Thanks for writing. I have long been seeking a support group amongst people with dysarthria, but to no avail. I just learned that the ataxia community in seattle is very active, as you indicated in you post. And I do have ataxia. I need to keep muscles strong and exercised, but that doesn't mean they behave in a coordinated fashion, as you know first hand. Still,my neurologist tells me that is I don't use it, I lose it. And I've seen it to be true. The more you try, the closer you get. Thanks!
I have cerebellar Ataxia, I have severe walking gait, balance and co ordination loss and slurred speech. On the American Ataxia Networking support site our motto is use it or loss it, keep it up!
Thanks to all who commented - I am still in speech therapy and Toastmasters 15 months after this video was done. People know say I sound like I have a German accent, but I am much more understandable. Better an accent and sounding like a foreigner than slurring my words and sounding like a derelict drunk. It's a small promotion, but I 'll take it. Thanks for the words of encouragement, and the note about 100% recovery. It has been done before, and that is good to know!
Thanks for writing. I have long been seeking a support group amongst people with dysarthria, but to no avail. I just learned that the ataxia community in seattle is very active, as you indicated in you post. And I do have ataxia. I need to keep muscles strong and exercised, but that doesn't mean they behave in a coordinated fashion, as you know first hand. Still,my neurologist tells me that is I don't use it, I lose it. And I've seen it to be true. The more you try, the closer you get. Thanks!
344Alice 1 year ago
I have cerebellar Ataxia, I have severe walking gait, balance and co ordination loss and slurred speech. On the American Ataxia Networking support site our motto is use it or loss it, keep it up!
jace0362 1 year ago
Thanks to all who commented - I am still in speech therapy and Toastmasters 15 months after this video was done. People know say I sound like I have a German accent, but I am much more understandable. Better an accent and sounding like a foreigner than slurring my words and sounding like a derelict drunk. It's a small promotion, but I 'll take it. Thanks for the words of encouragement, and the note about 100% recovery. It has been done before, and that is good to know!
344Alice 1 year ago
Inspiring stuff
SebAGITATED 1 year ago
my wife had a cerebellar stroke, developed speech difficulty and recovered to 100 percent of her previous capability. keep the faith 344Alice.
turner3rentz 1 year ago
don't give up, you're doing awesome :)
vcarreon04 1 year ago
You've done a good job!! Keep it up!!
soniong 1 year ago
Good for you! Well spoken!
stickywithhoney 2 years ago