my daughters name is also Ava(Ava Jaelea Grace) ans she also was born with full trisomy 18. we just celebrated her 1st b-day feb. 26. it's great to hear stories about other children doing well with trisomy 18.
Yes. They didn't know how much she would be affected until she was born (and of course told them they should consider terminating). A few heart problems they corrected with surgery, and one funny toe. So far so good :-) I have a new video to upload where she is standing, and cruising around, and she climbs up stairs with the railing now - 14 months old!
She is so cute. I wonder why there is such a difference between the regular T 18 and the mosaic. It is the same with Down's syndrome and DS mosaic. I am glad she is doing so well.
Thank you for sharing! So far baby Kyra is hanging in there and we are happy for everyday that we get. Hopefully she will be home soon, and doing as well as your Ava (who is a doll by the way) All the best!
Thank you, and I am sorry to hear about your cousin, that must be so hard. Ava is actually my friends' daughter. They have really been a beautiful inspiration to us.
Your video gives other parents with the same diagnosis hope. Keep it up. I wish we would have had access to videos like this when we got diagnosed. Ava is so beautiful!!!
She's adorable, and the music n background is awesome...adds an extra touch :P
monny287 2 years ago
congratulations, she is adorable.
grannyofxnl 3 years ago
she is too cute
BILLIEnAVA 3 years ago
my daughters name is also Ava(Ava Jaelea Grace) ans she also was born with full trisomy 18. we just celebrated her 1st b-day feb. 26. it's great to hear stories about other children doing well with trisomy 18.
BILLIEnAVA 3 years ago
She is beautiful! Does she have trisomy 18 mosaic?
kacisunset 4 years ago
Yes. They didn't know how much she would be affected until she was born (and of course told them they should consider terminating). A few heart problems they corrected with surgery, and one funny toe. So far so good :-) I have a new video to upload where she is standing, and cruising around, and she climbs up stairs with the railing now - 14 months old!
jadaveg 4 years ago
She is so cute. I wonder why there is such a difference between the regular T 18 and the mosaic. It is the same with Down's syndrome and DS mosaic. I am glad she is doing so well.
kacisunset 4 years ago
yes.now21/2 doing GREAT.....a miracle. Talking sentences, connnectedto people going to regular preschool...etc
audrynafziger 2 years ago
Ha-ha!! She looks so sweet! And she looks a little stunned! I think I would too if I was surrounded by all that love! What a beautiful family.
okeedokeesmokey 4 years ago
Ava gives inspiration and hope to man other families who have a family member with Trisomy 18. Thank you.
By the way, Ava is a VERY beautiful girl
foxxee14 4 years ago
Ava is beautiful!
yoohoo614 4 years ago
my beautiful granddaughter was born just 5 hours ago with Trisomy 18. So far she is hanging in there, your video gives me hope.
atomiconfusion 4 years ago
My prayers are with you and your family. Ava will be celebrating her 1st birthday this Saturday. There IS hope.
jadaveg 4 years ago
Thank you for sharing! So far baby Kyra is hanging in there and we are happy for everyday that we get. Hopefully she will be home soon, and doing as well as your Ava (who is a doll by the way) All the best!
atomiconfusion 4 years ago
She is a true Inspiration to me and my family. Ava has showed me that No matter what you can Beat the odss God Bless her and her Family
Mybabyfaith2005 4 years ago
good luck to your daughter. she is so pretty. my little cousin passed away 30 minutes before she was born from t 18. natalee age 7
bnbmiller3 4 years ago
Thank you, and I am sorry to hear about your cousin, that must be so hard. Ava is actually my friends' daughter. They have really been a beautiful inspiration to us.
jadaveg 4 years ago
She is too precious for words.
MissHailey 4 years ago
What a lovely little girl!
ubermom 4 years ago
Inviting my Western NY friends over to watch! :-) Sue
Momobride 4 years ago
Your video gives other parents with the same diagnosis hope. Keep it up. I wish we would have had access to videos like this when we got diagnosed. Ava is so beautiful!!!
angelleynasmommy 4 years ago