First of, there is only one i in "idiots." ,Mr. Pediatric expert, if you had read on, she had a Esophageal Atresia and a TE fistula (GI birth defect: her esophagus was not attached to her stomach), had surgeries and many complications leading to these difficult feedings which as you can imagine are just so much fun for us too...How interesting, looks who sounds like an idiot now?
@worldys My 8 month old actually has GERD (acid reflux). He spits up a lot, it has died down, but not as much as I thought it would by now. It's really hard for us to do a lot with him. It's hard to explain to other people that I, as a parent, am not lazy because I put my son in his play pen to lye down after every bottle or feeding, I have too, so he settles his food and doesn't puke. It is really hard, so I do see where you are coming from. And my son coughs a lot too, because the acid burns.
@aaalysssaaa Castalia is now 2yrs old and still on 30mg of prevacid so we are still dealing with it and still will for her whole life probably, it is just because from her surgery, her esophageal muscles are paralyzed in soem places and so it doesnt move probably. A lot of her food ends up it her nose which is also why she coughs. The best thing we did was to get her a wedge to sleep on (Tucker wedge and now COmfortlift) and kept her reclined at all times, she never had a stricture to date.
@worldys Well I do know how hard it is. It's very frustrating as a parent to deal with anything like this. It's really hard for me when people question my son and ask "why is he puking" "he spits up a lot" "you're feeding him to much". It gets very stressful, as I know I am doing everything competely right, it's just a medical condition that I cannot change. I bet you're both really strong from this though.
@aaalysssaaa I should have written, "there is only one i after the d in idiots", you are right. I was just so angry that here I am posting such a painful video to try to help others who might be in our shoes. I am dedicating my life trying to figure out what's going on with this baby who has a ton of health issues and that no doctor is able to help...So, i wasn't thinking straight. But yes, "technically" you are right.
@vouvoune I should have written, "there is only one i after the d in idiots." I was just so angry that here I am posting such a painful video to try to help others who might be in our shoes. I am dedicating my life trying to figure out what's going on with this baby who has a ton of health issues and that no doctor is able to help...
Thanks Castalia is doing great! Her TM is better too, her esophagus never needed to be dilated from her surgery. Shortly after this video she spent her first bday in the ICU in respiratory distress and the maximum setting. Havign had an NJ tube for 2 weeks cleared some chronic irritation and she stopped coughing during meals. She is 22mo now and she had another 2-3 weeks like that where she would have coughing spells on even a cookie and it was reflux. We increased her meds and it went away.
How is Castalia doing? My son, has Tracheobronchomalacia w/Innominate Artery Compression. He is doing very well on ATROVENT via nebulizer. Please talk to your baby's dr about it. Feeding were always a problem for my son too. It would take an hr to feed him a bottle.
There are great support groups on Facebook called "Bronchomalacia & Tracheomalacia Support Group" & "We Hate Tracheobronchomalacia" & "Coping With Laryngomalacia" plus on yahoo groups called "LMTM_Babies".
Thanks. She is MUCH better now (she is 17mo old) she still coughs every now. We saw MANY specialists including speech therapist. No one had an answer or anything to do about it. Speech therapy ended up telling us that it was not a ST issue and there was nothing she could do to help...so, we were on our own. She never had a pneumonia from aspirations and was gaining weight so a g tube was never considered.
Does she see a Speech and Language Pathologist for suggestions on feeding and swallowing? They are the experts on that. Honestly, I would almost be tempted to get her a G-tube, at least temporarily. If this occurs often for her after eating, I would want to prevent aspiration as much as possible.
FIrst of, I must say, this is not because of GERD and I wish people would read before making judgment calls. If you must know why we are trying to force her to drink it is because that is what is recommended for kids like her. She doesnt have a normal esophagus, it was not attached to her stomach at birth and had surgery to attach it. Now it doesn't work properly. Think about the esophagus as a tube and the muscle as your hand bringing the food down. Well hers, doesnt...continue
So sometimes if food particles gets stuck (either because of a narrowing of scar tissue or simply in a fold from the surgery, whatever the case, the only way to get it down is with a drink...
Ok, I have GERD myself, but I am 56 and i know what it's like when I have an "episode". I cannot imagine why you keep forcing her to drink when she is obviously having problems breathing and clearing her airway. She knows better than you because she keeps trying to push the bottle away and you keep forcing her to take more. LET HER CLEAR HER AIRWAY for pete's sake. Geez. I felt so awful for that poor little baby.
@jeannewinter they are trying to get her to drink to clear the food caught in her esophagus. Your esophagus contracts in a downward wave movement, and that moves the food into the stomach. This baby's esophagus isn't doing that properly and she can't get the food down without a liquid to slide it. Because the food is stuck she starts choking and produces a ton of mucus, the food/mucus gets breathed into her trachea causing her to struggle like that. They are doing what they should to help her.
well, she used to be like that at every meal, went to numerous doctors and no one could help us. You probably dont have a sick child then because taping their problems is key when you have to go to a doctor and show them what REALLY happens. She had birth defects, including her esophagus not attached to her stomach so her esophagus doesnt work properly and thats what we have to deal with...she is much better these days though
oh wow the baby sounds so aweful i think i wouldnt be recording this i would have the baby at the hospital sounding like this i hope she gets better soon
This sounds like Laryngomalacia. My son has Tracheobronchomalacia. LM is more duck-like sounding and TBM is more seal-like or croupy couching sounding. There are a couple great support groups on FaceBook and yahoo for malacia's it's called "Bronchomalacia & Tracheomalacia Support Group" and "We Hate Tracheobronchomalacia" plus yahoo groups is
health.groups.yahoo. com/group/ LMTM_ Babies/ (I put spaces in it so it would post). Hope that helps.
is the name dontbossme dela youtube account of a family with a child q has lasmismas caracteriticas child has bronciomala and name of the video is coughing nate bronchomalacia wing heart defect if you own the account you can talk to her about this subject
I had tears in my eyes watching this. I hope you find your way throuh this terrible ordeal. My heart goes out to you guys!!!
sethmeistergee 10 months ago
First of, there is only one i in "idiots." ,Mr. Pediatric expert, if you had read on, she had a Esophageal Atresia and a TE fistula (GI birth defect: her esophagus was not attached to her stomach), had surgeries and many complications leading to these difficult feedings which as you can imagine are just so much fun for us too...How interesting, looks who sounds like an idiot now?
vouvoune 1 year ago
@vouvoune Technically there is 2... just saying.
aaalysssaaa 10 months ago
Comment removed
worldys 10 months ago
@worldys My 8 month old actually has GERD (acid reflux). He spits up a lot, it has died down, but not as much as I thought it would by now. It's really hard for us to do a lot with him. It's hard to explain to other people that I, as a parent, am not lazy because I put my son in his play pen to lye down after every bottle or feeding, I have too, so he settles his food and doesn't puke. It is really hard, so I do see where you are coming from. And my son coughs a lot too, because the acid burns.
aaalysssaaa 10 months ago
Comment removed
worldys 10 months ago
@aaalysssaaa Castalia is now 2yrs old and still on 30mg of prevacid so we are still dealing with it and still will for her whole life probably, it is just because from her surgery, her esophageal muscles are paralyzed in soem places and so it doesnt move probably. A lot of her food ends up it her nose which is also why she coughs. The best thing we did was to get her a wedge to sleep on (Tucker wedge and now COmfortlift) and kept her reclined at all times, she never had a stricture to date.
worldys 10 months ago
@worldys Well I do know how hard it is. It's very frustrating as a parent to deal with anything like this. It's really hard for me when people question my son and ask "why is he puking" "he spits up a lot" "you're feeding him to much". It gets very stressful, as I know I am doing everything competely right, it's just a medical condition that I cannot change. I bet you're both really strong from this though.
aaalysssaaa 10 months ago
@aaalysssaaa I should have written, "there is only one i after the d in idiots", you are right. I was just so angry that here I am posting such a painful video to try to help others who might be in our shoes. I am dedicating my life trying to figure out what's going on with this baby who has a ton of health issues and that no doctor is able to help...So, i wasn't thinking straight. But yes, "technically" you are right.
vouvoune 10 months ago
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@vouvoune I should have written, "there is only one i after the d in idiots." I was just so angry that here I am posting such a painful video to try to help others who might be in our shoes. I am dedicating my life trying to figure out what's going on with this baby who has a ton of health issues and that no doctor is able to help...
worldys 10 months ago
what did you feed her you idiiots...
razu2444 1 year ago
Thanks Castalia is doing great! Her TM is better too, her esophagus never needed to be dilated from her surgery. Shortly after this video she spent her first bday in the ICU in respiratory distress and the maximum setting. Havign had an NJ tube for 2 weeks cleared some chronic irritation and she stopped coughing during meals. She is 22mo now and she had another 2-3 weeks like that where she would have coughing spells on even a cookie and it was reflux. We increased her meds and it went away.
worldys 1 year ago
How is Castalia doing? My son, has Tracheobronchomalacia w/Innominate Artery Compression. He is doing very well on ATROVENT via nebulizer. Please talk to your baby's dr about it. Feeding were always a problem for my son too. It would take an hr to feed him a bottle.
There are great support groups on Facebook called "Bronchomalacia & Tracheomalacia Support Group" & "We Hate Tracheobronchomalacia" & "Coping With Laryngomalacia" plus on yahoo groups called "LMTM_Babies".
3in38months 1 year ago
God, that sounded awful, poor little thing. But she's a beautiful baby. And may I say that is a beautiful house too.
hwuoahc 1 year ago
Thanks. She is MUCH better now (she is 17mo old) she still coughs every now. We saw MANY specialists including speech therapist. No one had an answer or anything to do about it. Speech therapy ended up telling us that it was not a ST issue and there was nothing she could do to help...so, we were on our own. She never had a pneumonia from aspirations and was gaining weight so a g tube was never considered.
worldys 1 year ago
Does she see a Speech and Language Pathologist for suggestions on feeding and swallowing? They are the experts on that. Honestly, I would almost be tempted to get her a G-tube, at least temporarily. If this occurs often for her after eating, I would want to prevent aspiration as much as possible.
Poor baby...my heart goes out to all of you.
lifescholar 1 year ago
FIrst of, I must say, this is not because of GERD and I wish people would read before making judgment calls. If you must know why we are trying to force her to drink it is because that is what is recommended for kids like her. She doesnt have a normal esophagus, it was not attached to her stomach at birth and had surgery to attach it. Now it doesn't work properly. Think about the esophagus as a tube and the muscle as your hand bringing the food down. Well hers, doesnt...continue
worldys 1 year ago
So sometimes if food particles gets stuck (either because of a narrowing of scar tissue or simply in a fold from the surgery, whatever the case, the only way to get it down is with a drink...
worldys 1 year ago
Ok, I have GERD myself, but I am 56 and i know what it's like when I have an "episode". I cannot imagine why you keep forcing her to drink when she is obviously having problems breathing and clearing her airway. She knows better than you because she keeps trying to push the bottle away and you keep forcing her to take more. LET HER CLEAR HER AIRWAY for pete's sake. Geez. I felt so awful for that poor little baby.
jeannewinter 1 year ago
@jeannewinter they are trying to get her to drink to clear the food caught in her esophagus. Your esophagus contracts in a downward wave movement, and that moves the food into the stomach. This baby's esophagus isn't doing that properly and she can't get the food down without a liquid to slide it. Because the food is stuck she starts choking and produces a ton of mucus, the food/mucus gets breathed into her trachea causing her to struggle like that. They are doing what they should to help her.
hrmfll 1 year ago
well, she used to be like that at every meal, went to numerous doctors and no one could help us. You probably dont have a sick child then because taping their problems is key when you have to go to a doctor and show them what REALLY happens. She had birth defects, including her esophagus not attached to her stomach so her esophagus doesnt work properly and thats what we have to deal with...she is much better these days though
worldys 1 year ago
oh wow the baby sounds so aweful i think i wouldnt be recording this i would have the baby at the hospital sounding like this i hope she gets better soon
maridentha 1 year ago
This sounds like Laryngomalacia. My son has Tracheobronchomalacia. LM is more duck-like sounding and TBM is more seal-like or croupy couching sounding. There are a couple great support groups on FaceBook and yahoo for malacia's it's called "Bronchomalacia & Tracheomalacia Support Group" and "We Hate Tracheobronchomalacia" plus yahoo groups is
health.groups.yahoo. com/group/ LMTM_ Babies/ (I put spaces in it so it would post). Hope that helps.
3in38months 1 year ago
is the name dontbossme dela youtube account of a family with a child q has lasmismas caracteriticas child has bronciomala and name of the video is coughing nate bronchomalacia wing heart defect if you own the account you can talk to her about this subject
6418458 2 years ago