@StacyBooRN : Hi Stacy, so glad to meet you! Thanks so much for joining the Team....you are here at a pivotal time when dysautonomia awareness is sailing to the skies! I have POTS but I must say that it is better than it was 5 years ago. I think many people are praying for me :-). .. and I just joined up with Lynn Fox Adams, dysautonomia1. Website for Deliver Me Ministries dot organism....up for 2 days only!
@DysautonomiaMD - Margaret, I am sorry to hear that. true friends will stand by you no matter what. Keep your head held high, you are a highly intelligent human being and your soul is pure.
I've watched this video once or twice before and have felt badly for you, but at the same time, was very impressed with your strength and determination to bring about the awareness of Dysautonomia to not only the medical community, but to the whole world. As I watched you this time, I felt a special spiritual connection between us and it actually choked me up a bit. I am in here with you for however long it takes......
I can't imagine going anywhere without you....we are all together in this and 2010 is going to be an Avalanche!!
2010 = The Year of Accomplishments
MikeyIsWithUs2010
P.S He would perhaps welcome the opportunity to be our Dean of the Medical School? I think his CV (curriculum vitae) is...56 pages long? Francis Michael Ferrante, M.D.
When I went to check on your husband's CV, I stumbled upon your achievements and what an impression on me it made. You are one brilliant physician and I knew of some of your credentials but after reading the info on Google, I realized how the Lord has used your intelligence to minister to so many. I did also read your husband's CV and I have to say, I consider it an honor to call both of you "friends" and brother and sister in Christ!
Dear Maggie: I owe you a better answer than my first dumb one.
Pick garlic, ran away, shoplift and became doctor, that tells me you are strong, able and determined, your will to survive hinges on the love for your daughter, your strength comes from knowing God and music gives you pace, you cry in the dark listening to music sometimes, forgive me being blunt and I'll make it good to you if I am wrong, God loves you.
I reached my 'wall' at 3 am yesterday morning....just about the time I received many Invites and prayers...it was simply surreal to see how fast God works!
If you "YouTube" Search now, "d" "y" "s" now leads to:
"Dysautonomia", "Dysautonomiamd" and "Dysautonomia POTS"...if you keep typing, you also get familial dysautonomia. The computer must be keeping track! Our numbers are growing and/or something NEW has happened! Am I the only one who noticed? I just noticed it today. LOL to all, Dr M
Thanks for making this video, it's very good and so 'real' due to being out of the house. It's a great idea to run for president. I can see it'll be a huge struggle to do that due to your condition but also a great achievement. Even if you cannot be president (for whatever reason), these videos you make here online are a achivement in their own right. Well done.
We all need encouragement and the satisfaction that this is a real medical disease. My book is almost ready to come out. I have YouTube subscribers from the USA, the UK, and Canada. We need other countries! Calling all countries! Calling all friends and families in all countries!
I've suffered just like the rest of you. No doctors seemed to believe me, and believe me. I know what that feels like, from a physician's perspective. Not a pretty scene. Arguments with nurses, ER doctors, ER nurses, cardiology nurses, radiology technicians, etc. Keep on Ticking!
you are an angel dear. So good to see you out too. Please let me know what i can do towards the goal of curing or at least treating dysautonomias. i am too sick to do a lot but i really want o do something to help. Do your doctors take you seriously? I used to pray that mine would get POTS so that he would get it but then I wondered if he would be taken seriously ?
Well, you did find a doctor who got dysautonomia, and that perhaps is just what we need right now. Hmmmm.....How can I help? Keep following my videos; guidance will come in time, as I learn more and more about this and related diseases. Thanks for watching my site. Highest Personal Regards, Dr. M
hi margaret, i saw your video, as i promised you while talking to you on the phone from premier bathrooms. I am also on facebook, riz khan. wish you all the best in life.
The salesman perhaps did not realize where/what kind of model will fit in my bathroom; thanks for your help and perhaps this was just meant as our way to meet. Thanks for following my site and learning more about Dysautonomia! Highest Personal Regards, Dr. M
Margaret, do you know what type of dysautonomia you have? You don't have "pure autonomic failure" do you? Thinking of you!
StacyBooRN 1 year ago
@StacyBooRN : Hi Stacy, so glad to meet you! Thanks so much for joining the Team....you are here at a pivotal time when dysautonomia awareness is sailing to the skies! I have POTS but I must say that it is better than it was 5 years ago. I think many people are praying for me :-). .. and I just joined up with Lynn Fox Adams, dysautonomia1. Website for Deliver Me Ministries dot organism....up for 2 days only!
Thinking of you, too! Let's keep in touch!
Dr. Margaret
DysautonomiaMD 1 year ago
you are a strong woman. it also helps when there is family around. thanks for sharing
TheDarksEmpyrean 2 years ago
I lost most of my family...no one visits me in the hospital...too many times in the hospital..no one has a perfect life.
Lost most of my friends, too.
Replacing them with people like you :-).
DysautonomiaMD 2 years ago
@DysautonomiaMD - Margaret, I am sorry to hear that. true friends will stand by you no matter what. Keep your head held high, you are a highly intelligent human being and your soul is pure.
TheDarksEmpyrean 2 years ago
@TheDarksEmyrean:
I'm glad to have you in my life.
I thank God for you.
Endlessly, and unconditionally. Always here for you. :-)
Margaret
DysautonomiaMD 2 years ago
Hi Margaret,
I've watched this video once or twice before and have felt badly for you, but at the same time, was very impressed with your strength and determination to bring about the awareness of Dysautonomia to not only the medical community, but to the whole world. As I watched you this time, I felt a special spiritual connection between us and it actually choked me up a bit. I am in here with you for however long it takes......
Love from your Brother In Christ,
Jeff
jd450lh 2 years ago 2
I can't imagine going anywhere without you....we are all together in this and 2010 is going to be an Avalanche!!
2010 = The Year of Accomplishments
MikeyIsWithUs2010
P.S He would perhaps welcome the opportunity to be our Dean of the Medical School? I think his CV (curriculum vitae) is...56 pages long? Francis Michael Ferrante, M.D.
Check it out.............2010 is on a Roll!
To God be All the Glory,
Margaret :-)
Please do welcome my husband to YT, and ....
...:-)...pass it on to everyone!
DysautonomiaMD 2 years ago
When I went to check on your husband's CV, I stumbled upon your achievements and what an impression on me it made. You are one brilliant physician and I knew of some of your credentials but after reading the info on Google, I realized how the Lord has used your intelligence to minister to so many. I did also read your husband's CV and I have to say, I consider it an honor to call both of you "friends" and brother and sister in Christ!
Don't worry, I'm in it for the long haul!
In Christ,
Jeff
jd450lh 2 years ago
Give Margaret music.
THX1138x29 2 years ago 3
How sweet.
How did you know that your words would pierce my heart?
Thank you, "Dr. Maggie" "Dr M" "Margaret"
Your Sister in Christ.
Each day is an Accomplishment.
DysautonomiaMD 2 years ago
I read you like a book, your most interesting and well written book.
Mischevious Self THX
THX1138x29 2 years ago
Same here. Poke. :-)
and thank you
DysautonomiaMD 2 years ago
Likewise
THX1138x29 2 years ago
Dear Maggie: I owe you a better answer than my first dumb one.
Pick garlic, ran away, shoplift and became doctor, that tells me you are strong, able and determined, your will to survive hinges on the love for your daughter, your strength comes from knowing God and music gives you pace, you cry in the dark listening to music sometimes, forgive me being blunt and I'll make it good to you if I am wrong, God loves you.
Mischevious Self
Love
THX1138x29 2 years ago 2
Sorry, I spell it wrong, there is another "e" in peace, Its three AM.
THX1138x29 2 years ago 2
I reached my 'wall' at 3 am yesterday morning....just about the time I received many Invites and prayers...it was simply surreal to see how fast God works!
I thank God for Each One of You.
DysautonomiaMD 2 years ago
If you "YouTube" Search now, "d" "y" "s" now leads to:
"Dysautonomia", "Dysautonomiamd" and "Dysautonomia POTS"...if you keep typing, you also get familial dysautonomia. The computer must be keeping track! Our numbers are growing and/or something NEW has happened! Am I the only one who noticed? I just noticed it today. LOL to all, Dr M
DysautonomiaMD 2 years ago
Thanks for making this video, it's very good and so 'real' due to being out of the house. It's a great idea to run for president. I can see it'll be a huge struggle to do that due to your condition but also a great achievement. Even if you cannot be president (for whatever reason), these videos you make here online are a achivement in their own right. Well done.
luminescentfeeling 2 years ago 22
You are a leader in this Cause, which will one day benefit many. Thank you for being yourself. You are wonderful.
Highest Personal Regards, Dr. M
DysautonomiaMD 2 years ago
We all need encouragement and the satisfaction that this is a real medical disease. My book is almost ready to come out. I have YouTube subscribers from the USA, the UK, and Canada. We need other countries! Calling all countries! Calling all friends and families in all countries!
DysautonomiaMD 2 years ago
I've suffered just like the rest of you. No doctors seemed to believe me, and believe me. I know what that feels like, from a physician's perspective. Not a pretty scene. Arguments with nurses, ER doctors, ER nurses, cardiology nurses, radiology technicians, etc. Keep on Ticking!
DysautonomiaMD 2 years ago
you are an angel dear. So good to see you out too. Please let me know what i can do towards the goal of curing or at least treating dysautonomias. i am too sick to do a lot but i really want o do something to help. Do your doctors take you seriously? I used to pray that mine would get POTS so that he would get it but then I wondered if he would be taken seriously ?
lednugenna 2 years ago 22
Well, you did find a doctor who got dysautonomia, and that perhaps is just what we need right now. Hmmmm.....How can I help? Keep following my videos; guidance will come in time, as I learn more and more about this and related diseases. Thanks for watching my site. Highest Personal Regards, Dr. M
DysautonomiaMD 2 years ago
hi margaret, i saw your video, as i promised you while talking to you on the phone from premier bathrooms. I am also on facebook, riz khan. wish you all the best in life.
hamzakhan123 2 years ago 22
The salesman perhaps did not realize where/what kind of model will fit in my bathroom; thanks for your help and perhaps this was just meant as our way to meet. Thanks for following my site and learning more about Dysautonomia! Highest Personal Regards, Dr. M
DysautonomiaMD 2 years ago