im tall skinny got wingspan 2.5 inches longer than my body length with kinda long fingers and toes, double jointed dumbs but i dont got the weird mouth,heart,eye,concaved chest alot, and any other health problems ya think i got it
I think I might have Marfan syndrome, I have pectus excavatum, arachnodactyly, and wingspan nearly 4 inches greater than height. I can't believe no one has picked up these things on my medical check ups. But apart from all of that, I'm not tall and have never had any heart or eye problems. I pray to God that I only have a mild version if I do have it. What can I do to get a definitive answer?
You wished you had this? You are just a stupid retard!
You need huuuuuge surgery on your heart in most cases and you could get nearly blind because of this. Your body is just fucked up and your capabilities in sports are extremly small!
Thank you for posting this video. I am a 6'3" female with Marfans and no one ever knows what it is. People know about all SORTS of heart diseases that you acquire later in life, but few know of the congenital ones, such as what those of us with Marfans deal with.
omg rockabillyblank !! holly i cant believe u commented ! omg holly i love u ! aniiwaii yh as holly (rockabillyblank) saiid, my boyfriend sam has marfans and he gets made fun of all the time. i hate it. i love him so much and i admire what he has been through i love you sam xxx emma
my friend has marfans he has a hunched back and a sticky-out sternum ppl at my school think hes a freak=[ marfans can be genetic and cause lung and cardiac problems aswell as spinal low weight and brittle bones but if u have it dnt wry as long as the docs watch u and ur carefull ul be fine. i dnt think you can go into boxing or wrestling cuz of heart and chest implications... dunno ul have 2 ask ur doctor
It's characterised by extreme height and low weight as well as long, thin limbs and fingers and can cause aorta and lung problems as well as other various health issues.
my doc said i mite have marfan syndrome i don't think so im like in the state of denial. but yea can i still be in boxing?... if you can just private message me with a educated answer please
Oh and one more thing is that im suspected of having Marfan Syndrome . Im 12 years of age and im 5 feet 10 inches and my wingspan is longer than my height
oh..i`m sorry guys..i cant do anything but i want to make you strong just pray and have regular check ups..maybe someday their would be a cure for that illness..just be strong..thanks for viewing and rating us..god bless you guys..take care..we should expect what is unexpected..mybe this only a test for us..how we face it...
my 2 year old has the symptoms of Marfan but more obvious is that he also has symptoms of Ehlers-Danlos Syndrome. IDK if you can help me or not but I was curious to know if it is possible to have both Marfan Syndrome and Ehlers-Danlos. Both of these have similar symptoms so we need to do genetic testing as well as the slit-lamp test to rule out 1 or the other...so far the cardiologist thinks EDS. I think the slit-lamp test is going to be deciding factor.
While pregnant with my 5th child we learned that my husband may have Marfan. Since then I have noticed very many symptoms in my 5 year old and the last baby. So we started doing the symptoms check and even though as of yet my 5 year olds symptoms are not very strong although he does have Pectus Carinatum(idk if i spelled this right) as does my husband, and his stature also is similar to Marfan but right now he has a possible diagnosis and his doctors want to keep an eye on him.
yup it`s no cure to this sickness it is inborn according to the book you can only live mybe 40 years of age..pls..rate us thanks for viewing..thanks guys..
Actually with early diagnosis & treatment many Marf's can live to their 60's & 70's. There has been tremendous research done over the last 30 years leading to many advances giving families hope and a realistic chance for a full life. Learn more at marfan (dot) org.
WMG you can't take your money to the grave you know
TimpBizkit 2 months ago
im tall skinny got wingspan 2.5 inches longer than my body length with kinda long fingers and toes, double jointed dumbs but i dont got the weird mouth,heart,eye,concaved chest alot, and any other health problems ya think i got it
mikedatruth17 5 months ago
0:40 it's me ;(
heterandria 9 months ago
that is what osama died of in 2001
bossco24 10 months ago
i pray for all people who have this syndrom. GBU
anrooabin 11 months ago
I think I might have Marfan syndrome, I have pectus excavatum, arachnodactyly, and wingspan nearly 4 inches greater than height. I can't believe no one has picked up these things on my medical check ups. But apart from all of that, I'm not tall and have never had any heart or eye problems. I pray to God that I only have a mild version if I do have it. What can I do to get a definitive answer?
AskariWaryaa 1 year ago
You wished you had this? You are just a stupid retard!
You need huuuuuge surgery on your heart in most cases and you could get nearly blind because of this. Your body is just fucked up and your capabilities in sports are extremly small!
And you are one of those retards.
BuzzerBeater 1 year ago 5
@BuzzerBeater there no retards.You shouls speak better
Hunting4TheLight 1 year ago
@Hunting4TheLight Wait, what?
BuzzerBeater 11 months ago
i wish i had this
DanteWhite 1 year ago
@DanteWhite no you don't, it sucks. It is annoying cuz ignorant people make fun of how skiiny you are and stupid crap like that.
pacomonkey007 1 year ago
@DanteWhite you are an ars whipe people suffer from this
connorvasey1 1 year ago
@connorvasey1 thanks,,, i have marfanssss
SentimentalXSydney 1 year ago
@DanteWhite FUCK YOU FAGGOT ITS FUNNY YOU FUCKNUT PEOPLE HAVE DIED BECAUSE OF THIER CONDITION YOU SICK FUCK
CraigFCB 10 months ago
@CraigFCB i still wish i had this
DanteWhite 10 months ago
My friend looks like this O_o.. Always has looked out of proportion to me. Guess I should tell him about this, just incase?
y0user74 1 year ago
WMG couldn't contribute to the cause of educating others about Marfan? Who is WMG anyway?
.
TainaAtheist1 2 years ago 7
Thank you for posting this video. I am a 6'3" female with Marfans and no one ever knows what it is. People know about all SORTS of heart diseases that you acquire later in life, but few know of the congenital ones, such as what those of us with Marfans deal with.
AdrienneCutburthBigA 2 years ago
omg rockabillyblank !! holly i cant believe u commented ! omg holly i love u ! aniiwaii yh as holly (rockabillyblank) saiid, my boyfriend sam has marfans and he gets made fun of all the time. i hate it. i love him so much and i admire what he has been through i love you sam xxx emma
emmamariewalker 2 years ago
my friend has marfans he has a hunched back and a sticky-out sternum ppl at my school think hes a freak=[ marfans can be genetic and cause lung and cardiac problems aswell as spinal low weight and brittle bones but if u have it dnt wry as long as the docs watch u and ur carefull ul be fine. i dnt think you can go into boxing or wrestling cuz of heart and chest implications... dunno ul have 2 ask ur doctor
rockabillyblank 3 years ago
im doing a biology project on Marfan Syndrome thats due next wed.
i didnt even know this syndrome existed. well i have to make a video on windows movie maker about this. does anyone know what causes this???
CaliforniaLove93 3 years ago
what is marfan syndrome exactly??
WithDeathAngels 3 years ago
It's characterised by extreme height and low weight as well as long, thin limbs and fingers and can cause aorta and lung problems as well as other various health issues.
myxbelovedxlittle 3 years ago
Thnxxx ;)
PiSsGoBaT61 3 years ago
no worries :)
myxbelovedxlittle 3 years ago
my doc said i mite have marfan syndrome i don't think so im like in the state of denial. but yea can i still be in boxing?... if you can just private message me with a educated answer please
alexGRiM562 3 years ago
lincoln had it too
zarathoustra4 3 years ago
i have it,but this photos show really critical stage of the sickness,mine is the lowest possible.and i really forget to have it.
ciao51 3 years ago
Oh and one more thing is that im suspected of having Marfan Syndrome . Im 12 years of age and im 5 feet 10 inches and my wingspan is longer than my height
MrTonySantana 3 years ago
If you do have it, dont worry, as long as doctors watch you, you're fine.
rot0001 3 years ago
oh..i`m sorry guys..i cant do anything but i want to make you strong just pray and have regular check ups..maybe someday their would be a cure for that illness..just be strong..thanks for viewing and rating us..god bless you guys..take care..we should expect what is unexpected..mybe this only a test for us..how we face it...
vanhelsinghellareyou 3 years ago
@MrTonySantana my brother just died of marfans syndrome so ime glad you posted this vidio so other people can see what we see
connorvasey1 1 year ago
Abraham Lincoln doesn't have Marfan Syndrome but it is suspected that he had because of his large stature . But it hasn't been confirmed yet
MrTonySantana 3 years ago
my 2 year old has the symptoms of Marfan but more obvious is that he also has symptoms of Ehlers-Danlos Syndrome. IDK if you can help me or not but I was curious to know if it is possible to have both Marfan Syndrome and Ehlers-Danlos. Both of these have similar symptoms so we need to do genetic testing as well as the slit-lamp test to rule out 1 or the other...so far the cardiologist thinks EDS. I think the slit-lamp test is going to be deciding factor.
Camay74 3 years ago
guys..after you view pls. rate for us thank you guys god bless you all!!
vanhelsinghellareyou 3 years ago
God bless you too! :)
NikeMessy333 3 years ago
While pregnant with my 5th child we learned that my husband may have Marfan. Since then I have noticed very many symptoms in my 5 year old and the last baby. So we started doing the symptoms check and even though as of yet my 5 year olds symptoms are not very strong although he does have Pectus Carinatum(idk if i spelled this right) as does my husband, and his stature also is similar to Marfan but right now he has a possible diagnosis and his doctors want to keep an eye on him.
However,
Camay74 3 years ago
sad!:'( really docturs can't do smth to get out this ms?!:(
NikeMessy333 3 years ago
yup it`s no cure to this sickness it is inborn according to the book you can only live mybe 40 years of age..pls..rate us thanks for viewing..thanks guys..
vanhelsinghellareyou 3 years ago
Holy shit... 40 years?! I have marfan syndrome!
rot0001 3 years ago
@vanhelsinghellareyou
Actually with early diagnosis & treatment many Marf's can live to their 60's & 70's. There has been tremendous research done over the last 30 years leading to many advances giving families hope and a realistic chance for a full life. Learn more at marfan (dot) org.
teckiemom 1 year ago
Whats the name of this song? *tears*
5fingersolo 3 years ago
yup your right!!sory if super late to responce to your question..pls. rate our video..mybe soon we will make another..
vanhelsinghellareyou 3 years ago
wzruszyłam się : )))))))
morfinka 3 years ago
thank you...
vanhelsinghellareyou 3 years ago
its cool..
jeralv17 3 years ago
thanks for giving us comments and ratings..
vanhelsinghellareyou 3 years ago