Added: 3 years ago
From: vbeachy
Views: 2,828
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  • Oh is it possible to know you have singles weeks or even months before the rash appears? that's what it seemed like for you

  • @Mohamedahmed331

    Hmmm...maybe. Yes, I did get some indications that something was happening a few days before the rash appeared.

  • AMEN!! I woke up, looked at my cane and didn't reach for it. That was after my 2nd infusion.

  • GOOD FOR YOU! I am SO happy for you!

  • Vern, You mean a lot to me.

    You are an inspiration.

    I am hopeful. I have only had one infusion, and I am inspired watching your videos. God bless, and here's hoping.

    Luv Sarah

  • Thanks Sarah...your comment means a lot to me too. :)

  • Vern, You sound better than a doctor, because you're giving your advice & just your story with TYSABRI...FREE. Sorry to hear that your computer got "fried" and you have to use the public library's computers. While that means you won't be posting anymore youtube videos....

    ....I'm praying that you'll be able to help out folks like

    tazscott14....who is a 10 year AVONEX user....

    While TYSABRI won't work for everyone.....TIME IS BRAIN....here's hoping you keep him out of a wheelchair, too!

  • Hi Wendell;

    Free advice. Ha. Some may say that is all it is worth because I don't have any fancy initials behind my name. But, it is just MY story. Thanks Wendell!

  • Mark Twain said,

    It is better to deserve honors and not have them than to have them and not to deserve them.

    But...just YOUR story is doing GOOD things for lots of folks! Keep it up, Vern! Don't thank me...I & lots of other MS patients should & are thanking you!

    Maybe one day....we'll get to see you "tell your story" on Oprah!

  • Hi Wendell!

    Look for an update very, very soon!

  • Nope...still don't care.

  • he doesn't care about PML???!!!

    WTF?

  • Thanks Vern...thankyou so much for posting these comments regarding Tysabri, PML potential, and what a tremendous benefit this treatment has been for you.

    God Bless you mate...

  • Thank You!

  • Inspiring for sure! Vern, u give me courage to ask Dr and maybe start Ty. Your courage in 2006 was awesome too, I don't know I'd do as well as you have, if I lost my hubby. I won the MS lottery in '98, after 10 yrs with him. He is sticking it out w/ me, he's an inspiration too. I use a stick to walk w/, a scooter for long distance. I travel to CA every yr., so far I'm blessed. I've always felt lucky this didn't hit me when I was 22, instead of 42. I wouldn't be here now. C ya, stay well.

  • Thank you! I am so glad you found my Tysabri videos and I hope it does for you what it has done for me!

    Vern Beachy

  • g'day beechy as a mser who's due to start on tysabri next week i have to tell you i found your video's at the right time! Thank you heaps mate.

  • the guy who posted this video is a inspiration to all.

  • Thanks Garry!

    Vern Beachy

  • This is SO refreshing to watch! I'm lucky, doing pretty well on Avonex (Tysarbiri is licensed for Secondary Progressive only in the UK and I've relapsing/remitting and getting about 'ok' with one stick so I don't and can't complain! I even work full-time with teenagers in a local college here and have been SO fortunate after a few very dark years.

    So nice to see how this gent has benefitted; wonder if it'll be my turn one day?!

    It'll be cured soon anyway! :P Andy!

  • Let's hope for a cure!

  • It's not far off, antyone will tell you in the field of MS treatment. That or stem-cell symptom reversal! YAY!!

  • Hi my name is aiden and my mum died last year i am 12. But my mum died last year because of multiple sclorosis and she was in a wheel chair.She had no medicen or anything so she died. :-(

    i would love you be your friend and i wil subscribe you!

    XXXXXX

    (aiden)X

  • Absolutely Aiden, I will be your friend! Please feel free to talk with me about anything. :)

  • Thank you what is tysabri?

  • Tysabri is the latest drug to treat MS. It has been on the market for almost 2 years now.

  • Wow Vern, your whole attitude is so positive it's amazing to just watch you. Have you set up a marathon to run in yet lol.

  • It's in the cards! LOL

  • I wouldn't put it past you. You might even win haha.

  • Vern, this is an excellent video. My boyfriend was diagnosed with MS 6-6-06 and he did Rebif for one full year, the side effects made his quality of life horrible. Now the Dr wants him to consider the Tysabri, and you have helped with the decision, thank you so much.

  • I am so glad I can help. I hope Tysabri does for your boyfriend what it has done for me!

  • Way to go, Vern! All the best.

    GB,

    paul

  • OUTSTANDING!!!

    Tysabri will be back on the market for two years this coming July and the Touch program seems to have done a wonderful job of avoiding any potential problems before they arise, we can only hope that reaching this time benchmark and videos such as yours and others will help others to feel safe in their decision to try Tysabri.

    Thanks for all that you have done!

    BOL

    Fixer

  • Thanks Fixer!

  • Thank you, Vern. This wonderful video should give some MSers....hope.

  • Thanks Wendell!

  • How long did you have symptoms before Tysabri? How long after you got out of the wheelchair did you walk freely? What are Canadian crutches?

  • I was diagnosed with MS eight years before Tysabri. Canadian crutches are forearm crutches, like Kerry in the TV show ER uses.

    I walked freely, although a bit slow, the day aftermy thirs infusion. I can now walk up to a mile before I get real tired.

  • You are inspiring!

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