My son has seizures, they look a lot like this. He had 2 negative EEG's. EEG's actually aren't able to show much unless she happens to be in a seizure or "fit" while they're doing the EEG.
Setting aside the disturbing nature of this, and I know it must be devastating as a parent - can I just tell you what a pretty little baby she is? Those sweet little cheeks, all that hair, she really is a beauty. You can see that past all the tubes and wires. Please give her an extra kiss from another mom out there. I wish you guys all the best (all the answers!!) in the world.
I'm crying and I can't help it. I have so much love for your wonderful child and I don't care what the anti-God people say, I bless beautiful baby Leah in the name of Jesus Christ. I pray for her complete healing and total restoration. Jesus, you were beaten for her healing, please heal her today. For your glory, amen.
Keep your prayers in church and put your faith in the real solution to this little girls awful affliction..medical sciences.
God doesnt come down from on high to save people.
People save people.
You "true believers" are missing the point..she would be dead already if it wasn't for Science....this being the case what makes you think your God gives a shit.
I truly hope she gets better...but I am not so daft as to think the solution to her problems are going to be acomplished by a bronze age idol.
@HeWhoAvoidsTheLight ...I claim to be agnostic. Friends say I'm atheist. If anything I'm a science nerd. With that said, prayer is the same as hope, faith, love & empathy & the 1 commonality they all share is positive thinking & being surrounded with positive thought has produced positive results in aiding or soothing an ache of some kind upon another or within ones self. It's a feel good thing. Medical science saves lives, but emotion drives that very inspiration.
My grandson was born with Terrets syndrome and Marie Tooth disease... He is 14 and has had various ever changing tics, or reactions. He has fluid on the brain stem that is drained off to relieve pressure if and when it becomes an issue. The symptoms are relieved by blood pressure meds. but his learning capacity is already reached. Ther is no help for students who score a 73 on IQ test. It must be below 70. God bless Leah, she is beautiful and I will pray for her
My grandson was born with Terrets syndrome and Marie Tooth disease... He is 14 and has had various ever changing tics, or reactions. He has fluid on the brain stem that is drained off to relieve pressure if and when it becomes an issue. The symptoms are relieved by blood pressure meds. but his learning capacity is already reached. Ther is no help for students who score a 73 on IQ test. It must be below 70. God bless Leah, she is beautiful and I will pray for her
Just to clarify, this "fit" she has, is NOT a seizure. This is part of her movement disorder that they cannot figure out what is causing it. but she's had 3 EEGs and no seizure activity has been revealed.
I am removing comments that are unnecessary, irrelevant, mean, rude or insulting to me or others
@franitube ... "Seizure" is being used in the same context as "fit" for lack of a better term. I find the negative EEGs interesting. If the hypothesis mentioned about REM is correct, then it's a normal behavior & may not register as abnormal in an EEG. It's like she goes into a catatonic state (perhaps better terms) and catatonic states are functions of REM.. Another known term is REM atonia. Curiously, has Parkinson's been considered? Parkinson's patients do experience REM disturbances.
We to have a baby with a rare disorder. The odds odds of him making it out of the delivery room alive were .02% He is now 2 1/2 months old through the power of prayer and a momma that refused to give up even when doctors told her to. We have had to go to the internet also for help and information. We pray for your Precious Leah. We pray for you that God may give you the strength you need to help her and may help be revealed to you. May Angels surround you and protect you. Amen
We to have a baby with a rare disorder. The odds odds of him making it out of the delivery room alive were .02% He is now 2 1/2 months old through the power of prayer and a momma that refused to give up even when doctors told her to. We have had to go to the internet also for help and information.
We pray for your Precious Leah. We pray for you that God may give you the strength you need to help her and may help be revealed to you. May Angels surround you and protect you. Amen
my grand has seizures the bible said Jesus healed them, and I prayed n prayed and he took weel to adavan or something like that and those 5 min ordeals were quieted . Some time he would seize for hours, Yes prayers are answered, with the hlp of meds and peace of mind for family
Heavenly Father PLEASE help this little baby doll!! She is so precious. PLEASE keep her and her parents wrapped in Your healing arms and give them all peace.
a beautiful angel ...May you find all she needs to discover her illness and make her better so she may come home and be with you. I will pray for her recovery....and your strength....and others generosity
Since 1981 I've been researching my own neural 'quirk' I was born with that produces hypnagogic and hypnopompic hallucinations, most of which are accompanied by a neural seizure if I happen to be in sleep paralysis at the moment while awake. Seizures are mild and uniformed from head to toe. Though may be a different condition, your daughter's seizures are uniformed and I think it indicates a very central disruption in the brain. I will send a message.
Please look into SPECIFIC UPPER CERVICAL CHIROPRACTIC to help your daughter and to stop these "fits". A good starting point for research is upcspine.com. Please update us after she gets the care she needs. The MD's will never give you this imperative information you need to help your daughter. I wish you the best =)
@jjgirlgemini I agree. My son has a seizure disorder. He's on Keppra for it, an anti-convulsive, for it. but it didn't really get under control until we started taking him for regular adjustments.
I hope she feels better soon. Thank you for sharing. Please stay strong.
magnetglue 8 months ago
My son has seizures, they look a lot like this. He had 2 negative EEG's. EEG's actually aren't able to show much unless she happens to be in a seizure or "fit" while they're doing the EEG.
o0katiekins0o 8 months ago
My heart breaks for Leah and your family. I sincerely hope the doctors can figure out what this disorder is and can treat it.
taniamorse85 8 months ago
Setting aside the disturbing nature of this, and I know it must be devastating as a parent - can I just tell you what a pretty little baby she is? Those sweet little cheeks, all that hair, she really is a beauty. You can see that past all the tubes and wires. Please give her an extra kiss from another mom out there. I wish you guys all the best (all the answers!!) in the world.
DaMom42 8 months ago
I'm crying and I can't help it. I have so much love for your wonderful child and I don't care what the anti-God people say, I bless beautiful baby Leah in the name of Jesus Christ. I pray for her complete healing and total restoration. Jesus, you were beaten for her healing, please heal her today. For your glory, amen.
TheRjjrjjr 8 months ago
Keep your prayers in church and put your faith in the real solution to this little girls awful affliction..medical sciences.
God doesnt come down from on high to save people.
People save people.
You "true believers" are missing the point..she would be dead already if it wasn't for Science....this being the case what makes you think your God gives a shit.
I truly hope she gets better...but I am not so daft as to think the solution to her problems are going to be acomplished by a bronze age idol.
HeWhoAvoidsTheLight 8 months ago
@HeWhoAvoidsTheLight ...I claim to be agnostic. Friends say I'm atheist. If anything I'm a science nerd. With that said, prayer is the same as hope, faith, love & empathy & the 1 commonality they all share is positive thinking & being surrounded with positive thought has produced positive results in aiding or soothing an ache of some kind upon another or within ones self. It's a feel good thing. Medical science saves lives, but emotion drives that very inspiration.
spydrworks 8 months ago 4
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My grandson was born with Terrets syndrome and Marie Tooth disease... He is 14 and has had various ever changing tics, or reactions. He has fluid on the brain stem that is drained off to relieve pressure if and when it becomes an issue. The symptoms are relieved by blood pressure meds. but his learning capacity is already reached. Ther is no help for students who score a 73 on IQ test. It must be below 70. God bless Leah, she is beautiful and I will pray for her
Kittycath03 8 months ago
My grandson was born with Terrets syndrome and Marie Tooth disease... He is 14 and has had various ever changing tics, or reactions. He has fluid on the brain stem that is drained off to relieve pressure if and when it becomes an issue. The symptoms are relieved by blood pressure meds. but his learning capacity is already reached. Ther is no help for students who score a 73 on IQ test. It must be below 70. God bless Leah, she is beautiful and I will pray for her
Kittycath03 8 months ago
Just to clarify, this "fit" she has, is NOT a seizure. This is part of her movement disorder that they cannot figure out what is causing it. but she's had 3 EEGs and no seizure activity has been revealed.
I am removing comments that are unnecessary, irrelevant, mean, rude or insulting to me or others
franitube 8 months ago 3
@franitube ... "Seizure" is being used in the same context as "fit" for lack of a better term. I find the negative EEGs interesting. If the hypothesis mentioned about REM is correct, then it's a normal behavior & may not register as abnormal in an EEG. It's like she goes into a catatonic state (perhaps better terms) and catatonic states are functions of REM.. Another known term is REM atonia. Curiously, has Parkinson's been considered? Parkinson's patients do experience REM disturbances.
spydrworks 8 months ago
We to have a baby with a rare disorder. The odds odds of him making it out of the delivery room alive were .02% He is now 2 1/2 months old through the power of prayer and a momma that refused to give up even when doctors told her to. We have had to go to the internet also for help and information. We pray for your Precious Leah. We pray for you that God may give you the strength you need to help her and may help be revealed to you. May Angels surround you and protect you. Amen
dammapam 8 months ago
We to have a baby with a rare disorder. The odds odds of him making it out of the delivery room alive were .02% He is now 2 1/2 months old through the power of prayer and a momma that refused to give up even when doctors told her to. We have had to go to the internet also for help and information.
We pray for your Precious Leah. We pray for you that God may give you the strength you need to help her and may help be revealed to you. May Angels surround you and protect you. Amen
dammapam 8 months ago
nova is a boy- pay him no mind
SuperGrider1 8 months ago
my grand has seizures the bible said Jesus healed them, and I prayed n prayed and he took weel to adavan or something like that and those 5 min ordeals were quieted . Some time he would seize for hours, Yes prayers are answered, with the hlp of meds and peace of mind for family
SuperGrider1 8 months ago
GOD BLESS this sweet child..this almost resembles an adult with Parkinson's disease but in an infant....
msloribee1 8 months ago
Heavenly Father PLEASE help this little baby doll!! She is so precious. PLEASE keep her and her parents wrapped in Your healing arms and give them all peace.
AMEN
casaunders48 8 months ago
Wow I didnt know /b/ had a heart. Good to see there is some decency left. Science will cure this kid. I assure you.
Voltec93 8 months ago
I came here to be a terrible person, but I can't.
I just can't.
That said, prayers do nothing. Science will.
mikehunterpunt 8 months ago
prayers aren't gonna do jack shit.
Conmanu123 8 months ago
omg she is so beautiful , everyone please pray for her and her parents , she is in my prayers .
SPARTANBOY03 8 months ago
God bless you, and may the prayers be answered for her cure!
hitanalady 8 months ago
a beautiful angel ...May you find all she needs to discover her illness and make her better so she may come home and be with you. I will pray for her recovery....and your strength....and others generosity
awnmoni4u 8 months ago
Awwwwwww :( I hope that they figure it out. This poor little angel.
zumbadivarenee 8 months ago
Since 1981 I've been researching my own neural 'quirk' I was born with that produces hypnagogic and hypnopompic hallucinations, most of which are accompanied by a neural seizure if I happen to be in sleep paralysis at the moment while awake. Seizures are mild and uniformed from head to toe. Though may be a different condition, your daughter's seizures are uniformed and I think it indicates a very central disruption in the brain. I will send a message.
spydrworks 8 months ago
What a beautiful little angel! My prayers go out to her and your family! God Bless you all. I hope she is ok.
TheMrsSquirrel 8 months ago
Prayers for this little princess and the family<3 Hope she gets better soon <3
lilmansmom26 8 months ago
Please look into SPECIFIC UPPER CERVICAL CHIROPRACTIC to help your daughter and to stop these "fits". A good starting point for research is upcspine.com. Please update us after she gets the care she needs. The MD's will never give you this imperative information you need to help your daughter. I wish you the best =)
jjgirlgemini 8 months ago 3
@jjgirlgemini I agree. My son has a seizure disorder. He's on Keppra for it, an anti-convulsive, for it. but it didn't really get under control until we started taking him for regular adjustments.
o0katiekins0o 8 months ago
She is so beautiful!
perrinsgamm 8 months ago
Omg... I'm praying
counterstep 8 months ago
40 doctors can't figure out help to help her...my heart goes out to you all. Prayers coming your way.
fayruzee 8 months ago
God can heal her! Bless her little heart. Pray pray pray. :)
lostclamman 8 months ago
my heart just goes out to this sweet little angel.
smlongiotti1 8 months ago
God Bless this sweet angel and I pray for strength for her parents.
ElizabethRoecker 8 months ago 8
I will say a prayer for her. G_D doesn't test the weak! It is amazing how you stay calm. G_D Bless.
Bsipper 8 months ago 2
Poor little thing. She is in my prayers
mrsanimal0lover 8 months ago
I hope she gets better she is in my prays
LegoFilmKid 8 months ago 2