SICKLE CELL DISEASE

[ThatDayumWood979]

I know your struggles and I know the PAIN....taking long baths at hot as you can stand them in hopes it will make things better....I've had heart problems and everything a story of itself. Yet, I'll be 35 next week and things have gotten better. Look into a drug called HYDROXYUREA, it helped me. Stay strong and contact me if you wanna talke...

[snackbob100]

sickle cell is a serious disease, god bless anyone who is unfortunate to have it. it is a recessive genetic disorder in which makes red blood cells in your body deformed, as a result when squeezed through narrow capillaries and so forth causing damage. It causes damage to organs, and causes much pain at joints. however, having this genetic disease makes you very resistant to malaria. you can also be half sickle cell (half normal, half sickle) which also makes you fairly resistant to malaria.

[mrsmissme]

You are a beautiful black queen! keep your head up and your eyes to the hills becasue God hills. When i was a little girl for years i wore leg braces in angoy over this but I know he is able because i stand before you today telling you that God heals he healed me and he can heal you!

[chocolatecrazysexy]

i understand excatly what u r talkn about i am 17 yrs. of age and i have sicklecell n ur right u cant describe the pain how it interacts withh school life everything stay srtong n try to destract urself u wanna talk i can inbox u my number

[41cookiesbabe]

I have sc

[koultin24]

i feel u cause i have sickle cell 2

[ramboanime]

i am whit and i have sickle cell

[candyy43]

ill will pary 4 u my lil girl have sickle cell anemia!! god blessed you

[pandagirl123]

Please let me explain that I am incredibly impressed by your strength and fortitude; I do not know if I myself would have the power to shine so brightly through so much pain. You are an inspiration. :)

[AnndisKitchen]

@pandagirl123 Thanks So Much For That.

[discalis]

@pandagirl123 DIDN'T REALIZED I COMMENT FROM MY OTHER CHANNEL.. LOL BUT I REALLY APPRECIATED THE COMMENT, I REALLY WANT TO BE AN INSPIRATIONAL TO MANY.

[pandagirl123]

@discalis Ah, don't worry, I've done that before too. Also, would it be alright if I interviewed you for a paper I'm writing? I feel that your eloquent depiction of your experience with sickle cell disease would make for a powerful interview. :)

[discalis]

@pandagirl123 ABSOLUTELY. WHEN UR READY. ALSO YOU CAN FIND ME OVER AT AnndisKitchen MY OTHER CHANNEL

[pandagirl123]

@discalis Oh, thank you! How does Tuesday or Wednesday sound for you? :)

[AnndisKitchen]

@pandagirl123 SOUNDS GREAT

[pandagirl123]

@discalis Um, I've sent it. I hope the questions are okay! :)

[AnndisKitchen]

@pandagirl123 TY

[jkhudson72]

I understand you completely. your story is very similar to mine. Stay stong!

[MBSPulse]

Wow I think your strong mentally as well as physically. I have a question is Sickle Cell a genetic disease ?

[discalis]

@MBSPulse yeS its inherited from your parents.. and thanks so much for the question and the compliment.

[LondonsPointOfView1]

@MBSPulse I totally agree with this video. I remember when i was young my mom has sickle cell anaemia, and it was so hard watching her go through pain EVERY day, and my dad helped her as much as possible. My worst memories were watching her yell for the ambulance at home becos of the amount of pain she was in. This video relates to me so much (Y)

[nashea305]

I really appreciate the way you described sickle cell and this disease is horrible and feels even worse...but I'm soooo glad there are people on youtube with the same disease as me I can go to and talk to about it!

[MrCrow96]

@nashea305 True i have it too

[commonsen5e]

@fukutubesuxx I can't stop laughing at you, just based on the fact that i'm not black. It's really too bad and unbelievably amusing. From what i've seen on youtube, none of you cunts phase anyones view point on anything with your hateful comments even though you try SO HARD. Especially showing all that anger in response to me you just confirmed what I said. Those links I posted on this are why you're so insecure. Hahaha ! You really tried hurting my feelings with "ooh lowdy youz da pimp". 

[TheCreatorSkin]

@fukutubesuxx FUCKING RIGHT! RESPECT YEAH.

[commonsen5e]

@TheCreatorSkin EVERYONE THIS IS WHAT THE RAHOWA IS ABOUT.

youtube.com/watch?v=jr7zsn8yTa­I&feature=related

[TheCreatorSkin]

And sickle cell is a fucking sick disease! It causes pain to niggers and affects only them pmsl. RAHOWA! RAHOWA! RAHOWA!

[TheCreatorSkin]

Like anyone gives a fuck. Only Aryans should receive healtcare. Why the hell should niggers get healtcare, food, water, anything? This planet should be exclusively Aryan. It's all ours. Niggers can go hang yeah 14/88 and RAHOWA!

[commonsen5e]

@TheCreatorSkin LMFAO this guy says only aryans should recieve health care because he ran across this video. . I SHIT YOU NOT ANYONE THAT READS THIS.

youtube.com/watch?v=jr7zsn8yTa­I&feature=related

youtube.com/watch?v=VsAg_yodQt­U

[mobyvan]

So sad

Could medical marijuana help with sickle cell or Cannabidiol?

[rherbe2]

I liked your video and I hope this helps and allows you to take an alternative path.

Please check out the research of Dr. Oji Agbai, PhD, and Robert Houston

Dr Agbai treatment is called Dioscovite

He has a book called Sickle Cell Anemia: A solution at last

Chef Dawud Ujamaa has a cook book called

Back To Our Roots: Cooking for Control of Sickle Cell Anemia & Cancer Prevention

[imtboi]

Hey sis I'm 24 years old and I've just lost my 21 yr old brother from sickle cell anemia. U remind me soooo much of him bc of the tired look in ur eyes and bc of all u have to go through. He just died June 1, 2010. I keep ya head up and stay strong, u were put on this earth for a reason.

[may52able]

Baby don't sit there because of what they say. I have been call an addict also. I went to California in 91 and met a crew of Drs that taught me to endure the pain. Then in 1997 I started to have a treatment called Red Cell Exchange. I haven't had a crisis that put me in the hospital in almost 10 years. Keep the faith and stay strong. Much love baby. God Bless you. Talk to your Dr about this treatment.

[mphk55]

Young Lady my son has it aswell. I know what you mean to the 5th power. I love my son very much. And we are always together. If my son is in the hospital. Guess what????im there with him. Look at some of our videos. You would never know. He is a handsome 12year old. And he is a Trooper. So I say to you hang in there....Brave video.

[ikaican]

"crying and begging for mommy, you scream to the top of your lungs, and know one seems to no what's wrong with you!"

The mental strength alone SHOULD be applauded!!

You are right on the money! Much love to you Sister and we will stay strong through it together!

God's blessings on your life!

[discalis]

TY SWEETY

[dmanasseh]

I wasn't very aware how serious was this disease until my best friend past away two days ago on 12/3rd of O9.

[discalis]

aww man yes its a horrible Disease but my condolences

[36naturalbeauty]

I understand exactly what your going through, my sickle-cell was very severe as well around the 7th grade, then it really took it's toll on me around the age of 26.... I nearly died giving birth 2 my 3rd child, I was blessed with 2 children prior 2 my 3rd 1.... My second son gave me complications but not as bad as my 3rd 1 did.... So be very wise about having children.... I think GOD everyday that none of my children have the disease, because it is very dredfull!!!!

[discalis]

i'm at the final 2 week stage of my first pregnancy and to be honest i'm not one bit worried i haven't had any complications so far and i know will have a safe and easy delivery God is good just trust in him.

[beau5488]

me 2 i hav such horible pain evry day.i blame my parents 4 giving me this horrible pain. evry week i hav 2 go 2 the hospital evry month

[Legzzzzzzz]

@beau5488 Please don't blame your parents! I have SS and not once have I blamed my parents for passing this down to me. My mom already blames herself, she doesnt sleep at nights, and when I end up in the hospital she crys for the whole night! I was in the hospital for a whole year straight. Im 23 now and I know that Im a strong ass person because of this and so are you! PLEASE DONT BLAME YOUR PARENTS!

[beau5488]

@Legzzzzzzz and y shouldnt i. i cant go anywhere or play baseball az much as i want 2 & they dont even care its almost az if they've dun it on purpose the pain hurts so much i reely hav no choice

[Legzzzzzzz]

@beau5488 Your telling my that your parents dont care one bit! If thats the case then you have to man up and look out for yourself. Know the proper way to take care of your health. If your having very bad pain go to the hospital for treatment, better yet help yourself to prevent getting pain. I've had doctors tell me that i cant do this and i cant do that....Well guess what Im doing them! This illness is not gonna get the best of me and why should it get the best of you!

[ukaryannation]

Hey hope the nig nogs n niglets suffered.

[lmarr07]

yo what is your problem? we suffer almost everyday. and u hope for our children to suffer?

[ebonybarbie69]

Wow, I never knew people with sickle cell anemia experienced so much pain. I have sickle cell trait and I don't have no problems what so ever. I feel for the people who carry the disease.

[DoYouBelieveInMusic]

wow i had no idea sickle cell was like this. i am so sorry u have to live tru that.

i have sickle cell also but i've never had a crisis or needed transfusions becuz i take hydroxyurea. i've taken it since i was about five. i really do recommend it. ~ take care

[belmar00]

i have it to it is unberable at times but thank god ur going strong

[jclark865]

Man To say i feel ya is an understatement i have had sickle cell since i was born i am 28yrs old it is hell i have experienced everything you have and have felt the same way about how i was treated i used to say i wouldn't wish this on my worst enemy that's how bad this disease is but i am still here and i won't let this beat me fight on our day will come much love LBK Life'd Begotten King

[twixyboy]

i have sickle cell, it but is there a cure??

like blood transfer for anymore person

[Orch1dea]

Hey, i have this too so i can understand how you feel. Dont you know Hydroxyurea? It really helped a little bit. It takes lots of time until it works. But be strong! I know it is difficult to think positive. It`s like when you try to stand up and then falling again but never loose your hope and faith.

[discalis]

i'm good.. i dont really get sick been almost 10 yrs since my last admission

[Orch1dea]

ohh great! what helped you? admission?what is admission?

[discalis]

its hospital stay.. prayers helped me

[Orch1dea]

ah ok my english isnt very good. and now you live normally without any pain?

[danaisha07]

im so happy that i've found vid's of sickell frm teens.

i have sickell cell anemia an i've been dealing with it all my life im 19 now. an i have my good an bad days

dealing with sickell cell is so hard!! on your body and mind you have to be really strong mentally

i understand what she's dealing with some doctors that i've come across were really rude to me because they thought i was faking the pain so i wouldnt have to go to skoo

which wasnt the case

i want anndis to know shes not alone

[typevx]

God bless you Anndis I hope they come out with better treatments for your disease, hang in there -Ben

[pallenjones]

SC is hard to live with, but you can live on if you don't give up the fight.

Fight to stay strong

Fight to stay positive

Fight to have a life....never give up!

See my blog sicklecell-ourvoice.blogspot

[pussycatboii]

T-Boz from TLC has sickle cell too and is living proof you can still live your dreams, dance and still have children. i hope you can feel stronger soon

[discalis]

im living in the u.s so i have gr8 tretment ova here. and i'm doing well not sick much.

[pussycatboii]

i was talking to gilamonster1e who also has sickle cell and lives in the netherlands

[gilamonster1e]

im half black-white and it takes 25 years for i know ive got sc

Here in the netherlands nobody knows wat sc is so they say im lie about my pain my mother take me to hospitals of my age of 8 couse i has so many pain in my belly and they say its not true we cant find anything

this was for years and the age of 25 i was watching the tv and there was a ER chap with one woman with sc crisis and i see the pain of that woman and that was the day i know i had sc i cant explaine the pain to people

[pussycatboii]

have you told your doctor about sickle cell

[gilamonster1e]

yes i told my doctor and they don´t do anything about . i take morphin or oxicontin but this makes me more sick.here in the netherlands there are only 800 people with SC ) they say i think its much more 'and thats the reason they don´t put money in reserch.

[pussycatboii]

what will you do? have treatment overseas maybe?

[wistleblower2]

People who are Black African, Indian, Mediterranean some Asians must have a Blood Test at age 13 or before starting to know your girl/Boy friend, The Doctor should tell you's not to get to know each other. There are two cells which should be both Normal Cells Nor/Nor. In Anemia persons it could be An/Thal. An/Nor. Nor/Thal all different level too. When you get pain its called sickle cell crisis.

[lovelyti2002]

wow your video touched me i too have this terrible illness but i feel like what dosn't kill us make us stronger!and we as people living with this disease are so strong, i almost died last yr frm scd, a doc told me that they gave me enough pain meds to kill the entire 4th floor man we are strong! it scares me to think about the future sometimes but i try to live healthy for my boys, and my hubby.

be blessed,

take care of yourself your in my prayers!

ti

[ladydiamondz08]

i understand evvyfin ur goin thru cz i gt sickle as well. i had gall stone bt i had it removed earlier dis yr. my eyes has been yellow eva since i can remember and i tell u, dis disease has RUINED my life. it has crushed my confidence to pieces. i'm scared to make eye contact with anyone because of what they'll say about my eyes. i really don't kno wat 2 do cos no one understands. i jus take each day as it comes. the crisis pain is terrible, i won't wish my worst enemy dis disease.

[discalis]

Stay Strong Sweety.

[222seanb222]

I have sickel cell also :( i feel your pain im 17. its embrassing because something my eyes get yellow, i also got gal stone because of it.

i wish you best.

[toomuchwhiskey]

is the disease more common in black people? (sorry not trying to sound harsh) cos most videos up here are made by black people.

[discalis]

yes it is, but studies now show ppl of white, indian and other decent have the diseast...

[toomuchwhiskey]

:( so how are you now?

[discalis]

Better than this video,lol look at my most recent video and u will see the difference in how i look..

[toomuchwhiskey]

ok will check it out =]

[itachifan275]

yea its more common in african americans because indians had it. because they have it there more likly to not get malaria thats there amunity. thats why indians survived from misquito bites and why white people died (most likly) right away.

[jesusANme]

Thank God You didnt go back to the hospital- God Kept his word!

[XccentchicK]

I have Sickle Cell, too and have been diagnosed with Pulmonary Hypertension. I understand what ur going through and I know how scary PH can be. I hope ur doing well and I'll keep u in my prayers! =)

[andrienna313]

i have sickle cell anemia and i have pain everyday all day and i dont take shit 4 it!

[AbSalute08]

yerp

[AbSalute08]

and yea i heard its a cure...but its weird the doc told me its painful as hell u gotta like have a long transfusion but it only was done here on this one puertorican girl

[discalis]

oh okay

[AbSalute08]

i got sickle cell sc but it aint that bad...i hurt once n a while i stopped takin the meds n it seem i never ever hurt i havent had pain since like may n it was only for like 4 hours

[discalis]

yea me 2 mine its not bad at all in fact Gos is doing his job well.

[primodondadda]

whites were the main ones spreading diseases. know your history, smallpox... etc. you are a shame to the white race. youre not white, you are an inbred degenerate livin an empty sense of white priviledge. you were lucky to be born in an era that makes you creme la creme. Sorry, but thats about to an end when all your bigotry turns you inside out and makes u the real niggers of my country

[primodondadda]

whites were the main ones spreading diseases. know your history, smallpox... etc. you are a shame to the white race. youre not white, you are an inbred degenerate livin an empty sense of white priviledge. you were lucky to be born in an era that makes you creme la creme. Sorry, but thats about to an end when all your bigotry turns you inside out and makes u the real niggers of my country

[ateneacarter]

...but, do U know there's a treatment with capsules to control it? U know that? Here I have this treatment since I was 4 and it helps to me... I have so much pains, but it controls the sicke cell. U know it? I only though was good to say U and I want to know if in USA the treatment also exists... if U want talk more write me.. a big hug from spain and, even if U don't believe, with your video you help to so many persons... :)

[ateneacarter]

Hello! I am an spanish girl and I'm 16 years old,.. Sincerily, I can't understand all the words of your video, but I can understand some things and I understand very very well your message: I also have sickle cell desease, my father is from Venezuela and I have the sickle cell because he also has it. Yeah, there's a terrible anemia..

[discalis]

u should be a shame of Your Empty Self.

[m35treet5]

im 14 years old & also have the disease i have such bad pain some times i wonder if ill make it out the way i came in im lucky cause even though i get daily pain its rareley horrible.My brother has it 2 but he tries 2 deny it cause he dont want to accept it people dont underestand & its hard when i go to school in the winter dealing with the horrid pain & missing school cause its 2 cold or being late cause i was 2 tired its hard cause sum times i wake up in the morning & i cry & wonder y me

[discalis]

I can totally understand you and relate to you. there's was a time in my life when i felt why me but not anymore i know God has a plan for our lives and i don't even Question it why me. he want us to believe in him as our healer and with that we shall be healed in Jesua Name..

[MsFlytastic]

stay up

[kt268934]

i have sickle cell i miss alot of school from it and its painfull

[stpsalm]

Many afflictions are of the righteous but the lord delivers them , out of them all..... stay strong

Stay strong God is with you.

[discalis]

definitely true.. did u see my new sickle cell video i posted a day ago? please check it out.

[Tbgocat1]

I am the mother of a 14 year old with SS. She has walked a rough road, in her life, but with God's grace she and you will defeat this disease. Keep your head up, take care of you! Remember you are not alone, don't try to take this on by yourself. Thank you for your strength and courage. We just lost a family member to complications due to Sickle Cell in Trinidad. Remember "that which do not kill us, makes us stronger"! ONE LOVE....

[discalis]

ty 4 the support, and my condolancs goes out to you and ur family..

[bxzchiquita]

my heart goes out to you huun

[Ajuddie]

Wow I feel so sorry for you. must be really terrible.

[sabresspacekwin]

i am a mother with a child who is 5 with sickle cell and my other son who is 2 has a disease called thallesemia major we basically live in the hospital these sicknesses are horrible and i pray that god will heal theses children and people with all diseases !!!

[69Xs]

i AM A MOTHER WITH SCD I CANT AMAGINE RAISING A CHILD WITH THIS DISEASE.I WISH I CUD GIVE U AN AWARD FOR UR STRENGTH..SUMMER IS HERE HE MUST HATE NOT BEING ABLE TO ENJOY A SWIMMING POOL FOR HOURS AT A TIME LIKE OTHER CHILDREN GOD BLESS YOU AND UR FAMILY.AND TO YOUR SON.....UR GODS ANGEL

[imakidsowhat]

i have it 2 they dignosed me with it @ 5 days old but now im 13 i cant go 2 scholl so im home schooled.

[phantomluver4ever]

hope you get better.

[imakidsowhat]

me 2 thanx

[university890]

guys i have it u can't get better its a blood trait i was diagnosed with it close to when i was born

[imakidsowhat]

me 2 i was when i wuz 5 days old,how bout u?

[slayona]

I'm 35years old and I have sickle cell disease and my brother also had the disease. It's a pain that we endure, and its hurts when we are mistsken for drug seekers only because of our race. I wish the nurses and some doctors could feel that pain and realize the pain level is more than a 10. Stay strong you are not alone.

[dpinchom]

I want to start some sort of forum where we as sufferers can talk with and encourage each other

[brizeegyrl]

me too... i founded a non profit in 2003 it's the Sickle Cell Support Center of Seminole County,Inc. (S.C.S.C.S.C,Inc)..Because that is where I'm from ....but it won't be restricted to just patients from there..It will be for anyone anywhere.

[brizeegyrl]

If you ever want 2 talk about whatever send me a message...I will always only be a phone call away. I remember the 1st time I met someone else who had it I wanted to know everything about them especially if they had a baby. So I extend the same courtesy to you.

No one knows you better than you... remember that.

[brizeegyrl]

Hey Gyrl...I am 31 yrs old,diagnosed @17. Got no treatment until after my 17th birthday.I am married to a wonderful man & God has blessed us with a beautiful little gyrl. I see you speak and can feel your pain. I want you to keep your head up,Never let anyone bring you down, Never let anyone steal your joy.Never let anyone who has not been through anything in life tell you how to live yours.I am in the hospital right now .Been here since 3/22,hoping to get out 2morrow.

[dpinchom]

same here and im 24

[tatianax0x0]

i have sickle cell 2 and im only 14 and it'z realli hard for mi 2 deal with it

[richmann456]

i have sickle cell 2 im from the hood and they put us on oxycottin ib's, and all these strong meds, that we need 4 the pain but then treat us like we crack heads its not right, they treated me like this in carolina,but they was more understanding in atl, but im maintaing taking my meds and vitamin folic acid, but we stronger mentally than every body else thats why we have it so stay strong much luv

[dpinchom]

same here with me in new jersey with the sickle cell

[StushAce]

Hol tyt Gyalie..I Got It too..Ul B okay..The Pains Unbareable Buh Were Stronge

(**, XX

[gimm3mor3]

i have it 2 girl nd thats why we strong! i don't wish this pain on nobody nd i hate hospitals too they all think im a druggie but they dont get how bad that pain is =( neways much love keep holding on

[chinieyesmilez]

I have it too. You're not alone we've all been there. Keep strong

[TYCOOL96]

omg.. i live in sweden whit Sickel Cell Anemi (the same as u) omg.. what u just discribe is the same thing i would say if i did one of those tapes.. i don't know if u understand my crapy english but, I FEEL U!

[tatianax0x0]

i have it nd i cant take da pain it hurts alot

[mindwis3]

SCD,

An example of how a "bad mutation" (the SCD with most of it's bad traits) can have a positive effect (malaria has far less gripp on ppl with SCD).

In certain parts of africa (west) this mutation is very common, and despite it's bad effects, the ppl with SDC were less prone to malaria and therefore this mutation is now so common.

[Adeola55]

People who are carriers of the trait are the only people immune to malaria not those who have the disease.

[dancedabest]

my mom has it too and it is very scary wondering if your going to make it

[RocsGirl]

Boston, Massachusetts... Children's Hospital has great treatment for SCD patients. Name your hospital and the state and city it is located.... If not in USA name your country. Stay Healthy!!!

[austinboy91]

I know where your coming from, I have sickle cell...nothing fun.

[1hondalover]

yo i have Sickle Cell to i feel were u coming from i get pain like nothin ther ever been...it suck but we have to have hope...u now just keep going...i know how it feels to be a % of ur life in the hopital....im from the bricks to...

[FerrariSorry]

noew

they do, but nobody gives a fuck about people who struggle unless they have suffered physically suffering themselves

and those people are stupid, but 95% of america are stupid and ignorant

this bitch right here deserves what she wishes because she's lived a hard life and works hard to live it

[animechic25]

why she gotta be a bitch? to add insult to injury!

[nonew3]

She is not a bitch.

But, you are right about people not giving a fuck, and about most of America being stupid and ignorant.

I have suffered with a different medical disorder, one that few doctors even know about, and got to see the callousness, ignorance, stupidity, and apathy first hand.

[1cejones]

Hey Anndis, as a young women dealing with SCD, I know how you feel. I go thru the same things as you. I was diagnosed at 9 mos of age and been having crises ever since. Just put your faith and tust in God and he will carry you thru. God Bless my Sister.

[nonew3]

how come the ambulance and hospital don't know about this disease?

[brizeegyrl]

Sugar it ain't that they don't know ...they really just don't care...most medical staff just label us as drug-seeking patients. By the time I make it to the hospital my crisis has moved around it may start in my back but then it goes thru my body and by me not knowing for soooo long until I was 17 I trained myself not to cry b/c to me crying only makes it worse. So, b/c I'm not in there slingin snot they don't think it is as bad as it is...After getting my blood levels- Here comes med attention

[nonew3]

I see. I don't have scd, but I have a different life-threatening disorder that hardly any doctor or anyone else knows about. I was labeled hypochondriac and drug-seeking for years until finally, about a year ago, a headache specialist & physical therapist both found out otherwise. I can at least relate to being labeled a drug-seeker and medical staff not caring. I want to become a doctor someday, and be one of the few ones that still care. Any advice in that regard would be greatly appreciated.

[bigbaybee21]

hey my beautiful sister, keep ur head up! i also have scd so i can relate. just be strong!