I have two SMA families that are the same age as your son Nate. one has a boy and the other has a girl the age difference can't be more then a year.
"Dancing in his power wheelchair"
by shylae13
"Sophia Dances to Sleeping Beauty"
"Audrey teaches ballet to Sophia and Mary Kate"
by rer3family
your type of lift would help Sophias parents backs they are lifting her whos as big as Nate, Maybe sending your video they may not realize their is a better way.
He has a genetic neuromuscular disorder called Spinal Muscular Atrophy. It affects all his voluntary muscles. His mind and cognitive skills are normal.
Thank you! We built our house especially for Nate. It's handicap accessible everywhere, and it's one story. Lizzy is amazing! Prayers and hugs to you!
We live in Oklahoma. Nate had symptoms of SMA (which is genetic) at about 2-3 months old. He was diagnosed when he was 5 months old. He did without equipment and still ate by mouth until he lost his swallow at 7 months old and ended up getting a mickey button/g-tube and had aspiration pneumonia at the same time. Then he started using the bi-pap and all of the other machines he is on now. I'm sorry about your grandmother ALS and SMA are very similiar diseases.
Neat video, love your lift that must be nice. My daughter is almost 4 and we still have to carry her. She just had hip surgery and hopefully it will allow us to get her back in her stander after a year or so of not fitting in it! This video makes me long for the day she will get to stand up and be tall again.
Nathan seems to like to stand. He is so adorable I loved when he rolled his eyes at his brother.
Yes, that was his PulseOx beeping when the connection had been lost. We were switching him to the portable PulseOx and just unplugged the probe before hitting the Mute button. He wasn't in distress or any trouble. Thanks for asking!
hes so cute
ChineseFirework 7 months ago
You parents worked as a great tean, Nathan is so lucky to have you both as his parent. Nathan look like he enjoyed,
walkingdan 1 year ago
Does Nathan get to go to MD Camp for Kids with SMA and MD
Nathan Is A Sweet Boy
You Are Wonderful Parents
larbacmc1 1 year ago
how old is nate now?
falco6789 2 years ago
He is 6 years old.
rer3family 2 years ago
These few videos of Nate just fill my heart. I wish Nate and his wonderful family all the best. May God bless you all.
xanadu77 2 years ago
Thank you so much for your kind words!! God Bless you as well!
rer3family 2 years ago
RER3FAMILY
I have two SMA families that are the same age as your son Nate. one has a boy and the other has a girl the age difference can't be more then a year.
"Dancing in his power wheelchair"
by shylae13
"Sophia Dances to Sleeping Beauty"
"Audrey teaches ballet to Sophia and Mary Kate"
by rer3family
your type of lift would help Sophias parents backs they are lifting her whos as big as Nate, Maybe sending your video they may not realize their is a better way.
just trying to help
TheLarbacmc 2 years ago
Thank you for these videos! I will be in touch with them.
rer3family 2 years ago
whats a pappy
MaddieTights13 2 years ago
It's a nickname for his bi-pap. It helps him breathe. He has it on in a lot of the videos.
rer3family 2 years ago
what happen to him?
videolver2 3 years ago
He has a genetic neuromuscular disorder called Spinal Muscular Atrophy. It affects all his voluntary muscles. His mind and cognitive skills are normal.
rer3family 3 years ago
I am impressed with your home. Wow the house is just great. We have an upstairs and its hard sometimes but we do it.
Good job Nate!!
red542000 3 years ago
Thank you! We built our house especially for Nate. It's handicap accessible everywhere, and it's one story. Lizzy is amazing! Prayers and hugs to you!
rer3family 3 years ago
May I ask what state you live in, it looks like arizona or california or navada or texas somewhere in the south.
May I ask when Nate started to be ill, was he ever well or is Spinal Muscular Atrophy.
I lost a family member to a MDA illness AL
larbacmc 2 years ago
We live in Oklahoma. Nate had symptoms of SMA (which is genetic) at about 2-3 months old. He was diagnosed when he was 5 months old. He did without equipment and still ate by mouth until he lost his swallow at 7 months old and ended up getting a mickey button/g-tube and had aspiration pneumonia at the same time. Then he started using the bi-pap and all of the other machines he is on now. I'm sorry about your grandmother ALS and SMA are very similiar diseases.
rer3family 2 years ago
Thank you
I hope you don't mind me asking this ?
How much did the power wheelchiar,
the stander, the bi pap, the power lift,
the portable lift, the machines he needs?
I know the goverment or state are not helping . You are wonderful parents
Nate is a beautiful child.
larbacmc 2 years ago
Neat video, love your lift that must be nice. My daughter is almost 4 and we still have to carry her. She just had hip surgery and hopefully it will allow us to get her back in her stander after a year or so of not fitting in it! This video makes me long for the day she will get to stand up and be tall again.
Nathan seems to like to stand. He is so adorable I loved when he rolled his eyes at his brother.
Momoftwinsplus1 3 years ago
how old is he?
cassiecancer501 3 years ago
He's 5 1/2 years old.
rer3family 3 years ago
Way to go, Nate!!!!! You're amazing! Love ya, MJ & Brenda
B4SMA 3 years ago
What was that beep on 3:38?
Just curious.
Was that his Ohmeda pulse oximeter?
1992peter 3 years ago
Yes, that was his PulseOx beeping when the connection had been lost. We were switching him to the portable PulseOx and just unplugged the probe before hitting the Mute button. He wasn't in distress or any trouble. Thanks for asking!
rer3family 3 years ago
Gotta question.
U think u cd do a video of you taking us on a tour of some of the machines that help him?
That way, we all know what keeps your baby Cute, and well.
GOD BLESS.
1992peter 3 years ago
WHAT AN AMAZING BOY.
MAY GOD BLESS YOU AND KEEP YOU IN HIS OUTSTRECHED ARMS.
Peter
1992peter 3 years ago