Hey lovely. I'm sorry to hear that some of your problems seem to be getting worse rather than better. I have had similar experiences with tysabri, some things seem a bit better sometimes, but others are definately worse. I seem to have to call my neurologist every month with new things so I can sign the form before my infusion. Very frustrating. But hang in there. Your brain has an amazing capacity to rewire itself, and it will. Amanda.
I am so sorry that I took so long to answer you but since I made this video, things have gotten worse for me and many more problems have arrived. I am sorry to read about your experience with Tysabri. I feel the same way: some things have improved but some have gotten worse. Thanks for sharing your experience with me. I hope that we can both hang in there and make it through another month :)
I wish you a very Merry Christmas and a Happy New Year.
Cara Angela,io l'inglese lo capisco così così, però ho capito abbastanza e io ti faccio tanti auguri e sappi che tutti noi amici ,siamo sempre al tuo fianco!
ho fatto un video in Italiano che e`vicino a questo sulla pagina del mio canale!
Sei gentile a venire a vedere questo qui dove parlo in inglese, ma tu non devi farlo se sai di non potermi capire! Cerca di vedere quelli che faccio in italino cosi`mi capirai meglio! :)
Grazie degli auguri che mi fai e che, come sai, contraccambio con affetto. Spero tanto che tu e la tua famiglia possiate passare un bellissimo Natale!
Cara Angela,io cerco comunque di seguirti, sia in italiano, sia in inglese. Io farò sempre del mio meglio per farti tantissimi auguri di una pronta guarigione ,anche in cinese se potessi;-)
Hi Angela, I'm happy that things will start going in the right way ... (I think). You look very calm and quiet, moreover, also very beautiful! I wish you all the happiness in the world and hope you do not drop EVER. Your friend Roby :))*****
ma lo sai che non sapevo che tu parli un po`d'inglese?
Allora lo faccio anche io con te, quindi!
You are so sweet and I thank you so much for the compliments (hai visto che muscoletti che mi sono fatta??? ah ah!) and I thank you so much for the wishes.
Spero che tu avrai un bellissimo Natale e che l'Anno Nuovo portera`a te e alla tua famiglia tante belle cose,
Yes - the cognitive stuff is terrible! This is the most disabling of my symptoms. I don't attribute it to my Tysabri though - seemed to have this before I started it. Nothing worse than having a conversation and halfway through having to ask the person to repeat everything they had just said! Frustrating for sure. Thanks for sharing Angela. Kerri xo
Hi Kerri! I saw your videos today and I am so glad that you are feeling better!
I so don't like the cognitive stuff!!! It makes me feel like I am so dumb and I know that I am not! I have to do ask people to say things twice because I forgot what they just said or because I didn't understand what they said! I never had this before and I can definitely say that this has gotten much worse for me in the past year. My husband is the first one to say this! :)
God bless you for your steadfast courage throughout.You fight with this disease but at the same time you fight for the lives of others.With your videos you are helping so many people in ways you could never know.Every video,every information from you is a hope for others,you make them feel that they are not alone in this fight,telling them your experience.I hope that all the good you've done and,all the love you've given return to you.
I'm sending lots of love to you,May God give you strength!
will you ever be able to know how much I appreciate your kind words and your wonderful support? Every time you write to me, you find a way to touch me and to give me more strengh!
Thanks, dear Cristina. Just like I said in the Italian videos, it's wonderful to know that healthy people like you are interested in listening to my words and my experiences! I appreciate your friendship soooo much!
Thank you for the wishes. I hope you will have a very Merry Christmas!
Maybe, we don't talk about it because most people are not aware of this and because, in my case I have so many other things to talk about!
I don't think that are not afraid to mention it. Personally, I don't know enough about it because I pay attention to other types of research and I wouldn't be able to explain the process well. I like to talk about what I feel and how the medicine works (and doesn't) work for me.
cognitive issues are really frustrating. I fnd that I have periods where I forget the key word in a sentence. I remember what it means and which letter it begins with, but I can't remember the word for the life of me. Ten minutes later when I don't need it, it's back. Very frustrating (and has turned me into someone who writes everything down at work).
I'm glad you have so much energy to work on all your projects. Great to see another video!
Thank you for the video. I see that you are up late too. I am so confused a lot of the time. I am glad that you are there to show that I am not alone in this fight.
Yes, we are up until late quite often!!! I was getting ready to answer to your e-mail and I was uploading the latest news to the facebook page :)
I love doing what I am doing and it's never a problem for me to find the energy to do these things. I am lucky to have all the energy I need, but I do have the cognitive problems that I really don't like!
Hey lovely. I'm sorry to hear that some of your problems seem to be getting worse rather than better. I have had similar experiences with tysabri, some things seem a bit better sometimes, but others are definately worse. I seem to have to call my neurologist every month with new things so I can sign the form before my infusion. Very frustrating. But hang in there. Your brain has an amazing capacity to rewire itself, and it will. Amanda.
missalgernon 2 years ago
Hi Amanda,
I am so sorry that I took so long to answer you but since I made this video, things have gotten worse for me and many more problems have arrived. I am sorry to read about your experience with Tysabri. I feel the same way: some things have improved but some have gotten worse. Thanks for sharing your experience with me. I hope that we can both hang in there and make it through another month :)
I wish you a very Merry Christmas and a Happy New Year.
Best wishes,
Angela
angelusa73 2 years ago
Cara Angela,io l'inglese lo capisco così così, però ho capito abbastanza e io ti faccio tanti auguri e sappi che tutti noi amici ,siamo sempre al tuo fianco!
Bruno
beppobel 2 years ago
Carissimo Bruno,
ho fatto un video in Italiano che e`vicino a questo sulla pagina del mio canale!
Sei gentile a venire a vedere questo qui dove parlo in inglese, ma tu non devi farlo se sai di non potermi capire! Cerca di vedere quelli che faccio in italino cosi`mi capirai meglio! :)
Grazie degli auguri che mi fai e che, come sai, contraccambio con affetto. Spero tanto che tu e la tua famiglia possiate passare un bellissimo Natale!
Un bacio,
Angela
angelusa73 2 years ago
Cara Angela,io cerco comunque di seguirti, sia in italiano, sia in inglese. Io farò sempre del mio meglio per farti tantissimi auguri di una pronta guarigione ,anche in cinese se potessi;-)
Un caro saluto.Tuo amico
*****
Bruno
beppobel 2 years ago
Hi Angela, I'm happy that things will start going in the right way ... (I think). You look very calm and quiet, moreover, also very beautiful! I wish you all the happiness in the world and hope you do not drop EVER. Your friend Roby :))*****
Roobert33 2 years ago
Carissimo Roberto,
ma lo sai che non sapevo che tu parli un po`d'inglese?
Allora lo faccio anche io con te, quindi!
You are so sweet and I thank you so much for the compliments (hai visto che muscoletti che mi sono fatta??? ah ah!) and I thank you so much for the wishes.
Spero che tu avrai un bellissimo Natale e che l'Anno Nuovo portera`a te e alla tua famiglia tante belle cose,
buone feste,
con affetto
Angela
angelusa73 2 years ago
Yes - the cognitive stuff is terrible! This is the most disabling of my symptoms. I don't attribute it to my Tysabri though - seemed to have this before I started it. Nothing worse than having a conversation and halfway through having to ask the person to repeat everything they had just said! Frustrating for sure. Thanks for sharing Angela. Kerri xo
kezzcass 2 years ago
Hi Kerri! I saw your videos today and I am so glad that you are feeling better!
I so don't like the cognitive stuff!!! It makes me feel like I am so dumb and I know that I am not! I have to do ask people to say things twice because I forgot what they just said or because I didn't understand what they said! I never had this before and I can definitely say that this has gotten much worse for me in the past year. My husband is the first one to say this! :)
Take care and have a Merry Christmas!
angelusa73 2 years ago
Dear Angela. Thanks for your honesty in this video! I'm sorry that you're dealing with the cognitive problems. I hope they resolve for you.
Merry Christmas and Happy New Year!
sandywatts500 2 years ago
Dear Susan,
thank you for appreciating my honesty! :)
I am hoping that the cranial work I do will help me in some way just like it helped me in many others.
I realize that things can always be worse...but I admit that this is very hard for me because I need to use my mind to do with work :)
Have a wonderful Holiday Season and take good care,
hugs
Angela
angelusa73 2 years ago
God bless you for your steadfast courage throughout.You fight with this disease but at the same time you fight for the lives of others.With your videos you are helping so many people in ways you could never know.Every video,every information from you is a hope for others,you make them feel that they are not alone in this fight,telling them your experience.I hope that all the good you've done and,all the love you've given return to you.
I'm sending lots of love to you,May God give you strength!
cristinadreamer 2 years ago 2
Dear Cristina,
will you ever be able to know how much I appreciate your kind words and your wonderful support? Every time you write to me, you find a way to touch me and to give me more strengh!
Thanks, dear Cristina. Just like I said in the Italian videos, it's wonderful to know that healthy people like you are interested in listening to my words and my experiences! I appreciate your friendship soooo much!
Thank you for the wishes. I hope you will have a very Merry Christmas!
warm hugs
angelusa73 2 years ago
This has been flagged as spam show
Perché tutti su Tysabri ha paura di dire che aiuta a ottenere cellule staminali piunel suo flusso di sangue?
wendell3308 2 years ago
Perché tutti su Tysabri ha paura di dire che aiuta a ottenere cellule staminali piunel suo flusso di sangue?
wendell3308 2 years ago
You can write in English, if you would like :)
Maybe, we don't talk about it because most people are not aware of this and because, in my case I have so many other things to talk about!
I don't think that are not afraid to mention it. Personally, I don't know enough about it because I pay attention to other types of research and I wouldn't be able to explain the process well. I like to talk about what I feel and how the medicine works (and doesn't) work for me.
Thanks for the comment!
hugs
angelusa73 2 years ago
Dolci baci cara angela tvtb gugu
06gugu06 2 years ago
Grazie Guru!
Ti auguro di passare una buona Domenica,
un bacio,
Angela
angelusa73 2 years ago
Hi Angela,
cognitive issues are really frustrating. I fnd that I have periods where I forget the key word in a sentence. I remember what it means and which letter it begins with, but I can't remember the word for the life of me. Ten minutes later when I don't need it, it's back. Very frustrating (and has turned me into someone who writes everything down at work).
I'm glad you have so much energy to work on all your projects. Great to see another video!
H
13Harms 2 years ago
Thank you, dear Harmony! It's good to write to you and to keep in touch the way we do! :)
I read that you know quite well what I am talking about...it's not fun, right?
Cognitive problems are really not fun at all and I can't wait for them to leave me alone!!!!
You can understand my frustration! and I am like you: I write everything down too, more than ever.
About the many projects that I am doing, everything is going very well and I am so happy that people love flowers and cards!
Ciao!
angelusa73 2 years ago
Hi Angela,
Thank you for the video. I see that you are up late too. I am so confused a lot of the time. I am glad that you are there to show that I am not alone in this fight.
Take care,
Bill
tazscott14 2 years ago
Ciao Bill!
Yes, we are up until late quite often!!! I was getting ready to answer to your e-mail and I was uploading the latest news to the facebook page :)
I love doing what I am doing and it's never a problem for me to find the energy to do these things. I am lucky to have all the energy I need, but I do have the cognitive problems that I really don't like!
I am sure you know how I feel :)
Take care and thanks for writing,
hugs
Angela
angelusa73 2 years ago