticed it today. LOL to all, Dr M

[ReligiousReidBaer]

Self medication kills.

Getting a professional to prescribe medical is much more safe.

Doesn't TCH come in pill form!?

Best to you,

Reid

[DysautonomiaMD]

Getting a medical professional to guide your exercise program, drug regimen, and progress through a chronic illness are all important. Yes, THC does come in pill form also. It can control nausea, vomiting, depression, increase appetite and thereby improve nutrition and weight gain in thin patients. It also has analgesic properties that help control pain. Of course, it causes dry mouth and one should not operate a car or heavy machinery...but that is common sense. :-). Not an all-inclusive list.

[ReligiousReidBaer]

Kewl reply.

Thanks!

- REid

[DysautonomiaMD]

Love the spelling of 'Kewl'. First time I've seen it. Thanks :-). Margaret

[poetrygal1]

Loved the video and song!!!! THANKS! :) I have dysautonomia and I can relate!!!!!

[DysautonomiaMD]

I wish we could contact this Band and that they could help with fundraisers for bed-ridden people in their youth who are ripped and stripped of their very being...until the truth is known and 'something's gotta give'. LOL, Dr M

[DysautonomiaMD]

I love the song, too. I'm humming it in my head all the time...it's so perfect for us. Never heard it before, but someone told me they know someone who knows someone who ?does something with the band. I really ask for their help!

[chronicallykyli]

Hey Margaret! The song definitely does fit us! I had a copyright problem with a video of mine too. Youtube has a way to trace copyrighted songs - they removed the audio on mine once. Hopefully they don't do that with yours! (hugs) Hope your having a good day. Talk to you soon!

[DysautonomiaMD]

Hiya. Funny I chose 'I feel Lucky' for Youtube to pick out the sound track...thanks for the info. Now I feel less 'lost'. :-)

Highest Personal Regards, Dr M

[DysautonomiaMD]

Someone claimed a copyright on my video, so I can not view the statistics. I have no idea what is happening here. Only God knows, and we pray for the Cause. Thanks, Dr M

[radlikemad]

signed on the first day! and got lots of fam and friends to as well. also put the address in my new vid :)

[DysautonomiaMD]

You rock. Thank you and all the others, fine 'others' that have really helped the Cause. Need 1001 signatures by Monday Morning...I know we can do it...we're over 700 now...Highest Personal Regards, Dr M

[luminescentfeeling]

Love the music, the message, and the video. OMG!!!!!  Brilliant.

[DysautonomiaMD]

I'm so happy to touch your heart and your soul.

I harbor outrage and hatred, too, just like any human being.

It just makes me want to fight. To help. To inspire.

To help others get diagnosed and treated.

To save lives. To save souls. to save spirits.

May my videos touch you in a special way, as you are the One that I picked out as my first person to talk to on YT.

What a pleasure, an effort, what a changing world before us. We are part of the solution.

Survivors. Fighters. LOL, Margaret

[DysautonomiaMD]

Thank you so much. It's Tuesday and we're over 600 signatures! Please get your address book out and pick up the telephone and make some calls! Fondly, Dr M