Added: 2 years ago
From: tobybelchy
Views: 2,983
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  • I just turned 20 a few days ago, I also have hydrocephalus. The shunt that was put in me was done when I was 7 days old. Now 20 years later I still have the original shunt from '91, The doctors are extremely amazed that I haven't had a single flaw with the original one.

  • hey wats up man ma name is evan i am 16 years old and i too was born with hydrocephalus the doctors told ma mom that as i grow up that i wouldnt be able to walk or talk and that my brain would take very little memory meaning that i would have a long time to learn something and i thank god cause i could walk and talk and do many other things i havent had any surgerys since i was six years old i am very thankful of that i cant say im scared but im hanging there

  • Hey my name is george and i am 16. Last year i had eight brain surgeries and the last two were on my birthday. The unique thing is i am an identical twin and my twin brother does not and was not born with this condition. From all my experiences i have learned how to deal with life and Im very happy I am doing better. Thank you for posting this video it helped. i also have Dandy walker syndrome and barely a little autism but you would not be able to tell if you saw me face to face. Thank you.

  • Well done & congratulations on your mature outlook towards this problem. My wife is,right now, in Helsinki hospital being treated for the very same problem, following a cerebral aneurysim during our recent cruise around the Baltic. She had endoscopic surgery today to create a drainage hole in the ventricle of the brain to release the fluid.

    I love the way you take to task, the mindless morons who comment on other people's suffering. Stay positive & go get em girl.

    Good luck,

    Terry467

  • darling, your story is incredible. i hope you feel well soon.

  • Thanks for getting the word out ive had 4 surgeries in the last 6 months for mine doctors are having a hard time dealing with me lol

  • Ur a ture Sweetheart!! going tho all This crap and Puting it on video to Show and make People Understand This sickness

    I also have This cent Birth and I never had a Shunt Ever or Noting and Now am 22 But always I like How Ur Puting Everything On video soo People can Understand...

    i hope Everything Gos Ok with you just sad That great person is Dealing with this ..

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