I read from a recent published medical schoolbook, that it is 1 on the 30.000. The different numbers is probally caused because its based on national figures.
if you have any bad commetns of about what im sying please keep it to yourself but i have pw but the type 9 have is rare its wher you have a higher iq and smarter and im going into 10th grade im in regular classrooms even colldege prep and im going for my deplomia and going to clollege
Thank you Rachel for creating this beautiful video of our children. My son Nolan (PWS by deletion) appears twice in the video. Every bit of awareness helps bring us closer to more effective treatments and increased research for this debilitating illness.
My grandson Blaise has PWS. He is the one in the green/red striped Christmas PJ's. I love him so much and I am proud of my daughter Rachel for doing all she can to help get more research that will lead to a cure for PWS to help all the children. They all have my heart.
:'( my isu was on this syndrome i cried when i did my presentation on Prader- Willi syndrome
kiki18k 3 months ago
its actually 1in 15,000 births it had changed in the past
56785439 5 months ago
@56785439 1 How wierd..
I read from a recent published medical schoolbook, that it is 1 on the 30.000. The different numbers is probally caused because its based on national figures.
mlghackerifyme 2 months ago
if you have any bad commetns of about what im sying please keep it to yourself but i have pw but the type 9 have is rare its wher you have a higher iq and smarter and im going into 10th grade im in regular classrooms even colldege prep and im going for my deplomia and going to clollege
56785439 7 months ago
The video is beautiful. We are from Spain and my little brother is 11 and
also suffers from this disease. Much encouragement for all and hopefully one day all
these children from all over the world to meet.
A greeting.
naruterahx 9 months ago
Such amazing beautiful children, this video is wonderfully made.
I have a 2 1/2 yr old nephew with Angelman's Syndrome which has so many of the same characeristics, all these children are wonderful gifts from god!
slkanuck 1 year ago
Thank you Rachel for creating this beautiful video of our children. My son Nolan (PWS by deletion) appears twice in the video. Every bit of awareness helps bring us closer to more effective treatments and increased research for this debilitating illness.
plantgirl14 2 years ago
My grandson Blaise has PWS. He is the one in the green/red striped Christmas PJ's. I love him so much and I am proud of my daughter Rachel for doing all she can to help get more research that will lead to a cure for PWS to help all the children. They all have my heart.
barbaralynnp 2 years ago