Living with Multiple Sclerosis - Emotions and Nuedexta

[stuart1959]

BTW - LAUREN - I am proud to see you giving this message-- 

[laurenvparrott]

@stuart1959 Thank you! I will look at your blog!

[stuart1959]

I will be posting this video, because f it's importance, to my blog : Stu's Views and MS News", today (Feb 10,2012) and it will appear in our next e-newsletter. If you are reading this and not yet registered to receive our weekly e-journals, then visit our website to register: MSViewsandNews  (dot) org --

HELP ME to education the world!!

[Bigbully0110]

Hi Lauren, Has the Tysabri helped with the drop foot.

[ephemerous]

oh yeah... klonopin will definately easy up the unnecesssary emotions...keep ya calm.

[laurenvparrott]

@ephemerous Yes, it really helps calm me down!

[vasarabodas]

I´m so glad you are feeling better. I´ve been followring you since I was diagnosed and I´ve kind of got attached to you. Be strong and happy! Yoy are such a good role model for everyone with ms.

[AWDESIGNS8]

hi girl sometimes i cry too and laugh for no reason how about you

[mzimmerman12]

MS is not a disease. It's toxemia and weak adrenals/kidneys plays a roll. Switch to a high fruit (or all fruit for a while)100% raw diet and watch the changes happen as you detox your body. Also search Robert Morse ND Multiple Sclerosis Testimonial .You just have to get that lymphatic system of yours moving acids out of the body. Throw the Allopathic thought of "disease" out the window. Remove the cause "what you put in your mouth" and the body will remove the symptoms. Good Luck!

[RODEMOM77]

Thank you for posting this video...I am a big ole ball bag! I wrote the name of this medicine down to discuss with dr! Thanks again!

[nobogeys72]

Wow! I'm glad to hear that there may be help to these emotional outbursts. Sometimes I find myself crying for no apparent reason. It can be very embarrassing, especially being a 6'8" tall 53 year old man! My wife and son are getting used to it, but strangers and others not so much! I'll be sure to ask my doctor about it during my next appt. Thank you so much for taking the time to make these videos.

[laurenvparrott]

@nobogeys72 I am so glad that this may be able to help you!! I really hope it works. Please keep me posted!!

[Danalle100]

HI Lauren,

I am sooo glad the new med is working soo well for you! It is always so comforting to watch your videos, thank you for everything you do for all of us! Take Care, God Bless you!

Danalle

[lifter09100]

You're not absorbing your food well enough to assimilate the neurotransmitters precursors which give you energy. I would suggest testing neurotransmitters and a full hormone panel including growth hormone levels via an igf-1 test. While these stimulants may temporarily help, the existing problem is hormonal most likely. Your eyes are drooping - these drugs are a bandaid.

[TheKyleecow]

Something that I noticed is my right hand locks up for a couple seconds, but only occasionally. And sometimes, my insides will start shaking. It's like the inside of my body is cold and shivering(It's not cold, just an example). And my outsides are just fine. Even though my dad says that it happens to everyone and says I'm just chicken. I'm not so sure since he said everyone has MS, which isn't true in the slightest. So I thought I might ask you if it has anything to do with MS. Is it a relapse?

[TheKyleecow]

Hello again, I got my blood test results back and everything was in a normal range and I don't have any problems, no thyroid or diabetes, low cholesterol. So I am going to see if I can get an appointment soon to get scanned. If I ever have any questions or need any sympathy, I'll definitely come to you! You're always so nice, and you're pretty too! By the way, I never told you my name! My name is Eden. :)

[rvquilter83]

You have the prettiest smile and you are such an inspiration. Your videos have helped me understand so much about MS. I sure pray they find a cure soon. God Bless you.

[laurenvparrott]

@rvquilter83 That is so sweet! Thank you! God Bless you!!

[d21rich]

Hi Lauren, long time no see. How many Tysabri infusions are you up to now?

My next is #40 and it feels like I've been living in this 28 day routine forever.

[laurenvparrott]

@d21rich Hey! I've had 50 infusions. I know, I can't believe how long it's been already!

[crazyjenny1]

can i kiss you?



[laurenvparrott]

@crazyjenny1 Awww, that's so cute! Sure! Where are you?

[dragonflywhisperer1]

You are always such an inspiration, trying to help us all through this disease.

[laurenvparrott]

@dragonflywhisperer1 You are so sweet, thank you!!

[rezaganjavi]

I heard that it also works for MS neuropathic pain. A new trial is starting this year but in the past trials I believe it was observed that it works for that as well.

[laurenvparrott]

@rezaganjavi Oh wow, I haven't heard that!!

[rezaganjavi]

Lauren. Thank you so much for taking the time to share your story. I'm so glad you found this wonderful medication and that it's helping you. God bless.

[laurenvparrott]

@rezaganjavi Thank you for your comment!! God Bless!!

[scifiak]

Lauren, Welcome back, you've been missed. I'm very glad to hear that Nuedexta has been a heaven for you. I've heard about these emotional symptoms for MS Patients, but haven't met one yet, thanks for sharing your experience.

Oh, btw, you're wonderful, don't ever change. - Ian

Ciao!

[laurenvparrott]

@scifiak Hi Ian! Oh my gosh you are so sweet!! Thank you so much! Ciao!

[bebic08]

You are the best! Thank you very very much! Great that you dont have any side effects, hope you stay well! I love fall too and the winter when its snowing but only if its not so cold ;-) best wishes, sandra

[laurenvparrott]

@bebic08 Hi Sanra! Aww, thank you so much!  I wish you the very best!!

[ninamyhua]

hmmm! take what ever you can help!! i use to cry alot befor i found out that i have ms!! everything made me sad and mad!! i thought myself to have a black heart! by having a black heart i just dont care about what people say to me or about me! but care about who helping me and help me forget about my ms!!

[laurenvparrott]

@ninamyhua I hope you are doing well!! I wish you the best!

[omarshawky84]

I wanna thank u 4enriching and u sharing ur ms symptoms with us all. I wanna know is depression for a day included in the psuedo-bulbar effect we patients get or not??

[laurenvparrott]

@omarshawky84 Oh no problem! I want to help others! I don't think depression is a part of the pseudo-bulbae effect, but it is a side effect of the disease.

[zsuzska92160]

Great to see you back, and so happy!! Hugs, Susie

[laurenvparrott]

@zsuzska92160 Thank you so much Susie!! Great to hear from you!

[magikmarc1]

We (Barb and I) are glad you are back.... I really need to start making more videos myself!

I'm not going to talk about any bad stuff you are going/went through, just concentrate on the good stuff! If you need an ear, feel free to vent!

[laurenvparrott]

@magikmarc1 Aww, thank you! Yes, make videos!! Oh my gosh you are so sweet - thank you for the support!!

[magikmarc1]

@laurenvparrott Shhh, don't tell my wife about me being sweet, she will start expecting me to be sweet all the time! haha

[laurenvparrott]

@magikmarc1 HAHAHA that is hillarious!!

[ChucknMcNuggets]

See a hypnotist for your symptom.. DO NOT TAKE A PILL. They all create other side effects. Your own mind and how you program it is the greatest weapon against MS.

[laurenvparrott]

@ChucknMcNuggets I've tried different things, but my emotions were incrediibly out of control. This is what works for me - it's not for everyone, but it works for me!

[mark13728]

I bet you have CUTE flagilence! LOL! (The side effects of the new meds!)

[laurenvparrott]

@mark13728 HAHAHA! That's hilarious!! I'm so glad I don't have that side effect - I was nervous!!

[MSVlogSupport]

Glad that you found something to help! Nice to see a new video from you and on such a great topic!

Hugs,

Andrea

[laurenvparrott]

@MSVlogSupport Hi Andrea! Thank you so much!! xoxo

[goldfeatherable]

dear lauren :)

i'm sorry for not writing in so long as i have been in hospital because of a massive attack and i could only move my eyes.now i'm much better albeit much much weaker.i'm so happy for you that the nuedexta is so beneficial and helping you with the psuedo-bulbar effect.truely amazing.i'm praying for you as always,and send you lots of hugs,prayers,love and cheering smiles :) :) :)

[laurenvparrott]

@goldfeatherable Oh my gosh, I'm so sorry to hear about your attack! But I'm so glad you're much better now. Thank you for your caring about me - I'll be praying for you as well!! Sending lots of hugs, prayers, love and smiles back to you!!

[vbeachy]

Glad you are doing much better Lauren! It is great to see a video from you!

[laurenvparrott]

@vbeachy Thanks Vern!!

[vrocavesna]

Wow :) nice to hear that. I do that crying and laughing stuff too, but I fell much much better as then when I was a mind and emotion control freak. I when to very good therapist, he helped me alot, and I was only going like over a year, on 2 months apart.

Now I'm chaning my life, I cry lot less and laugh much more, more happy more everyhing, still taking Tysabri and Nexium (for stomach troubles), but otherwise I'm just great :)

Thx for sharing the news :)

Namaste.

[laurenvparrott]

@vrocavesna Hey Namaste! I'm so glad that your therapist helped you a lot! It sounds like you're doing great and that is so wonderful! I wish you continued success!!

[BWAY24]

Lauren....another informative video. You mentioned you have dropped foot, do you wear a brace or AFO? Do you take any medication for your foot?

[laurenvparrott]

@BWAY24 Thank you! No, I don't wear a brace or AFO. I don't take medication for it either, but I know that medications are available for it. I hope you're doing well!

[laurenvparrott]

@argylesock74 Oh wow, I know what you mean. Hopefully your neurologist will give the best advice!

[lectricgenius]

You know what-- I cannot cry any longer since being dx with MS, believe it or not!

[laurenvparrott]

@lectricgenius Oh my gosh! I've never heard that! I hope you're doing well!

[lectricgenius]

@laurenvparrott I'm doing just fine here thank u.

[mark13827056]

Thank you so much for your videos! You make me laug,cry, & educate! And I hope you do well with your new meds! PLEASE don't be offended about what I'm about to say: I JUST LOVE YOU, LAUREN! Thank you sooo much for being there!

[laurenvparrott]

@mark13827056 You are so sweet!! Thank you so much!

[mark13827056]

@laurenvparrott Thank you, Lauren! 

[WithCourage2008]

Interesting video, Lauren! Thank AGAIN for the Provigil advice! It has saved my life!!! It is AWESOME!!!!!!! I have a question for you. Do you take 200 mg or 100mg? I am taking 100mg, but am thinking about moving up to 200mg.

[laurenvparrott]

@WithCourage2008 Hey!! I am so glad that Provigil has been so helpful for you! I take 100 mg a day, but I have also thought about taking 200 mg. If you do, please let me know!

[h0mer37]

You're bonkers in a very good way :-)

[laurenvparrott]

@h0mer37 Hahaha that's awesome! Thanks!

[navymuret]

Glad you got on this medication, Lauren! Great story too....I guess you like being the little experimenter, huh! Well glad to see you doing well....don't be sorry for not making more videos.....we know you are super busy with school and work. You take it easy, bella. God bless and Ciao!

Andy

[laurenvparrott]

@navymuret Hi Andy!! Thank you! Yeah, I have been experimenting!! I haven't taken ANY medication since I was diagnosed and these meds really seem to be helping! You are so sweet - thank you for understanding my schedule! I hope you are doing well! How is your wife??? Ciao and God Bless!

[MegaSweetMagic]

Good morning, princess. You will be OK. Oreo and I say say prayers. oreo good boy and says meowie.

[laurenvparrott]

@MegaSweetMagic Thank you! I'm so glad to hear from you and Oreo!!!