Added: 2 months ago
From: LeahBos
Views: 175
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  • Thanks for the comment. The whole plan was to spread awareness. I am unsure what type of condition I have. I lived a relatively normal life. Just doctors visit here and there.

  • My little girl has TSC Type 2. Its nice to hear from someone who lives with this disease. She is 8 yrs old & has had many problems with TSC because of the 4 tumors in her brain.

  • I have the Angiofibromas, Angiomylipomas and the ash leaf clouds. I am also getting the same treatment on my remaining kidney for the same reason.

    You might as well be describing my story. It is simillar

  • @mycatmollie So you were saying. Well I can defintely relate and good to know another person near home :) Thank you for your view.

  • Thank you missy. Love you guys x ;)

  • Thank you Tommy :) Your a great mate :D Thanks for my first comment.

  • really good video before i seen it i didn't even know Tuberous Sclerosis Complex existed.....

    education is the key to the door of understanding 

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