My Typical Home Dialysis Day

[lilbuddygurl]

Well for me the kidney failure and dialysis was all to quick so i couldnt be nervous or anxious or any of that...my dialysis was done with a catheter on my chest so it was easier to do everyting but it did annoy me having them there!! and my diet i had well they restricted things for me to but i didnt listen i ate whatever i wanted to eat and im latina so i ate good food..lol...and all my labs and stuff came out normal...but then again it could possibly be because im young now have a transplant

[staraction]

and the diet that i am on. It just sucks! i can't eat my favorite food beause of the sodium and all that. i can't eat pasta, pizza, things that makes me happy even french fries. everything is saltless. It makes me just sad but the thing that botheres me the most is not sleeping well and the hurting and burning when i pee. :-(

but in the other hand i am so freaking scared. I even had dreams about my arm being completely deformed once the surgery is done. But i know that it will be good for me

[Gustine]

Any updates? Let us know...Thanks

[staraction]

next month i am getting a surgery on my left arm to have a minitube install connected to my veins so the dialysis is easier

[Gustine]

Oh okay, I believe that's a Graft? Or did Doc say Fistula? Either way we hope it goes all well..prayers to you and your family. Keep us updated.

[staraction]

i thnk is a fistula. he said that the dialysis will be less painful once that is done. i will be on dialysis 3x a week but they are waiting until my Disability kicks in though. Last week, i got the card for my medicaid so, that means that i am on disability now and my doc told me that next month will be the surgery.

In one hand, i am totally excited about it because well, i can get better. I am so tired of feeling dizzy, headaches, loss of appetite, hurting and burning when i pee and all.

[Gustine]

Ah okay, a fistula is the best choice and hope it turns out well for you.

I know what you mean about the tiredness, dizziness and loss of appetite. If you try to keep a low protein diet you may feel a bit better till you start dialysis. Try also keeping eating less high potassium foods. Hang in there!

[GRASSHOPPERandBEAR]

My mom is on dialysis now for the 2nd time. She got a kidney transplant a couple years ago. BUt turned out she was Allergic to the meds they gave her after words. so they kinda started killing it slowly. She had for a little over year and then it died last June. So she is back on it.

I filled out some application's now im waiting for them to call me to get tested too see if im a match so i can give her one of mine now

[Gustine]

Interesting, I've only had one transplanted kidney, lost it at almost 3 years. Since then has been only Hemo-Dialysis.

Wish you luck and hope your Mom gets well. If interested on doing home dialysis let me know, would be glad to assist and inform further.

[staraction]

Hey gus, Does it hurt getting dialysis? I asked this because i got chronic kidney diease and i was born with conjoint kidney symdrome my two kidneys are fused together and one of them is not working pretty much sick and the sizes of a penny. and the one that sorta works well...only works 20%, i talked to my specialist if i can get another way to fix this without dialysis and i was on cellcept 500, protonix and other meds but the last test shows i will have to go on dialysis..i am pretty scared

[Gustine]

If you get early preparation and education about dialysis and of course your access like a fistula then the pain level goes down alot. The initiation of dialysis can be hard, but that all goes down within time. If you learn to use buttonhole needling method then that will hurt way less than using sharp needles. On the other hand, your health care team will do their best that you have a comfortable dialysis, so no reason to fear.

[staraction]

I got the latest update, i still on the same diet but also i can't have anything that has phosphorous either. like biscuits, nuts, organ meats, no milk anymore. Which also sucks because i love my fruit loops in the mornings but the the that upsets me the most is Cheese...i love cheese! lol. Anyhow, the great part about this is that my disability came through. I got my medicaid card and on the 14th of Aug is gonna be my catheter on my left wirst. i am scared but looking forward to it.

[Gustine]

Yes, its hard with such a strict diet. I think if you switch to daily-short dialysis or Nocturnal your diet will be better. You say a cathetor on left wrist or you mean fistula?

[staraction]

i thought it was the same thing. lol. either way i am pretty scared of this man. I remember my Nephrologist telling me that once the catheter is done, once dialysis starts then i won't be sting by needles at all.

[Gustine]

Oh no, there's different dialysis access types...I believe he meant a chest cathetor or the graft on your left wrist.... I will pose some educationl videos soon on my blog so you can learn more about it.

[staraction]

i just got a called by comfirming the appointment. I am pretty scared. sigh. My sister and my boyfriend are coming with me. so, i have emotional support. by the way, it is not a chest cathetor. anyhow, wish me luck. I am gonna ask him when i will start dialysis..if i have to wait until the thing heals (which i am pretty sure it will)

[Gustine]

It's normal to be feel anxious but try not to. Your in good hands and they will help as much as they can. Once you start dialysis you will start feeling much better again. Good luck on the procedure. We'll be praying for you...

[staraction]

thanks Gus. Sigh, i don't think i will be able to sleep tonight. My boyfriend says the same thing as you do that things will be alright and he is praying for me as well.

[patientspride]

Funny video- nice music. For an extra clean room, talk to your medical team about getting a hepa air filter. It's great if you have animals. I personally think PD is great compared to hemo, but of course, it always depends upon your lifestyle. I know people on PD that ballroom dance, cheerlead, dogsled, etc. Oh yeah, cute dogs!!

[angieskidney]

Your videos are always so informative!

[achtungbobby160281]

Hi. I'm on dialysis as I write now. Haemo, in a hospital. I'm 26 and have been doing it for about a year. It's ruining my life, I always feel so tired and sick. I need a fransplant

[Gustine]

I think, if you switch to daily-short at home you will feel alot alot better, alot stronger, and be able to keep your job.

[slackerdude8]

im with you dude! i hate hemo dialysis. if you can switch to PD/PERITONEAL DIALYSIS. its a bit more responsiblity. but its more gentle on the body. good luck on the transplant! hey gus id like to ask you a few questions. i, too, am on dialysis.

[Gustine]

Hello slackerdude8,

a few questions? So your on dialysis too?

[roussel81]

hi there! im on dialysis too. im a Filipina nurse but i got sick while in Cork. i hope we all get well soon..

[Fergus1967]

Thanks for publicising life on dialysis. I started hemodialysis at the end of 1985, transplant from my father from 1990-1997, a few months of peritoneal then back on hemo since the end of '97.

[prunepower]

Hey there. I'm 25 and on dialysis... I was born with one kidney which was too small. I'll be on dialysis until either my kidney gets better, or until I get a transplant. Good Luck!

[prunepower]

oops- scratch that. the kidney's dead. now onto a transplant..

[roussel81]

hi there! im 26 and im on hemodialysis too.. im waiting for a transplant as well. I'm with you!

[staraction]

i am going to be your age on the 17th of this month. This Sunday, lol.

[bsmiller05]

i was on dialysis, thankfully, for only 2 months while waiting to receive one of my dad's kidneys this past november. best of luck to everyone on dialysis

[villilja]

Hi !

I have been in dialysis myself. I got one of my husbands kidneys in january 2006. Good luck !

[vett86]

I know you more stars that 5....I think I pushed the wrong button and gave only 2 or so stars the last time! my mistake! Yeah you do know me...I live down the street from you and work at nigth with your sister. I love your mom and dad...they are good people.And your sister is a jewel. Take care: Miss Mary~

[Gustine]

I'd be darn, well hey! I knew I had a gut feeling...isn't that magical? I really appreciate stopping by here, you just got to know my very private part of of my life! Take care!

[spennyj33]

hey ya im on dyalisis too!

[Gustine]

Oh really? Are you in-center or at home?

[spennyj33]

im at home doin peritoneal dyalisis

[aminakoyum]

gus and his 2 nurses lol cool video man. good luck with h.d. candidate for a transplant?

[Gustine]

I am on the list, not as easy a most people think....the waiting can nearly take forever!

[vett86]

this was so interesting and thank you for sharing part of your life with us. You should be commended for what you have to go through everyday. May God Bless You....Mary and Ray

[Gustine]

Thanks for posting! I have a gut feeling I may know you...hehe