SMA TYPE ONE. Spinal Muscular Atrophy! 1 Genetic leading killers....

[GoogooEyedChihuahua]

I have type 2 SMA

[783lovemusic]

my lil nece also has sma1 her parents was told hat they wouldn't be able to join her 2. birthday with her,, she got two years old few days ago.. i'm so proud of her!! these kids makes people see the live in new light.. and whne people start asking about sma1.. and i answear i sometimes get tears in my eyes, but you thank god every day for each day you get with her! my sister and her husband(her parents) are the strongest people i know!

[JColleen77]

What a sweety!!! My little girl has sma type one and trach/vent dependent too! Are you on SMAspace?

[llohin]

We are on smaspace and facebook as well. I would love to meet you . I am interested in learning as much as I can. Its great to see and hear of other families who can relate to us. I was told that not many sma children are trached. I was told by Toronto Dr's that no one ever goes this route with their SMA children and that no sma ever goes to school. I think I let them know their are lots, but the knowledge of our medical teams refuse to see that, and to see the hope.

[shoppingcameron]

can u please put some sma physical therapy and chest physio videos up

[llohin]

I will post some chest physio and such soon.Many blessings Lisa