Thank you for sharing Devon's story and giving me a better understanding of the disease. This documentary has helped me understand how to treat a child with this disease while I am studying to become a dietitian. I am praying for Devon.
Brief update on how Devon has been since this video was first uploaded. She is now 14 years old and just graduated 8th grade. This fall she starts high school at Delran. Health wise she has had her ups and downs but her positive attitude has outweighed the negatives. For anyone who has this terrible disease follow in the footsteps of Devon and realize one thing. This disease does not define the person. It is what that person does in the face of adversity that defines the person.
Heya, im a person from ireland with CF and were doing a facebook event to raise awarness of Cystic Fibrosis and also to get a Guinness World Record, if ye all could join and spread the word it would be great. just type into facebook "make cystic fibrosis aware by trying to break a world record". All support would be very greatful
my 5 month old daughter has cystic fibrosis, she had 26 cm of her intestines tooken out for a intestinal malrotation. she weighs about 12lbs now and so far is doing fantastic. i hope they find a cure in her lifetime.
@hopeandwork How does a feeding tube do anything but help? I've had a G tube for most of my life and it does more good than bad? And how is pulmozyme poison lolol.....I've had pulmozyme for most of my life too and I do better with than without, it depends on the person.
My son is two years old and has cystic fibrosis. We are Orion's Army and are striving for a cure for cystic fibrosis. Please join us on facebook if your'e serious about helping to find a cure. Write to me if you're interested.
@HaterzHere but in most cases, those parents don't know they have those genes. you should read a bit about biology and genes before you say that! actually, it's the system's fault, because it does not provide the necessary tests so that each and everyone of us knows one's genes.
my 9 year old has it and ive recently found this social outlet for here there are vlogs about our home family if your intersted....love to see you! plz sub. im ditalydo
hi people, may i know....form those who are knowledgeable in CF...
does digestive enzymes prevent the indigestion problem...like no more constipation.and better absorbtion of fat soluble vitamins.
this is beacause,i think i have lived with cystic fibrosis.since yound, i have suffered from constipation and had respiratory problems.almost every week i have had to go for a 20 min long inhaler theraphy.where the substance expands my lungs...till today, constipation acne and breathe problems.
Hey everyone, I'm prescribed 240 80mg Oxycontin's and 180 2mg Xanax bars a month for my cystic fibrosis and am willing to help anybody out who is in pain and needs some meds for cheap but can't afford a doctor/medicine for whatever reason. I get them covered by my insurance but in the past have had to pay for it myself and know how expensive they can be! I have a lot leftover which I'm not using and would love to help a fellow pain patient out so send me a message if interested. Thanks...
Help find a cure for this! GET FAMILIAR. Life expectancy av-30yrs. Lung transplants are not a cure. Raising awarness 4 funding research towards a cure is the only way. Get involved! This is such a rare genetic disease w/ only 70,000 cases the world over. The USgov provides little to no help to these families. If you are looking for a noble cause to get involved in u have found it in CF! I have never been so humbled, touched & motivated by anything in my life. B more alive & help & save lives!
I am a computational scientist and cystic fibrosis researcher, let me say that I know there will be NO cure for CF until we learn how to COMPUTE complex biomolecular systems. No ability to compute, no cure, period. The good news is I've discovered just how this CAN be done! I am working to get this tech accepted in the scientific community so we can get down to curing this disease. If you want to learn how human genome project WILL lead to cures, visit my channel. I have an answer. God bless.
im 29 and have been diagnosed with CF from the age of 1. the one thing i can say to people here is dont let CF get u dwn, its something we must control and put up with but never let it dictate life!! those days when the lungs feel free, live life to the full, enjoy it! one thing ive noticed bout CF sufferers is that we all have the same smile on our faces, never let anything get us down! Im running a marathon in dublin in oct, if i can do it so can u!! Keep fighting and never give up!!!!
I have also got CF, im 28 now and have lived with it from birth. Its possibly one of the hardest diseases to keep fighting all the time, but it CAN be done. I am a qualified ski instructor, personal trainer, and had a tennis scholarship to USA. The only advice i can give, is make your mind strong, keep pushing urself on a day to day basis, and try to stay calm and positive, no one actually has an EASY life, just different levels of difficulty!
I have CFRD (cf related diabetes) and am looking for a tablet instead of insulin - do you have any suggestions? I would be very thankfull if you helped me! - I'm 14
I dont have CF but i am a senior in high school and i want to go to college to become a pulmonoligist who will specialze in CF. I think that this family lives me, since the mother has a gwynedd mercy swaetshirt on!!
hello everyone i am 12, i have cf fr 10 years... it takes alot of time out of my life but i pull through... my sister in 10 and she has had it for her life so far... my oler brother is the only one without cf. we eat alot and go for check ups often, my uncle has cf and is 40-45 im not sure... he doe not use the vest. he isnt very health but h is pulling through. i weigh 125 pounds and my sis is 70 pounds. we find if we are on an angle it helps the mucuse flow out of us. KEEP FIGHTING CURS WILL B
I'm 17 and I've had CF since I was a baby. Luckily I am healthy even though I do have to have check ups every 3 months. I also don't have trouble gaining weight anymore. I did when I was younger but not anymore =] I try to make my life as normal as possible and I can do mostly anything anyone else can do
I have CF didnt find out till i was 3years old. Now i am 17, CF stops me from doing more things than i would like but its life and im getting through it! I would not let my doctors give me the feeding tube tho, im in hospital 3times a year but i refuse to bring the pump home because i dont want my home feeling like a hospital bed. I am happy with my weight and i drink fat shakes to put the weight on...
My mother is 58 with CF. My family almost lost her 7 years back before we had the vest. The vest and meds have extended her life. You just can't get as good of results from pounding on the back, as you can get with the vest.
The doc said she could not have children but she was able to have 2 and here i am. That was back in the 70's so Im glad to be alive.
Keep fighting and live healthy. There are more and more people getting to their 60's with CF.
i have CF i am 15 years old i survived the mexican flu (lucky me XD) and i freerun alot in my spare time and hang out with friends i would say do with your life what you want to do cause you might regret it later when you're older that you didnt do it
ah well hope they will make a cure for CF in 10-20 years (or shorter) i would cry out in tears cause of the hapiness cause that would be a medical miracle ;3
i have cf and it was found out through a sweat test when i was 8 months now im 14 and have only had to go in 4 2 weeks 4 times and apart from little things am going strong! =)
I have cf too... I am twelve years old and have done everything I can to stay healthy and I am. I have luckily only been ammited to the hospital once so far. I am also lucky that I am very capable of gaining weight. I actually want to lose some. I am five foot and I luckily weigh 125 lbs. Good luck with life. Stay strong. Be active. Love life. Be happy. Marc
Thank you for an insightful look into the daily routine for a child with CF. My 8-week old daughter was diagnosed through an amnio at 17 weeks pregnant...we will begin breathing treatments this weekend and she's been on enzyme's since 2 weeks. I now have a better idea of my future and realize it's totally 'doable' - thank you! Stay strong Devin!
i'm 18 and got cf...they're working on a cure atm in my hospital and i'm really excited...i have really reactive airways and am usually really tight, so physio is a problem for me and so are all the mainstream nebs...so hopefully there'll be some new stuff soon =]
i have cf and i do 5 nebulizers a day, 45 min treatments 2 times a day, and i take 36 pills on and average day. luckily i dont have a tube yet. I HATE GETTING UP SO EARLY.
I have cystic fibrosis, and I have to take 4 huge enzyme pills before each meal, do 2 nebulizer treatments every day (approx. 1 hour) and I eat like a horse and only weigh 100 pounds.
Stay strong, I am 13 years old, and I feel your pain.
My god I can't comprehend what you go through on a daily basis. The only way I can understand it is that I get strep throat sometimes (a virus stuck in my throat) when I travel or get the flu bug in winter and so I have to cough all the time to get that yucky mucus out. But other than that I don't know how you get through it every day for the rest of your life.
hay, we are pretty normal but we go through more than the usual person. its so hard to understand wat we got through with out having it. i didnt get diagnosed till i was 4 and i dont know i lived that long becuz that is have the average lifetime of a cf child before they cam uo with vest treatments. there is something at childrens hospitals where they can simulate the feelings and give u the treatments.
I found a website that sells colloidal silver really inexpensive. Its double the product for half of the price. Check it out sacredcolloidalsilver (.com) When your looking for the answer...it's just a click away.
I wonder how much this girl weighs??? She looks pretty healthy. I dont know if a feeding tube is necessary... but maybe the feeding tube is why she looks healthy.
This movie helped me assemble a research paper about Cystic Fibrosis for my health class. In the meantime, it has made me realize the significant difficulties of this disease. Nice job!
This video is really well done! CF is such a heartbreaking disease, but the doctor mentioned a sparkle in Devon- I think that is true with many people facing such a hardship. My ex-girlfriend has CF and she is one of the most resilient, well-spirited people I have ever met. Hopefully medical advancements will make finding a cure a reality very soon, but until then- hang in there, Brittany! <3 And Devon, and everyone else with this- hope is on the way!
I can't believe you go to all of these cf videos and post this crap.. You need to educate yourself on this disease before you post your "mold" diagnosis on this disease.
you have no idea what you are talking about. People are born with CF, they do not develop out of the blue from mold. We appreciate your comment though, thank you for the input.
Multi-vitamins will not help her gain weight. She needs extra calories to gain weight. Any vitamins that are taken in excess ad are not needed by the body will be excreted in the urine. It would not help in her case.
Haha. Trust me it doesn't work. I have CF and all I do is pretty much do is add cheese and cream and other fatty things to all meals. IT would be nice if it was that easy though. :)
My younger brother, age 24, was born with cf. He has had several surgeries and has been through several experimental treatments. My brother is an unusual case in the respect that he is fairly healthy. He grew to be over 6 feet tall. There really needs to be more research done on CF and the treatment of it, tho the medical community has come a long way since his birth.
My niece age 20 just passed away November 18 from Cystic Fibrosis. We need to work on finding a cure so that no family member has to go through what our family just went through watching her die. Let's get the word out that we need to keep working on finding a cure!
My sister has CF. She doesn't have a problem with eating or gaining weight, but I remember when she was first born, she had to have an eating tube, but she also does the vest. She usually doesn't mind doing her "treatments" because she knows she can play on the computer, watch TV, read a book...etc.
I just hope they do find a cure sometime in her lifetime.
Thank you so much for sharing Devon's story. I had no idea what CF was and how it was treated before I watched this video. You have a strong and beautiful little girl! I wish you the best!
I have a son that has CF. We are right now deciding if he needs a feeding tube. Thank you for this video it helps! All we do is talk about eating and how much he is eating. It is driving me nuts!
I know how you feel. Before Devon got her feedking tube it was a constant fight to eat. I remember her nurse saying eating should not be a fight. It was probably one of the hardest decisions I ever had to make but she is thriving so much better with the tube and there are less fights. I am glad she got it. She looks great and has put weight on.
i cant because im in puerto rico in the central medical that was here the area that was for especially for the sweat test and everything for cf got cancelled and in puerto rico that was the only one ,do u think i should move to united states to get more medical atentions?
Oh, and instead of the vest, she should use somthing called an "acapella". It makes less noise, and works a lot better and more efficiantly than a vest. and they look better! They come in different colors! Best of luck Devin! -Alex
Devon does have the acapella. She only uses it when she sleeps over someones house or when we go on vacation. She likes it sometimes but has gotten use to the vest.
I havent even met her, but I already literly love her! I have a wicked cold right now, but I watched this and it may be more uncomfortable at times when compared to cf, but in the long run i would rather have a cold! I look forward to another video about her! pLease post one soon or i would be really sad!
Devpn is an awesome kid. As you can see in the video she will do anything that she sets her mind to. CF will never get her down. As her mom I get my strength from Devon. She goes through so much everyday. She does not tell people about her CF because she wants people to like her for herself, not feel sorry for her. SHe is definitely an inspiration to everyone that knows her.
im 13 years old and i take all that stuff that i mentioned but i still have questions ive search internet but i cant undrstand why they say that people with cf have to have some pills about something of the calories or something like that???i dint took them but now im not skiny im fat because i dont do excersice but everyone say that the kids with cf dont have too much weight can u explain to me everything about it is that my parents told me i had the cf but dint explain to me wat is cf i dnt no
I am not sure what pills you are talking about. Do you mean enzymes? Devon was skinny but that it because she always had problems putting on weight. She has a feeding tube that helps her put on weight. You should talk to your doctor or nurse about CF. They will be able to answer all your questions. You can even check with the social worker at the CF clinic where you go.
Devon does not have asthama but she also does advair. Devon has alot of the digestive problems. SHe takes zantac and other stomach medicines. She takes close to 30 pills a day, does 2 nebulizers and 2 inhalers every day.
i have cf too , its really hard u know having this condition i have to take 3 times a day pulmozine, tobi and a machine called ''the vest'' its hard with that machine sometimes i bleed through my nose and i always have pain somewhere in my body its really sad...:(
CF is definitely hard. I do not go through what Devon does but as her mom my heart brakes for her everyday. Stay positive and keep up with your treatments and meds. The most important thing is never give up. When Devon does the vest she watches tv and tries to take her mind off it. Sometimes me and her will play cards or games during her vest therapy.
I was diagnosed with CF a year ago, I was 20 years old. I thank to people that all these years have been working on new treatments and improve the life of people with CF. I'm something of a sports freak, and I've been done an half-marathon a couple of years ago. I've done TOBI for one and a half years and colixin for 8 months. Now I only use Pneumosime and respiratory exercices, since my lungs no longer have pseudomonae colonies.
ive always hated the vest, it vibrates me nose, and i cant stand it, but i currently use the pep, and im trying something called acapella, its like the pep mixed with the fludder (flutter?) and i use the eflow for nebulized treatments, and i strogly suggest getting an eflow if you can, its pretty convinieant... but yeah, im amazed at some of these younger kids with cf, with the great strength and strides they make, its very inspiring, and i feel very inadaquite???
Do you think she would be that way without CF? No.
She is sets an example of strength for people around her. It would not be possible without CF. You should thank her for the sacrifice she does for you to accept to live with this disease. She should also understand how CF becomes a gift by thinking that it allows her to change people's life on a great scale. Just listening to the nurse, I'm sure that she has changed the way she sees life.
Doing so will allow her not hope so much for a cure and it will allow her to accept that the purpose she has implies that she must have CF to fulfill it.
My brother Jerry, my brother Benjamin, and my sister Rebecca all passed away from CF. Thank you for this video and Please, please please everyone donate to the cause of finding a cure.
OMG thankyou sooooooo much for that information I am in year 8 and in health we had to choose a topic out of about 20 choices to start an assignment on and this video pretty much explains everything clearly to me. You are the best 5/5!
I have CF aswell. It's tough to live with. I don't have the vests, or nebulisers(SP). My doctor says I am extrmeley fortunate in my symptems. Only thing I have to do is take my pills with my food. Not a single day goes by that I don't consider myself fortunate. When I was born my parents were told I may not make it past my 6th birthday. I'm 18 years old and play competetive Hockey. Everybody with CF, just be strong and keep fighting the good fight!
I'm extremely fortunate. I do have CF, but it's not that bad for me. My lungs are as strong and clean as a normal person's. I do have a little more miucus than a normal person though, just not enough to need to do treatment. Could be due to the fact that as a kid, I always jumped on our trampoline. I did everyday for up to an hour a day, so that could have just doubled as fun, and as a treatment.
i had a dream about me being a doctor and someone telling me she needs cystic fibrosis, and it had something to do with her intestines. who this woman was i dont know, what really freaks me out is the fact i had never heard the word cystic fibrosis until i had that dream. i thought maybe i had heard it on the tv, but when i woke up the tv was on mute. why am i telling you this? because this video explains to me what it is. it freaks me out when i have these type of dreams....
i have CF nd i have my nebuliser exactly like she does bt i dont were the jacket..i hat ehaving it bt i have to live with it nd i hope everyone else out there with CF have a happy life. =]
I am having a son on monday who has been diagnosed with CF due to the abstruction in his intestines. Thank you for sharing this life with me, I am so very grateful.
If your child does have CF. Please, make him/her do ALOT of excersize, don't let your baby have any games consoles or anything of the sort. I have CF, and now I have gotten addicted to technology, and because of my mistake I am going to die young. I stop doing my treatments to do whatever on my console/computer. I am only 15, and doctors have predicted a couple of more years for me to live. Wish you the best of luck with your child.
hi thank you for making this video. It inspired me to make my own for my little girl. So thank you...'
Also to Devon my daughter Tori loves watching your video. She likes being able to see there are other kids like her. She is totally amazed that you play soccer with a g-tube.
To Tori, hi this is Devon's mom. Just wanted to let you know that Devon also has done cheerleading and just finished playing basketball. She does not let anything stop her from doing what she wants to do.
The little girl in the video is my cousin. By the way she acts and being around her my whole life you would never know she has cf. Its tough seeing what she has been through but I believe it has made her stronger and I think she will live a long life because of the type of person she is. I wish you the best of luck in life and I love you Devon.
Yes I work fulltime. Unfortunately I was not able to stay home, but I have alot of support from my family who helps me with Devon. I have always been organized but I am especially organized with Devon's medications. At times it becomes overwhelming but you get used to it.
I'm curious too. Do they still do that therapy where you have to pound the kid's back and chest to break up the mucus or is that what the vest is for?
yes, the vest is an alternative to manual chest PT. Some people still prefer manual chest PT. There are plenty of other options for airway clearance as well...such as thera-a-pep, flutter, acapella, etc.
In some cases patients do have to use the vest as well as manual chest PT. I have had patients use both forms as well as a percussor. All of them, from what I am told, as well as what I have witnessed are quite uncomfortable for most, depending on how bad the mucous is. I love working with my CF patients and have developed a deep appreciation for what they go through.
We lost our daughter Traci Ann almost 3 years ago to C.F. We miss her dearly. People do need to be educated about this terrible disease. When Traci was in high school, they did not nor want to understand the severity of her disease. They failed her in EVERY class due to missing so much school. She would have been 20 on Feb. 02.....
We have posted a tribute video for her birthday here on YouTube. "RIP Traci Ann 1988-2005 Cystic Fibrosis" Good Luck to you & every family that has a member with C.F.
Sorry for your loss. I agree with you. People need to be educated about CF. I have found that people do not realize the severity of the disease or what these kids go through.
Sorry for your loss. I agree with you. People need to be educated about CF. I have found that people do not realize the severity of the disease or what these kids go through.
i'm sorry to hear about your friend...i too know someone who died young...but that's not always the case...i know people in their late 20s with CF who work really hard to be healthy and have a long life ahead of them.
I also have CF. Honestly, I have to say that I feel lucky in a way to have to deal with it. I'm stronger than many. It has helped me see that I can make it through tough times and the little things don't get me down. I'm a very positive person. I would wish this disease on no one, but at the same time, it has truly shaped me into what I think is an incredibly strong, level headed person, and I'm thankful for it.
i have cf so i know what that girl feels :(
morganmair 3 weeks ago
I wish her all the best . and thanx for explaining what is CF
noory106 3 weeks ago
eng.wavegenetic.ru
superhope03 2 months ago
Thank you for sharing Devon's story and giving me a better understanding of the disease. This documentary has helped me understand how to treat a child with this disease while I am studying to become a dietitian. I am praying for Devon.
sashlav04 3 months ago
Brief update on how Devon has been since this video was first uploaded. She is now 14 years old and just graduated 8th grade. This fall she starts high school at Delran. Health wise she has had her ups and downs but her positive attitude has outweighed the negatives. For anyone who has this terrible disease follow in the footsteps of Devon and realize one thing. This disease does not define the person. It is what that person does in the face of adversity that defines the person.
dennis10201 5 months ago 4
Wow, what a horrible disease. That's amazing that her and her family have been so on top of her diagnosis and treatment, I totally respect that.
Xadreos 5 months ago
I have Cystic Fibrosis. I think that it's so much easier to cope with when you keep a positive attitude.
TheHappyface789 6 months ago
Heya, im a person from ireland with CF and were doing a facebook event to raise awarness of Cystic Fibrosis and also to get a Guinness World Record, if ye all could join and spread the word it would be great. just type into facebook "make cystic fibrosis aware by trying to break a world record". All support would be very greatful
zackyv08 7 months ago
my 5 month old daughter has cystic fibrosis, she had 26 cm of her intestines tooken out for a intestinal malrotation. she weighs about 12lbs now and so far is doing fantastic. i hope they find a cure in her lifetime.
wickedfaerie242 7 months ago
I learnt two things from this video: gratitude and patience.
TheAnaRayAna 8 months ago
do you have any news about this child's current health? how is she doing now? she is very inspiring.
tragicdamsel 8 months ago
That is sooo sad!
merescan42 9 months ago
@hopeandwork How does a feeding tube do anything but help? I've had a G tube for most of my life and it does more good than bad? And how is pulmozyme poison lolol.....I've had pulmozyme for most of my life too and I do better with than without, it depends on the person.
Rits2111 9 months ago
My son is two years old and has cystic fibrosis. We are Orion's Army and are striving for a cure for cystic fibrosis. Please join us on facebook if your'e serious about helping to find a cure. Write to me if you're interested.
xchrisforbushx 10 months ago
DO NOT DO A FEEDING TUBE!!!! THAT WILL LEAD TO OTHER ISSUES... FEEL FREE TO CONTACT ME IF YOU HAVE ANY QUESTIONS... PULMOZYME IS ALSO A POISON.
hopeandwork 10 months ago
my brother is 28 years old and has CF . its the worst fucking disease out there .
XBreatheXMichelleX 10 months ago
@XBreatheXMichelleX My little guy has it. I agree. It's very difficult to deal with.
xchrisforbushx 10 months ago
How is Devon doing?
BrittneyL182 11 months ago
This has been flagged as spam show
stupid mothe fucker. they can't control thier genes. they should kill themselves
HaterzHere 11 months ago
@HaterzHere but in most cases, those parents don't know they have those genes. you should read a bit about biology and genes before you say that! actually, it's the system's fault, because it does not provide the necessary tests so that each and everyone of us knows one's genes.
tsampika911 11 months ago
love this please subscribe to my familys blogs our daughter has c/f our channel is about her and the rest of our family
ditalydo 1 year ago
love this
ditalydo 1 year ago
my 9 year old has it and ive recently found this social outlet for here there are vlogs about our home family if your intersted....love to see you! plz sub. im ditalydo
ditalydo 1 year ago
This has been flagged as spam show
RNpedia.com to know more about this..
rnpedia 1 year ago
hm
Eternal625 1 year ago
hi people, may i know....form those who are knowledgeable in CF...
does digestive enzymes prevent the indigestion problem...like no more constipation.and better absorbtion of fat soluble vitamins.
this is beacause,i think i have lived with cystic fibrosis.since yound, i have suffered from constipation and had respiratory problems.almost every week i have had to go for a 20 min long inhaler theraphy.where the substance expands my lungs...till today, constipation acne and breathe problems.
FaithandGod 1 year ago
@wasupitswill I have CFRD too, sorry only insulin helps.
RennanizedRen 1 year ago
This has been flagged as spam show
Hey everyone, I'm prescribed 240 80mg Oxycontin's and 180 2mg Xanax bars a month for my cystic fibrosis and am willing to help anybody out who is in pain and needs some meds for cheap but can't afford a doctor/medicine for whatever reason. I get them covered by my insurance but in the past have had to pay for it myself and know how expensive they can be! I have a lot leftover which I'm not using and would love to help a fellow pain patient out so send me a message if interested. Thanks...
Georgie2500 1 year ago
I really admire people with CF and their families, this video really touched me.
RickyPedia02 1 year ago
Help find a cure for this! GET FAMILIAR. Life expectancy av-30yrs. Lung transplants are not a cure. Raising awarness 4 funding research towards a cure is the only way. Get involved! This is such a rare genetic disease w/ only 70,000 cases the world over. The USgov provides little to no help to these families. If you are looking for a noble cause to get involved in u have found it in CF! I have never been so humbled, touched & motivated by anything in my life. B more alive & help & save lives!
Ryde4aCure2cf 1 year ago
what's her name?
avril9706pinkfan 1 year ago
i have cystic fibrosis, i curse at my life everyday. Taking hundreds of pills,having to be fed through a feeding tube. its a horrible way to live.
tyeb29 1 year ago
My brother has this ;/
darkridge123 1 year ago
My aunt and my sister has cystic fibrosis. my aunt just resently had a double lung transplant and she is doing very good now!
smittyguy710 1 year ago
i have cf and right now i am suffering from mono which for some reason is getting my lungs filled
20ravens 1 year ago
I am a computational scientist and cystic fibrosis researcher, let me say that I know there will be NO cure for CF until we learn how to COMPUTE complex biomolecular systems. No ability to compute, no cure, period. The good news is I've discovered just how this CAN be done! I am working to get this tech accepted in the scientific community so we can get down to curing this disease. If you want to learn how human genome project WILL lead to cures, visit my channel. I have an answer. God bless.
bonnarj7 1 year ago
A great way to get involved are the Great Strides fundraiser walks.
In Montreal 2009 we raised 120,000$ and in 2010 we raised 130 000$.
We made some Youtube videos, search for "Destination guerison"
My cousin has CF, and she's in her early 20's.
PriusDriver2006 1 year ago
Comment removed
PriusDriver2006 1 year ago
im 29 and have been diagnosed with CF from the age of 1. the one thing i can say to people here is dont let CF get u dwn, its something we must control and put up with but never let it dictate life!! those days when the lungs feel free, live life to the full, enjoy it! one thing ive noticed bout CF sufferers is that we all have the same smile on our faces, never let anything get us down! Im running a marathon in dublin in oct, if i can do it so can u!! Keep fighting and never give up!!!!
alanmooney147 1 year ago
Thank you so much for making this video! I am researching Cystic Fibrosis for school and this helped a lot! Great documentary, I loved it!
premiergirl17 1 year ago
I have also got CF, im 28 now and have lived with it from birth. Its possibly one of the hardest diseases to keep fighting all the time, but it CAN be done. I am a qualified ski instructor, personal trainer, and had a tennis scholarship to USA. The only advice i can give, is make your mind strong, keep pushing urself on a day to day basis, and try to stay calm and positive, no one actually has an EASY life, just different levels of difficulty!
wanderer911 1 year ago
This makes me wanna cry i thought i was the only one with Cystic fibrosis its hard im 13 me and my sister both have it, i go to the hospital alot
marinna205 1 year ago
I don't have CF, but my mom just died from it...I'm 11, so it's taking a while to get used too...I wish they'd find a cure fast...
Zeldafan771 1 year ago 3
@Zeldafan771 Sorry to hear that your mom died. Stay strong and I hope they find a cure fast.
MrsKevinJonas1187 1 year ago
i have CF i was admitted to HOP. The adult hospital of CHOP> Wonderful people (: We are strong people.
lauramarieeeex3 1 year ago
How the heck does she read at 3:43???
When I'm doing the vest, I can't read because I'm shaking so much. xD Instead i just play video games and watch tv.
1moe7 2 years ago
@1moe7 I am used to it. I read all the time and the shaking does not bother me.
MrsKevinJonas1187 1 year ago
I have CFRD (cf related diabetes) and am looking for a tablet instead of insulin - do you have any suggestions? I would be very thankfull if you helped me! - I'm 14
wasupitswill 2 years ago
I dont have CF but i am a senior in high school and i want to go to college to become a pulmonoligist who will specialze in CF. I think that this family lives me, since the mother has a gwynedd mercy swaetshirt on!!
Cheer22as 2 years ago
hello everyone i am 12, i have cf fr 10 years... it takes alot of time out of my life but i pull through... my sister in 10 and she has had it for her life so far... my oler brother is the only one without cf. we eat alot and go for check ups often, my uncle has cf and is 40-45 im not sure... he doe not use the vest. he isnt very health but h is pulling through. i weigh 125 pounds and my sis is 70 pounds. we find if we are on an angle it helps the mucuse flow out of us. KEEP FIGHTING CURS WILL B
jellyman18 2 years ago
how is that possible? it's genetic. you can't just "get it".
1moe7 2 years ago
i had it since i was borin but they didnt know til i was two
jellyman18 2 years ago
so you meant to say you were diagnosed at two...
1moe7 2 years ago
I'm 17 and I've had CF since I was a baby. Luckily I am healthy even though I do have to have check ups every 3 months. I also don't have trouble gaining weight anymore. I did when I was younger but not anymore =] I try to make my life as normal as possible and I can do mostly anything anyone else can do
kitkat141 2 years ago
I have CF didnt find out till i was 3years old. Now i am 17, CF stops me from doing more things than i would like but its life and im getting through it! I would not let my doctors give me the feeding tube tho, im in hospital 3times a year but i refuse to bring the pump home because i dont want my home feeling like a hospital bed. I am happy with my weight and i drink fat shakes to put the weight on...
DrunkIrishLepricorn 2 years ago
My mother is 58 with CF. My family almost lost her 7 years back before we had the vest. The vest and meds have extended her life. You just can't get as good of results from pounding on the back, as you can get with the vest.
The doc said she could not have children but she was able to have 2 and here i am. That was back in the 70's so Im glad to be alive.
Keep fighting and live healthy. There are more and more people getting to their 60's with CF.
meanoboy 2 years ago
i have CF i am 15 years old i survived the mexican flu (lucky me XD) and i freerun alot in my spare time and hang out with friends i would say do with your life what you want to do cause you might regret it later when you're older that you didnt do it
ah well hope they will make a cure for CF in 10-20 years (or shorter) i would cry out in tears cause of the hapiness cause that would be a medical miracle ;3
drawinglover112 2 years ago
i have cf and it was found out through a sweat test when i was 8 months now im 14 and have only had to go in 4 2 weeks 4 times and apart from little things am going strong! =)
HatzBoo 2 years ago
I have cf too... I am twelve years old and have done everything I can to stay healthy and I am. I have luckily only been ammited to the hospital once so far. I am also lucky that I am very capable of gaining weight. I actually want to lose some. I am five foot and I luckily weigh 125 lbs. Good luck with life. Stay strong. Be active. Love life. Be happy. Marc
mamaniles 2 years ago
I give my respect to her and all those fighters out there. I wish you all the best!
jeyarulz 2 years ago 9
This girl has a great outlook on life.. that is going to help her majorly. ;)
nessalu 2 years ago 6
My boyfriend has cf..I love him so much!!
TheMunchkin2012 2 years ago 2
man im not allowed to play sports because of my stupid cf =/
I lost like waaay to much weight and went to the hospital..again >>
wow i couldnt get a vest till last year =/ theyre sooo expensive!
good luck to her man
5ta46az3 2 years ago
My daughter is 7 and has CF. she is the love of my life and i pray every night that we find a cure.
instopa 2 years ago 3
i have cf...
had it all my life... wish i could afford the vest..:)
but ... be strong and positive little girl... life is hard ..but funny..:)
JokkerdelaMuerte 2 years ago 3
Thank you for an insightful look into the daily routine for a child with CF. My 8-week old daughter was diagnosed through an amnio at 17 weeks pregnant...we will begin breathing treatments this weekend and she's been on enzyme's since 2 weeks. I now have a better idea of my future and realize it's totally 'doable' - thank you! Stay strong Devin!
phillipsmrs 2 years ago
i'm 18 and got cf...they're working on a cure atm in my hospital and i'm really excited...i have really reactive airways and am usually really tight, so physio is a problem for me and so are all the mainstream nebs...so hopefully there'll be some new stuff soon =]
aislecheeks 2 years ago
she looks familiar where does she live, like city,state
PetLoverTreeHugger 2 years ago
i have cf and i do 5 nebulizers a day, 45 min treatments 2 times a day, and i take 36 pills on and average day. luckily i dont have a tube yet. I HATE GETTING UP SO EARLY.
PetLoverTreeHugger 2 years ago
I have cystic fibrosis, and I have to take 4 huge enzyme pills before each meal, do 2 nebulizer treatments every day (approx. 1 hour) and I eat like a horse and only weigh 100 pounds.
Stay strong, I am 13 years old, and I feel your pain.
kisska1112 2 years ago
My god I can't comprehend what you go through on a daily basis. The only way I can understand it is that I get strep throat sometimes (a virus stuck in my throat) when I travel or get the flu bug in winter and so I have to cough all the time to get that yucky mucus out. But other than that I don't know how you get through it every day for the rest of your life.
ekateri28 2 years ago 2
hay, we are pretty normal but we go through more than the usual person. its so hard to understand wat we got through with out having it. i didnt get diagnosed till i was 4 and i dont know i lived that long becuz that is have the average lifetime of a cf child before they cam uo with vest treatments. there is something at childrens hospitals where they can simulate the feelings and give u the treatments.
PetLoverTreeHugger 2 years ago
my half brother just died friday from complications after a lung transplant for his cf.
stinger223 2 years ago
3 year old sister is getting tested for CF next weed :(. watching this to find some info
MicLODsonKDYboxes 2 years ago
girl stay stronge don't worry i have it to.
its tuff but u can make it
cheritaylor6 2 years ago
I found a website that sells colloidal silver really inexpensive. Its double the product for half of the price. Check it out sacredcolloidalsilver (.com) When your looking for the answer...it's just a click away.
GodmadeSilver 2 years ago
my step sister recently passed away because of this i want to find a cure so nobody has to feel what i feel:(
killeroftheshadows96 2 years ago
sorry to hear that man about what age was she if you dont mind answering
911doomy 2 years ago
she was 15 and engaged
killeroftheshadows96 2 years ago
my sis has cf but she is fat dont u have to be little
sara9896 2 years ago
i love her spirit...
delude15 2 years ago
I wonder how much this girl weighs??? She looks pretty healthy. I dont know if a feeding tube is necessary... but maybe the feeding tube is why she looks healthy.
06braves 2 years ago
Well, on the bright side, one advantage to cystic fibrosis is a greater resistance to typhoid fever. :)
rollininoldstyle 2 years ago
Our Madison (8 YO) has CF. She is doing very well at this time. She is our inspiration like Devon.
DonaldPatin 2 years ago
i have Cystic Fibrosis :) this is awesome
jmacjr101 2 years ago
Devon rox!!!!
rrunkle 2 years ago
GoTimothy, you are an IDioT! Study the science instead of your own made up silly logic...
rrunkle 2 years ago
Comment removed
rrunkle 2 years ago
Thank you so much for sharing your story Devon.. to all those who live and have lived with CF - thanks for your contributions!
bacchus58 2 years ago
This movie helped me assemble a research paper about Cystic Fibrosis for my health class. In the meantime, it has made me realize the significant difficulties of this disease. Nice job!
Voldamorf 2 years ago 2
thank you for your comment. We're glad we could help ;)
JLHarvey85 2 years ago
This video is really well done! CF is such a heartbreaking disease, but the doctor mentioned a sparkle in Devon- I think that is true with many people facing such a hardship. My ex-girlfriend has CF and she is one of the most resilient, well-spirited people I have ever met. Hopefully medical advancements will make finding a cure a reality very soon, but until then- hang in there, Brittany! <3 And Devon, and everyone else with this- hope is on the way!
iamthenewwilde 2 years ago
some 1 in my science lesson fainted to this vid
ausomei 2 years ago
i have CF,i do all the treatments and the vest just like Devon.
twilightobsesser98 2 years ago
This has been flagged as spam show
God gives you thick mucus to get the toxic mold out of your lungs. Doctors are stupid. check your house for mold.
GoTimothy 2 years ago
I can't believe you go to all of these cf videos and post this crap.. You need to educate yourself on this disease before you post your "mold" diagnosis on this disease.
frannyj33 2 years ago
you have no idea what you are talking about. People are born with CF, they do not develop out of the blue from mold. We appreciate your comment though, thank you for the input.
JLHarvey85 2 years ago
where did this take place?
California?
sunnychick55 2 years ago
Delran, NJ
JLHarvey85 2 years ago
Delran, NJ
JLHarvey85 2 years ago
wow! Go Devon - what a darling :)
Jazziewazz 2 years ago
This comment has received too many negative votes show
wow! this is sad!! why cant they just give her multivitamins?
hoonathan 3 years ago
Multi-vitamins will not help her gain weight. She needs extra calories to gain weight. Any vitamins that are taken in excess ad are not needed by the body will be excreted in the urine. It would not help in her case.
19rabit87 2 years ago
Haha. Trust me it doesn't work. I have CF and all I do is pretty much do is add cheese and cream and other fatty things to all meals. IT would be nice if it was that easy though. :)
HollyMyGolly 2 years ago
My younger brother, age 24, was born with cf. He has had several surgeries and has been through several experimental treatments. My brother is an unusual case in the respect that he is fairly healthy. He grew to be over 6 feet tall. There really needs to be more research done on CF and the treatment of it, tho the medical community has come a long way since his birth.
trehuginhipee 3 years ago
My niece age 20 just passed away November 18 from Cystic Fibrosis. We need to work on finding a cure so that no family member has to go through what our family just went through watching her die. Let's get the word out that we need to keep working on finding a cure!
klb20052009 3 years ago 13
My sister has CF. She doesn't have a problem with eating or gaining weight, but I remember when she was first born, she had to have an eating tube, but she also does the vest. She usually doesn't mind doing her "treatments" because she knows she can play on the computer, watch TV, read a book...etc.
I just hope they do find a cure sometime in her lifetime.
musicluvver0013 3 years ago 3
Thank you so much for sharing Devon's story. I had no idea what CF was and how it was treated before I watched this video. You have a strong and beautiful little girl! I wish you the best!
jennercav98 3 years ago
For more information on cystic fibrosis, simply type in Gibson Vance promoting Cystic Fibrosis in your youtube search engine
beasleyallen 3 years ago
Thanks 4 This Video It Rly Helps ! 2gether Against CF :)
9mas9 3 years ago
I have a son that has CF. We are right now deciding if he needs a feeding tube. Thank you for this video it helps! All we do is talk about eating and how much he is eating. It is driving me nuts!
cfmom2000 3 years ago
I know how you feel. Before Devon got her feedking tube it was a constant fight to eat. I remember her nurse saying eating should not be a fight. It was probably one of the hardest decisions I ever had to make but she is thriving so much better with the tube and there are less fights. I am glad she got it. She looks great and has put weight on.
ninjagoalie03 3 years ago
How is your son doing?
JLHarvey85 2 years ago
I hate having Cystic Fibrosis......
penrod92 3 years ago
wow!!!!!!!!!would it hurt to put the tube in or sleep with it?
sammyxgoose 3 years ago
No you get used to it.
ninjagoalie03 3 years ago
The stomach tube?
Nah, I have one myself and I dont even feel it :)
I have to remember I have it sometimes haha
dime4bag 3 years ago
i cant because im in puerto rico in the central medical that was here the area that was for especially for the sweat test and everything for cf got cancelled and in puerto rico that was the only one ,do u think i should move to united states to get more medical atentions?
dalilalover1 3 years ago
sixty-five roses that kinda sounds like cystic fibrosis
cottoncandychic 3 years ago
Oh, and instead of the vest, she should use somthing called an "acapella". It makes less noise, and works a lot better and more efficiantly than a vest. and they look better! They come in different colors! Best of luck Devin! -Alex
highonlife1294 3 years ago
Devon does have the acapella. She only uses it when she sleeps over someones house or when we go on vacation. She likes it sometimes but has gotten use to the vest.
devonsdreamers1996 3 years ago
I havent even met her, but I already literly love her! I have a wicked cold right now, but I watched this and it may be more uncomfortable at times when compared to cf, but in the long run i would rather have a cold! I look forward to another video about her! pLease post one soon or i would be really sad!
highonlife1294 3 years ago
Devpn is an awesome kid. As you can see in the video she will do anything that she sets her mind to. CF will never get her down. As her mom I get my strength from Devon. She goes through so much everyday. She does not tell people about her CF because she wants people to like her for herself, not feel sorry for her. SHe is definitely an inspiration to everyone that knows her.
devonsdreamers1996 3 years ago
im 13 years old and i take all that stuff that i mentioned but i still have questions ive search internet but i cant undrstand why they say that people with cf have to have some pills about something of the calories or something like that???i dint took them but now im not skiny im fat because i dont do excersice but everyone say that the kids with cf dont have too much weight can u explain to me everything about it is that my parents told me i had the cf but dint explain to me wat is cf i dnt no
dalilalover1 3 years ago
I am not sure what pills you are talking about. Do you mean enzymes? Devon was skinny but that it because she always had problems putting on weight. She has a feeding tube that helps her put on weight. You should talk to your doctor or nurse about CF. They will be able to answer all your questions. You can even check with the social worker at the CF clinic where you go.
devonsdreamers1996 3 years ago
and i have asma too so i have to take the advair taking terapies and i have to use zantac every morning cuss i have digestive problems too..:(
dalilalover1 3 years ago
Devon does not have asthama but she also does advair. Devon has alot of the digestive problems. SHe takes zantac and other stomach medicines. She takes close to 30 pills a day, does 2 nebulizers and 2 inhalers every day.
devonsdreamers1996 3 years ago
i have cf too , its really hard u know having this condition i have to take 3 times a day pulmozine, tobi and a machine called ''the vest'' its hard with that machine sometimes i bleed through my nose and i always have pain somewhere in my body its really sad...:(
dalilalover1 3 years ago
CF is definitely hard. I do not go through what Devon does but as her mom my heart brakes for her everyday. Stay positive and keep up with your treatments and meds. The most important thing is never give up. When Devon does the vest she watches tv and tries to take her mind off it. Sometimes me and her will play cards or games during her vest therapy.
devonsdreamers1996 3 years ago
I was diagnosed with CF a year ago, I was 20 years old. I thank to people that all these years have been working on new treatments and improve the life of people with CF. I'm something of a sports freak, and I've been done an half-marathon a couple of years ago. I've done TOBI for one and a half years and colixin for 8 months. Now I only use Pneumosime and respiratory exercices, since my lungs no longer have pseudomonae colonies.
FuckUSAEmpire 3 years ago
good for you.. you keep fighting girl you will be ok
tearsforcoldplay 3 years ago
oh, and one thing about the eflow, if you are on tobi, you have to change to a thing called colinistian (sorry im a really bad speller)
iatemeatwad 3 years ago
ive always hated the vest, it vibrates me nose, and i cant stand it, but i currently use the pep, and im trying something called acapella, its like the pep mixed with the fludder (flutter?) and i use the eflow for nebulized treatments, and i strogly suggest getting an eflow if you can, its pretty convinieant... but yeah, im amazed at some of these younger kids with cf, with the great strength and strides they make, its very inspiring, and i feel very inadaquite???
iatemeatwad 3 years ago
Listen closely to what is being said from 8:50.
Do you think she would be that way without CF? No.
She is sets an example of strength for people around her. It would not be possible without CF. You should thank her for the sacrifice she does for you to accept to live with this disease. She should also understand how CF becomes a gift by thinking that it allows her to change people's life on a great scale. Just listening to the nurse, I'm sure that she has changed the way she sees life.
o0PinKFisH0o 3 years ago
Doing so will allow her not hope so much for a cure and it will allow her to accept that the purpose she has implies that she must have CF to fulfill it.
o0PinKFisH0o 3 years ago
their is a genetic treatment for this to temporaly cure the diseas but only endure about 6 months tiill all the healthy cell tssue dies
Blazerelf 3 years ago
My brother Jerry, my brother Benjamin, and my sister Rebecca all passed away from CF. Thank you for this video and Please, please please everyone donate to the cause of finding a cure.
tarzanDavidrocks 3 years ago 4
i have cf to i admire her so much
mlgfk 3 years ago
OMG thankyou sooooooo much for that information I am in year 8 and in health we had to choose a topic out of about 20 choices to start an assignment on and this video pretty much explains everything clearly to me. You are the best 5/5!
Slaying350 3 years ago
i hav cf im 12, i live life as well as possible, most ppl dnt even kno i hv cf
i take 40 pills a day
so physio
and my parents a SUPER CAUTIOUS
I KNO WAT ITS LIKE, JUS HOLD ON AND YOU WILL GET THROUGH IT
lifelovepeaceGP 3 years ago
I have CF aswell. It's tough to live with. I don't have the vests, or nebulisers(SP). My doctor says I am extrmeley fortunate in my symptems. Only thing I have to do is take my pills with my food. Not a single day goes by that I don't consider myself fortunate. When I was born my parents were told I may not make it past my 6th birthday. I'm 18 years old and play competetive Hockey. Everybody with CF, just be strong and keep fighting the good fight!
hockeyguy2107 3 years ago
I've actually never heard of someone with CF never having to do a breathing treatment... why do you only take enzymes??
JLHarvey85 3 years ago
I'm extremely fortunate. I do have CF, but it's not that bad for me. My lungs are as strong and clean as a normal person's. I do have a little more miucus than a normal person though, just not enough to need to do treatment. Could be due to the fact that as a kid, I always jumped on our trampoline. I did everyday for up to an hour a day, so that could have just doubled as fun, and as a treatment.
hockeyguy2107 3 years ago
exactly the same with me
do u do lung functions?
lifelovepeaceGP 3 years ago
i had a dream about me being a doctor and someone telling me she needs cystic fibrosis, and it had something to do with her intestines. who this woman was i dont know, what really freaks me out is the fact i had never heard the word cystic fibrosis until i had that dream. i thought maybe i had heard it on the tv, but when i woke up the tv was on mute. why am i telling you this? because this video explains to me what it is. it freaks me out when i have these type of dreams....
jmorris6758 3 years ago
i have CF nd i have my nebuliser exactly like she does bt i dont were the jacket..i hat ehaving it bt i have to live with it nd i hope everyone else out there with CF have a happy life. =]
AMZYnuls 3 years ago
I am having a son on monday who has been diagnosed with CF due to the abstruction in his intestines. Thank you for sharing this life with me, I am so very grateful.
anneeverett 3 years ago
Congratulations on the birth of your son. My daugther has more of the GI symptoms of CF and as you can see from the video is doing wonderful.
devonsdreamers1996 3 years ago
Congratulations on the birth of your son. My daugther has more of the GI symptoms of CF and as you can see from the video is doing wonderful.
devonsdreamers1996 3 years ago
dnt expect it to be as bad as this
jus take precautions with dirty water and otha dirty stuff
lifelovepeaceGP 3 years ago
If your child does have CF. Please, make him/her do ALOT of excersize, don't let your baby have any games consoles or anything of the sort. I have CF, and now I have gotten addicted to technology, and because of my mistake I am going to die young. I stop doing my treatments to do whatever on my console/computer. I am only 15, and doctors have predicted a couple of more years for me to live. Wish you the best of luck with your child.
beebogroll 3 years ago
hi thank you for making this video. It inspired me to make my own for my little girl. So thank you...'
Also to Devon my daughter Tori loves watching your video. She likes being able to see there are other kids like her. She is totally amazed that you play soccer with a g-tube.
krystalmike1999 3 years ago
To Tori, hi this is Devon's mom. Just wanted to let you know that Devon also has done cheerleading and just finished playing basketball. She does not let anything stop her from doing what she wants to do.
devonsdreamers1996 3 years ago
sport does so much gud!
lifelovepeaceGP 3 years ago
yup thats my life resumed in 10 minutes too.
stephmorin 3 years ago
The little girl in the video is my cousin. By the way she acts and being around her my whole life you would never know she has cf. Its tough seeing what she has been through but I believe it has made her stronger and I think she will live a long life because of the type of person she is. I wish you the best of luck in life and I love you Devon.
dennis10201 3 years ago
This was very helpful. I have two family members with CF
chieftalentofficer 3 years ago
WOW! Truly inspirational! Do you work (mom)? How do you keep everything so organized?
andreamattie79 4 years ago
Yes I work fulltime. Unfortunately I was not able to stay home, but I have alot of support from my family who helps me with Devon. I have always been organized but I am especially organized with Devon's medications. At times it becomes overwhelming but you get used to it.
devonsdreamers1996 3 years ago
i have cf and liver disease
Blahkishma 4 years ago
I'm curious too. Do they still do that therapy where you have to pound the kid's back and chest to break up the mucus or is that what the vest is for?
Muggle423 4 years ago
yes, the vest is an alternative to manual chest PT. Some people still prefer manual chest PT. There are plenty of other options for airway clearance as well...such as thera-a-pep, flutter, acapella, etc.
JLHarvey85 4 years ago
In some cases patients do have to use the vest as well as manual chest PT. I have had patients use both forms as well as a percussor. All of them, from what I am told, as well as what I have witnessed are quite uncomfortable for most, depending on how bad the mucous is. I love working with my CF patients and have developed a deep appreciation for what they go through.
ReggieMarie1 3 years ago
and also, is there a cure for C.F? sorry if im asking too many questions, im curious
zana120 4 years ago
Great Video...i have a question, i heard that when you have C.F, you have to take a pill whenever you eat something, is that true?
zana120 4 years ago
yea you have to take multiple pills called enzymes (Devon's mom mentions them) and NO, there's absolutely no cure for CF.
JLHarvey85 4 years ago
We lost our daughter Traci Ann almost 3 years ago to C.F. We miss her dearly. People do need to be educated about this terrible disease. When Traci was in high school, they did not nor want to understand the severity of her disease. They failed her in EVERY class due to missing so much school. She would have been 20 on Feb. 02.....
Maptcb 4 years ago
We have posted a tribute video for her birthday here on YouTube. "RIP Traci Ann 1988-2005 Cystic Fibrosis" Good Luck to you & every family that has a member with C.F.
Maptcb 4 years ago
Sorry for your loss. I agree with you. People need to be educated about CF. I have found that people do not realize the severity of the disease or what these kids go through.
devonsdreamers1996 3 years ago
Sorry for your loss. I agree with you. People need to be educated about CF. I have found that people do not realize the severity of the disease or what these kids go through.
devonsdreamers1996 3 years ago
also hes bowels were twisted :(
JayCantShuffle 4 years ago
my uncle had sixty c.f
he has passed away at the age of 18.
a lot of people get this disease that is caused in the lungs,
My uncle was losing them when he was on the waiting list for a new lung when he didnt make it.
When hes lungs collapsed
I wish everyone a happy long living life.
JayCantShuffle 4 years ago
ahh vitamin k :)
i take it on wednesdays and saturdays!
foolaroundtime 4 years ago
Im 15 and cf was diagnosed at may birth, but i feel very happy that i'm one of the cf persons, who have to live more than 30 years!
i wish everyone to live very long!!!!!
Trigadon65 4 years ago
Its very sad that she wont live very long my friend died at 16 if cf and i had no idea what she went through
beggo321 4 years ago
i'm sorry to hear about your friend...i too know someone who died young...but that's not always the case...i know people in their late 20s with CF who work really hard to be healthy and have a long life ahead of them.
JLHarvey85 4 years ago
I also have CF. Honestly, I have to say that I feel lucky in a way to have to deal with it. I'm stronger than many. It has helped me see that I can make it through tough times and the little things don't get me down. I'm a very positive person. I would wish this disease on no one, but at the same time, it has truly shaped me into what I think is an incredibly strong, level headed person, and I'm thankful for it.
gahitstoni 4 years ago