YouTube - Broadcast Yourself.

I was born with Sickle Cell Anemia as well. I'm 25 years old. The pain is very bad, it's undiscribable. I'm on alot of pain meds as well, I take Oxycodone, Morphine and Motrin. When I'm in the hospital or ER they give me dilaudid through the IV. This illness is very serious and very painful.

MsLafaye100 10 months ago

@MsLafaye100 hello im a 19 year old male also with sickle cell disease and actually going to a sickle cell awareness meeting in the bronx this morning but im just wondering do you have other symtoms cause i have most of the things that can go wrong with you having sickle cell for example my hip collapased and couldnt walk for about a year and now my hip is metal and it would be impossible to name all the things wrong with my body because of sickle cell in one comment

chokoboy5578 4 months ago

@MsLafaye100 also i just want people to know that its not just a pain disease its MUCH! more than that i know that you know that but most sicklers just mention the pain (and the pain is bad enough) for example my puberty/growth (as im sure yours is or was) is stunned so at 19 i look (most people guess) around 14 or 15 and people sometimes guess younger and that is the easiest of the symtoms i also would like to talk to you further cause i dont meet many people like me

chokoboy5578 4 months ago

This has been flagged as spam show

[From the website: World Without Cancer : Vitamin B17 and Sickle Cell Anemia: The successful use of cyanates in the control of sickle cell crisis has been indicated clinically and experimentally. Thiocyanate, an intermediate product of the metabolism of Vitamin B17 is thought to be the active component. The recommended daily supplementation of Vitamin B17 is 50 to 100 m.g. for small children and 250 to 500 m.g. per day for the adult sickler.]

LovingKimiKatkar 1 year ago

My friend is in the hospital with sickle cell

JesusGirlz09 1 year ago

your a fucking asshole really i mean if your white your prone to more diseases than black people. And white people are usaully dirty ass hillbillys so your your probably gonna get a way worse disease so fuck you dirt bag

TheFunnymonkeys4 1 year ago

you have to use the transfer factors I hahe a friend after use for 21 day now his blood level is 10.5

(310) 701-4609

4liferudy 1 year ago

@4liferudy what is the transfer factor?

DBJCRoyalty 5 months ago

@DBJCRoyalty well im guessing your asking how do people get sickle cell well it comes from your parents who both have to atleast have 1 sickle cell gene this is called the sickle cell trait having 2 is the full blown disease now the trait usally has little to no syptoms but can be carried in a person and if that person has (sexual) relations with another person they do not transmit it like an STD (continued))

chokoboy5578 4 months ago

but if the person they had the relations with also have the trait and they reproduce offspring then that offspring has a 25% chance of obtaining sickle cell disease granted if both parents just have the trait if both or just 1 parent has the disease the chances becom higher now an example my parents both just had the trait my mom gave birth to 5 children 2 (including me of course) got the disease 2 got the trait and 1 nothing and the 1st child (born 1972) died from the disease

chokoboy5578 4 months ago

i was born with the same thing .. (im not lying like some of you..)

And the doctors and nures dont make it any better, all they do is drug me up with morphine and other narcodics until im to sleepy and drowzy to think about how much pain im going through..they do that every 3 or 4 hours around the clock ... SOME PEOPLE DON'T UNDERSTAND HOW BAD THIS CRAP HURTS!!!!!!

GNCJ4427 1 year ago 6

@GNCJ4427 are u african american? iam too jsut wondering

trini4eve9 1 year ago

@GNCJ4427 cause it's mostly present in african americans, and the people i know have it are african americans

trini4eve9 1 year ago

@trini4eve9 what you say about sickle cell is some what true but 1 not mostly present in african americans which is (for some stupid reason) used as a broad term for black people its mostly present (but not exclusive) to blacks in general but the origins are in mediterranian areas such as north africa italy and so on because malaria was prominant in those areas and the sickle cell trait (or the single sc gene) and because people had kids with other people with the trait the disease developed

chokoboy5578 4 months ago

@trini4eve9 and also ive met white people of usally mediterranian (ie greek italian etc) decent with sickle cell so so your observation is only partially correct

chokoboy5578 4 months ago

@chokoboy5578 ok but still mostly present in african americans though. thanks for your rersponse tho. have a good day

trini4eve9 4 months ago

i know how feel . i some Day the cure for this will be found. Please keep strong

omposa 1 year ago

sickle cell is very rough, for the people who do not understand the pain that we suffer. it's so unbearable i would not with this suffering on my worse enemy. i've been dealing with this illness for 40 yr and i've been thru all that this illness can thru my way. from surgeries plenty of those now i'm going thru the hip problems which needs to be replaced real soon.

robarr39 2 years ago

would you like be free of Sikcle Cell Anemia. I Know How!

4liferudy 2 years ago

@4liferudy how? i have sickle cell and i dont want to be in pain anymore so please tell me how

misskaff 1 year ago

@4liferudy HW

Nicesgirl1236 1 year ago

My farther has Sickle cell, I've had to watch him go threw a lot, I've been tested for Sickle cell but guess what...the hosptial lost my blood twice! so I've got to go for a next one, my heart goes out for all of you who have suffered from this, I just pray I don't have it, plus it's not just me is it, it's the next generation aswell.

Masuie14 2 years ago

She's pretty.

OBLIZOX 2 years ago

hye im from france and i have sickle cell i'm 22 and that's true that to live with this illness is hard, but is needed continued and not lache me I am under hydrea and I have in practice pluis of crisis I was not the hopital for 8 months and it is necessary to drink so a lot I drink three big bottle a day

samsungbx 2 years ago

I feel you pain sister.hang in there.

blknproud 2 years ago

i have a sickle cell anemia tooand im always havin problems at school because im sickk so much and miss alot any advice?

lightswicth1 2 years ago 5

@lightswicth1 ....I have nothing new---carry your water,drink,drink,and drink.......take the meds soon as the pain begins to try and take the edge off..... and pray if you are

the praying type.....reach out and get emotional support,talk about it.

cherylleone 9 months ago

Always buy a electric massager & get someone to massage your pain to relieve & circulate the blood, go to Hospital in emergency stay to them I am having a Sickle Cell Crisis. If you have this disease you must marry someone with Both cells Normal so your baby will have a 100% chance in having one Normal Cell which is great.

wistleblower2 3 years ago

People who are Black African, Indian, Mediterranean some Asians must have a Blood Test at age 13 or before starting to know your girl/Boy friend, The Doctor should tell you's not to get to know each other. There are two cells which should be both Normal Cells Nor/Nor. In Anemia persons it could be An/Thal. An/Nor. Nor/Thal all different level too. When you get pain its called sickle cell crisis. Drinking of water helps to stop the Blood cells from sticking but need to go on a IV drip.

wistleblower2 3 years ago

i have the same diease but it doesnt effect me cuz all my life no1 would guese that i have sickle i just wanna no why?

LSweetie02 3 years ago

This comment has received too many negative votes show

how about you realize that the world is bigger than your race, and you are a shitstain on the history of the world at large

everyone here is just laughin at you clown

eclay52 3 years ago

or better yet we could strap your ass down and experiment on you. the greatest use you could be would be to kill yourself and donate ur body to science, u degenerate fucktard. grow a pair of balls and sprout a dick u lil bitch

eclay52 3 years ago

You are just hating on her because she has a life you red neck

Vallarie888 3 years ago

yo eclay. u not refering 2 elise are u? cause I'm just trying 2 understand your point b4 I comment.

elizabethannbo 3 years ago

of course not, that was for that nazi fucktard

eclay52 3 years ago

thanks 4 clearing that up. respect

elizabethannbo 3 years ago

I Suffer from the same disease i know your pain, don't worry God is good.

RomeBEn20 3 years ago

Thank You Very Very Much Elise for your touching testimony. After I watched the 12 parts, I just wanted to say that, even if i'am French, you speak very well about pain and I can feel you're brilliant. I'm sure you've got a lot to do in the future. Hold on.

I belong to a small french association(Le Sourire de Sélassé)which help in Togo(West Africa)people who've got sickle cell disease to have some drugs free to help them to live with this disease. I'll share your videos our next website.

Yves

youennLSS 3 years ago

where can I buy the whole thing ?

austinboy91 3 years ago

I have sickle sell too im 15 and looks like im 12 becouse i have not gone through puberty yet.

ginogingig 3 years ago 3

check out my channel (Sickle Cell Forum)

SickleCellForum 3 years ago

i know its tough, but don't worry -- you'll still get there

bfrogm 3 years ago

New Medicines

New medicines being studied are: * Butyric acid. This is a food additive that may increase normal hemoglobin in the blood. * Clotrimazole. This is used now to treat fungus infections. This medicine helps prevent the loss of water from a red blood cell and can keep the cell from turning into a sickle cell. * Nitric oxide. This may make sickle cells less sticky and keep blood vessels open. People with sickle cell anemia have low levels of nitric acid in their blood.

YOLii777 3 years ago